Re: confused at start - up

[Guest guest]

Hi, ,

Epsom salts and activated charcoal would be good to have on hand. I

would wait with the ProGurt and the yogurt maker. We advise people

who have been CF to get over the initial die-off period before

starting yogurt. If you don't wait, then you may confuse a reaction

to casein with die-off. We recommend waiting 2-3 weeks if die-off is

over quickly and the diet is going very well. We recommend 3-4 months

if you have lots of die-off and food reactions.

Some parents put their kids on SCD cold turkey. Sometimes they have

to watch their child refuse to eat and that is very hard. But it can

work. Sometimes, it is better to try to expand the child's range of

foods first. How about cooking and pureeing a variety of new fruits

and trying to get your child to accept them. (You can have a bite of

cracker if you have a bite of applesauce first....Later, increase

amount of applesauce the child must eat to get the reward....Later,

eliminate reward.)

Take a look at the intro diet foods listed on www.pecanbread.com. You

will see that broiled beef patties, chicken soup and well-cooked

carrots, as well as homemade gelatin using diluted legal juices are a

big part of the intro diet. Maybe you should try to get your child to

accept these first before plunging in. From the way you have

described his food preferences, it looks as though it will be a battle

of wills; and it is very unpleasant to work hard making soup and

gelatin from scratch and having your child refuse to even take a bite,

not to mention the worrying about him taking in no calories.

We don't recommend just introducing all legal foods regardless of

stage. People see better results starting with the intro diet and

then adding one food at a time and watching for reactions. However,

some do plunge in that way and then go back to the intro diet later.

They usually see better results when they have gone back to do the

intro diet.

The recipe for chicken pancakes is here:

http://www.pecanbread.com/new/recipes1.html

mom to -12

SCD 4/23/04

[Guest guest]

THank you for all of this!!!

One more question: could I purchase applesauce, pearsauce, or

babyfood and cook it up a while? Or is this a no no too? Is it an

absolute that I purchase the produce, peel it myself and cook it?

>

> Hi, ,

> Epsom salts and activated charcoal would be good to have on hand.

I

> would wait with the ProGurt and the yogurt maker. We advise people

> who have been CF to get over the initial die-off period before

> starting yogurt. If you don't wait, then you may confuse a

reaction

> to casein with die-off. We recommend waiting 2-3 weeks if die-off

is

> over quickly and the diet is going very well. We recommend 3-4

months

> if you have lots of die-off and food reactions.

> Some parents put their kids on SCD cold turkey. Sometimes they

have

> to watch their child refuse to eat and that is very hard. But it

can

> work. Sometimes, it is better to try to expand the child's range

of

> foods first. How about cooking and pureeing a variety of new

fruits

> and trying to get your child to accept them. (You can have a bite

of

> cracker if you have a bite of applesauce first....Later, increase

> amount of applesauce the child must eat to get the reward....Later,

> eliminate reward.)

> Take a look at the intro diet foods listed on www.pecanbread.com.

You

> will see that broiled beef patties, chicken soup and well-cooked

> carrots, as well as homemade gelatin using diluted legal juices

are a

> big part of the intro diet. Maybe you should try to get your

child to

> accept these first before plunging in. From the way you have

> described his food preferences, it looks as though it will be a

battle

> of wills; and it is very unpleasant to work hard making soup and

> gelatin from scratch and having your child refuse to even take a

bite,

> not to mention the worrying about him taking in no calories.

>

> We don't recommend just introducing all legal foods regardless of

> stage. People see better results starting with the intro diet and

> then adding one food at a time and watching for reactions.

However,

> some do plunge in that way and then go back to the intro diet

later.

> They usually see better results when they have gone back to do the

> intro diet.

> The recipe for chicken pancakes is here:

> http://www.pecanbread.com/new/recipes1.html

>

>

> mom to -12

> SCD 4/23/04

>

[Guest guest]

>

> THank you for all of this!!!

>

> One more question: could I purchase applesauce, pearsauce, or

> babyfood and cook it up a while? Or is this a no no too? Is it an

> absolute that I purchase the produce, peel it myself and cook it?

Hi, ,

As you say, it is a no-no on SCD. It was discoved early on that there

is a 2% rule that allows manufacturers to include additives, such as

sugar, without listing them on the label as long as it is below 2%.

This is very commonly done with fruit products due to variations in the

sweetness from one harvest to another. The manufacturer wants a

consistent sweetness and will add sugar/corn syrup to even things out

and does not need to say so. We do not trust the " no sugar added "

label.

mom to -12

SCD 4/23/04

[Guest guest]

Hi ,

As another mom of a kid on the spectrum all I can say is for you to give this

diet a try! I did GFCF with my son and we saw some gradual benefits. (And

major regression when I went off it for two days) But when I went SCD with him,

the changes were within days amd BIG! We haven't even been SCD for a month and

he is already a different kid. Good luck, whatever you decide!

son-3yo-PDD-NOS, SCD on week three.

-------------- Original message --------------

My 3 year old ASD son has been gfcfsfsf for 2 and ½ months. He has

always had loose bowel movements (like soft serve ice cream adhered

to the diaper). He would also occasionally have constipation. His

bowel movements were more formed initially after starting the diet

(I could finally put them from the diaper into the toilet). The

formed movements started about a week into the diet. As of the last

couple of weeks his bowel movements are not as cohesive again. In

fact they are back to as soft and stinky as they were initially

before the diet!

We are considering going SCD.

He eats only the following:

Replacement carb products like gfcfsfsf pancakes, bread, crackers,

muffins, pretzels, etc. that use the various replacement flours,

mostly rice based (some contain corn)

Gfcfsfsf chicken nuggets that I make

Potato

Sweet potato

Broccoli

Lima beans

Nuts

Peas

Very rarely banana mixed berry baby food and pear baby food

He has never in his life even tried a raw fruit or vegetable.

Before the diet fruits had been limited down to baby food banana or

banana mixed with something else.

My husband had diverticulitus and had surgery at age 29 to remove a

portion of his colon so the family history is there. My son was

tested via Metametrix Triad test kit and was found not to have a

yeast issue but he was found to have bacterial overgrowth. I have

been told by a couple of mothers that he likely has yeast and the

test just was not sensitive enough. My son has received probiotics

since we started the diet. The only way I can get him to take them

is to put them in his water. I am better at getting him to drink

the bottom of his sippy cup now than I was before (maybe most of the

probiotic was settling to the bottom). Would this have something to

do with his soft stools again?

My DAN doctor says to wait and stay on the basic diet longer. I

guess I could go the route of testing with a more sensitive test for

yeast, using antibiotics or antifungals, or cleaning out his system

entirely and giving probiotics. But I understand that many people

have to go SCD after going through all of this anyway. Most

importantly my son will go to school in January for a full day so I

feel that I should do major diet changes now so that he is used to

them before school. I feel like the holidays will be my last

opportunity for a while. I am considering hunkering down and doing

the specific carbohydrate diet over Christmas while my husband will

be here to help me.

The only other info I can give is that I don't think I ever saw any

additional benefits to my son with the gfcfsfsf diet other than the

formed stools for a while. He is now receiving the MB12 shots

(Neubrander) and I definitely think he is a responder for this –

better cognitively.

Sorry for the long post but I have a couple of questions. I am

trying to get fully prepared before the holidays so I can do this.

I am looking at the intro diet and I am doubtful that my son will

eat any of it. Should I just force the issue or start the diet with

anything he will eat regardless of stage? I see chicken pancakes on

the intro diet. what are those? Also we are casein free for the

last 2 and 1/2 months. When would I be able to try the homemade

yogurt for him? In my preparation should I get proGurt, a yogurt

maker, epsom salts, activated charcoal, enzymes (we currently aren't

doing these)? Any other advice?

I really appreciate all of you that pay it forward to our kids!

thank you for your time!!

[Guest guest]

thank you for the encourgement!!

>

> Hi ,

>

> As another mom of a kid on the spectrum all I can say is for you

to give this diet a try! I did GFCF with my son and we saw some

gradual benefits. (And major regression when I went off it for two

days) But when I went SCD with him, the changes were within days

amd BIG! We haven't even been SCD for a month and he is already a

different kid. Good luck, whatever you decide!

>

>

> son-3yo-PDD-NOS, SCD on week three.

>

> -------------- Original message --------------

>

> My 3 year old ASD son has been gfcfsfsf for 2 and ½ months. He has

> always had loose bowel movements (like soft serve ice cream

adhered

> to the diaper). He would also occasionally have constipation. His

> bowel movements were more formed initially after starting the diet

> (I could finally put them from the diaper into the toilet). The

> formed movements started about a week into the diet. As of the

last

> couple of weeks his bowel movements are not as cohesive again. In

> fact they are back to as soft and stinky as they were initially

> before the diet!

>

> We are considering going SCD.

>

> He eats only the following:

>

> Replacement carb products like gfcfsfsf pancakes, bread, crackers,

> muffins, pretzels, etc. that use the various replacement flours,

> mostly rice based (some contain corn)

> Gfcfsfsf chicken nuggets that I make

> Potato

> Sweet potato

> Broccoli

> Lima beans

> Nuts

> Peas

> Very rarely banana mixed berry baby food and pear baby food

> He has never in his life even tried a raw fruit or vegetable.

> Before the diet fruits had been limited down to baby food banana

or

> banana mixed with something else.

>

> My husband had diverticulitus and had surgery at age 29 to remove

a

> portion of his colon so the family history is there. My son was

> tested via Metametrix Triad test kit and was found not to have a

> yeast issue but he was found to have bacterial overgrowth. I have

> been told by a couple of mothers that he likely has yeast and the

> test just was not sensitive enough. My son has received probiotics

> since we started the diet. The only way I can get him to take them

> is to put them in his water. I am better at getting him to drink

> the bottom of his sippy cup now than I was before (maybe most of

the

> probiotic was settling to the bottom). Would this have something

to

> do with his soft stools again?

>

> My DAN doctor says to wait and stay on the basic diet longer. I

> guess I could go the route of testing with a more sensitive test

for

> yeast, using antibiotics or antifungals, or cleaning out his

system

> entirely and giving probiotics. But I understand that many people

> have to go SCD after going through all of this anyway. Most

> importantly my son will go to school in January for a full day so

I

> feel that I should do major diet changes now so that he is used to

> them before school. I feel like the holidays will be my last

> opportunity for a while. I am considering hunkering down and doing

> the specific carbohydrate diet over Christmas while my husband

will

> be here to help me.

>

> The only other info I can give is that I don't think I ever saw

any

> additional benefits to my son with the gfcfsfsf diet other than

the

> formed stools for a while. He is now receiving the MB12 shots

> (Neubrander) and I definitely think he is a responder for this –

> better cognitively.

>

> Sorry for the long post but I have a couple of questions. I am

> trying to get fully prepared before the holidays so I can do this.

> I am looking at the intro diet and I am doubtful that my son will

> eat any of it. Should I just force the issue or start the diet

with

> anything he will eat regardless of stage? I see chicken pancakes

on

> the intro diet. what are those? Also we are casein free for the

> last 2 and 1/2 months. When would I be able to try the homemade

> yogurt for him? In my preparation should I get proGurt, a yogurt

> maker, epsom salts, activated charcoal, enzymes (we currently

aren't

> doing these)? Any other advice?

>

> I really appreciate all of you that pay it forward to our kids!

> thank you for your time!!

>

>

>

>

>