Not 100% SCD and in the South Jersey Area?

December 8, 2007

Hello,

I don't post often at all here but I visit this forum daily and I think this

diet is great. My son unfortunately has sensitivities to all nuts except for

peanuts. He also has sensitivities to eggs and bananas. I have been trying to

address his food sensitivities with NAET. However the process has been slow

because there is so much cost between doctor visits, supplements and food.

I have made a few SCD recipes and my son has totally refused to eat any of it.

I know that every child on the spectrum is different and it is our job as

parents to find the right combination of interventions to heal our children.

I believe that the SCD yogurt will be beneficial to my son and I am going to try

it. I was wondering if anyone else here is also doing the SCD yogurt but is not

on the SCD diet 100%?

I was also wondering if there are any biomedical meetings in the South Jersey

area like TACA? It would be great to be able to meet other parents who are

going thru this with their children.

Thank you

December 8, 2007

This is just the experience of a short-timer in SCD, but with years of dietary

interventions on my own before SCD to help my son's behavior. My son has

Asperger's, OCD, ADHD, Dyslexia, food allergies and salicylate intolerance and

is sensitive to eggs now. So, our limitations are considerable within the SCD

community.

I found and I know many others have also that the food aversions did not stop

until we got completely on SCD and broke the vicious cycle, break the cravings.

Then they start accepting many more foods. I (only my humble opinion for what

it's worth) couldn't imagine getting my son to eat more foods without taking out

all the " bad stuff " . When he did start excepting new foods it was an amazing

thing. This is the kid who would still be eating mushy baby food from jars if

it were for the unbelievable trouble I've been through working on his eating. I

forced so much for so many years so he could survive and grow, but when I

started all the dietary interventions that's when I started seeing his own

voluntary efforts. Now all I have to say is (in an excited tone) that we have a

new food you can try today and he gets excited. I make it an exciting thing and

not a drudgery.

As far as the food allergies and intolerances go. I UNDERSTAND! But, just so

you will know, it CAN be done with all those issues you mentioned. My son is

allergic (this is only what we know for sure now and have to go through further

testing) to all nuts except pecans, cashews and BLACK (not frequently found)

walnuts. He is allergic to apples, strawberries, avocado, green olives (means

no olive oil at all), yellow squash, peanuts that we know of. I don't know if

he can have any of the greens, cauliflower, etc yet as they have not been

tested. He can't have tomatoes, bell peppers, grapes, etc as they are so high

in salicylates. I can only use small amounts of coconut oil (with phenol

enzyme), corn oil and ghee (clarified butter). He is incrediblely sensitive to

salicylates except to the ones that are specifically stated as " low or

negligible " sal's. He's also sensitive to eggs now.

So, it is a challenge. Also he eats unbelievable amounts of food which makes it

more difficult. However, it can be done and the benefit far outweighs the

difficulty. My son was so non-functional prior to all my efforts with diet and

now takes NO MEDS at all! This is not a push telling you that you have to do

this 100%, but I (in my newbie inexperience) doubt you will get near the

benefits you want without it. I just wanted to let you and any other lurkers

know that it CAN BE DONE! It is the hardest, most expensive thing we've ever

done, but it is worth it. Outside of SCD there was not much hope of any

permanent stable health and control of his " issues " .

Sorry this is so long, but maybe it will encourage others out there like me who

just knew they couldn't do it.

Bonita

son- SCD 5 months