Long talk with the Pain Doc

[Guest guest]

Anyse,

I am so sorry to hear what you are going through. I live with pain myself

daily and I know how hard it is. It is all consuming. Your life feels like it is

over and that it is truly a living hell. I too am on the patch and there are

days I can't tell I even have it on.

Have you had surgery yet? Is there an option for you that way? My doc is

going to perform surgery on me again. He is doing the beger procedure this time.

I am praying that this is my answer. I don't know how much longer I can go

living the way I am. I do know that my children and husband are what keeps me

going. Without them I would have given up a long time ago.

I pray that you will find relief and that your loved ones will rally around

you and help you get through this. I will pray for you to have relief and

that they will find some option for you.

Please let me know if I can help!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

I had a long talk on the phone today with my pain management

specialist. I recounted that my raises in Fentanyl from 25 to 50 and

then to 75 have had only the effect of making my pain level go down

to an 8 on the pain scale. I told him that I live at that level 24/7

and that any additional pain raises it quickly to a 9 or even a 10. I

will not gp to emergency to br treated like crap by those doctors

there as they know NOTHING about my condition and all of my

complications.

Well, he explained that I seem to fit the pain model that narcotics

will not work to really help my pain and that dilaudud is the

ultimate pain killer (taking this by mouth causes me extreme nausea).

So, for an experiment, e is raising my Fentanyl from 75 to 150

starting tomorrow. If I remain at the same pain level with this

dosage, then my resistance to narcotics will be proven. From there we

will then go on to a time released morphine to see if that helps. If

that does not work then I am up the proverbial s**t creek as far as

pain relief goes.

I do not know how I can even possibly live without relief from pain.

If all od this does not work, the only thing left would be shots of

dilauded and I don't know how that could be arranged every so many

hours and how they would let met do it myself if I were given s shunt

to use.

All of this seems rather hopeless and, should it come to pass that

the " model " does not work for me, I shall have to live in terminal

hell with pain until my dying day. Should that happen, I am calling

" Final Exit " and checking out of here.

Anyse

[Guest guest]

Hey Anyse...I didn't forget about your email.....I did receive it.....I just

have a cold from hell that is kicking my butt...will get with you on the

music thing soon..hope you are well......Mark

Long talk with the Pain Doc

>I had a long talk on the phone today with my pain management

> specialist. I recounted that my raises in Fentanyl from 25 to 50 and

> then to 75 have had only the effect of making my pain level go down

> to an 8 on the pain scale. I told him that I live at that level 24/7

> and that any additional pain raises it quickly to a 9 or even a 10. I

> will not gp to emergency to br treated like crap by those doctors

> there as they know NOTHING about my condition and all of my

> complications.

>

> Well, he explained that I seem to fit the pain model that narcotics

> will not work to really help my pain and that dilaudud is the

> ultimate pain killer (taking this by mouth causes me extreme nausea).

> So, for an experiment, e is raising my Fentanyl from 75 to 150

> starting tomorrow. If I remain at the same pain level with this

> dosage, then my resistance to narcotics will be proven. From there we

> will then go on to a time released morphine to see if that helps. If

> that does not work then I am up the proverbial s**t creek as far as

> pain relief goes.

>

> I do not know how I can even possibly live without relief from pain.

> If all od this does not work, the only thing left would be shots of

> dilauded and I don't know how that could be arranged every so many

> hours and how they would let met do it myself if I were given s shunt

> to use.

>

> All of this seems rather hopeless and, should it come to pass that

> the " model " does not work for me, I shall have to live in terminal

> hell with pain until my dying day. Should that happen, I am calling

> " Final Exit " and checking out of here.

>

> Anyse

>

>

>

>

>

>

[Guest guest]

Anyse, dont give up just yet. Lets hope and pray and cross all our

fingers that the increase in your patch will alleviate your

discomfort. Even if it is just to a more workable level a level that

you can function with.

Have you ever considered having those nerves blocked or cut. Some

people have had a great deal of success with that. Why exactly is

any further surgery out of the question? I know that I have haad

some complications since the total; but I am so much better off

without that diseased organ in my body.

Your final exit is not any time soon and neither is mine. I was

talking with my eldest about how useless I feel and wondering why I

am still here. My youngest, 10 yo, over heard and she came to me

later and said she would rather have a sick momma then no momma at

all. I'm tearing up just thinking about it.

There is still so much each of us can do. You have already helped so

many people on this board alone. Your body may be weak and your

spirit dampened but you mind is as sharp as you will let it be. Dont

give up yet, have faith that one day you may very well find that

special key that will unlock your misery and I dont think you will

find it with Final Exit. Not any time soon anyway.

Warmly,

[Guest guest]

Anyse,

have you thought about getting a pain pump? A lot of people who have

becomes resisitant to pain meds eventually go on a pain pump as they

then only need a much smaller dose of pain meds as it is hooked into the

spinal cord, I think? I'm not sure of all the details, but I know that

several of the members in this group have gone on to having a pain pump

once they could no longer have pain meds. I know they give you a trial

with an external pump and if it works to aleviate the pain, they then

put in an internal pain pump.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.