Help pulling out of flare!

[Guest guest]

My son is flaring after over a year of being symptom free. We learned of oil of

oregano during the last flare which decreased the severity and length

tremendously and we weaned off prednisone very easily and have had no problems

since (last summer).

A couple months ago, my son's doc, at my request, reduced the sulfa drug by half

hoping he was ready because we lost our insurance and we are trying to reduce

medical expenses. That plus a minor infraction (piece of candy) and we think a

bad batch of yogurt has put him over the edge. For what is his usual during a

flare, he's doing well - now going 1-2x a day with some clotting and mucous (saw

one bm with red toilet water) - mostly mushy stools but a few solid ones here

and there. I've reduced the legal sugars, put him on 10 drops of OOO 2x a day

and upped his sulfasalazine to his original dose (1000mg 2x a day). Is it

possible he could pull out of this without prednisone? I've never had him pull

out of a flare without steroids and don't want to postpone the inevitable if it

could set him back or make pulling out of this flare harder in the long run. He

was going 4-5x a day last week... any help or encouragement appreciated!

Robbie

mom to , scd 4 yrs, UC

[Guest guest]

Hi Robbie,

How about going back to the intro diet?

Try the following:

Using lots of yogurt

S Boulardii

Legal enzymes

The medications might help. Next time you might

want to taper off from the medications very gradually.

Mimi

[Guest guest]

The problem with the intro diet is hates soup. Any soup. It's a nightmare

to get him to try and eat it. He's so good about the diet being only 7 yrs old

- he turns down illegals and really has such a good attitude, I just can't bear

to force him to do the intro. We already do mostly protein as it is.... the S

Boulardi he has never tolerated as we tried that and I'm scared of our yogurt

maker - we think it's over heating the yogurt. The first batch I suspected was

too hot ended up being fine but the last one seemed to bother both kids though

it took some time for the flare to come about. My dh dripped that batch so I

didn't take the temp so I really don't know if it was bad or not, but it was

kind of runny. I shouldn't have let my kids eat it.

Anyone recommend a good yogurt maker?

Robbie

*************

Hi Robbie,

How about going back to the intro diet?

Try the following:

Using lots of yogurt

S Boulardii

Legal enzymes

The medications might help. Next time you might

want to taper off from the medications very gradually.

Mimi

*********************

[Guest guest]

Robbie,

You might want to try making yogurt with a heating

pad. I am going to try it. It's on this site:

http://www.breakingtheviciouscycle.info

Also, a lot of kids don't like soup because of the

pieces of vegetables and meat. You can puree the whole

soup if you like and make it more drinkable, maybe?

B.

ASD son, RA self, SCD Nov. 2007

http://scdgirl.blogspot.com

**********

--- Little Britches Boutique

wrote:

> The problem with the intro diet is hates soup.

> Any soup. It's a nightmare to get him to try and

> eat it. He's so good about the diet being only 7

> yrs old - he turns down illegals and really has such

> a good attitude, I just can't bear to force him to

> do the intro. We already do mostly protein as it

> is.... the S Boulardi he has never tolerated as we

> tried that and I'm scared of our yogurt maker - we

> think it's over heating the yogurt. The first batch

> I suspected was too hot ended up being fine but the

> last one seemed to bother both kids though it took

> some time for the flare to come about. My dh

> dripped that batch so I didn't take the temp so I

> really don't know if it was bad or not, but it was

> kind of runny. I shouldn't have let my kids eat it.

>

> Anyone recommend a good yogurt maker?

>

> Robbie

> *************

>

> Hi Robbie,

>

> How about going back to the intro diet?

>

> Try the following:

> Using lots of yogurt

> S Boulardii

> Legal enzymes

>

> The medications might help. Next time you might

> want to taper off from the medications very

> gradually.

>

> Mimi

> *********************

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

you must get the dimmer switch to control the yougurt maker

temperature. Go to a lighting store. It's just a long cord with a

plug and a control dial, about $18. You must fiddle with it and

take the temp of the yogurt often to find out where to keep the

dial. Good luck.

mom to broderick, asd, pdd, scd 27 months-

-- In pecanbread , " Little Britches Boutique "

wrote:

>

> The problem with the intro diet is hates soup. Any soup.

It's a nightmare to get him to try and eat it. He's so good about

the diet being only 7 yrs old - he turns down illegals and really

has such a good attitude, I just can't bear to force him to do the

intro. We already do mostly protein as it is.... the S Boulardi he

has never tolerated as we tried that and I'm scared of our yogurt

maker - we think it's over heating the yogurt. The first batch I

suspected was too hot ended up being fine but the last one seemed to

bother both kids though it took some time for the flare to come

about. My dh dripped that batch so I didn't take the temp so I

really don't know if it was bad or not, but it was kind of runny. I

shouldn't have let my kids eat it.

>

> Anyone recommend a good yogurt maker?

>

> Robbie

> *************

>

> Hi Robbie,

>

> How about going back to the intro diet?

>

> Try the following:

> Using lots of yogurt

> S Boulardii

> Legal enzymes

>

> The medications might help. Next time you might

> want to taper off from the medications very gradually.

>

> Mimi

> *********************

>

>

>

[Guest guest]

Hi, Robbie,

I am so sorry to hear about all is going through. Anyway, you

can do the intro diet without soup. He can eat the carrots and

chicken, but not the broth. You can make chicken pancakes, eggs of

all kinds, hamburgers and gelatin. How about putting a little broth

in a popsicle with diluted grape juice or apple cider and honey?

mom to -12

SCD 4/23/04

[Guest guest]

Hi Robbie,

>

> The problem with the intro diet is hates soup. Any soup.

It's a nightmare to get him to try and eat it. He's so good about

the diet being only 7 yrs old - he turns down illegals and really

has such a good attitude, I just can't bear to force him to do the

intro. We already do mostly protein as it is....>>>>>

I am so sorry to hear that is in a flare! (I was very sick

this week with the stomach flu so I've been offlist).

The intro diet is really the best thing to help get the flare turned

around and turned around quickly. Since he doesn't like soup here

are a few ideas.

Make the chicken soup and strain out the carrots and chicken. Eat

the chicken on a plate. You can puree the carrots with some broth

and use it like a gravy on the chicken or as a dip for thr chicken

pieces. Salt is usually okay because usually salt is lost during

a flare. (How much diarrhea? Is there blood?) To get the most

out of the broth simmer it way down until it is very concentrated -

it will make your carrot gravy very tasty. If still won't eat the

carrots like this take the cooked carrots, blend some with an egg

and some ground beef and bake like a meatloaf for about 1 hour at

350F. (about 1 cup of cooked carrots, 1 egg and 1 lb ground beef)

If he likes the carrot gravy you can use it on the meatloaf.

<<<<<the S Boulardi he has never tolerated as we tried that and I'm

scared of our yogurt maker - we think it's over heating the yogurt.

The first batch I suspected was too hot ended up being fine but the

last one seemed to bother both kids though it took some time for the

flare to come about. My dh dripped that batch so I didn't take the

temp so I really don't know if it was bad or not, but it was kind of

runny. I shouldn't have let my kids eat it.>

> Anyone recommend a good yogurt maker? >>>>>

I use a heating pad and a plastic container filled with water. The

most important thing is a good thermometer. I got a good digital

one for $10 but you can get them for less. I already had the

heating pad and container. The temp was a little high so I laid a

tea towel between the heating pad and the plastic (water filled)

container. This keeps the water at a perfect temperature range for

24 hours. I bunched the ends of the tea towel a tiny bit so there is

a wee bit of air circulation under the container . This helps

prevent overheating

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

>

> Robbie

> *************

>

> Hi Robbie,

>

> How about going back to the intro diet?

>

> Try the following:

> Using lots of yogurt

> S Boulardii

> Legal enzymes

>

> The medications might help. Next time you might

> want to taper off from the medications very gradually.

>

> Mimi

> *********************

>

>

>

[Guest guest]

Ohhhh thank you for the tip on the dimmer switch!

We were in the Oklahoma ice storm and were without power for 4 days and internet

for 6 days so I'm just now getting caught up on the replies to my posts...

Robbie

[Guest guest]

Hi, Sheila! Thank you for the tips... he is having blood, mucous and mushy

stools, but when we upped the sulfa to 1000mg 2x a day things started improving.

He didn't go at all today, and 1x yesterday - still with blood but this is a

good sign I hope. He must have a bacteria strain in there since the sulfa helps

so much - wish they would test for more than 5 strains though, ya know?

I will make some soup and see if I can figure out what it is about 'soup' that

he doesn't like. My younger son loves it as do I. Must be a texture thing...

he'll eat a burger patty plain but won't eat yummy soup. Go figure.

And thank you for the heating pad method! I could make more at once that way,

too!

Robbie

Re: Help pulling out of flare!

Hi Robbie,

>

> The problem with the intro diet is hates soup. Any soup.

It's a nightmare to get him to try and eat it. He's so good about

the diet being only 7 yrs old - he turns down illegals and really

has such a good attitude, I just can't bear to force him to do the

intro. We already do mostly protein as it is....>>>>>

I am so sorry to hear that is in a flare! (I was very sick

this week with the stomach flu so I've been offlist).

The intro diet is really the best thing to help get the flare turned

around and turned around quickly. Since he doesn't like soup here

are a few ideas.

Make the chicken soup and strain out the carrots and chicken. Eat

the chicken on a plate. You can puree the carrots with some broth

and use it like a gravy on the chicken or as a dip for thr chicken

pieces. Salt is usually okay because usually salt is lost during

a flare. (How much diarrhea? Is there blood?) To get the most

out of the broth simmer it way down until it is very concentrated -

it will make your carrot gravy very tasty. If still won't eat the

carrots like this take the cooked carrots, blend some with an egg

and some ground beef and bake like a meatloaf for about 1 hour at

350F. (about 1 cup of cooked carrots, 1 egg and 1 lb ground beef)

If he likes the carrot gravy you can use it on the meatloaf.

<<<<<the S Boulardi he has never tolerated as we tried that and I'm

scared of our yogurt maker - we think it's over heating the yogurt.

The first batch I suspected was too hot ended up being fine but the

last one seemed to bother both kids though it took some time for the

flare to come about. My dh dripped that batch so I didn't take the

temp so I really don't know if it was bad or not, but it was kind of

runny. I shouldn't have let my kids eat it.>

> Anyone recommend a good yogurt maker? >>>>>

I use a heating pad and a plastic container filled with water. The

most important thing is a good thermometer. I got a good digital

one for $10 but you can get them for less. I already had the

heating pad and container. The temp was a little high so I laid a

tea towel between the heating pad and the plastic (water filled)

container. This keeps the water at a perfect temperature range for

24 hours. I bunched the ends of the tea towel a tiny bit so there is

a wee bit of air circulation under the container . This helps

prevent overheating

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

>

> Robbie

> *************

>

> Hi Robbie,

>

> How about going back to the intro diet?

>

> Try the following:

> Using lots of yogurt

> S Boulardii

> Legal enzymes

>

> The medications might help. Next time you might

> want to taper off from the medications very gradually.

>

> Mimi

> *********************

>

>

>

[Guest guest]

Hi Robbie : )

> >

> > The problem with the intro diet is hates soup. Any soup.

> It's a nightmare to get him to try and eat it. He's so good

about

> the diet being only 7 yrs old - he turns down illegals and

really

> has such a good attitude, I just can't bear to force him to do

the

> intro. We already do mostly protein as it is....>>>>>

>

> I am so sorry to hear that is in a flare! (I was very sick

> this week with the stomach flu so I've been offlist).

>

> The intro diet is really the best thing to help get the flare

turned

> around and turned around quickly. Since he doesn't like soup

here

> are a few ideas.

>

> Make the chicken soup and strain out the carrots and chicken.

Eat

> the chicken on a plate. You can puree the carrots with some

broth

> and use it like a gravy on the chicken or as a dip for thr

chicken

> pieces. Salt is usually okay because usually salt is lost during

> a flare. (How much diarrhea? Is there blood?) To get the most

> out of the broth simmer it way down until it is very

concentrated -

> it will make your carrot gravy very tasty. If still won't eat

the

> carrots like this take the cooked carrots, blend some with an

egg

> and some ground beef and bake like a meatloaf for about 1 hour

at

> 350F. (about 1 cup of cooked carrots, 1 egg and 1 lb ground beef)

> If he likes the carrot gravy you can use it on the meatloaf.

>

> <<<<<the S Boulardi he has never tolerated as we tried that and

I'm

> scared of our yogurt maker - we think it's over heating the

yogurt.

> The first batch I suspected was too hot ended up being fine but

the

> last one seemed to bother both kids though it took some time for

the

> flare to come about. My dh dripped that batch so I didn't take

the

> temp so I really don't know if it was bad or not, but it was

kind of

> runny. I shouldn't have let my kids eat it.>

> > Anyone recommend a good yogurt maker? >>>>>

>

> I use a heating pad and a plastic container filled with water.

The

> most important thing is a good thermometer. I got a good digital

> one for $10 but you can get them for less. I already had the

> heating pad and container. The temp was a little high so I laid

a

> tea towel between the heating pad and the plastic (water filled)

> container. This keeps the water at a perfect temperature range

for

> 24 hours. I bunched the ends of the tea towel a tiny bit so

there is

> a wee bit of air circulation under the container . This helps

> prevent overheating

>

> Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

> mom of and

>

> >

> > Robbie

> > *************

> >

> > Hi Robbie,

> >

> > How about going back to the intro diet?

> >

> > Try the following:

> > Using lots of yogurt

> > S Boulardii

> > Legal enzymes

> >

> > The medications might help. Next time you might

> > want to taper off from the medications very gradually.

> >

> > Mimi

> > *********************

> >

> >

> >