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Saw Specialist Yesterday

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Hi All,

Saw Dr. Aram Manoukian at Woods University Hospital in New

Brunswick, NJ yesterday.

He does not think I have CP. He thinks it is a combo of spaastic

colon, stomach problems and costocondritis and other muscle problems

on my left side.

This would be a BLESSING if that is true!!!!!

But he is doing an ERCP onme this Tuesday.

I'm terrified of this procedure due to what some of you have

experienced. Especially if there is not any CP, couln't this give me

CP???

Your thoughts?

Eileen

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Have you had an MRCP? I cant recall. An ERCP is truly the only way to

diagnose cp once and for all. It may give you a mild pancreatic attack

but many people have had them done will no ill side affects what so

ever. It really all depends on what he chooses to do once he is in

there. If he does a manometry, sphinterotomy or places a stent all

those can aggrivate the pancreas but that does not necessarily lead to

chronic panrcreatitis.

Warmly,

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Thanks . I did have a MRCP which came out normal, except

for a 4mm cyst. He wants to check that out and the ducts.

I just heard of people getting CP from this.

PLUS, I have had so many endoscopies, Colonoscopies in the past 6

months, that I think I have built up a tolerance to the anestesia

(sp?)

Last week I had a colonoscopy and started coming around while he was

still in there!

If I was to come round while something was down my throat, I'd

panic. I mean, REALLY PANIC. I have a phobia about that sort of

thing.

YIKES!

Eileen

>

> Have you had an MRCP? I cant recall. An ERCP is truly the only

way to

> diagnose cp once and for all. It may give you a mild pancreatic

attack

> but many people have had them done will no ill side affects what

so

> ever. It really all depends on what he chooses to do once he is

in

> there. If he does a manometry, sphinterotomy or places a stent

all

> those can aggrivate the pancreas but that does not necessarily

lead to

> chronic panrcreatitis.

>

> Warmly,

>

>

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Thanks . I did have a MRCP which came out normal, except

for a 4mm cyst. He wants to check that out and the ducts.

I just heard of people getting CP from this.

PLUS, I have had so many endoscopies, Colonoscopies in the past 6

months, that I think I have built up a tolerance to the anestesia

(sp?)

Last week I had a colonoscopy and started coming around while he was

still in there!

If I was to come round while something was down my throat, I'd

panic. I mean, REALLY PANIC. I have a phobia about that sort of

thing.

YIKES!

Eileen

>

> Have you had an MRCP? I cant recall. An ERCP is truly the only

way to

> diagnose cp once and for all. It may give you a mild pancreatic

attack

> but many people have had them done will no ill side affects what

so

> ever. It really all depends on what he chooses to do once he is

in

> there. If he does a manometry, sphinterotomy or places a stent

all

> those can aggrivate the pancreas but that does not necessarily

lead to

> chronic panrcreatitis.

>

> Warmly,

>

>

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>My doctors wont do the ERCP due to the 5% chance ofit causing an

acute attack, so they are scheduling an MRCP. I had to MRIs before and

had horrible experiences. I had such panic attacks so he prescribed

Atavan. I hope that helps. I have already been diagnosed with CP they

are just trying to find out why

now.

-Annette

>

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Eileen,

I haven't read what others have said, but I do want to comment. An

ERCP wouldn't give you chronic pancreatitis. There is some risk of

having a pancreatitis attack as a result of an ERCP, but even if you

did have an attack, this wouldn't automatically cause it to become

" chronic " .......unless you ALREADY had CP. You know what I mean?

Many people who have an ERCP and then get pancreatitis as a result,

recover from that attack and never have a problem with it again. The

ERCP really is the best way for a doctor to see your pancreas, biliary

tract and everything else they would need to see to reach a definite

diagnosis of what ever it is that's troubling you. If the doctor is

well experienced and done this procedure many times, you probably

won't have to worry. I would just make sure that you stayed at the

hospital until you knew you were feeling well and in the clear.

It would be so good for you to know for sure what you really have

wrong, wouldn't it? It looks like this may be the only way.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

www.pancassociation.org/anthology#Heidi.html

Bluffton, SC

SC State & SE Regional Representative

Pancreatitis Association, International

www.health.groups.yahoo.com/group/pancreatitis/

Note: All comments or advice are based on personal experience or

opinion only, and should not be substituted for professional medical

consultation.

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