I'M SCREAMING!!!!

[Guest guest]

Sorry, I am just so angry right now that I could tear a tree apart.

just got back from his appointment at U of M with his regular GI

doctor. She is a fellow. Every month she sees him, leaves the room

to consult with the attending and then returns with the plan for the

month. Today, the attending (one he has never seen before) came back

in the room with her and said I don't t hink you have chronic

pancreatitis. and Cheri are like " What are you talking

about?? " She says after looking at his reports, she thinks there is an

80% chance that he does not have CP. Now what the heck does she

think she is doing???? She says she wants to do an ERCP, but they

were both so angry that she left saying she didn't want to do a

procedure on someone who was so angry. He is so confused. Why

would they treat him for over a year and then out of the blue, in

comes a new doctor (who the fellow says is the " best " pancreas doctor

there) decide to tell him he doesn't have pancreatitis. What the

h... is wrong with him then???? It would be wonderful if he doesn't

have it, but how can this team of doctors be so stupid. I am so mad,

mad, mad. Who is the safest ERCP doctor you know about. Thanks LInda

[Guest guest]

I had the same problem with a new PCP (primary care phsycian....a

step above an RB) and what the guy told me was that even though I

have had CP for 19 yrs. That when he went through the schooling

they only studied the pancreas and CP for two days. The way to take

care of CP now a days is to prescribe some stomach enzymes and some

pepcid. I looked right at the dude and rather then rip his head off

I explained to him that since I have been on pain pills for such a

long time that there would be no way that pepcid and stomach enzymes

would help with pain relief.

In the end the guy now refuses to take any patients that don't want

pain pills. I told him that a disease like CP should be taught more

then two days in a classroom. I even found out that some

professor's don't talk about CP in class and they leave it up to the

students to read about and understand it.

I think that is why it is so hard for us to prove to ppl that we are

sick cause there isn't enough stuff out there to try to explain what

is going on. My best friend's sister developed CP while she was

pregnant and then after a few months she got over it. I really

belive that she never had CP but some type of stomach ailment.

I haven't had an ERCP done since I was 15 because afterwards I ended

up spening two weeks at vandy. My doc now want's me to have one

done but my heart rate is out the roof (due to my thyroid dying) and

my kidney's are failing. So if I don't respond too quickly...I am

in the hospital....hope that everyone has had a pain free week...

>

> Sorry, I am just so angry right now that I could tear a tree

apart.

> just got back from his appointment at U of M with his

regular GI

> doctor. She is a fellow. Every month she sees him, leaves the

room

> to consult with the attending and then returns with the plan for

the

> month. Today, the attending (one he has never seen before) came

back

> in the room with her and said I don't t hink you have chronic

> pancreatitis. and Cheri are like " What are you talking

> about?? " She says after looking at his reports, she thinks there

is an

> 80% chance that he does not have CP. Now what the heck does she

> think she is doing???? She says she wants to do an ERCP, but

they

> were both so angry that she left saying she didn't want to do a

> procedure on someone who was so angry. He is so confused. Why

> would they treat him for over a year and then out of the blue, in

> comes a new doctor (who the fellow says is the " best " pancreas

doctor

> there) decide to tell him he doesn't have pancreatitis. What the

> h... is wrong with him then???? It would be wonderful if he

doesn't

> have it, but how can this team of doctors be so stupid. I am so

mad,

> mad, mad. Who is the safest ERCP doctor you know about. Thanks

LInda

>

[Guest guest]

My best friend's sister developed CP while she was

> pregnant and then after a few months she got over it. I really

> belive that she never had CP but some type of stomach ailment.

Keba,

It highly likely was Pancreatitis. When I fell pregnant was when my

attacks started all over again after a 15 month break. Although mine

were not exactly related to the pregnancy, my OB/GYN told me it is

not uncommon for pregnant women to suffer from Pancreatitis during

their pregnancies only because to accomodate a baby, their insides

are all pushed upwards and this can cause attacks of Panc to happen.

Once the baby is born and everything has moved down back to where it

should be, the pressure is gone and so do the attacks subside..

Regards,

Ward

PAI Administration Support

dceward@...

[Guest guest]

,

Totally ridiculous deduction if you ask me, and one that I,

personally, would pay no heed to. The best and safest doctors I know

of to do an ERCP are Dr. Cotton at the Medical University of

South Carolina, ton, SC or Dr. Lehman at Indiana University

Medical Center, Indianapolis, Indiana. If you need more information

about either one, please email me personally at: hhessgriffeth@...

With love, hope and prayers,

Heidi

Heidi H. Griffeth

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

Note: All comments or advice are based on personal experience or

opinion only, and should not be substituted for professional medical

consultation.