Burning pain & cysts (to , Beau, , etc)

[Guest guest]

Haven't seen the board posting for about a month due to vacation trip. Lobby

computers

for guest use seem to be missing in New York state motels, so I'm way behind on

PAI,

email, & a big stack of snail mail.

Skimming the board I notice posts by , Beau, , and others on the

nature of

their pain, and I can't help but wonder if some may be due to pseudocysts, as

suggests in 10/3 post, , your description of pain going from sternum up to

shoulders, then later stopping short of shoulders, is very close to what I

experienced prior

to my cyst-drainage surgery in July. What I'm wondering is, could someone

develop

(undiagnosed) pseudocysts, long after being diagnosed with CP? My own

experience is

not necessarily relevant to this, since my cysts developed during & immediately

after an

acute attack, and the one drained was huge (at least the largest one technician

had ever

seen). Certainly if I ever begin to experience that type pain again, I'd

demand a scan to

see if cyst may have redeveloped due to the drainage opening growing closed or

if some

of my smaller cysts have expanded. Apparently the cyst and its pressure on my

digestive

tract was also the cause of the loud belly noises and burping I experienced,

like Heidi,

Cindy, and others report, because I have had little of that since the surgery.

Another issue to which I've never gotten an answer from the medical profession,

is why

pseudocysts flare up periodically. For most of the year following my acute

attack, the cyst,

and maybe my pancreas too, got inflammed at fairly regular intervals, unrelated

to diet or

activity, and relieved only by going to clear liquid diet for several days.

I pray that all of you will have relief soon.

Kurt (CA)

[Guest guest]

Kurt: Thanks for this message. I just now read it (10/21?) and was

most interested when I read what you wrote about pseudocysts. I am

having that same pain right now as a matter of fact and am getting

ready to go lie down not with my old trusty heating pad which I have

now long given up in place of a frozen water bottle sort of thing.

This pain burns so badly that my skin is literally hot to the

touch. I haven't had an MRI or a CT since over a year ago. Have

been trying to get in touch with the GI doc to get one ordered but

there is a long story there as well (see some of my other posts.)

If he would just call here so I could explain how the nature of the

pain has changed....but he hasn't and it's been three weeks. My

husband alled him yesterday and really took the receptionist to task

(which it really isn't her fault but she can a little snot too....)

At any rate, I found this to be quite interesting and am wondering

if others with pseudocysts could chime in here (Heidi has already)

and let me know how the pain felt for them.

thanks

>

> Haven't seen the board posting for about a month due to vacation

trip. Lobby computers

> for guest use seem to be missing in New York state motels, so I'm

way behind on PAI,

> email, & a big stack of snail mail.

>

> Skimming the board I notice posts by , Beau, , and

others on the nature of

> their pain, and I can't help but wonder if some may be due to

pseudocysts, as

> suggests in 10/3 post, , your description of pain going from

sternum up to

> shoulders, then later stopping short of shoulders, is very close

to what I experienced prior

> to my cyst-drainage surgery in July. What I'm wondering is, could

someone develop

> (undiagnosed) pseudocysts, long after being diagnosed with CP? My

own experience is

> not necessarily relevant to this, since my cysts developed during

& immediately after an

> acute attack, and the one drained was huge (at least the largest

one technician had ever

> seen). Certainly if I ever begin to experience that type pain

again, I'd demand a scan to

> see if cyst may have redeveloped due to the drainage opening

growing closed or if some

> of my smaller cysts have expanded. Apparently the cyst and its

pressure on my digestive

> tract was also the cause of the loud belly noises and burping I

experienced, like Heidi,

> Cindy, and others report, because I have had little of that since

the surgery.

>

> Another issue to which I've never gotten an answer from the

medical profession, is why

> pseudocysts flare up periodically. For most of the year following

my acute attack, the cyst,

> and maybe my pancreas too, got inflammed at fairly regular

intervals, unrelated to diet or

> activity, and relieved only by going to clear liquid diet for

several days.

>

> I pray that all of you will have relief soon.

>

> Kurt (CA)

>

[Guest guest]

,

I must admit Heidi's description of her pseudocyst pain (in her 10/05 post) is

much closer

to what I experienced than your pain description. I never had pain that I would

have

described as " thru to the back " , and the shoulder pain I had was high, next to

neck, and I

rarely got that after the first few months, just the mid to lower left abdominal

pain,

sometimes to lower right as well.

Kurt (CA)

> >

, your description of pain going from sternum up to shoulders, then later

stopping

short of shoulders, is very close to what I experienced prior to my

cyst-drainage surgery in

July. What I'm wondering is, could someone develop (undiagnosed) pseudocysts,

long

after being diagnosed with CP? if I ever begin to experience that type pain

again, I'd

demand a scan to see if cyst may have redeveloped.

Another issue to which I've never gotten an answer from the medical profession,

is why

pseudocysts flare up periodically, unrelated to diet or activity.

I pray that all of you will have relief soon.