Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 I do not know what to think any more. My baby (10 years old) is melting. He is drinking only water, I also gave him just a little bit of chicken and 2 eggs during whole day. He womited at the end of the day, he keep having diarreah and blood. He looks very weak and paile. Maybe diet does not work for us? , son 10 years old, UC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 Hi , My son displayed bad symptoms during the first 10 days of SCD. He was tired and could do nothing else but sit on the sofa. He seemed very sick. I begged him to eat rice so that he would get better but he refused to break the new diet....After the initial die off period, he never again had problems with SCD. He loves the diet. I now realize what happened. He had lots of bacteria inside his body. When the bacteria die, their cell wall releases a toxin called LPS. I am now so glad when I hear about children displaying the signs of die off....it means that the bacterias are dying...and the child will be free from their toxins. Please look at this website www.microbialinfluence.com It will give you the courage to go on. Have you read the very bottom of this web page? It discusses die off and how to treat it. http://www.pecanbread.com/new/begindiet1.html I also recommend green tea and S Boulardii for relief of die off symptoms. http://www.giprohealth.com/sboulardii.html I read research articles that demonstrated that green tea and S Boulardii provide relief from bacterial toxins. Info about yeast: http://www.pecanbread.com/new/yeast.html Mimi > I do not know what to think any more. My baby (10 years old) is > melting. He is drinking only water, I also gave him just a little bit > of chicken and 2 eggs during whole day. He womited at the end of the > day, he keep having diarreah and blood. He looks very weak and paile. > Maybe diet does not work for us? > > , > son 10 years old, UC > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 , The BTVC book cautions against using eggs while diarrhea is present. It can make things worse. Do you have the book? It says to stop eggs while there is diarrhea. What about chicken soup and cooked carrots? At least the broth for drinking. Diluted grape juice. How long has he been on the diet? B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com ********* --- Yuliya66 wrote: > I do not know what to think any more. My baby (10 > years old) is > melting. He is drinking only water, I also gave him > just a little bit > of chicken and 2 eggs during whole day. He womited > at the end of the > day, he keep having diarreah and blood. He looks > very weak and paile. > Maybe diet does not work for us? > > , > son 10 years old, UC > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Hi , I know your heart is breaking now, maybe sharing our experience will help. I started SCD on Nov. 1 with my 9 y.o. Hannah with undifferentiated IBD. She was having bloody D 6-9x/day following a long course of steroids (didn't help much and caused worse side effects than the disease.) During the first few days we saw some improvement, then she crashed. D increased to 14x/day, she was pale, lethargic, lots of abdominal pain/cramping, nauseas, gagging on food when I could get her to eat. She hated the chicken soup, didn't like the gelatin or grape juice, and never cared much for burgers. At one point she was curled up in a ball crying that she just needed bread. I was so close to just giving her a GF bagel and giving up the diet completely. She had lost another 3 lbs and I was really scared. Our computer was being repaired so I only had the book to rely on, not any of the great info. on relief from detoxing symptoms. My husband and mom were urging me to call the doctor to get started with remicade (our next option since nothing else had worked.) I went off by myself and decided we had committed to trying it for one month so the least I could do was give it 2 or 3 more days before calling the doctor and/or quitting the diet. The changes began slowly. I did add in some of the nut flour recipes (earlier than I should have) to reassure her there was " bread " in her future which helped her attitude (and she could eat them without gagging.) The D slowed to 5x/day, she started sleeping through the night consistently, and other than 2 BM's we have not seen any more blood since the 3rd week. We reached the 1 mo. point optimistic but wanting more change before a GI appt on the 20th. Sheila looked at what she was eating and gave us a few pointers, including stopping the nut flour temporarily. We returned to 1 day of intro, then went to the foods she had been eating minus the nut flour and a couple other harder to digest items. It's been almost 8 weeks now and Hannah is the best she has been in the 2 years since this started. Her doctor agreed she is stable, although not 100%, and encouraged us to keep doing what we're doing and come back in 3 mos. to see where she's at. During this 8 wks we've seen these improvements: visible bleeding stopped, BM's still " mush " but not liquid down to 2-4xday, she is consistently sleeping through the night without running to the bathroom several times/night for first time in 2 yrs., she has her energy back and is back in ballet 2x/wk after 6 wks. out, she is maintaining her weight, and she grew 1 " in height. We still have a ways to go, but really feel hope again for the first time in a long time. I pray your son soon turns around and you also will have that renewed hope. Dawn, mom to 12, 6, and Hannah 9 y.o. IBD diagnosed 5/06 SCD since 11/1/07 (azathioprine also but no improvement on it and tests show it is not at a therapeutic dosage after months of increases) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 , I read the book... However, I did not cathch it. Thank you. I already made chicken soup with carrots, that's what I going to stick with for the next 2 days. We are not home, it was pretty challenging. Thank you, > > > I do not know what to think any more. My baby (10 > > years old) is > > melting. He is drinking only water, I also gave him > > just a little bit > > of chicken and 2 eggs during whole day. He womited > > at the end of the > > day, he keep having diarreah and blood. He looks > > very weak and paile. > > Maybe diet does not work for us? > > > > , > > son 10 years old, UC > > > > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 It was very good information. I am getting clear on the topic... I gave it to my son to read, he promissed to do the same... Thank you, , son 10 years old, UC > > I do not know what to think any more. My baby (10 years old) is > > melting. He is drinking only water, I also gave him just a little bit > > of chicken and 2 eggs during whole day. He womited at the end of the > > day, he keep having diarreah and blood. He looks very weak and paile. > > Maybe diet does not work for us? > > > > , > > son 10 years old, UC > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Hi , Maybe he has a food allergy to eggs or chicken. Have you had him tested for foods? You would want to test him for IGg's and IGE allergies. Genova Diagnostics out of North Carolina does this type of testing. I have UC too and when I first started this diet for the first 3 1/2 months I felt like I had the flu and would throw up or dry heave during the day. I think the bacteria that was being killed off by not being fed was in the liver too. That is why the vomiting sometimes. Maybe some ginger tea would help. I would seriously look into the allergy testing. Beth UC 25+ years How can you tell if you have and yeast overgrow? I do not know what to think any more. My baby (10 years old) is melting. He is drinking only water, I also gave him just a little bit of chicken and 2 eggs during whole day. He womited at the end of the day, he keep having diarreah and blood. He looks very weak and paile. Maybe diet does not work for us? , son 10 years old, UC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 , I need you e-mail address to give you information, off list please. Put is subject SCD or I may miss your post. SCDâ„¢ Local and On Line Support Groups for free http://www.pecanbread.com/new/local1.html SCDâ„¢ Counselors for a fee http://www.pecanbread.com/new/counselors1.html Loving Care, Grammy Gay From: Yuliya66 I do not know what to think any more. My baby (10 years old) is melting. He is drinking only water, I also gave him just a little bit of chicken and 2 eggs during whole day. He womited at the end of the day, he keep having diarreah and blood. He looks very weak and paile. Maybe diet does not work for us? , son 10 years old, UC For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Dawn, I really appreciate you told me story of your little girl (Hannah is my favorite name )) I really felt better knowing that this probably the course this desease is taking. is better today, considering he did not make any trips to the bathroom at all. His colors are somehow back and energy level is better. He did not have anythng today, besides chicken and carrots. I want to cut on his Rowasa once a day and start to introduce another food tomorrow. What would be the best start with (from your experience?) Thank you and fast recovery for Hannah, , son , 10 years old, UC > > Hi , > > I know your heart is breaking now, maybe sharing our experience will help. I started SCD on Nov. 1 with my 9 y.o. Hannah with undifferentiated IBD. She was having bloody D 6-9x/day following a long course of steroids (didn't help much and caused worse side effects than the disease.) During the first few days we saw some improvement, then she crashed. D increased to 14x/day, she was pale, lethargic, lots of abdominal pain/cramping, nauseas, gagging on food when I could get her to eat. She hated the chicken soup, didn't like the gelatin or grape juice, and never cared much for burgers. At one point she was curled up in a ball crying that she just needed bread. I was so close to just giving her a GF bagel and giving up the diet completely. She had lost another 3 lbs and I was really scared. Our computer was being repaired so I only had the book to rely on, not any of the great info. on relief from detoxing symptoms. My husband and mom were urging me to call the > doctor to get started with remicade (our next option since nothing else had worked.) > > I went off by myself and decided we had committed to trying it for one month so the least I could do was give it 2 or 3 more days before calling the doctor and/or quitting the diet. The changes began slowly. I did add in some of the nut flour recipes (earlier than I should have) to reassure her there was " bread " in her future which helped her attitude (and she could eat them without gagging.) The D slowed to 5x/day, she started sleeping through the night consistently, and other than 2 BM's we have not seen any more blood since the 3rd week. We reached the 1 mo. point optimistic but wanting more change before a GI appt on the 20th. > > Sheila looked at what she was eating and gave us a few pointers, including stopping the nut flour temporarily. We returned to 1 day of intro, then went to the foods she had been eating minus the nut flour and a couple other harder to digest items. It's been almost 8 weeks now and Hannah is the best she has been in the 2 years since this started. Her doctor agreed she is stable, although not 100%, and encouraged us to keep doing what we're doing and come back in 3 mos. to see where she's at. During this 8 wks we've seen these improvements: visible bleeding stopped, BM's still " mush " but not liquid down to 2-4xday, she is consistently sleeping through the night without running to the bathroom several times/night for first time in 2 yrs., she has her energy back and is back in ballet 2x/wk after 6 wks. out, she is maintaining her weight, and she grew 1 " in height. We still have a ways to go, but really feel hope again for the first time in a long time. > > I pray your son soon turns around and you also will have that renewed hope. > > Dawn, > mom to 12, 6, and Hannah 9 y.o. IBD diagnosed 5/06 > SCD since 11/1/07 > (azathioprine also but no improvement on it and tests show it is not at a therapeutic dosage after months of increases) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2007 Report Share Posted December 25, 2007 > > > His colors are somehow back and energy level is better. He did not > have anythng today, besides chicken and carrots. I want to cut on his > Rowasa once a day and start to introduce another food tomorrow. What > would be the best start with (from your experience?) > > Thank you and fast recovery for Hannah, > , son , 10 years old, UC > > > > Glad to hear is starting to turn the corner. Here are a few of the foods and meals, that Hannah handled well in the first weeks after intro. Some of our first additions were homemade apple, pear, and later on peach sauce. Since she has always liked smoothies, I freeze them in ice cube trays and blend a few cubes with a super ripe banana and yogurt (go slowly with the yogurt we had a milder die off time when we jumped right into using 1/4 c in smoothies initially--now she's up to 1 1/2-2 c/day drinking one for breakfast and one for an afternoon snack--I think she's addicted to the yogurt now.) After awhile with the sauces she discovered what a great treat baked apples and pears were. " Apple pie " yogurt using baked apples with cinnamon, honey, and yogurt mixed together is really good too. We just started the squash buttons using butternut squash (pecanbread recipe) a couple weeks ago and she really likes those as well. Hannah is not big on ground meat, so I've been slow cooking sirloin tip roasts 2 at a time until they are falling apart and freezing in smaller containers. Turkey soup with lots of well cooked carrots and green beans and the onion, garlic, and celery removed is a common lunch. Leftover roast makes great soup too. Salmon is well tolerated for her as well. This week we're adding in spinach in the soup and see how that goes. Hope that helps, just go slowly with the additions so you can evaluate how is tolerating them since everyone is different. Dawn, Mom to , , and Hannah (9 y.o. IBD 5-06, SCD 11-07) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 That's such a great info, I know what to do next. It'll be a little more difficult. Bananas makes him go to the bathroom and he really does not like apples any more. But, we'll try... He wants to play flag football this winter, so he better start to like these apples.. ) Thank you, > > > > > > His colors are somehow back and energy level is better. He did not > > have anythng today, besides chicken and carrots. I want to cut on his > > Rowasa once a day and start to introduce another food tomorrow. What > > would be the best start with (from your experience?) > > > > Thank you and fast recovery for Hannah, > > , son , 10 years old, UC > > > > > > > Glad to hear is starting to turn the corner. > > Here are a few of the foods and meals, that Hannah handled well in the > first weeks after intro. Some of our first additions were homemade > apple, pear, and later on peach sauce. Since she has always liked > smoothies, I freeze them in ice cube trays and blend a few cubes with > a super ripe banana and yogurt (go slowly with the yogurt we had a > milder die off time when we jumped right into using 1/4 c in smoothies > initially--now she's up to 1 1/2-2 c/day drinking one for breakfast > and one for an afternoon snack--I think she's addicted to the yogurt > now.) After awhile with the sauces she discovered what a great treat > baked apples and pears were. " Apple pie " yogurt using baked apples > with cinnamon, honey, and yogurt mixed together is really good too. > We just started the squash buttons using butternut squash (pecanbread > recipe) a couple weeks ago and she really likes those as well. Hannah > is not big on ground meat, so I've been slow cooking sirloin tip > roasts 2 at a time until they are falling apart and freezing in > smaller containers. Turkey soup with lots of well cooked carrots and > green beans and the onion, garlic, and celery removed is a common > lunch. Leftover roast makes great soup too. Salmon is well tolerated > for her as well. This week we're adding in spinach in the soup and > see how that goes. > > Hope that helps, just go slowly with the additions so you can evaluate > how is tolerating them since everyone is different. > > Dawn, > Mom to , , and Hannah (9 y.o. IBD 5-06, SCD 11-07) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 , Bananas did the same thing to my son -- explosion! You can dress up the apples with cinnamon if you like. My son didn't like them at first and now he loves them that way. B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com ************ --- Yuliya66 wrote: > That's such a great info, I know what to do next. > It'll be a little > more difficult. Bananas makes him go to the bathroom > and he really > does not like apples any more. But, we'll try... He > wants to play > flag football this winter, so he better start to > like these > apples.. ) > > Thank you, > > > > > > > > > > > > His colors are somehow back and energy level is > better. He did > not > > > have anythng today, besides chicken and carrots. > I want to cut on > his > > > Rowasa once a day and start to introduce another > food tomorrow. > What > > > would be the best start with (from your > experience?) > > > > > > Thank you and fast recovery for Hannah, > > > , son , 10 years old, UC > > > > > > > > > > Glad to hear is starting to turn the > corner. > > > > Here are a few of the foods and meals, that Hannah > handled well in > the > > first weeks after intro. Some of our first > additions were homemade > > apple, pear, and later on peach sauce. Since she > has always liked > > smoothies, I freeze them in ice cube trays and > blend a few cubes > with > > a super ripe banana and yogurt (go slowly with the > yogurt we had a > > milder die off time when we jumped right into > using 1/4 c in > smoothies > > initially--now she's up to 1 1/2-2 c/day drinking > one for breakfast > > and one for an afternoon snack--I think she's > addicted to the yogurt > > now.) After awhile with the sauces she discovered > what a great treat > > baked apples and pears were. " Apple pie " yogurt > using baked apples > > with cinnamon, honey, and yogurt mixed together is > really good too. > > We just started the squash buttons using butternut > squash > (pecanbread > > recipe) a couple weeks ago and she really likes > those as well. > Hannah > > is not big on ground meat, so I've been slow > cooking sirloin tip > > roasts 2 at a time until they are falling apart > and freezing in > > smaller containers. Turkey soup with lots of well > cooked carrots > and > > green beans and the onion, garlic, and celery > removed is a common > > lunch. Leftover roast makes great soup too. > Salmon is well > tolerated > > for her as well. This week we're adding in > spinach in the soup and > > see how that goes. > > > > Hope that helps, just go slowly with the additions > so you can > evaluate > > how is tolerating them since everyone is > different. > > > > Dawn, > > Mom to , , and Hannah (9 y.o. IBD 5-06, > SCD 11-07) > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Dear , do you mind to give me the recepie of these apples? loves cinnamon agreed to try... Thank you, > > > > > > > > > > > > His colors are somehow back and energy level is > > better. He did > > not > > > > have anythng today, besides chicken and carrots. > > I want to cut on > > his > > > > Rowasa once a day and start to introduce another > > food tomorrow. > > What > > > > would be the best start with (from your > > experience?) > > > > > > > > Thank you and fast recovery for Hannah, > > > > , son , 10 years old, UC > > > > > > > > > > > > > Glad to hear is starting to turn the > > corner. > > > > > > Here are a few of the foods and meals, that Hannah > > handled well in > > the > > > first weeks after intro. Some of our first > > additions were homemade > > > apple, pear, and later on peach sauce. Since she > > has always liked > > > smoothies, I freeze them in ice cube trays and > > blend a few cubes > > with > > > a super ripe banana and yogurt (go slowly with the > > yogurt we had a > > > milder die off time when we jumped right into > > using 1/4 c in > > smoothies > > > initially--now she's up to 1 1/2-2 c/day drinking > > one for breakfast > > > and one for an afternoon snack--I think she's > > addicted to the yogurt > > > now.) After awhile with the sauces she discovered > > what a great treat > > > baked apples and pears were. " Apple pie " yogurt > > using baked apples > > > with cinnamon, honey, and yogurt mixed together is > > really good too. > > > We just started the squash buttons using butternut > > squash > > (pecanbread > > > recipe) a couple weeks ago and she really likes > > those as well. > > Hannah > > > is not big on ground meat, so I've been slow > > cooking sirloin tip > > > roasts 2 at a time until they are falling apart > > and freezing in > > > smaller containers. Turkey soup with lots of well > > cooked carrots > > and > > > green beans and the onion, garlic, and celery > > removed is a common > > > lunch. Leftover roast makes great soup too. > > Salmon is well > > tolerated > > > for her as well. This week we're adding in > > spinach in the soup and > > > see how that goes. > > > > > > Hope that helps, just go slowly with the additions > > so you can > > evaluate > > > how is tolerating them since everyone is > > different. > > > > > > Dawn, > > > Mom to , , and Hannah (9 y.o. IBD 5-06, > > SCD 11-07) > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Hi , No recipe. Just peel and core apples (granny smith apples are good for this). Cut into chunks, put in a glass baking dish lined with foil at about 350 degrees for 40 minutes and you have applesauce. I mix the cinnamon in after cooking so that it doesn't burn. Sometimes it gets a little toasted in the oven. B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com ************ --- Yuliya66 wrote: > Dear , do you mind to give me the recepie of > these apples? > loves cinnamon agreed to try... > > Thank you, > > > > > > > > > > > > > > > > > > His colors are somehow back and energy level > is > > > better. He did > > > not > > > > > have anythng today, besides chicken and > carrots. > > > I want to cut on > > > his > > > > > Rowasa once a day and start to introduce > another > > > food tomorrow. > > > What > > > > > would be the best start with (from your > > > experience?) > > > > > > > > > > Thank you and fast recovery for Hannah, > > > > > , son , 10 years old, UC > > > > > > > > > > > > > > > > Glad to hear is starting to turn > the > > > corner. > > > > > > > > Here are a few of the foods and meals, that > Hannah > > > handled well in > > > the > > > > first weeks after intro. Some of our first > > > additions were homemade > > > > apple, pear, and later on peach sauce. Since > she > > > has always liked > > > > smoothies, I freeze them in ice cube trays and > > > blend a few cubes > > > with > > > > a super ripe banana and yogurt (go slowly with > the > > > yogurt we had a > > > > milder die off time when we jumped right into > > > using 1/4 c in > > > smoothies > > > > initially--now she's up to 1 1/2-2 c/day > drinking > > > one for breakfast > > > > and one for an afternoon snack--I think she's > > > addicted to the yogurt > > > > now.) After awhile with the sauces she > discovered > > > what a great treat > > > > baked apples and pears were. " Apple pie " > yogurt > > > using baked apples > > > > with cinnamon, honey, and yogurt mixed > together is > > > really good too. > > > > We just started the squash buttons using > butternut > > > squash > > > (pecanbread > > > > recipe) a couple weeks ago and she really > likes > > > those as well. > > > Hannah > > > > is not big on ground meat, so I've been slow > > > cooking sirloin tip > > > > roasts 2 at a time until they are falling > apart > > > and freezing in > > > > smaller containers. Turkey soup with lots of > well > > > cooked carrots > > > and > > > > green beans and the onion, garlic, and celery > > > removed is a common > > > > lunch. Leftover roast makes great soup too. > > > Salmon is well > > > tolerated > > > > for her as well. This week we're adding in > > > spinach in the soup and > > > > see how that goes. > > > > > > > > Hope that helps, just go slowly with the > additions > > > so you can > > > evaluate > > > > how is tolerating them since everyone > is > > > different. > > > > > > > > Dawn, > > > > Mom to , , and Hannah (9 y.o. IBD > 5-06, > > > SCD 11-07) > > > > > > > > > > > > [Non-text portions of this message have > been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ > ______________ > > Be a better friend, newshound, and > > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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