Guest guest Posted November 29, 2007 Report Share Posted November 29, 2007 My son's been on SCD for a month, and we're still having a hard time getting into the swing of things. He's seven, and he's been GF/CF for six months, with suspected celiac disease, but the diarrhea was still awful. So we've been on SCD, and his bowels are much better, but we've had two big screw-ups. One was because I let him have a bite of a snack bar that had nuts and sugar in it, and he ended up pooping in his pants while playing with friends, which just about killed him with the embarrasment of it. And yesterday, he had a bad headache, so without thinking, I gave him a couple droppersful of children's Tylenol, which apparently has a lot of sugar in it, because he's spent all day today in the bathroom. This just sucks. What do we do now? Keep going? We're desperate for him to gain weight, so the nutritionist that we're working with put him on a shake everyday from avocado, coconut milk, honey and a banana, even though those things are pretty advanced. Up until now, he's tolerated it very well. Do I go back to intro and slowly work back up to the shake, or can I just go on like nothing's happened? What I'm really hoping for is the day we can add in nuts and beans. My poor guy's starving to death right for some baked goods, and if I could do nut flours he'd be much, much happier. I don't really even know what answers I'm looking for. Just some moral support, I guess, and a promise that this really does work... Thanks, Meagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Hi, Meagan, Thank you for your great post about chicken/meats. Now, for SCD to work for your son, you have to have what Elaine called " fanatical adherence " . No more small (or large!) bites of snack bar. Maybe try an herbal wrap for the headache before reaching for the Tylenol. Or get compounded Tylenol or suppositories. Or get a pill cutter and use a portion of an adult Tylenol where you at least are not giving all the corn syrup. Your shake is not *that* advanced--but what kind of coconut milk? I hope it's not store-bought. That would not be legal. To make the shake less advanced, leave out the coconut milk and add some coconut oil. If weight is a huge issue, then I don't think you should go back to the intro right now. Maybe you can do it later when weight is better. Just keep with the legal shakes/smoothies. Try to put healthy oils in lots of stuff. Serve a good amount of avocado, winter squash, and banana. You can put avocado in egg bread, meatloaf, etc. mom to -12 SCD 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Hi Meagan, Well, with my son, I'm not sure because we did not have any infractions like those. But we did have accidental infractions that resulted in instant diarrhea. However it did not set us back. I think had some good suggestions. The coconut oil instead is a good suggestion. But, keep in mind that nut flour is a stage 3 food, but some nut butters can be tried in stage 2. You can bake things with nut butters like brownies. We recently introduced them with my son and they went over well and he is tolerating them. B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com --- meaganmcgovern wrote: > My son's been on SCD for a month, and we're still > having a hard time > getting into the swing of things. > He's seven, and he's been GF/CF for six months, with > suspected celiac > disease, but the diarrhea was still awful. So we've > been on SCD, and > his bowels are much better, but we've had two big > screw-ups. One was > because I let him have a bite of a snack bar that > had nuts and sugar > in it, and he ended up pooping in his pants while > playing with > friends, which just about killed him with the > embarrasment of it. > And yesterday, he had a bad headache, so without > thinking, I gave him > a couple droppersful of children's Tylenol, which > apparently has a lot > of sugar in it, because he's spent all day today in > the bathroom. > This just sucks. > What do we do now? Keep going? We're desperate for > him to gain weight, > so the nutritionist that we're working with put him > on a shake > everyday from avocado, coconut milk, honey and a > banana, even though > those things are pretty advanced. Up until now, he's > tolerated it very > well. > Do I go back to intro and slowly work back up to the > shake, or can I > just go on like nothing's happened? > What I'm really hoping for is the day we can add in > nuts and beans. My > poor guy's starving to death right for some baked > goods, and if I > could do nut flours he'd be much, much happier. > I don't really even know what answers I'm looking > for. Just some moral > support, I guess, and a promise that this really > does work... > Thanks, > Meagan > > ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Hi! We do the nut butter muffins for my son and he loves them. I sneak other veg. into them as well (so he gets fruit and veg. in his muffins). For example, I made a batch last night with about a cup of homemade almond butter, 1 egg, 1 ripe banana, a whole zucchini peeled and grated and about 1/4 c. of pureed carrots (that had been cooked 3- 4 hours -- I freeze tons of this puree to have on hand). I used about 2 tsp. of cider vinegar and a tsp. of baking soda (more than the recipe called for). They worked beautifully. The cahsew butter muffins recipe on pecan bread can be used to make cakes/loaves as well. Kim (Henry 7.75, many GI issues incl. some Crohn's markers -- SCD since mid-Oct.) > > My son's been on SCD for a month, and we're still having a hard time > getting into the swing of things. > He's seven, and he's been GF/CF for six months, with suspected celiac > disease, but the diarrhea was still awful. So we've been on SCD, and > his bowels are much better, but we've had two big screw-ups. One was > because I let him have a bite of a snack bar that had nuts and sugar > in it, and he ended up pooping in his pants while playing with > friends, which just about killed him with the embarrasment of it. > And yesterday, he had a bad headache, so without thinking, I gave him > a couple droppersful of children's Tylenol, which apparently has a lot > of sugar in it, because he's spent all day today in the bathroom. > This just sucks. > What do we do now? Keep going? We're desperate for him to gain weight, > so the nutritionist that we're working with put him on a shake > everyday from avocado, coconut milk, honey and a banana, even though > those things are pretty advanced. Up until now, he's tolerated it very > well. > Do I go back to intro and slowly work back up to the shake, or can I > just go on like nothing's happened? > What I'm really hoping for is the day we can add in nuts and beans. My > poor guy's starving to death right for some baked goods, and if I > could do nut flours he'd be much, much happier. > I don't really even know what answers I'm looking for. Just some moral > support, I guess, and a promise that this really does work... > Thanks, > Meagan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Kim, Can I ask how you make the homemade almond butter? I'm only buying all natural kids at Whole Foods and I would like to make my own, but I've heard conflicting reports as to how to get a good creamy texture. I only have a blender but I've heard I really need a food processor. What do you think? B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com --- Kim wrote: > Hi! We do the nut butter muffins for my son and he > loves them. I > sneak other veg. into them as well (so he gets fruit > and veg. in his > muffins). For example, I made a batch last night > with about a cup of > homemade almond butter, 1 egg, 1 ripe banana, a > whole zucchini peeled > and grated and about 1/4 c. of pureed carrots (that > had been cooked 3- > 4 hours -- I freeze tons of this puree to have on > hand). I used > about 2 tsp. of cider vinegar and a tsp. of baking > soda (more than > the recipe called for). They worked beautifully. > The cahsew butter > muffins recipe on pecan bread can be used to make > cakes/loaves as > well. > > Kim (Henry 7.75, many GI issues incl. some Crohn's > markers -- SCD > since mid-Oct.) > > > > > > My son's been on SCD for a month, and we're still > having a hard time > > getting into the swing of things. > > He's seven, and he's been GF/CF for six months, > with suspected > celiac > > disease, but the diarrhea was still awful. So > we've been on SCD, and > > his bowels are much better, but we've had two big > screw-ups. One was > > because I let him have a bite of a snack bar that > had nuts and sugar > > in it, and he ended up pooping in his pants while > playing with > > friends, which just about killed him with the > embarrasment of it. > > And yesterday, he had a bad headache, so without > thinking, I gave > him > > a couple droppersful of children's Tylenol, which > apparently has a > lot > > of sugar in it, because he's spent all day today > in the bathroom. > > This just sucks. > > What do we do now? Keep going? We're desperate for > him to gain > weight, > > so the nutritionist that we're working with put > him on a shake > > everyday from avocado, coconut milk, honey and a > banana, even though > > those things are pretty advanced. Up until now, > he's tolerated it > very > > well. > > Do I go back to intro and slowly work back up to > the shake, or can I > > just go on like nothing's happened? > > What I'm really hoping for is the day we can add > in nuts and beans. > My > > poor guy's starving to death right for some baked > goods, and if I > > could do nut flours he'd be much, much happier. > > I don't really even know what answers I'm looking > for. Just some > moral > > support, I guess, and a promise that this really > does work... > > Thanks, > > Meagan > > > > > ________________________________________________________________________________\ ____ Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 : Definitely a food processor -- I actually burnt out the motor of my nice kitchenaid blender by trying to make almond butter in it. I just put almonds in the food processor and turn it on. then I slowly add oil and let it keep blending. No precise amounts I just do it by look and it does take a few minutes to really blend. It doesn't look like the all natural ones at WF (that is what I used to use before SCD) -- it has a much lighter color, but it tastes good and works well in the muffins (not sure if it doesn't look the same b/c I am not doing something right or b/c I am not a big production line with heavy duty equipment!). I haven't tried it in sandwiches b/c I have yet to find a bread substitute Henry likes (we will have to wait for the nut flours!). HTH, Kim > > > > > > My son's been on SCD for a month, and we're still > > having a hard time > > > getting into the swing of things. > > > He's seven, and he's been GF/CF for six months, > > with suspected > > celiac > > > disease, but the diarrhea was still awful. So > > we've been on SCD, and > > > his bowels are much better, but we've had two big > > screw-ups. One was > > > because I let him have a bite of a snack bar that > > had nuts and sugar > > > in it, and he ended up pooping in his pants while > > playing with > > > friends, which just about killed him with the > > embarrasment of it. > > > And yesterday, he had a bad headache, so without > > thinking, I gave > > him > > > a couple droppersful of children's Tylenol, which > > apparently has a > > lot > > > of sugar in it, because he's spent all day today > > in the bathroom. > > > This just sucks. > > > What do we do now? Keep going? We're desperate for > > him to gain > > weight, > > > so the nutritionist that we're working with put > > him on a shake > > > everyday from avocado, coconut milk, honey and a > > banana, even though > > > those things are pretty advanced. Up until now, > > he's tolerated it > > very > > > well. > > > Do I go back to intro and slowly work back up to > > the shake, or can I > > > just go on like nothing's happened? > > > What I'm really hoping for is the day we can add > > in nuts and beans. > > My > > > poor guy's starving to death right for some baked > > goods, and if I > > > could do nut flours he'd be much, much happier. > > > I don't really even know what answers I'm looking > > for. Just some > > moral > > > support, I guess, and a promise that this really > > does work... > > > Thanks, > > > Meagan > > > > > > > > > > > > > ______________________________________________________________________ ______________ > Be a better sports nut! Let your teams follow you > with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Hi Kim, I almost did the same thing, but with my Kitchenaid coffee bean grinder (I used it to make nut flour pre-SCD. It almost worked (it was close to nut butter) but I almost killed the motor. Now I have to find a reasonable food processor. But thanks for the tip. Do you use blanched almonds or regular raw ones that are not blanched? B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com > : > > Definitely a food processor -- I actually burnt out > the motor of my > nice kitchenaid blender by trying to make almond > butter in it. I > just put almonds in the food processor and turn it > on. then I slowly > add oil and let it keep blending. No precise > amounts I just do it by > look and it does take a few minutes to really blend. > It doesn't look > like the all natural ones at WF (that is what I used > to use before > SCD) -- it has a much lighter color, but it tastes > good and works > well in the muffins (not sure if it doesn't look the > same b/c I am > not doing something right or b/c I am not a big > production line with > heavy duty equipment!). I haven't tried it in > sandwiches b/c I have > yet to find a bread substitute Henry likes (we will > have to wait for > the nut flours!). HTH, Kim > > > > > > > > > > My son's been on SCD for a month, and we're > still > > > having a hard time > > > > getting into the swing of things. > > > > He's seven, and he's been GF/CF for six > months, > > > with suspected > > > celiac > > > > disease, but the diarrhea was still awful. So > > > we've been on SCD, and > > > > his bowels are much better, but we've had two > big > > > screw-ups. One was > > > > because I let him have a bite of a snack bar > that > > > had nuts and sugar > > > > in it, and he ended up pooping in his pants > while > > > playing with > > > > friends, which just about killed him with the > > > embarrasment of it. > > > > And yesterday, he had a bad headache, so > without > > > thinking, I gave > > > him > > > > a couple droppersful of children's Tylenol, > which > > > apparently has a > > > lot > > > > of sugar in it, because he's spent all day > today > > > in the bathroom. > > > > This just sucks. > > > > What do we do now? Keep going? We're desperate > for > > > him to gain > > > weight, > > > > so the nutritionist that we're working with > put > > > him on a shake > > > > everyday from avocado, coconut milk, honey and > a > > > banana, even though > > > > those things are pretty advanced. Up until > now, > > > he's tolerated it > > > very > > > > well. > > > > Do I go back to intro and slowly work back up > to > > > the shake, or can I > > > > just go on like nothing's happened? > > > > What I'm really hoping for is the day we can > add > > > in nuts and beans. > > > My > > > > poor guy's starving to death right for some > baked > > > goods, and if I > > > > could do nut flours he'd be much, much > happier. > > > > I don't really even know what answers I'm > looking > > > for. Just some > > > moral > > > > support, I guess, and a promise that this > really > > > does work... > > > > Thanks, > > > > Meagan > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ > ______________ > > Be a better sports nut! Let your teams follow you > > > with Yahoo Mobile. Try it now. > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > > > > ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 : I use blanched almonds that I either buy blanched or blanch and de-skin myself -- when I do the blanching I found, thru trial and error, that it helps to then let the nuts dry out a little before making the butter -- extra water made a weirder textured almond butter - - still totally useable, just different! Kim Quote Link to comment Share on other sites More sharing options...
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