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I do not know what to think any more. My baby (10 years old) is

melting. He is drinking only water, I also gave him just a little bit

of chicken and 2 eggs during whole day. He womited at the end of the

day, he keep having diarreah and blood. He looks very weak and paile.

Maybe diet does not work for us?

,

son 10 years old, UC

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Hi ,

My son displayed bad symptoms during the first 10 days of SCD. He

was tired and could do nothing else but sit on the sofa. He seemed

very sick. I begged him to eat rice so that he would get better but he

refused to break the new diet....After the initial die off period, he

never again had problems with SCD. He loves the diet.

I now realize what happened. He had lots of bacteria inside his body.

When the bacteria die, their cell wall releases a toxin called LPS. I

am now so glad when I hear about children displaying the signs of die

off....it means that the bacterias are dying...and the child will be

free from their toxins.

Please look at this website

www.microbialinfluence.com

It will give you the courage to go on.

Have you read the very bottom of this web page? It discusses die off

and how to treat it.

http://www.pecanbread.com/new/begindiet1.html

I also recommend green tea and S Boulardii for relief of die off symptoms.

http://www.giprohealth.com/sboulardii.html

I read research articles that demonstrated that green tea and S

Boulardii provide relief from bacterial toxins.

Info about yeast:

http://www.pecanbread.com/new/yeast.html

Mimi

> I do not know what to think any more. My baby (10 years old) is

> melting. He is drinking only water, I also gave him just a little bit

> of chicken and 2 eggs during whole day. He womited at the end of the

> day, he keep having diarreah and blood. He looks very weak and paile.

> Maybe diet does not work for us?

>

> ,

> son 10 years old, UC

>

>

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,

The BTVC book cautions against using eggs while

diarrhea is present. It can make things worse. Do you

have the book? It says to stop eggs while there is

diarrhea.

What about chicken soup and cooked carrots? At least

the broth for drinking. Diluted grape juice. How long

has he been on the diet?

B.

ASD son, RA self, SCD Nov. 2007

http://scdgirl.blogspot.com

*********

--- Yuliya66 wrote:

> I do not know what to think any more. My baby (10

> years old) is

> melting. He is drinking only water, I also gave him

> just a little bit

> of chicken and 2 eggs during whole day. He womited

> at the end of the

> day, he keep having diarreah and blood. He looks

> very weak and paile.

> Maybe diet does not work for us?

>

> ,

> son 10 years old, UC

>

>

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

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Hi ,

I know your heart is breaking now, maybe sharing our experience will help. I

started SCD on Nov. 1 with my 9 y.o. Hannah with undifferentiated IBD. She was

having bloody D 6-9x/day following a long course of steroids (didn't help much

and caused worse side effects than the disease.) During the first few days we

saw some improvement, then she crashed. D increased to 14x/day, she was pale,

lethargic, lots of abdominal pain/cramping, nauseas, gagging on food when I

could get her to eat. She hated the chicken soup, didn't like the gelatin or

grape juice, and never cared much for burgers. At one point she was curled up

in a ball crying that she just needed bread. I was so close to just giving her

a GF bagel and giving up the diet completely. She had lost another 3 lbs and I

was really scared. Our computer was being repaired so I only had the book to

rely on, not any of the great info. on relief from detoxing symptoms. My

husband and mom were urging me to call the

doctor to get started with remicade (our next option since nothing else had

worked.)

I went off by myself and decided we had committed to trying it for one month so

the least I could do was give it 2 or 3 more days before calling the doctor

and/or quitting the diet. The changes began slowly. I did add in some of the

nut flour recipes (earlier than I should have) to reassure her there was " bread "

in her future which helped her attitude (and she could eat them without

gagging.) The D slowed to 5x/day, she started sleeping through the night

consistently, and other than 2 BM's we have not seen any more blood since the

3rd week. We reached the 1 mo. point optimistic but wanting more change before

a GI appt on the 20th.

Sheila looked at what she was eating and gave us a few pointers, including

stopping the nut flour temporarily. We returned to 1 day of intro, then went to

the foods she had been eating minus the nut flour and a couple other harder to

digest items. It's been almost 8 weeks now and Hannah is the best she has been

in the 2 years since this started. Her doctor agreed she is stable, although

not 100%, and encouraged us to keep doing what we're doing and come back in 3

mos. to see where she's at. During this 8 wks we've seen these improvements:

visible bleeding stopped, BM's still " mush " but not liquid down to 2-4xday, she

is consistently sleeping through the night without running to the bathroom

several times/night for first time in 2 yrs., she has her energy back and is

back in ballet 2x/wk after 6 wks. out, she is maintaining her weight, and she

grew 1 " in height. We still have a ways to go, but really feel hope again for

the first time in a long time.

I pray your son soon turns around and you also will have that renewed hope.

Dawn,

mom to 12, 6, and Hannah 9 y.o. IBD diagnosed 5/06

SCD since 11/1/07

(azathioprine also but no improvement on it and tests show it is not at a

therapeutic dosage after months of increases)

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, I read the book... However, I did not cathch it. Thank you. I

already made chicken soup with carrots, that's what I going to stick

with for the next 2 days. We are not home, it was pretty challenging.

Thank you,

>

> > I do not know what to think any more. My baby (10

> > years old) is

> > melting. He is drinking only water, I also gave him

> > just a little bit

> > of chicken and 2 eggs during whole day. He womited

> > at the end of the

> > day, he keep having diarreah and blood. He looks

> > very weak and paile.

> > Maybe diet does not work for us?

> >

> > ,

> > son 10 years old, UC

> >

> >

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

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It was very good information. I am getting clear on the topic...

I gave it to my son to read, he promissed to do the same...

Thank you,

,

son 10 years old, UC

> > I do not know what to think any more. My baby (10 years old) is

> > melting. He is drinking only water, I also gave him just a little

bit

> > of chicken and 2 eggs during whole day. He womited at the end of

the

> > day, he keep having diarreah and blood. He looks very weak and

paile.

> > Maybe diet does not work for us?

> >

> > ,

> > son 10 years old, UC

> >

> >

>

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Hi ,

Maybe he has a food allergy to eggs or chicken. Have you had him tested for

foods? You would want to test him for IGg's and IGE allergies. Genova

Diagnostics out of North Carolina does this type of testing.

I have UC too and when I first started this diet for the first 3 1/2 months I

felt like I had the flu and would throw up or dry heave during the day. I think

the bacteria that was being killed off by not being fed was in the liver too.

That is why the vomiting sometimes. Maybe some ginger tea would help. I would

seriously look into the allergy testing.

Beth UC 25+ years

How can you tell if you have and yeast overgrow?

I do not know what to think any more. My baby (10 years old) is

melting. He is drinking only water, I also gave him just a little bit

of chicken and 2 eggs during whole day. He womited at the end of the

day, he keep having diarreah and blood. He looks very weak and paile.

Maybe diet does not work for us?

,

son 10 years old, UC

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Share on other sites

, I need you e-mail address to give you information, off list please. Put

is subject SCD or I may miss your post.

SCDâ„¢ Local and On Line Support Groups for free

http://www.pecanbread.com/new/local1.html

SCDâ„¢ Counselors for a fee

http://www.pecanbread.com/new/counselors1.html

Loving Care, Grammy Gay

From: Yuliya66

I do not know what to think any more. My baby (10 years old) is

melting. He is drinking only water, I also gave him just a little bit

of chicken and 2 eggs during whole day. He womited at the end of the

day, he keep having diarreah and blood. He looks very weak and paile.

Maybe diet does not work for us?

, son 10 years old, UC

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

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Dawn, I really appreciate you told me story of your little girl

(Hannah is my favorite name :o)) I really felt better knowing that

this probably the course this desease is taking. is better

today, considering he did not make any trips to the bathroom at all.

His colors are somehow back and energy level is better. He did not

have anythng today, besides chicken and carrots. I want to cut on his

Rowasa once a day and start to introduce another food tomorrow. What

would be the best start with (from your experience?)

Thank you and fast recovery for Hannah,

, son , 10 years old, UC

>

> Hi ,

>

> I know your heart is breaking now, maybe sharing our experience

will help. I started SCD on Nov. 1 with my 9 y.o. Hannah with

undifferentiated IBD. She was having bloody D 6-9x/day following a

long course of steroids (didn't help much and caused worse side

effects than the disease.) During the first few days we saw some

improvement, then she crashed. D increased to 14x/day, she was pale,

lethargic, lots of abdominal pain/cramping, nauseas, gagging on food

when I could get her to eat. She hated the chicken soup, didn't like

the gelatin or grape juice, and never cared much for burgers. At one

point she was curled up in a ball crying that she just needed bread.

I was so close to just giving her a GF bagel and giving up the diet

completely. She had lost another 3 lbs and I was really scared. Our

computer was being repaired so I only had the book to rely on, not

any of the great info. on relief from detoxing symptoms. My husband

and mom were urging me to call the

> doctor to get started with remicade (our next option since nothing

else had worked.)

>

> I went off by myself and decided we had committed to trying it for

one month so the least I could do was give it 2 or 3 more days before

calling the doctor and/or quitting the diet. The changes began

slowly. I did add in some of the nut flour recipes (earlier than I

should have) to reassure her there was " bread " in her future which

helped her attitude (and she could eat them without gagging.) The D

slowed to 5x/day, she started sleeping through the night

consistently, and other than 2 BM's we have not seen any more blood

since the 3rd week. We reached the 1 mo. point optimistic but

wanting more change before a GI appt on the 20th.

>

> Sheila looked at what she was eating and gave us a few pointers,

including stopping the nut flour temporarily. We returned to 1 day

of intro, then went to the foods she had been eating minus the nut

flour and a couple other harder to digest items. It's been almost 8

weeks now and Hannah is the best she has been in the 2 years since

this started. Her doctor agreed she is stable, although not 100%,

and encouraged us to keep doing what we're doing and come back in 3

mos. to see where she's at. During this 8 wks we've seen these

improvements: visible bleeding stopped, BM's still " mush " but not

liquid down to 2-4xday, she is consistently sleeping through the

night without running to the bathroom several times/night for first

time in 2 yrs., she has her energy back and is back in ballet 2x/wk

after 6 wks. out, she is maintaining her weight, and she grew 1 " in

height. We still have a ways to go, but really feel hope again for

the first time in a long time.

>

> I pray your son soon turns around and you also will have that

renewed hope.

>

> Dawn,

> mom to 12, 6, and Hannah 9 y.o. IBD diagnosed 5/06

> SCD since 11/1/07

> (azathioprine also but no improvement on it and tests show it is

not at a therapeutic dosage after months of increases)

>

>

>

>

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>

>

> His colors are somehow back and energy level is better. He did not

> have anythng today, besides chicken and carrots. I want to cut on his

> Rowasa once a day and start to introduce another food tomorrow. What

> would be the best start with (from your experience?)

>

> Thank you and fast recovery for Hannah,

> , son , 10 years old, UC

>

>

> > Glad to hear is starting to turn the corner.

Here are a few of the foods and meals, that Hannah handled well in the

first weeks after intro. Some of our first additions were homemade

apple, pear, and later on peach sauce. Since she has always liked

smoothies, I freeze them in ice cube trays and blend a few cubes with

a super ripe banana and yogurt (go slowly with the yogurt we had a

milder die off time when we jumped right into using 1/4 c in smoothies

initially--now she's up to 1 1/2-2 c/day drinking one for breakfast

and one for an afternoon snack--I think she's addicted to the yogurt

now.) After awhile with the sauces she discovered what a great treat

baked apples and pears were. " Apple pie " yogurt using baked apples

with cinnamon, honey, and yogurt mixed together is really good too.

We just started the squash buttons using butternut squash (pecanbread

recipe) a couple weeks ago and she really likes those as well. Hannah

is not big on ground meat, so I've been slow cooking sirloin tip

roasts 2 at a time until they are falling apart and freezing in

smaller containers. Turkey soup with lots of well cooked carrots and

green beans and the onion, garlic, and celery removed is a common

lunch. Leftover roast makes great soup too. Salmon is well tolerated

for her as well. This week we're adding in spinach in the soup and

see how that goes.

Hope that helps, just go slowly with the additions so you can evaluate

how is tolerating them since everyone is different.

Dawn,

Mom to , , and Hannah (9 y.o. IBD 5-06, SCD 11-07)

> >

> >

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That's such a great info, I know what to do next. It'll be a little

more difficult. Bananas makes him go to the bathroom and he really

does not like apples any more. But, we'll try... He wants to play

flag football this winter, so he better start to like these

apples.. :o)

Thank you,

> >

> >

> > His colors are somehow back and energy level is better. He did

not

> > have anythng today, besides chicken and carrots. I want to cut on

his

> > Rowasa once a day and start to introduce another food tomorrow.

What

> > would be the best start with (from your experience?)

> >

> > Thank you and fast recovery for Hannah,

> > , son , 10 years old, UC

> >

> >

> > > Glad to hear is starting to turn the corner.

>

> Here are a few of the foods and meals, that Hannah handled well in

the

> first weeks after intro. Some of our first additions were homemade

> apple, pear, and later on peach sauce. Since she has always liked

> smoothies, I freeze them in ice cube trays and blend a few cubes

with

> a super ripe banana and yogurt (go slowly with the yogurt we had a

> milder die off time when we jumped right into using 1/4 c in

smoothies

> initially--now she's up to 1 1/2-2 c/day drinking one for breakfast

> and one for an afternoon snack--I think she's addicted to the yogurt

> now.) After awhile with the sauces she discovered what a great treat

> baked apples and pears were. " Apple pie " yogurt using baked apples

> with cinnamon, honey, and yogurt mixed together is really good too.

> We just started the squash buttons using butternut squash

(pecanbread

> recipe) a couple weeks ago and she really likes those as well.

Hannah

> is not big on ground meat, so I've been slow cooking sirloin tip

> roasts 2 at a time until they are falling apart and freezing in

> smaller containers. Turkey soup with lots of well cooked carrots

and

> green beans and the onion, garlic, and celery removed is a common

> lunch. Leftover roast makes great soup too. Salmon is well

tolerated

> for her as well. This week we're adding in spinach in the soup and

> see how that goes.

>

> Hope that helps, just go slowly with the additions so you can

evaluate

> how is tolerating them since everyone is different.

>

> Dawn,

> Mom to , , and Hannah (9 y.o. IBD 5-06, SCD 11-07)

> > >

> > >

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,

Bananas did the same thing to my son -- explosion! You

can dress up the apples with cinnamon if you like. My

son didn't like them at first and now he loves them

that way.

B.

ASD son, RA self, SCD Nov. 2007

http://scdgirl.blogspot.com

************

--- Yuliya66 wrote:

> That's such a great info, I know what to do next.

> It'll be a little

> more difficult. Bananas makes him go to the bathroom

> and he really

> does not like apples any more. But, we'll try... He

> wants to play

> flag football this winter, so he better start to

> like these

> apples.. :o)

>

> Thank you,

>

>

>

> > >

> > >

> > > His colors are somehow back and energy level is

> better. He did

> not

> > > have anythng today, besides chicken and carrots.

> I want to cut on

> his

> > > Rowasa once a day and start to introduce another

> food tomorrow.

> What

> > > would be the best start with (from your

> experience?)

> > >

> > > Thank you and fast recovery for Hannah,

> > > , son , 10 years old, UC

> > >

> > >

> > > > Glad to hear is starting to turn the

> corner.

> >

> > Here are a few of the foods and meals, that Hannah

> handled well in

> the

> > first weeks after intro. Some of our first

> additions were homemade

> > apple, pear, and later on peach sauce. Since she

> has always liked

> > smoothies, I freeze them in ice cube trays and

> blend a few cubes

> with

> > a super ripe banana and yogurt (go slowly with the

> yogurt we had a

> > milder die off time when we jumped right into

> using 1/4 c in

> smoothies

> > initially--now she's up to 1 1/2-2 c/day drinking

> one for breakfast

> > and one for an afternoon snack--I think she's

> addicted to the yogurt

> > now.) After awhile with the sauces she discovered

> what a great treat

> > baked apples and pears were. " Apple pie " yogurt

> using baked apples

> > with cinnamon, honey, and yogurt mixed together is

> really good too.

> > We just started the squash buttons using butternut

> squash

> (pecanbread

> > recipe) a couple weeks ago and she really likes

> those as well.

> Hannah

> > is not big on ground meat, so I've been slow

> cooking sirloin tip

> > roasts 2 at a time until they are falling apart

> and freezing in

> > smaller containers. Turkey soup with lots of well

> cooked carrots

> and

> > green beans and the onion, garlic, and celery

> removed is a common

> > lunch. Leftover roast makes great soup too.

> Salmon is well

> tolerated

> > for her as well. This week we're adding in

> spinach in the soup and

> > see how that goes.

> >

> > Hope that helps, just go slowly with the additions

> so you can

> evaluate

> > how is tolerating them since everyone is

> different.

> >

> > Dawn,

> > Mom to , , and Hannah (9 y.o. IBD 5-06,

> SCD 11-07)

> > > >

> > > > [Non-text portions of this message have been

> removed]

> > > >

> > >

> >

>

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

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Dear , do you mind to give me the recepie of these apples?

loves cinnamon agreed to try...

Thank you,

> > > >

> > > >

> > > > His colors are somehow back and energy level is

> > better. He did

> > not

> > > > have anythng today, besides chicken and carrots.

> > I want to cut on

> > his

> > > > Rowasa once a day and start to introduce another

> > food tomorrow.

> > What

> > > > would be the best start with (from your

> > experience?)

> > > >

> > > > Thank you and fast recovery for Hannah,

> > > > , son , 10 years old, UC

> > > >

> > > >

> > > > > Glad to hear is starting to turn the

> > corner.

> > >

> > > Here are a few of the foods and meals, that Hannah

> > handled well in

> > the

> > > first weeks after intro. Some of our first

> > additions were homemade

> > > apple, pear, and later on peach sauce. Since she

> > has always liked

> > > smoothies, I freeze them in ice cube trays and

> > blend a few cubes

> > with

> > > a super ripe banana and yogurt (go slowly with the

> > yogurt we had a

> > > milder die off time when we jumped right into

> > using 1/4 c in

> > smoothies

> > > initially--now she's up to 1 1/2-2 c/day drinking

> > one for breakfast

> > > and one for an afternoon snack--I think she's

> > addicted to the yogurt

> > > now.) After awhile with the sauces she discovered

> > what a great treat

> > > baked apples and pears were. " Apple pie " yogurt

> > using baked apples

> > > with cinnamon, honey, and yogurt mixed together is

> > really good too.

> > > We just started the squash buttons using butternut

> > squash

> > (pecanbread

> > > recipe) a couple weeks ago and she really likes

> > those as well.

> > Hannah

> > > is not big on ground meat, so I've been slow

> > cooking sirloin tip

> > > roasts 2 at a time until they are falling apart

> > and freezing in

> > > smaller containers. Turkey soup with lots of well

> > cooked carrots

> > and

> > > green beans and the onion, garlic, and celery

> > removed is a common

> > > lunch. Leftover roast makes great soup too.

> > Salmon is well

> > tolerated

> > > for her as well. This week we're adding in

> > spinach in the soup and

> > > see how that goes.

> > >

> > > Hope that helps, just go slowly with the additions

> > so you can

> > evaluate

> > > how is tolerating them since everyone is

> > different.

> > >

> > > Dawn,

> > > Mom to , , and Hannah (9 y.o. IBD 5-06,

> > SCD 11-07)

> > > > >

> > > > > [Non-text portions of this message have been

> > removed]

> > > > >

> > > >

> > >

> >

> >

> >

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

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Hi ,

No recipe. Just peel and core apples (granny smith

apples are good for this). Cut into chunks, put in a

glass baking dish lined with foil at about 350 degrees

for 40 minutes and you have applesauce.

I mix the cinnamon in after cooking so that it doesn't

burn. Sometimes it gets a little toasted in the oven.

:)

B.

ASD son, RA self, SCD Nov. 2007

http://scdgirl.blogspot.com

************

--- Yuliya66 wrote:

> Dear , do you mind to give me the recepie of

> these apples?

> loves cinnamon agreed to try...

>

> Thank you,

>

>

>

> > > > >

> > > > >

> > > > > His colors are somehow back and energy level

> is

> > > better. He did

> > > not

> > > > > have anythng today, besides chicken and

> carrots.

> > > I want to cut on

> > > his

> > > > > Rowasa once a day and start to introduce

> another

> > > food tomorrow.

> > > What

> > > > > would be the best start with (from your

> > > experience?)

> > > > >

> > > > > Thank you and fast recovery for Hannah,

> > > > > , son , 10 years old, UC

> > > > >

> > > > >

> > > > > > Glad to hear is starting to turn

> the

> > > corner.

> > > >

> > > > Here are a few of the foods and meals, that

> Hannah

> > > handled well in

> > > the

> > > > first weeks after intro. Some of our first

> > > additions were homemade

> > > > apple, pear, and later on peach sauce. Since

> she

> > > has always liked

> > > > smoothies, I freeze them in ice cube trays and

> > > blend a few cubes

> > > with

> > > > a super ripe banana and yogurt (go slowly with

> the

> > > yogurt we had a

> > > > milder die off time when we jumped right into

> > > using 1/4 c in

> > > smoothies

> > > > initially--now she's up to 1 1/2-2 c/day

> drinking

> > > one for breakfast

> > > > and one for an afternoon snack--I think she's

> > > addicted to the yogurt

> > > > now.) After awhile with the sauces she

> discovered

> > > what a great treat

> > > > baked apples and pears were. " Apple pie "

> yogurt

> > > using baked apples

> > > > with cinnamon, honey, and yogurt mixed

> together is

> > > really good too.

> > > > We just started the squash buttons using

> butternut

> > > squash

> > > (pecanbread

> > > > recipe) a couple weeks ago and she really

> likes

> > > those as well.

> > > Hannah

> > > > is not big on ground meat, so I've been slow

> > > cooking sirloin tip

> > > > roasts 2 at a time until they are falling

> apart

> > > and freezing in

> > > > smaller containers. Turkey soup with lots of

> well

> > > cooked carrots

> > > and

> > > > green beans and the onion, garlic, and celery

> > > removed is a common

> > > > lunch. Leftover roast makes great soup too.

> > > Salmon is well

> > > tolerated

> > > > for her as well. This week we're adding in

> > > spinach in the soup and

> > > > see how that goes.

> > > >

> > > > Hope that helps, just go slowly with the

> additions

> > > so you can

> > > evaluate

> > > > how is tolerating them since everyone

> is

> > > different.

> > > >

> > > > Dawn,

> > > > Mom to , , and Hannah (9 y.o. IBD

> 5-06,

> > > SCD 11-07)

> > > > > >

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______________________________________________________________________

> ______________

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

>

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

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