Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 Angie, YES! your story sounds just like mine except it took a little longer to really start gaining weight. I had my first attack of acute panc in Jan 2000. Things got better around Feb 01 after a rough year. GI insisted panc was fine, I'd never have another attack, blah, blah, blah. I had pretty bad gastric bile reflux where the bile was splashing into the bottom of my stomach and causing severe gastritis and would eventually eat a hole in my stomach wall lining. Gastric bypass would not only take care of the gastric bile reflux since the bottom of your stomach is 'closed off' but would also allow me to get rid of the excess 100 lbs. I don't regret the gastric bypass and would do it again tomorrow but it does complicate being able to determine what's going on with the pancreatitis because of the inability to do an ercp now. Anyway, I had gone from 260 in Dec 01 down to 180 in Jul 02 when the panc attacks returned and I ended up in the hospital. Actually I now know they never really stopped as the pain was still there almost all the time since Jan 00, it just got a lot better and even when it got really bad never lasted more than 30 minutes til Jul 02. I continued losing weight from Jul 02 to Feb 03, but I was VERY sick and my blood work showed I was on the border of being seriously malnourished. In Feb 03 I dropped from 159 to 155 in a week, thanks in part to starting prednisone for my liver disease and being nauseated 24/7. My goal weight was actually 162 because I am 5'9 " so even though 155 was not below normal it was really less than I wanted to weigh. In fact, my daughter came to visit during that time, took one look at me and said, " Mom, you've lost more weight and it's not a good thing. " and she promptly started crying. So, at that point, I started eating on a schedule. I ate even though it made me hurt more, made me more nauseated, etc. My weight stabilized at about 159 for a while. At my daughter's wedding, My 29, 2004, I weighed 170- 175 and had started having lots of problems with fluid retention. However, I'd been on prednisone since Jan 03 - so a weight gain of about 15 lbs after over a year on prednisone was really nothing to complain about. It was really after my prednisone and imuran for the liver disease was stopped in Jul 04 that I started putting on more weight. By Dec 04, I weighed 190. That's when I had a MAJOR relapse of my liver disease. However, I also had numerous panc attacks during this time with a hospital stay about once every 4-6 weeks. In Dec 04, I was put back on prednisone and imuran. I also had to start taking oral med for my diabetes for the first time - thanks to wonderful prednisone. That's when I really started having major fluid retention and weight gain. My weight has gone as high as 230 lbs. I once gained 22 lbs in only 3 days when I had a panc attack and was put in the hospital. This was July 05. I stopped the prednisone in March and refuse to take it again unless I have a major crisis with my liver disease. My weight right now is ranging from 208 to 215 depending on the fluid more than anything else. I am eating healthy - when I'm not having a panc attack. I have been a lot more active the last month because I've had more good days than in quite a while but I still can't seem to get the scales to move past the 208 mark! It is incredibly frustrating. I even made an appt with my bariatric surgeon to see if he had suggestions. I told him I felt like a failure. He told me I was absolutely not a failure and that I just had to keep doing what I'm doing and be patient. He said it would take up to a year after being on long term prednisone for my metabolism to return to normal. He told me to walk 5 days a week, which I am not doing. However, it is very difficult to walk for an hour when you barely have the energy to go to the bathroom! Then when I do have energy, there are so many other things that need to be done that I never make the time for walking. I can come up with at least 100 more excuses for not walking! Seriously, though, I really beleive that prednisone is only a small part of the problem and the rest is related more to the pancreatitis. On the one hand, I am incredibly thankful that my pancreas is not bad enough to be causing malnutrition and I hope it never gets that bad. However, I think the periods of being unable to eat and having to be inactive just throw everything out of whack and you get into a vicious cycle. By the way, I really let the weight get me down for several months. It didn't help that my obnoxious sister-in-law who works in health insurance kept telling me that all the insurances were going to totally quit paying for the gastric bypass because 95% of people who have it gain back all their weight in 3 years. Well, excuse me - in spite of my health problems and prednisone, I have NOT gained back ALL my weight. My sis had the gastric bypass in Jun 02 and weighed 285 bs at 5'5 " and was wearing size 26/28. She now weighs about 155 lbs and wears mostly size 10/12. My stepdad had it in Dec 02 and weighed 340 lbs and wore size 52 pants. He now weighs about 230-240 and wears a size 40 pants. He's still heavy but he has to be on steriods and other meds because he has a disease called empty cella syndrome and his pituitary gland is totally dead. I could go on with the success stories of the gastric bypass. I truly believe (and so do my hubby and doctors) that without the gastric bypass, my weight would be over 300 because a 40-60 lb weight gain is not unusual for people on long term prednisone or other steriods. Hang in there and just take it a day at a time. Eat healthy when you can - good balance of complex carbs and protein. Be active when you can. Do your best to put your weight out of your mind and just concentrate on being as healthy as you can be. Very hard when none of the new clothes you bought when you lost weight fit any longer but just remember that there are things that matter a lot more than the number on the scales. Also, tell people like my obnoxious sister-in-law to go to h***! do it for me, because I can't say that to her because it would cause too much family strife and frankly, she's not worth it! By the way, it is nothing for my weight to fluctuate as much as 8-10 lbs in 24 hours. take care, W Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.