NEW and NEED ADVICE for 3.5 yo not typical type of symptoms!

[Guest guest]

My daughter is 3.5yo and just started to walk in the last month

(although not well, prefers not to walk and can't stand up on her own

to walk, needs to pull up on items). Sensory Processing is a big

issue- but the underresponsive type- does not feel a lot of pain, and

actually, the MORE NOISE THE BETTER AND THE MORE TOUCHING (except in

her oral area) THE BETTER! She has apraxia(can't talk and has a hard

time drinking), global delay, severe dyspraxia. All her " tests " were

normal from neuro(been to 3 of them) and genetics/metabolism tests

have been normal---- until we went to a DAN! Results shows she has

gut issues (although her gut has always been asyptomatic)- low zinc,

low mg, no good bacteria, a little yeast and she is toxic with

antimony, uranium, slight aluminum elevation. We started GFCF for a

few months and saw some improvement. Have actually put her back on

gluten since her new developmental peds wants her tested for celliac.

Will recheck that this week and start GFCF again.

Since has such a bizarre syptom set (develop peds, Dr. M Agin

in NYC, says she has never seen anyone like this before as our DAN!),

I plan on doing the SCD since this seems to be the diet that has

helped others who have not had as good a response on GFCF. I figured,

is so strange, that I have to start with the diet that helps

other nonresponders. I also did not like all the rice she was

starting to eat on GFCF. Oh, by the way, my husband is a cancer

survivor and was just diagnosed with ulcerative colitis, so I figured

with his genes, this diet is a good fit.

Anyone else have a kid with these type of symptom sets? Good results

from this diet?

Thanks for reading!

Kathy

[Guest guest]

Welcome to the group Kathy,

>

> My daughter is 3.5yo and just started to walk in the last month

> (although not well, prefers not to walk and can't stand up on her

own to walk, needs to pull up on items). Sensory Processing is a big

> issue- but the underresponsive type- does not feel a lot of pain,

and actually, the MORE NOISE THE BETTER AND THE MORE TOUCHING

(except in her oral area) THE BETTER! She has apraxia(can't talk and

has a hard time drinking), global delay, severe dyspraxia. All

her " tests " were normal from neuro(been to 3 of them) and

genetics/metabolism tests have been normal---- until we went to a

DAN! Results shows she has

> gut issues (although her gut has always been asyptomatic)- low

zinc, low mg, no good bacteria, a little yeast and she is toxic with

> antimony, uranium, slight aluminum elevation. We started GFCF for

a few months and saw some improvement. Have actually put her back on

> gluten since her new developmental peds wants her tested for

celliac. > Will recheck that this week and start GFCF again.

>

> Since has such a bizarre syptom set (develop peds, Dr. M

Agin > in NYC, says she has never seen anyone like this before as our

DAN!) I plan on doing the SCD since this seems to be the diet that

has helped others who have not had as good a response on GFCF. I

figured, is so strange, that I have to start with the diet

that helps other nonresponders. I also did not like all the rice she

was starting to eat on GFCF. Oh, by the way, my husband is a cancer

> survivor and was just diagnosed with ulcerative colitis, so I

figured with his genes, this diet is a good fit.

>

> Anyone else have a kid with these type of symptom sets? Good

results from this diet? >>>>>

> Thanks for reading!

> Kathy>>>>

I don't know if any currently active on the list have the exact set

of symptoms your daughter has. Many have a lot of the same symptoms

and you can look through the archives to find some relevant

information:

You can search through the archives

http://health.groups.yahoo.com/group/pecanbread/messages

For example, using the key word " walk " in the Search function came up

with many posts, including:

http://health.groups.yahoo.com/group/pecanbread/message/70703

" Apraxia " as the key word found many posts including:

http://health.groups.yahoo.com/group/pecanbread/message/72202

http://health.groups.yahoo.com/group/pecanbread/message/70698

There is lots of information to help get you started on the diet at

http://pecanbread.com/new/begindiet1.html

http://pecanbread.com/new/scdfoods1.html#transition

http://pecanbread.com/new/scdfoods1.html#intro

http://pecanbread.com/new/scdfoods1.html#menu

http://pecanbread.com/new/recipes1.html

Will all of you be going on the diet? With your husband's history

and UC the diet could be very helpful.

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of Emiy and

[Guest guest]

thanks sheila. yea, i would like all of us to go on

it, the husband is in big time denial about his

issues. he smokes so it keeps his UC under

control-ugh. k

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