Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 - We're trying to do a modified Feingold version of SCD for one of our kids too. would you mind e-mailing me off-list to chat a bit about what this looks like and what kind of substitutions you are using? Teena Ben SCD 10 months > > I appreciate your comments, I just want to offer a differing perspective, hope you don't mind. > > I'd hate to see ASD kids miss the benefits and enjoyment of things like yogurt and cheese if it is unnecessary. We had Luke CF for a long time. Improvements were minimal. SCD has been THE solution for him, digestively and otherwise. The lactic acid and enzymes in the yogurt and cheese really do make it tolerable, even for ME, who have always had to take tons of lactaid pills in order to eat dairy. I understand that casein is a separate protein and not at all the same as lactose. Seroussi said in her book that she eliminated casein " because it was so similar a protein to casein " (pretty sure I'm remembering that correctly) so it merited removing it. But Elaine says it's not the protein, it's the carbohydrate molecular structure that is the real culprit. > > I just don't want all ASD parents thinking it is a MUST to go CF, I don't see that at all. All kids are different, and will see different results - we have to do SCD with a modified Feingold for Luke. Others have to SCD with no eggs, others with CF... so I appreciate your perspective but just wanted to say this particular ASD child is doing WONDERFULLY with the yogurt and dripped yogurt cheese in his diet. > > Warmly, > in NC > Mom of Luke, age 5, Asperger's/salicylate intolerant/diarrhea pre- SCD; > , age 3, healthy; and , 19 mos, healthy > All SCD since 1/26/04 > Re: Digest Number 446 > > > Hi everyone! > > Today was trophy day! Yay, we did it! > My wife said it felt more like > a gold medal. She should know. > She's the one who deserves it. > Tomorrow is a brother's birthday, and we > really didn't want to regress, so we decided > to recheck the recipe site for cake recipes. > (I was a little disappointed at how many dairy > ingredients were required in the " dairy free " > section-- perhaps apropriate substitutions > could be listed alongside the misplaced dairy > ingredient.) Also, things like coconut butter > are not an option for many until much later. > > I've been noticing a lot of postings that have > me concerned. I read a lot about how people > aren't making much headway, and then I notice > in the same post a recipe with butter in it etc. > > If your child is on the autism spectrum, > please, please, if you haven't tried going casein-free > promise me you will try it. > If you are keeping a food log, you probably have > already suspected it. It dramatically reduced > the stimming for our Gen. My (limited) understanding > is that until we have completely healed our kids' > perforated GI tract, the casein will cause a > morphine-like reaction in our kids. I have no > authority whatsoever, so please take this advice > solely as a fellow parent, and avid researcher. > I read Dr. McCandless's book " Children With > Starving Brains " and it made a lot of sense > when it came to the degree of danger casein > and gluten posed for our kids. (It made me > feel like an unwitting drug pusher) It explained > our Gen's " pizza high " , but not the " french-fry fix " > It took a neurologist to point out the danger of > a compromised blood-brain barrier, and the value > of a casein-free, gluten-free (CFGF) diet. But Dr. > McCandless hadn't convinced me that she > was able to heal the perforations that were > the source of the problem. Dr. Haas, I'm assuming > was a gastro-enterologist, (though Elaine's bio doesn't > say) was qualified to fix the intestinal perforations. > (The moment I picked up BTVC I knew Elaine was right, > because we had noticed some nasty reactions to > gluten-free starches in Gen's diet--the " french-fry fix " ) > For those of us here with children on the Autism spec- > trum, I sincerely believe that the combination of > the two approaches is the ideal way to go. > (Incidentally, not too long ago, on the CFGF site, > there was mention of the symposium where the > research of DAN! recommended SCD to CFGFparents.) > > I'm sorry if this is obvious to most of you, it just seemed > it needed to be said. > > -Allan. > > PS : For people with asperger's, > is the potential for yeast infection a life-long issue, or > once the GI tract is completely cured, are dietary considerations no > longer necessary. > > (Here in Japan, due to laws governing nutrition standards, > school cafeteria prepared lunches are mandatory [i write as I roll > my eyes] and I'm hoping perhaps by the time Gen gets to Elem. Sch. > we won't need to worry. Otherwise, we may just have to move.) > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2007 Report Share Posted December 20, 2007 My son is on the autism spectrum. He has been casein free for several months now. In my opinion, being without casein has not affected him at all. But I haven't done a trial of it. However, just because he is now casein free does not mean we are not going to do the yogurt. If you are casein free and there is not a true allergy, you owe it to your child (or yourself as the case may be) to try Elaine's yogurt protocol. Time and time again this issue comes up. The 24 hour fermentation denatures the casein protein structure and renders it easily digestible, making it safe. Goat milk yogurt is recommended for ASD kids, since cow milk can cause problems. The yogurt is also loaded with probiotics which are essential for gut healing. So if you have done a casein free trial, and even if you HAVE seen remarkable improvement off casein, I think you owe it to your child to try Elaine's yogurt with goat milk. I know I am going to. And I will post about it in my blog, I assure you. B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com ************* > > > > > I appreciate your comments, I just want to offer a > differing > perspective, hope you don't mind. > > > > I'd hate to see ASD kids miss the benefits and > enjoyment of things > like yogurt and cheese if it is unnecessary. We had > Luke CF for a > long time. Improvements were minimal. SCD has been > THE solution for > him, digestively and otherwise. The lactic acid and > enzymes in the > yogurt and cheese really do make it tolerable, even > for ME, who have > always had to take tons of lactaid pills in order to > eat dairy. I > understand that casein is a separate protein and not > at all the same > as lactose. Seroussi said in her book that > she eliminated > casein " because it was so similar a protein to > casein " (pretty sure > I'm remembering that correctly) so it merited > removing it. But > Elaine says it's not the protein, it's the > carbohydrate molecular > structure that is the real culprit. > > > > I just don't want all ASD parents thinking it is a > MUST to go CF, I > don't see that at all. All kids are different, and > will see > different results - we have to do SCD with a > modified Feingold for > Luke. Others have to SCD with no eggs, others with > CF... so I > appreciate your perspective but just wanted to say > this particular > ASD child is doing WONDERFULLY with the yogurt and > dripped yogurt > cheese in his diet. > > > > Warmly, > > in NC > > Mom of Luke, age 5, Asperger's/salicylate > intolerant/diarrhea pre- > SCD; > > , age 3, healthy; and , 19 mos, healthy > > All SCD since 1/26/04 > > Re: Digest Number 446 > > > > > > Hi everyone! > > > > Today was trophy day! Yay, we did it! > > My wife said it felt more like > > a gold medal. She should know. > > She's the one who deserves it. > > Tomorrow is a brother's birthday, and we > > really didn't want to regress, so we decided > > to recheck the recipe site for cake recipes. > > (I was a little disappointed at how many dairy > > ingredients were required in the " dairy free " > > section-- perhaps apropriate substitutions > > could be listed alongside the misplaced dairy > > ingredient.) Also, things like coconut butter > > are not an option for many until much later. > > > > I've been noticing a lot of postings that have > > me concerned. I read a lot about how people > > aren't making much headway, and then I notice > > in the same post a recipe with butter in it etc. > > > > If your child is on the autism spectrum, > > please, please, if you haven't tried going > casein-free > > promise me you will try it. > > If you are keeping a food log, you probably have > > already suspected it. It dramatically reduced > > the stimming for our Gen. My (limited) > understanding > > is that until we have completely healed our > kids' > > perforated GI tract, the casein will cause a > > morphine-like reaction in our kids. I have no > > authority whatsoever, so please take this advice > > solely as a fellow parent, and avid researcher. > > I read Dr. McCandless's book " Children With > > Starving Brains " and it made a lot of sense > > when it came to the degree of danger casein > > and gluten posed for our kids. (It made me > > feel like an unwitting drug pusher) It explained > > our Gen's " pizza high " , but not the " french-fry > fix " > > It took a neurologist to point out the danger of > > a compromised blood-brain barrier, and the value > > of a casein-free, gluten-free (CFGF) diet. But > Dr. > > McCandless hadn't convinced me that she > > was able to heal the perforations that were > > the source of the problem. Dr. Haas, I'm > assuming > > was a gastro-enterologist, (though Elaine's bio > doesn't > > say) was qualified to fix the intestinal > perforations. > > (The moment I picked up BTVC I knew Elaine was > right, > > because we had noticed some nasty reactions to > > gluten-free starches in Gen's diet--the > " french-fry fix " ) > > For those of us here with children on the Autism > spec- > > trum, I sincerely believe that the combination > of > > the two approaches is the ideal way to go. > > (Incidentally, not too long ago, on the CFGF > site, > > there was mention of the symposium where the > > research of DAN! recommended SCD to > CFGFparents.) > > > > I'm sorry if this is obvious to most of you, it > just seemed > > it needed to be said. > > > > -Allan. > > > > PS : For people with asperger's, > > is the potential for yeast infection a life-long > issue, or > > once the GI tract is completely cured, are > dietary considerations > no > > longer necessary. > > > > (Here in Japan, due to laws governing nutrition > standards, > > school cafeteria prepared lunches are mandatory > [i write as I roll > > my eyes] and I'm hoping perhaps by the time Gen > gets to Elem. Sch. > > we won't need to worry. Otherwise, we may just > have to move.) > > > > > > For information on the Specific Carbohydrate > Diet, please read > the book _Breaking the Vicious Cycle_ by Elaine > Gottschall and read > the following websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
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