Flare UP

[Guest guest]

I have crohn's disease and have been on the diet for only three weeks.

Everything seemed to be getting better but for the last five days I

have had all my normal symptoms. I have been very strict about the

diet so I have no idea why this is happening. Does anyone with IBD

have any suggestions for getting things back to squre one again?

[Guest guest]

I am sorry to hear about your regression. The following

Have you started any new foods, supplements, meds recently?

What are you eating?

Are the veggies and fruit cooked, peeled and seeded?

Any manufactured foods?

Supplements?

Mimi

[Guest guest]

I am sorry but my computer sent my email before I finished my sentence..

I meant to say that the following questions would help us figure out

what happened.

> I am sorry to hear about your regression. The following

> Have you started any new foods, supplements, meds recently?

>

> What are you eating?

> Are the veggies and fruit cooked, peeled and seeded?

>

> Any manufactured foods?

> Supplements?

>

> Mimi

>

[Guest guest]

Hi ,

>

> I have crohn's disease and have been on the diet for only three

weeks.

> Everything seemed to be getting better but for the last five days

I

> have had all my normal symptoms.>>>>>

Have you added new foods in the last few days?

What were your symptoms preSCD? How have they been since starting

SCD/

Any meds/supplements?

Have you increased exercise etc..?

<<<<I have been very strict about the

> diet so I have no idea why this is happening. Does anyone with IBD

> have any suggestions for getting things back to squre one again?

>>>>

You may have to try some easier to digest foods. How are you

preparing the foods (raw, cooked peeled...?)

Sheila, SCD Feb. 2001, UC 23yrs, PCOD 22yrs

mom of and

[Guest guest]

> > I am sorry to hear about your regression. The following

> > Have you started any new foods, supplements, meds recently?

> >

> > What are you eating?

> > Are the veggies and fruit cooked, peeled and seeded?

> >

> > Any manufactured foods?

> > Supplements?

> >

> > Mimi

> >

>

[Guest guest]

Hi, Ashle,

Well, for openers, I can tell you, from personal

experience, that raw fruit at the outset of the diet is a Bad Idea.

Some people may do well with Lara bars. I trust

no manufactured product -- if you gotta have

dates and dried fruits (which are fairly advanced

foods), buy the dry fruits you like, and some nut

flour, and stuff Medjool dates with it. Darn sight safer.

Don't know what your probiotic is, but if your

Blue Heron fiber supplement is this one

http://www.drugnatural.com/p/746454

it is so SCD-illegal it makes me nauseous just looking at the ingredients.

Flax (Linum usitatissimum) Seed 1200 mg

*,Psyllium (Plantago ovata) Seed Husk 1200 mg *,

Rice (Oryza sativa) Bran 1200 mg *,Dried Plum

(Prunus domestica) Fruit 180 mg *,Fenugreek

(Trigonella foenum-graecum) Seed 150 mg

*,Slippery Elm (Ulmus rubra) Bark 150 mg

*,Triphala (a blend of amla fruit (Phyllanthus

emblica), belleric myrobalan fruit (Terminalia

bellerica, and chebulic myrobalan fruit

(Terminalia chebula)) 150 mg *,Spectra Probiotic

Proprietary Blend(Lactobacillus acidophhilus,

Bifidobacterium bifidum, Bifidobacterium

infantis, Bifidobacterium longum, Lactobacillus

bulgaricus, Lactobacillus casei, Lactobacillus

salivarius, and Streptococcus thermophilus) 60 mg

*,Marshmallow (Althaea officinalis) Root Extract

3.5:1 48 mg *, Papain (Papaya enzyme 6,000 USP units/mg) 30 mg *.

*Daily Value (DV) not established.

Other Ingredients:rice flour and natural polysaccharide capsule.

Man, if I took even one of the items I marked in

red, I'd be sicker than a Dawg. That you're

taking ALL of them makes me shudder.

Liquid multi-vitamins often have a ton of illegals in them. What is yours?

Hope there aren't any more like this in your

repertoire! By the way, I did not use the

standard intro diet, either. I ate soft boiled

eggs, sliced roast beef, sliced roast pork, and

steamed zucchini for months before I could tolerate anything else.

— Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Hi ,

How are you doing now? I hope your flare up is better.

Something that I have thought about IBD and the SC diet is that, even

though a person's body might be " used " to eating certain things, you

see that the body is NOT tolerating those things b/c the body has

developed IBD. When you start SCD, you're giving your body a nice

break from all those other things, and, when it finds itself staring

at an advanced food, the body suddenly makes it pretty darn clear that

it doesn't like it.

I hope that made a modicum of sense....In my mind it does, but I see

it's harder to get written down.

When my dd was diagnosed w. Crohn's 1.5 years ago, we were surprised

(stunned, really) to find out that she was also discovered by biopsy

to be lactose intolerant. She had always eaten dairy products without

any of the difficulties that one would normally associate with lactose

intolerance. But there it was. So even if we thought she was fine

with it, her body really wasn't.

She has been SCD since diagnosis, with three very minor flares. Each

time we brought her diet back down to the into diet and, after she was

symptom-free, started up the chain veeeeery slowly. She does eat Lara

bars (I know many on here don't b/c they are a processed food), but

only after she was symptom-free for six months.

Try the " real " into and proceed slowly and see how you do. This might

be just the thing for you.

Good luck,

Ellen

[Guest guest]

I brought this up to my doctor and she told me that the body does not

digest the fiber that it goes right through so I do not have to worry

about it. I don't claim to understand that but I do not really know

why she would suggest one thing but give me another. I also just went

back for the flare up and she prescrivbed me a bark tea that is also

not legal but told me to stick with the diet! I think Im going to

stop taking it and just try to get back to square one. Thanks for all

the help!

>

>

> Hi, Ashle,

>

> Well, for openers, I can tell you, from personal

> experience, that raw fruit at the outset of the diet is a Bad Idea.

>

> Some people may do well with Lara bars. I trust

> no manufactured product -- if you gotta have

> dates and dried fruits (which are fairly advanced

> foods), buy the dry fruits you like, and some nut

> flour, and stuff Medjool dates with it. Darn sight safer.

>

> Don't know what your probiotic is, but if your

> Blue Heron fiber supplement is this one

>

> http://www.drugnatural.com/p/746454

>

> it is so SCD-illegal it makes me nauseous just looking at the

ingredients.

>

> Flax (Linum usitatissimum) Seed 1200 mg

> *,Psyllium (Plantago ovata) Seed Husk 1200 mg *,

> Rice (Oryza sativa) Bran 1200 mg *,Dried Plum

> (Prunus domestica) Fruit 180 mg *,Fenugreek

> (Trigonella foenum-graecum) Seed 150 mg

> *,Slippery Elm (Ulmus rubra) Bark 150 mg

> *,Triphala (a blend of amla fruit (Phyllanthus

> emblica), belleric myrobalan fruit (Terminalia

> bellerica, and chebulic myrobalan fruit

> (Terminalia chebula)) 150 mg *,Spectra Probiotic

> Proprietary Blend(Lactobacillus acidophhilus,

> Bifidobacterium bifidum, Bifidobacterium

> infantis, Bifidobacterium longum, Lactobacillus

> bulgaricus, Lactobacillus casei, Lactobacillus

> salivarius, and Streptococcus thermophilus) 60 mg

> *,Marshmallow (Althaea officinalis) Root Extract

> 3.5:1 48 mg *, Papain (Papaya enzyme 6,000 USP units/mg) 30 mg *.

> *Daily Value (DV) not established.

> Other Ingredients:rice flour and natural polysaccharide capsule.

>

> Man, if I took even one of the items I marked in

> red, I'd be sicker than a Dawg. That you're

> taking ALL of them makes me shudder.

>

> Liquid multi-vitamins often have a ton of illegals in them. What is

yours?

>

> Hope there aren't any more like this in your

> repertoire! By the way, I did not use the

> standard intro diet, either. I ate soft boiled

> eggs, sliced roast beef, sliced roast pork, and

> steamed zucchini for months before I could tolerate anything else.

>

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

>

>

>

[Guest guest]

Thanks! I think you are right I will need to start all over again,

but that starter diet is just gross and boring. I know that it is a

sacrafice that I will have to make. The falre up has been happening

for about a week, and my doctor has tried prescribing me a

naturapatic cure but one of them is a bark tea that is illegal.

>

> Hi ,

>

> How are you doing now? I hope your flare up is better.

>

> Something that I have thought about IBD and the SC diet is that,

even

> though a person's body might be " used " to eating certain things, you

> see that the body is NOT tolerating those things b/c the body has

> developed IBD. When you start SCD, you're giving your body a nice

> break from all those other things, and, when it finds itself staring

> at an advanced food, the body suddenly makes it pretty darn clear

that

> it doesn't like it.

>

> I hope that made a modicum of sense....In my mind it does, but I see

> it's harder to get written down.

>

> When my dd was diagnosed w. Crohn's 1.5 years ago, we were surprised

> (stunned, really) to find out that she was also discovered by biopsy

> to be lactose intolerant. She had always eaten dairy products

without

> any of the difficulties that one would normally associate with

lactose

> intolerance. But there it was. So even if we thought she was

fine

> with it, her body really wasn't.

>

> She has been SCD since diagnosis, with three very minor flares.

Each

> time we brought her diet back down to the into diet and, after she

was

> symptom-free, started up the chain veeeeery slowly. She does eat

Lara

> bars (I know many on here don't b/c they are a processed food), but

> only after she was symptom-free for six months.

>

> Try the " real " into and proceed slowly and see how you do. This

might

> be just the thing for you.

>

> Good luck,

>

> Ellen

>

[Guest guest]

At 11:33 PM 12/20/2007, you wrote:

>I brought this up to my doctor and she told me

>that the body does not digest the fiber that it

>goes right through so I do not have to worry

>about it. I don't claim to understand that but I

>do not really know why she would suggest one

>thing but give me another. I also just went back

>for the flare up and she prescrivbed me a bark

>tea that is also not legal but told me to stick

>with the diet! I think Im going to stop taking

>it and just try to get back to square one. Thanks for all the help!

Ashle,

The problem is that many doctors and so-called

nutritionists really don't understand the science

and the parameters of the SCD. For MOST people,

the fiber just goes through and is not digested,

but not for those of us with gut issues. I am

obese, could not lose, but when I went SCD,

without moderating the amount of food I ate, I

dropped 75 pounds in six months. I was no longer

feeding the bad bacteria, and they were no longer

breaking down the fiber and turning it into

absorbable calories. I am now losing more slowly, but I am continuing to lose.

In addition, naturopaths prescribe stuff like

marshmallow and slippery elm (included in your

fiber supplement) on the mistaken notion that

because they a mucilaginous substance, they will

" soothe " your injured gut. But the very thing

which makes them mucilaginous is STARCH, the very

thing we eliminate on the SCD.

All those bifidobacteria again, MAY be good for

ordinary people, but experience has demonstrated

that they overgrow quite enthusiastically for

those of us with damaged guts. (I tested them...

ain't going there no more!) But that's why

they're illegal, because unlike acidophilus, they are not team players.

It is one thing to take a prescription medicine

which may contain some illegals because you can't

get it compounded without them. It is another

thing to be putting herb teas and " fiber

supplements with probiotics " which are totally

illegal in your body, thinking you are SCD, when

these substances mean you aren't.

I get really, really angry when I see posts like

yours, because I wonder how many other people

give up on SCD because of bad advice, thinking it

did not work. When it would have -- if they

hadn't been told something illegal was " good for them. "

You may wish to go back to the intro for a few

days, get that stuff out of your system. If you

have constipation, check out Elaine's

constipation protocol. And, there are many folks

here who have excellent advice about dealing with

it without the use of illegals.

— Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

> >I brought this up to my doctor and she told me

> >that the body does not digest the fiber that it

> >goes right through so I do not have to worry

> >about it. I don't claim to understand that but I

> >do not really know why she would suggest one

> >thing but give me another. I also just went back

> >for the flare up and she prescrivbed me a bark

> >tea that is also not legal but told me to stick

> >with the diet! I think Im going to stop taking

> >it and just try to get back to square one. Thanks for all the help!

>

> Ashle,

>

> The problem is that many doctors and so-called

> nutritionists really don't understand the science

> and the parameters of the SCD. For MOST people,

> the fiber just goes through and is not digested,

> but not for those of us with gut issues. I am

> obese, could not lose, but when I went SCD,

> without moderating the amount of food I ate, I

> dropped 75 pounds in six months. I was no longer

> feeding the bad bacteria, and they were no longer

> breaking down the fiber and turning it into

> absorbable calories. I am now losing more slowly, but I am

continuing to lose.

>

> In addition, naturopaths prescribe stuff like

> marshmallow and slippery elm (included in your

> fiber supplement) on the mistaken notion that

> because they a mucilaginous substance, they will

> " soothe " your injured gut. But the very thing

> which makes them mucilaginous is STARCH, the very

> thing we eliminate on the SCD.

>

> All those bifidobacteria again, MAY be good for

> ordinary people, but experience has demonstrated

> that they overgrow quite enthusiastically for

> those of us with damaged guts. (I tested them...

> ain't going there no more!) But that's why

> they're illegal, because unlike acidophilus, they are not team

players.

>

> It is one thing to take a prescription medicine

> which may contain some illegals because you can't

> get it compounded without them. It is another

> thing to be putting herb teas and " fiber

> supplements with probiotics " which are totally

> illegal in your body, thinking you are SCD, when

> these substances mean you aren't.

>

> I get really, really angry when I see posts like

> yours, because I wonder how many other people

> give up on SCD because of bad advice, thinking it

> did not work. When it would have -- if they

> hadn't been told something illegal was " good for them. "

>

> You may wish to go back to the intro for a few

> days, get that stuff out of your system. If you

> have constipation, check out Elaine's

> constipation protocol. And, there are many folks

> here who have excellent advice about dealing with

> it without the use of illegals.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

>

>

>