is it time to quit?

[Guest guest]

Can you just clarify if Diflucan, sacc. boulardi, IGg200, LGlutamine,

LCarnosine and caprilic acid are SCD legal?

Are Sacc. boulardi and SCDophilus the same thing?

My daughter has yeast issues, resulting in ball like stools, not

joined together. I have followed the constipation protocol and can

say that she now goes to the bathroom every day but still her stools

are ball like,as above, just softer. Her stools have been ball like a

very long time, more than a year.

I give her stewed, pureed prunes every day. Couold that cause more

yeast? (I have reduced the fruit and honey intake)I make nut yoghurt

for her and give her a muffin also.

I have ensured she gets s. boulardi on an empty stomach, aswell as

IGg200 and L Glutamine. We give her caprilic acid at bedtime and

diflucan with her meal. Two days after introducing diflucan she had a

regular stool.

The following day, it was ball like, but formed into a " snake " as my

daughter described it.

I saw no difference in food, supplements etc, and so I'm wondering

why this happened?

She is very OCD. We tried antibiotics but it made no difference, and

so we stopped.(about 10 weeks ago) Any idea what could help OCD also.

Sorry to ask so amny questions. We have been doing the diet nearly 2

years, and we still have yeast issues. We are using a DAn doctor, and

seeing very little progress. We're wondering if all the work is worth

it? We feel very overwhelmed by the work, especially as we get no

help and have 2 teenage boys. We're trying to assess whether it is

worth continuing.

I'm seeing the DAN doctor the 21st Nov, but so many times he advises

me to continue with things that are not SCD legal. I feel he has also

exhausted his options.- We are chelating, and still seeing high

levels of lead after about 8 months. Our daughter seems to have an

excellent memory, but struggles speaking grammatically correct and

articulates very poorly. Academically she is at kindergarten level,

even though she is 10years old. We have been doing DAN for 2 and a

half years, done HBOT, chelate and the diet and supplements.

Apart from my two original questions, any ideas as to haow to move

her forward? Anything we're not doing? Anything we should stop?

I feel like we have reached the end, but I can't give up on her, yet

I don't know what else to do(we're praying very hard for her... the

only thing left- even though we have always prayed..)

Thanks,

, mum to AMy 10, SCD nearly 2 years.

[Guest guest]

You might want to look into the Vitamin K protocol as far as the poor

speaking and OCD are concerned. Many of the parents on that reported

increased language, including myself. My 5 year old became quite

suddenly more articulate when we started the protocol. Many also have

reported some improvement with OCD behaviors. The fish oils and levels

of A and D on this protocol have really proved beneficial to the

healing of both myself and my kids overall. Just a note though, to

stay truly SCD legal do not use the recommended probiotic, VSL#3, as

it contains illegal strains. There are many SCD parents doing this

protocol. This protocol and SCD work very well together.

Their yahoo group:

http://health.groups.yahoo.com/group/VitaminK/?yguid=246205815

Sorry, I can't offer any advice for the ongoing constipation balls.

K

Dayton, Ohio, USA

SCD since June 2006, redid intro June 2007

Myself and 2 kids are SCD, hubby is finally and ever so slowly

transitioning to it. Conditions we are treating successfully with SCD:

Hashimoto's Thyroiditis (autoimmune), Chronic Fatigue Syndrome,

Fibromyalgia, Rheumatoid Arthritis, leaky gut, IBS, ADD, ADHD, chronic

diarrhea, yeast/candida, and salicylate intolerance.

" All diseases begin in the gut " - Hypocrites (460-370 BC)

>

> Can you just clarify if Diflucan, sacc. boulardi, IGg200, LGlutamine,

> LCarnosine and caprilic acid are SCD legal?

>

> Are Sacc. boulardi and SCDophilus the same thing?

>

> My daughter has yeast issues, resulting in ball like stools, not

> joined together. I have followed the constipation protocol and can

> say that she now goes to the bathroom every day but still her stools

> are ball like,as above, just softer. Her stools have been ball like a

> very long time, more than a year.

>

> I give her stewed, pureed prunes every day. Couold that cause more

> yeast? (I have reduced the fruit and honey intake)I make nut yoghurt

> for her and give her a muffin also.

>

> I have ensured she gets s. boulardi on an empty stomach, aswell as

> IGg200 and L Glutamine. We give her caprilic acid at bedtime and

> diflucan with her meal. Two days after introducing diflucan she had a

> regular stool.

>

> The following day, it was ball like, but formed into a " snake " as my

> daughter described it.

>

> I saw no difference in food, supplements etc, and so I'm wondering

> why this happened?

>

> She is very OCD. We tried antibiotics but it made no difference, and

> so we stopped.(about 10 weeks ago) Any idea what could help OCD also.

>

> Sorry to ask so amny questions. We have been doing the diet nearly 2

> years, and we still have yeast issues. We are using a DAn doctor, and

> seeing very little progress. We're wondering if all the work is worth

> it? We feel very overwhelmed by the work, especially as we get no

> help and have 2 teenage boys. We're trying to assess whether it is

> worth continuing.

> I'm seeing the DAN doctor the 21st Nov, but so many times he advises

> me to continue with things that are not SCD legal. I feel he has also

> exhausted his options.- We are chelating, and still seeing high

> levels of lead after about 8 months. Our daughter seems to have an

> excellent memory, but struggles speaking grammatically correct and

> articulates very poorly. Academically she is at kindergarten level,

> even though she is 10years old. We have been doing DAN for 2 and a

> half years, done HBOT, chelate and the diet and supplements.

>

> Apart from my two original questions, any ideas as to haow to move

> her forward? Anything we're not doing? Anything we should stop?

>

> I feel like we have reached the end, but I can't give up on her, yet

> I don't know what else to do(we're praying very hard for her... the

> only thing left- even though we have always prayed..)

>

> Thanks,

> , mum to AMy 10, SCD nearly 2 years.

>

[Guest guest]

,

Did you read this section of our website?

http://www.pecanbread.com/new/Improvethediet.htm

Please pay attention to the comments about chelation because that

might be the thing that is preventing gut healing:

" Please be aware that the damage to the stomach from chelation may

sometimes prevent gut healing. If you do not see progress with

SCD,then please take a chelation break and discontinue chelation for

several months. Many parents report that they get better results with

chelation after doing SCD. Some parents report that they get better

results with SCD without DMSA. "

What are you feeding your daughter?

Are the veggies and fruit cooked, peeled and seeded?

Did you start out with the intro diet and try new foods gradually?

Any manufactured foods?

Supplements?

Mimi

[Guest guest]

>

> ,

>

> Did you read this section of our website?

>

> http://www.pecanbread.com/new/Improvethediet.htm

>

> Please pay attention to the comments about chelation because that

> might be the thing that is preventing gut healing:

>

> " Please be aware that the damage to the stomach from chelation may

> sometimes prevent gut healing. If you do not see progress with

> SCD,then please take a chelation break and discontinue chelation for

> several months. Many parents report that they get better results

with

> chelation after doing SCD. Some parents report that they get better

> results with SCD without DMSA. "

>

> What are you feeding your daughter?

> Are the veggies and fruit cooked, peeled and seeded?

> Did you start out with the intro diet and try new foods gradually?

>

> Any manufactured foods?

> Supplements?

>

> Mimi

>

Thanks for the advise.

We checked Amy's Vit K levels and she seems OK, so I assumed it

wasn't necessary to do the Vit K protocol. Am I wrong to assume that?

Amy has done two lots of chelation. She started both after beginning

SCD. The first was for mercury. Her levels are now down. The second,

which she started in Feb was for lead, with EDTA. Her levels are

still HIGH. If we stopped, would that not also delay the overall

recovery, or would it be balanced by the progress made from SCD?

I checked the site already, and have eliminated peanut butter goods,

reduced honey and fruit. I did wonder about chelation, and was going

to raise it in Nov with my Dan doctor.

Yes we did the intro diet and introduced foods slowly. I have to say

that was the most stressful part of the diet for me as I struggled

determining whether reactions were food, school or tired related. I

may have misread the signs.

She has no manufactured goods, and the supplements are all legal(if

the ones listed above ar legal). I know the others are.

Is there anyone out there who could give me more advise about Vit K

protocol? I never transfer easily to new diets. What is expected?

What do I feed her. I know of the site, but as I'm visual and

practical, if someone were to give me an example of a typical day

with food and supplements and times to be given etc, i would learn a

lot faster.

Thank you.

,

Mum to Amy, 10 autistic.

[Guest guest]

Hi, ,

The Vitamin K protocol has a lot more to it than your level of

vitamin K. Tamaro who is developing it sees an inability

to process calcium correctly as a major issue with kids on the

spectrum. She tells us that the calcium moves around in the body

causing neurons to fire in the brain and it gets bound up in oxalate

crystals and stored in various organs where it should not be. One of

the places the oxalate crystals accumulate is in the kidney tubules.

You may not be able to chelate effectively unless you get these

cleared out. Obviously you have chelated the mercury effectively, so

this might not be your daughter's issue.

Still, chelation is very hard on the gut and allows yeast to really

multiply. You may not be able to solve the constipation while you

are chelating. You may not be able to get rid of the yeast.

The chelation will go better and take less of a toll if you take a

break and get the gut in better shape.

The Vitamin K protocol calls for doing SCD. So your foods would not

change. The supplements are listed clearly in the file " Vitamin K

protocol, " posted on that list. But to really understand, you need

to monitor the list for a couple of months. It is really too complex

to explain here.

I'm not sure your daughter's gut is ready for the Vitamin K protocol,

but you could go to the list and start learning about it.

Mimi and I really think you need a chelation break.

mom to -12

SCD 4/23/04

[Guest guest]

, there is a yahoo group for the vit K protocol. It is set up

just like this group, only for the vit K protocol. Lots of friendly

advice there. I would pop over there and ask your questions.

http://health.groups.yahoo.com/group/VitaminK/?yguid=246205815

On the vit K protocol there are no diet changes, although many choose

to do SCD along with it. The supplements include high vitamin cod

liver oil for the high amounts of vit A and D that our kids need and

vit K2 (which is different than vit K, so testing vit K levels will

not tell you about vit K2 levels). It is a fairly easy protocol as far

as keeping track of what you need to do daily. For us right now, we

take one drop of K2 with breakfast, and we take 2 teaspoons of high

vitamin cod liver oil with breakfast. It is important to start with

just the high vitamin cod liver oil for a while to get the levels up

before starting the K2. We also take fairly high doses of magnesium

throughout the day. It is also important to keep up with the SCD

yogurt and/or probiotics when on this protocol.

There is some really great information in the files section of their

yahoo group including a list of the supplements and what they do and

an article about why many of our kids need this protocol and what it

aims to correct.

Here is a link to the article:

http://f1.grp.yahoofs.com/v1/gI8wR7f9_ak5VL_AVavTu03M8K2g9o8tC1RYe8PVyUM1UvqkiPp\

wI1_D8O6YsZkKu4ec8LlqXNXxF0M9kjOEPN-tqux17700/K2Paper.pdf

K

Dayton, Ohio, USA

SCD since June 2006, redid intro June 2007

Myself and 2 kids are SCD, hubby is finally and ever so slowly

transitioning to it. Conditions we are treating successfully with SCD:

Hashimoto's Thyroiditis (autoimmune), Chronic Fatigue Syndrome,

Fibromyalgia, Rheumatoid Arthritis, leaky gut, IBS, ADD, ADHD, chronic

diarrhea, yeast/candida, and salicylate intolerance.

" All diseases begin in the gut " - Hypocrites (460-370 BC)

>

> Thanks for the advise.

> We checked Amy's Vit K levels and she seems OK, so I assumed it

> wasn't necessary to do the Vit K protocol. Am I wrong to assume that?

>

> Amy has done two lots of chelation. She started both after beginning

> SCD. The first was for mercury. Her levels are now down. The second,

> which she started in Feb was for lead, with EDTA. Her levels are

> still HIGH. If we stopped, would that not also delay the overall

> recovery, or would it be balanced by the progress made from SCD?

>

> I checked the site already, and have eliminated peanut butter goods,

> reduced honey and fruit. I did wonder about chelation, and was going

> to raise it in Nov with my Dan doctor.

>

> Yes we did the intro diet and introduced foods slowly. I have to say

> that was the most stressful part of the diet for me as I struggled

> determining whether reactions were food, school or tired related. I

> may have misread the signs.

>

> She has no manufactured goods, and the supplements are all legal(if

> the ones listed above ar legal). I know the others are.

>

>

> Is there anyone out there who could give me more advise about Vit K

> protocol? I never transfer easily to new diets. What is expected?

> What do I feed her. I know of the site, but as I'm visual and

> practical, if someone were to give me an example of a typical day

> with food and supplements and times to be given etc, i would learn a

> lot faster.

>

> Thank you.

> ,

> Mum to Amy, 10 autistic.

>

[Guest guest]

>

> Hi, ,

> The Vitamin K protocol has a lot more to it than your level of

> vitamin K. Tamaro who is developing it sees an inability

> to process calcium correctly as a major issue with kids on the

> spectrum. She tells us that the calcium moves around in the body

> causing neurons to fire in the brain and it gets bound up in

oxalate

> crystals and stored in various organs where it should not be. One

of

> the places the oxalate crystals accumulate is in the kidney

tubules.

> You may not be able to chelate effectively unless you get these

> cleared out. Obviously you have chelated the mercury effectively,

so

> this might not be your daughter's issue.

> Still, chelation is very hard on the gut and allows yeast to really

> multiply. You may not be able to solve the constipation while you

> are chelating. You may not be able to get rid of the yeast.

> The chelation will go better and take less of a toll if you take a

> break and get the gut in better shape.

> The Vitamin K protocol calls for doing SCD. So your foods would

not

> change. The supplements are listed clearly in the file " Vitamin K

> protocol, " posted on that list. But to really understand, you need

> to monitor the list for a couple of months. It is really too

complex

> to explain here.

> I'm not sure your daughter's gut is ready for the Vitamin K

protocol,

> but you could go to the list and start learning about it.

>

> Mimi and I really think you need a chelation break.

>

>

> mom to -12

> SCD 4/23/04

>

I read your answer with interest and have decided to halt chelation

for Amy.

you said she would not be ready for Vit K protocol. Why?

Also, since I've now stopped chelating, does that mean I have to

start from scratch with the diet? Even though she has been using it

meticulously for almost 2 years?

I read the report by C Tamaro. She states that the yoghurt, when

introduced in the diet can cause regressions. I have only recently

done yoghurt with her(nut yoghurt). Thinking back, the behaviours

could be coinciding with that, although I'm not 100% sure.

How long do you suggest I wait before doing Vit K?

[Guest guest]

Hi, ,

Well, your daughter may or may not be ready for the Vitamin K

protocol. The reason I said I didn't think she was, is that she has

had such a struggle with the yeast and the BMs despite being on SCD

all this time and even doing the constipation protocol. I think

maybe she needs some time to heal from the chelation. The best thing

to do would be to join the Vitamin K group and ask her

opinion.

If you are using nut yogurt, you at least know that it's not a

reaction to casein. It would probably be die-off. You could cut

back on the yogurt and see if that helps, or just give it more time.

> Also, since I've now stopped chelating, does that mean I have to

> start from scratch with the diet? Even though she has been using it

> meticulously for almost 2 years?

Starting SCD over might maximize healing. But I'm not sure it's

necessary. I'd like to see what Mimi and/or Sheila think.

mom to -12

SCD 4/23/04