Re: Are labs usually able to predict attacks? to Sandy in CA, all

[Guest guest]

Thanks for your help- to you and the others that responded- we are

still new to this disease and have a lot to learn. The enzyme

numbers seemed odd before- but now I understand.

The doctors are watching the enzyme levels, but are not going by

them religiously. As everyone said, it isn't the most important

thing and may no longer be reliable.

Our health care providers don't seem to be forthcoming with

information- but we are learning to be pushy in getting answers to

questions.

Jeanette

>

> Jeanette,

>

> Can I add that my specialist says that he isn't concerned with how

high the numbers are or aren't. He treats the symptoms, not the

numbers. I have had a 10 days hospital stay where my A & L numbers

werren't all that high and a 5 day stay where they were, what I

thought to be high until talking to others on this board, very high.

>

> And after you have gone chronic, there is a point to where your A

& L levels won't raise anymore, just like says. I haven't

hit that point yet.

>

> Hope that also helps.

>

> Sandy in Ca

>

> -------------- Original message --------------

> Jeanette I can only speak from my own personal experience here.

But my

> enzymes have never ever been elevated. Never. The have always

been

> low within normal limits or just low.

>

>