Long Island Contact Needed

[Guest guest]

I have received a phone call from a gentleman from Long Island, New York. He

has " undiagnosed " chronic pancreatitis most likely caused from ten years of

Depakote and lithium he had been on due to uncontrolled hypothyroidism. He

went to the Cleveland Clinic b ut was not given the diagnosis. I have heard

this

from many others, as well. It seems the Cleveland Clinic uses a six point

diagnostic system for diagnosing chronic pancreatitis. I invite those who have

been to the Cleveland Clinic to clarify this, as I have not been there.

At any rate, we do not have a New York Representative at this time, so

anyone who lives in or near Long Island, please see if you can help this man.

Additionally, if you have medication induced pancreatitis, he said he would be

interested in talking to you, too.

Mark Applewhite

_markcolumbus@..._

(mailto:markcolumbus@...)

Karyn E. , RN

Executive Director, PAI

Indianapolis, Indiana

[Guest guest]

I am from upstate NY (Rochester) and I do have excellent doctors.

While he may not want to travel upstate i can give their names and

maybe they have downstate contacts. I see a Dr. Anil Sharma with

Gastroenterology Group of Rochester, the phone number is .

The University of Rochester/Strong memorial hospital also has a

specialist named Asad Ullah who my doctor plans to refer me to when

the time for more than maintenance is needed (he currently feels that

if we keep the attacks of severe pain to a minimum and me out of the

hospital it isn't worth risking an ERCP and major attack). Dr.

Ullah's phone number . The univeristy is a medical school

and hospital together and have alot of very good programs including

transplantation teams (the hospital is certified in liver transplants,

heart transplantation and I think pancreas also). I don't know if any

of this helps him but it is some information.

Theresa

>

> I have received a phone call from a gentleman from Long Island, New

York. He

> has " undiagnosed " chronic pancreatitis most likely caused from ten

years of

> Depakote and lithium he had been on due to uncontrolled

hypothyroidism. He

> went to the Cleveland Clinic b ut was not given the diagnosis. I

have heard this

> from many others, as well. It seems the Cleveland Clinic uses a six

point

> diagnostic system for diagnosing chronic pancreatitis. I invite

those who have

> been to the Cleveland Clinic to clarify this, as I have not been

there.

>

> At any rate, we do not have a New York Representative at this time, so

> anyone who lives in or near Long Island, please see if you can help

this man.

> Additionally, if you have medication induced pancreatitis, he said

he would be

> interested in talking to you, too.

>

> Mark Applewhite

> _markcolumbus@m..._

> (mailto:markcolumbus@m...)

>

> Karyn E. , RN

> Executive Director, PAI

> Indianapolis, Indiana

>

>

>