Re: Welcome to Jeanette; Social Security questions

[Guest guest]

Heidi,

They don't intend to send him home until he can eat solid foods

again. Last week the doctor said he can come home on a full liquid

diet, but has since changed his mind. Matt (my husband) has been up

to a full liquid diet twice already, but took turns for the worse

each time.

How does someone know when to apply for Social Security? I don't

want to jump the gun, but I know it can take a long time. We may

not even need it. The doctors keep giving us the best case

scenarios, but those aren't working out and they don't seem to be

willing to risk guessing on the worst. I know that this is a

disease whose progression is more " wait and see " than anything else,

but I am afraid to wait too long.

Jeanette

>

>

> Jeanette,

>

>

> Feel free to post any questions here that one of us may be able to

> help you with. No need to apologize for being long winded, it's

> difficult to explain your problems without telling us what you have

> already about your husband. He's been through such an ordeal

already,

> and it's a lot to have happen to such a young couple. There are

> already a few of us that are ALWAYS long winded....(WINK)

> ...unfortunately I inherited my father's methods of communication

and

> can't explain anything in less than several paragraphs or more!

>

> If they are planning to send your husband home soon, you need to

be

> in touch with your insurance company, to arrange to have home

health

> care for your husband. Usually someone from hospital

administration

> will set this up for you, but if they don't, you need to ask for

it.

> Then they will send a home health nurse to the house as often as

> necessary to help with any medications, IV's or anything your

husband

> may need.

>

> If your husband isn't able to recover from this horrific experience

> and go back to work, you should look into applying immediately for

> Social Security Disability insurance for him if he has been working

> long enough to qualify. He can even apply online - I'll post the

> weblink in another post.

>

> Please let us know how we can help you. I understand how

frightening

> an experience like this must be for you, and you are going to need

> our help answering any questions. We're here for you, just let us

> know what you need.

>

> With love, hope and prayers,

> Heidi

>

> Heidi H. Griffeth

> SC State & SE Regional Representative

> Pancreatitis Association, International

>

> Note: All comments or advice are based on personal experience or

> opinion only, and should not be substituted for professional

medical

> consultation.

>

[Guest guest]

Jeanette,

Given the time needed for the application process, you might as welll start

now. The sooner you start, the sooner you will get your grant.

Jerry/NC

***************************************

>

> Heidi,

>

> They don't intend to send him home until he can eat solid foods

> again. Last week the doctor said he can come home on a full liquid

> diet, but has since changed his mind. Matt (my husband) has been up

> to a full liquid diet twice already, but took turns for the worse

> each time.

>

> How does someone know when to apply for Social Security? I don't

> want to jump the gun, but I know it can take a long time. We may

> not even need it. The doctors keep giving us the best case

> scenarios, but those aren't working out and they don't seem to be

> willing to risk guessing on the worst. I know that this is a

> disease whose progression is more " wait and see " than anything else,

> but I am afraid to wait too long.

>

> Jeanette

>

[Guest guest]

I started my paperwork for disablity when I was 22 and I got

disablity when I was 24. There was a deadline and I had missed

being able to try to claim by about 2-3 months. It helped that I

had worked for about a month or tried to work anyways. I don't

think you can never jump the gun about going ahead and turning in

the paperwork ASAP. Now it will take at least 2-3 yrs to try to get

to the hearing stages. I was turned down three times which i have

come to find out is the norm. My advice is to start making your own

file with all the paperwork from your doc's, all test results,

X'ray's,Ultrasounds and always get a letter every year from your PCP

stating what you have, how limited you are to work at anything ie,

answering phones, bookwork, and filing. If you already have a

degree that will probably count against you I hate to say. If you

have any questions please feel free to ask...

> >

> >

> > Jeanette,

> >

> >

> > Feel free to post any questions here that one of us may be able

to

> > help you with. No need to apologize for being long winded, it's

> > difficult to explain your problems without telling us what you

have

> > already about your husband. He's been through such an ordeal

> already,

> > and it's a lot to have happen to such a young couple. There are

> > already a few of us that are ALWAYS long winded....(WINK)

> > ...unfortunately I inherited my father's methods of

communication

> and

> > can't explain anything in less than several paragraphs or more!

> >

> > If they are planning to send your husband home soon, you need to

> be

> > in touch with your insurance company, to arrange to have home

> health

> > care for your husband. Usually someone from hospital

> administration

> > will set this up for you, but if they don't, you need to ask for

> it.

> > Then they will send a home health nurse to the house as often as

> > necessary to help with any medications, IV's or anything your

> husband

> > may need.

> >

> > If your husband isn't able to recover from this horrific

experience

> > and go back to work, you should look into applying immediately

for

> > Social Security Disability insurance for him if he has been

working

> > long enough to qualify. He can even apply online - I'll post the

> > weblink in another post.

> >

> > Please let us know how we can help you. I understand how

> frightening

> > an experience like this must be for you, and you are going to

need

> > our help answering any questions. We're here for you, just let

us

> > know what you need.

> >

> > With love, hope and prayers,

> > Heidi

> >

> > Heidi H. Griffeth

> > SC State & SE Regional Representative

> > Pancreatitis Association, International

> >

> > Note: All comments or advice are based on personal experience or

> > opinion only, and should not be substituted for professional

> medical

> > consultation.

> >

>