Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Heidi, That was absolutely the best laugh I have had in awhile!!! I can totally relate!! I was caught laughing out loud at the computer so I read your post to my mother, who proceeded to laugh also because she has witnessed this same exact thing with me. (rolling veins, etc...) Thanks for the chuckle. Take care Kris in TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Yeah I ran into some doc's and nurses that hated trying to access the port when I had it. I was in the hospital for a thyorid storm and on demoral for pain. When an RN brought a student nurse in. I told the RN that it would be fine for her to try and see if the port would work. Next thing I know the student nurse has the crooked needle in her hand and she pokes the cath and pops it. It took me almost three yrs to find a doc that would be willing to take it out cause the doc that had put it in was up on charges of malpractice. It was really awful but I was happy to have it out. Now I get the phantom pains from where it had been in for so long. I just got back from the doc's office. Things didn't go very well. Since I have had pancreatitis for so long my kidney's are starting to fail, my heart is beating so fast I have to be on bed rest for the next week so maybe it will slow down. I am trying lunesta for the first time tonite...does anyone else have problems sleeping and what kind of meds has the doc's tried you on?? Well I am going to try to eat and watch a movie...hope that everyone has a pain free nite...take care all.. KebaJ. > > Kebaj, I have a port, have had one for over 2 years, and a central > line before that and a PICC line before that. I have found the port to > be a lifesaver, but there are still hospitals/doctors who refuse to > use it. I have 2 hospitals converted just for me at the moment, but > still come up against those who want to stick me rather than access my > port... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Keba,Heidi and Mark, I was in the ER last Sunday and they stuck me 7 or 8 times. I warned them it was gonna be tuff and the male nurse tried the back of my hand, twice and it killed each time! I was squirming around, I know how you feel....Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Oh my gosh! I am so sorry. I didn't know this could happen. Is it common for the kidneys to fail with CP? This disease gets more frightening the more I learn about it. What will they do for you? Eileen > > I just got back from the doc's office. Things didn't go very well. > Since I have had pancreatitis for so long my kidney's are starting to > fail, my heart is beating so fast I have to be on bed rest for the > next week so maybe it will slow down. I am trying lunesta for the > first time tonite...does anyone else have problems sleeping and what > kind of meds has the doc's tried you on?? Well I am going to try to > eat and watch a movie...hope that everyone has a pain free nite...take > care all.. > > KebaJ. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Yeah think I am the only one that has had CP for so long. I got sick when I was 10. So I was written up in JAMA and was a vandebilt test subject for a very long time. I was lucky though I had a nurse for a mom...so when the doc's wanted to do anything to me my mom would tell me everything they were going to do. I have a lot of things wrong with me....I have been sick for 19 yrs now. The doc's always said I should have died when I was 15....made it to 15 and they said 21...when I made it to 21 they told me 30...and now I am 29. Not to scare you but I am going to try and list everything that I have developed over the last 19 yrs... 1. In 1986, I had two and a half liters of fluid drained off my pancreas. 2. I had my gallbladder taken out. 3. I had to have sweat glands taken out from under both arms and breasts. I was on robinaul to help control the fluid around pancreas and it ended up clogging sweat glands. I still have them between my legs....cause you can't walk for a few weeks when those are taken out. 4. I was raped while in college and since the child was pressing against my pancreas my body was shutting down. So I had to make the choice of me dying in child birth or the baby living. I ended up having an abortion. 5. I have severe hypothyroidism. I have had a round of radation once at vandy and about to go back to have another round. 6. I have severe depression and bi-polar. I think cause of all the stress of knowing that I am going to be sick and more then likely die very young. 7. I have been in the hospital three times now for having mega colon's. Which are when you are on so many pain pills that you don't have bowl movements at all. So I have had to cut out most of my pain pills so I can try to be regular. 8. I have severe Type 1 diabetes. When I first was diganosed with this...it was about 4-5 yrs ago. The doc's were surprsied that my pancreas was working that well. Now it only works 20-30% of the time. 9. I have had two thyroid storms which are like mini heart attacks and I was in the hospital a month each time. 10. I have also developoed extreme insomnia because of how long I have had to be on narc's for pain. 11. My latest problem wrong with me is I have developed a case of severe sleep apathnia. Not sure how this is going to turn out though. Will keep ya posted. 12. My eye sight is going down a little every few yrs which surprises some ppl since I always have a blood suger over 300-400 normally. With all these things wrong with me. I was very lucky to get disablity with the diagonis of Chronic Pancreatitis. I know that this is very hard to do cause I was turned down three times before I went befor a judge. If anyone is trying to get on disablity please let me know and I will try to put my decision onto the group page so maybe that can help ppl see how the judge decided in favour and maybe it will help with your case. If you have any questions post here or feel free to email me at kebajackson@... Hope everyone has a pain free nite KebaJ. > > > > I just got back from the doc's office. Things didn't go very well. > > Since I have had pancreatitis for so long my kidney's are starting > to > > fail, my heart is beating so fast I have to be on bed rest for the > > next week so maybe it will slow down. I am trying lunesta for the > > first time tonite...does anyone else have problems sleeping and what > > kind of meds has the doc's tried you on?? Well I am going to try to > > eat and watch a movie...hope that everyone has a pain free > nite...take > > care all.. > > > > KebaJ. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Keba, I am overwhelmed at your courage. Really, all that you have been through, just reading it made me speechless. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Yeah I know...I don't tell everyone how truly sick I am. I talk about it here cause there are other ppl just as sick...and I want to be able to help everyone here if I can and give as much advice as I can. I think the only thing that has stopped me from ending it all is my fiancee/bf Jay....he has lived with me for the last 8 yrs. My mom is happy that I found someone that is so willing to take care of me as much as he has too. I have had times where I just couldn't take it anymore and thought it would be better for everyone if I took my life. Jay was there at that lowest point in my life and told me that I was here on this earth still for a purpose and I think helping as many ppl as I can is why I still live and breath. I also am a part of the eastern band of cherokee indians. We get a check every six months...which helps me pay for the medicine's that tenncare won't cover anymore. If anyone has any questions at all email me..... > > Keba, I am overwhelmed at your courage. Really, all that you have been > through, just reading it made me speechless. > > Eileen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Jim, I'm squirming just as I read that.....yuck!! The back of the hand is the worst place for me, that's where the anesthesiologist tried an hour for a triple lumen access, and never could get it. It hurts just to think about it, he said it was like trying to get a square peg into a round hole.... Sorry that you had to go to the hospital. Where did they finally get access? With love, hope and prayers, Heidi Heidi H. Griffeth SC & SE Regional Rep. PAI Note: All comments or advice is based on personal experience or opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Hi Heidi, my computer is down so I'm on my roomates, thats why this reply took so long...the head phlebotomist came in and got a vein on my left forearm. I'm still black and blue a week later...Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Heidi, That is awful about what they did to you with those needles. I am blessed with great veins. In fact the nurses always say I have rope veins. Very large and easy to get to. My mom is like you though and it is hard to watch that. In our house, we say, " it makes your coochie draw up just looking at it! " LOL! Angie in SC " The happiest of people don't necessarily have the best of everything; they just make the best of everything that comes along their way. " Quote Link to comment Share on other sites More sharing options...
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