SCD - All Cruelty and NO HELP!?

December 27, 2007

Been struggling with SCD for autistic child for 2.5 months with no

benefits.

I've read it may take up to 6 months to see improvement in Autistic

behavioral traits, etc. HOWEVER, digestive issues I expect to see

improvement more immediately.

We started with one DAN Doctor about 2 years ago. Casein Free and

Gluten Free diet plus a bunch of other specific foods TESTED for

revealing sensitivities (not digested well) " banned foods " .

Alternatives? SOY for Dairy. PUDDINGS & CANDY for Cake. etc.

(everything illegal on SCD diet).

Well, that big DAN promise turned out to be a bust EXCEPT our child's

constipation issues were solved. Overtime, we got off diet except for

dairy.

Now we are seeing a new DAN person, not a doctor but a nurse. They

claim the Casein Free and Gluten Free diet was misinformed and turned

us onto SCD diet.

Well, get this. The only staple foods we are allowed to eat and work

with are the foods we were BANNED from using with the previous doctor.

(e.g., peanuts, peanut butter, bananas, etc.)

Well, child is still constipated. Toilet training is stalled out

because the poor kid cannot make a normal stool. Sticky and constipated.

Is SCD for everyone? We seriously doubt it. This DAN professional

has not conducted any tests specific to our child. Ignored the

sensitivity profile provided by his prior Dan doctor.

There are a lot of Elain Gotshall (Sp?) followers/believers out there

who maybe want to believe because they have nothing else to hope with.

SCD may be the right octane for the right patient and those success

stories you hear about.

Well, I will keep this updated monthly, but so far, it looks like this

is an SCD report of utter failure and uselessness.

It would seem all the annoying lab tests of hair, blood, urine,

stools, etc. have value so a professional can make an informed

decision about diet for the individual case. Not only were no tests

performed by this Elain Gotschall groupie, but the DAN nurse is thus

far, ignoring what worked in the past, and ignoring the " banned foods "

which tested out as not being digested well (e.g., Peanuts and Bananas).

Most stories I read about involved Autistic kids with diarrhea, not

constipation. So anyone out there experiencing sticky and constipated

issues finding any help with SCD or a modification of it? Love to

hear from those people.

Thanks

December 28, 2007

I am sorry that you are not seeing progress. You mention that you are

feeding your child peanuts and peanut butter. WE DISCOVERED THAT

PEANUT BUTTER SEEMS TO BE ONE OF THE MAJOR REASON

FOR FAILURE WITH SCD!!

When we updated the website,

we wanted to warn parents about peanut butter. Here are the links.

Please read them and let us know how we can make this issue more

clear.

http://www.pecanbread.com/new/Improvethediet.htm

Peanut butter

Please avoid peanut butter, many SCD adults report problems with

peanut butter. Peanuts are legumes,and legumes are advanced foods. You

may add peanut butter when digestive problems have resolved but watch

carefully that there are no changes after adding this food. Peanuts

affect the thyroid. PEANUT BUTTER SEEMS TO BE ONE OF THE MAJOR REASON

FOR FAILURE WITH SCD.

http://www.pecanbread.com/new/success1.html

The most common SCD mistake is feeding foods that are allowed on the

diet but are too ADVANCED for beginners. The following foods are VERY

difficult to digest: peanuts, cashews and beans. Nuts are an

intermediate food. Some children might do better if they postpone the

nuts until more gut healing has taken place.

http://www.pecanbread.com/new/nutdiet.html

There is a diet that is pretending to be SCD and fooling many parents.

Many parents think that they are doing SCD and are not aware that they

are actually implementing the Nut Diet instead of SCD, confusing the

Nut Diet with the real SCD.

[Please read the entire article]

http://www.pecanbread.com/new/protocol1.html

How to Introduce Foods

SCD legal foods that are the least well tolerated by beginners are nut

products, beans, and peanut butter. Carrots can be difficult for a

small subgroup of people. Cashew nuts contain more starch than other

nuts and should only be started when the child is doing very well.

Peanut butter is a legume (as are beans) and therefore its consumption

should be delayed. It has been known to cause many symptoms in ASD

children. If a child did not start out with the recommended gradual

introduction and skipped to the above, the elimination of such foods

will bring dramatic improvements. Other SCD foods may be difficult for

your child to digest too. Tolerance for foods varies with every

individual.

When doing the intro diet proves very difficult for your child, just

proceed to the next step.

-----------------------------

SCD AND THE USE OF TREE NUTS AND PEANUTS

IMPORTANT: The premature introduction of nuts can be an extremely

serious error. SCD is not a " nut diet. " Nuts are an option but not a

requirement on this diet. .

Dr. Haas made no specific recommendations about nuts, however Elaine

realized they would allow her to prepare baked goods and other foods

that usually require flour. ( Many claim recipes containing nuts are

even better tasting than ordinary baked goods). Unfortunately, nuts

may be difficult to digest for some children during the first months

of SCD. If a child did not follow the recommended introductory stages

of SCD, then the elimination of nuts may well bring an improvement.

Tolerance of nuts varies. Every child is different. Children might not

tolerate any nuts during the early months of SCD. Some children may

only tolerate small amounts and only if finely ground, while others do

well with large amounts.

Almond flour may be particularly difficult. Try other nut flours instead.

Nut butters are easier to digest than nut flours. They can substitute

in recipes calling for nut flour..

Whole nuts are the most difficult to digest and should be postponed

until a child reaches the advanced stage.

You may introduce the almond or pecan muffins very gradually once

digestive symptoms have improved. Start with 1/4 muffin every other

day and increase to one a day if all goes well. After, you can go to

about 3 per day. Elaine warned against more.

Cashews are a starchy nut, beans or peanut butter are not as

digestible as other permitted nuts. Cashews also contain powerful

enzyme inhibitors. We strongly recommend you delay the introduction of

cashews for as long as possible. Beans, even those properly soaked and

pre-cooked, have the major disadvantage of containing too much starch

and are another food to only be introduced when a child is in the

advanced stage.

The same principle applies to peanuts, which are actually legumes, not

nuts, as are beans Again, please reserve peanuts and beans until a

child is well advanced.

Peanuts have other disadvantages. Peanut allergy is more common than

tree nut allergy, so much so that it is now restricted from many

schools and is even being removed from some commercial products.

Peanut may also provoke gut reactions and cause GI distress. There is

even a possiblity that brain function is better on days when no peanut

items have been consumed.

http://www.pecanbread.com/new/success1.html

Just about every one of us has made mistakes at first. You may need

several tries before you begin to progress. Please don't give up. If

you do not get the desired results, you can benefit from additional

help.

There are a variety of methods for getting help and support with SCD.

All are free with the exception of consultations with SCD counselors .

Parents report that personalized SCD counseling was the best

investment that they made for their child's health.

Make no mistake. This is a struggle to save your child, a battle to

eradicate the harmful intestinal microorganisms that continue to

strive for the destruction of your child's gut and brain.

http://www.pecanbread.com/new/coprotocol.htm

At the start of the diet many people who were suffering with

constipation find that SCD™ will relieve it. For some other people

their constipation may worsen for a short period. This may be due in

part to the toxins that the starving microbes are releasing as they

die. If there is a large amount of toxin release (from a large

overgrowth of harmful microbes) and/or if the body has trouble

detoxifying, constipation may occur or worsen.

Additional things that have been reported by SCDers to help with constipation:

[Please read the entire article]

Please tell us more about what you are feeding your child and we will

try to help.

Are all fruit peeled, seeded and cooked?

Any supplements?

All the best,

Mimi

> Been struggling with SCD for autistic child for 2.5 months with no

> benefits.

> I've read it may take up to 6 months to see improvement in Autistic

> behavioral traits, etc. HOWEVER, digestive issues I expect to see

> improvement more immediately.

>

> We started with one DAN Doctor about 2 years ago. Casein Free and

> Gluten Free diet plus a bunch of other specific foods TESTED for

> revealing sensitivities (not digested well) " banned foods " .

> Alternatives? SOY for Dairy. PUDDINGS & CANDY for Cake. etc.

> (everything illegal on SCD diet).

>

> Well, that big DAN promise turned out to be a bust EXCEPT our child's

> constipation issues were solved. Overtime, we got off diet except for

> dairy.

>

> Now we are seeing a new DAN person, not a doctor but a nurse. They

> claim the Casein Free and Gluten Free diet was misinformed and turned

> us onto SCD diet.

>

> Well, get this. The only staple foods we are allowed to eat and work

> with are the foods we were BANNED from using with the previous doctor.

>

> (e.g., peanuts, peanut butter, bananas, etc.)

>

> Well, child is still constipated. Toilet training is stalled out

> because the poor kid cannot make a normal stool. Sticky and constipated.

>

> Is SCD for everyone? We seriously doubt it. This DAN professional

> has not conducted any tests specific to our child. Ignored the

> sensitivity profile provided by his prior Dan doctor.

>

> There are a lot of Elain Gotshall (Sp?) followers/believers out there

> who maybe want to believe because they have nothing else to hope with.

> SCD may be the right octane for the right patient and those success

> stories you hear about.

>

> Well, I will keep this updated monthly, but so far, it looks like this

> is an SCD report of utter failure and uselessness.

>

> It would seem all the annoying lab tests of hair, blood, urine,

> stools, etc. have value so a professional can make an informed

> decision about diet for the individual case. Not only were no tests

> performed by this Elain Gotschall groupie, but the DAN nurse is thus

> far, ignoring what worked in the past, and ignoring the " banned foods "

> which tested out as not being digested well (e.g., Peanuts and Bananas).

>

> Most stories I read about involved Autistic kids with diarrhea, not

> constipation. So anyone out there experiencing sticky and constipated

> issues finding any help with SCD or a modification of it? Love to

> hear from those people.

>

> Thanks

>

December 28, 2007

> you wrote:

>

> Most stories I read about involved Autistic kids with diarrhea, not

> constipation. So anyone out there experiencing sticky and constipated

> issues finding any help with SCD or a modification of it? Love to

> hear from those people.

>

> Thanks

I can make a few comments as an SCD newbie of a constipated child. We

put him on SCD 10/21/07. We are now slowly transitioning from Stage 2

to Stage 3. I'll assume you've seen the list of Stages on the

www.pecanbread.com website. I have never given him Peanuts or peanut

butter since being on SCD. We used almond butter for baked goods,

then recently switched to pecans grounded in my blender. Although we

gave my son bananas in the beginning, I started to slow down on them

for him, because I remembered the BRAT protocol for stopping diarrhea:

Bananas, Rice, Apples, Toast. So, I thought maybe too many bananas

wouldn't be such a great idea for a kid with constipation.

His main constipation problem is of only going every 4 days.

Otherwise, it's mostly normal to maybe on the firm side, so it seems

more of a motility issue with him. Maybe partly due to his low-tone

throughout his body. I can say now, though, we have seen A LOT of

improvement in his constipation. I keep a journal, and for two weeks

in November, he went every 2 days like clockwork. Then, back to every

4 days. Well, since starting the fermented goat's yogurt, even better

news. 12/13-bm; 12/15-bm; 12/16-bm; 12/19-bm; 12/21-bm; 12/22-bm;

12/23-bm; 12/26-bm; nothing so far today or yesterday. This is only

on 1/8 of a teaspoon most days. We didn't start the yogurt until 12/10.

I know how it feels, and you sound like my husband did even when we

started this diet. By then, he was jaded on empty promises to cure

our child. But now we both agree that this diet is the best thing we

have done for our child in the past year. We've done a lot, too. he

would wonder why I was researching and trying yet another treatment.

It was frustrating. We've spent a lot of time and money on other

treatments and remedies that didn't seem to do anything for our son.

However, I have come to the realization that what works for one person

may not work for another. But the science behind this diet makes

sense to me, and we know he has gut dysbiosis. (sp?)

Regarding my son's constipation, I know there is more on this diet I

could do: for example, I know his vitamin c powder is not SCD legal

(bought before SCD). But I am waiting until it is finished to replace

it with SCD legal vitamin c. I also am aware of the electrolyte drink

which is supposed to be helpful. I think it is also on

www.pecanbread.com. I seem to remember another one, too, something

about juicing garlic and carrots, but I don't know the specifics,

maybe someone else does.

The best help for me is this list. I try to read a lot of posts,

because there is usually some tidbit of info that is helpful to me.

There are very experienced SCD people on this list that are usually

very prompt in answering emails, and I've posted my share of questions.

It may not be the panacea we are hoping/looking for, but for now, we

are seeing slow and steady progress in our boy, and are thrilled, and

who knows, maybe it will be.

Hope this helps,

CJ

December 28, 2007

Whoa, , back up the truck here.

I understand that you are frustrated. But your report

tells us nothing except that you are frustrated.

We are here to help. We can help you. Many people make

mistakes in the beginning. Some of those mistakes can

be very serious and can stall your progress entirely.

So to storm into a list where you haven't been posting

(at least, I don't remember you asking any questions)

to let us all know about your failure is a bit

pointless.

Many of us have autistic children who have found

success with SCD. My son has only been on the diet for

a month and has shown significant improvement with

stools. He now has perfect stools unless he gets an

illegal or a food that does not agree with him. For my

son, that was bananas and butternut squash.

Of course we have had setbacks and there have been

problems that I never anticipated. These people on

this list were here to set me straight and to let me

know when I made a mistake. It can be very confusing

in the beginning. Everyone screws up at first.

If you'd like to start over with an introduction, how

things went, and what your child was eating or is

currently eating, I'm sure we can help you back up and

start over correctly.

Did you start with the Pecanbread intro? Many autistic

children will not improve unless you start that way.

It is at pecanbread.com if you haven't seen it. Did

you start a new food every four days? If not, there

could have been delayed reactions that were missed.

Elaine has encouraged people with autistic children to

also eliminate foods that children have a demonstrated

sensitivity to. The community of parents here have a

wide variety of necessary limitations and problems.

I have a feeling you've only got half the story. Let

all of us here help fill in the blanks for you.

I have to take issue with 'cruelty' as well. Cruelty

for me was years of steroids, dangerous drugs, my hair

falling out, and constant agonizing pain. Eating this

way on the SCD is freedom by comparison.

B.

ASD son, RA self, SCD Nov. 2007

http://scdgirl.blogspot.com

*************

--- briansmallbrook wrote:

> Been struggling with SCD for autistic child for 2.5

> months with no

> benefits.

> I've read it may take up to 6 months to see

> improvement in Autistic

> behavioral traits, etc. HOWEVER, digestive issues I

> expect to see

> improvement more immediately.

>

> We started with one DAN Doctor about 2 years ago.

> Casein Free and

> Gluten Free diet plus a bunch of other specific

> foods TESTED for

> revealing sensitivities (not digested well) " banned

> foods " .

> Alternatives? SOY for Dairy. PUDDINGS & CANDY for

> Cake. etc.

> (everything illegal on SCD diet).

>

> Well, that big DAN promise turned out to be a bust

> EXCEPT our child's

> constipation issues were solved. Overtime, we got

> off diet except for

> dairy.

>

> Now we are seeing a new DAN person, not a doctor but

> a nurse. They

> claim the Casein Free and Gluten Free diet was

> misinformed and turned

> us onto SCD diet.

>

> Well, get this. The only staple foods we are

> allowed to eat and work

> with are the foods we were BANNED from using with

> the previous doctor.

>

> (e.g., peanuts, peanut butter, bananas, etc.)

>

> Well, child is still constipated. Toilet training

> is stalled out

> because the poor kid cannot make a normal stool.

> Sticky and constipated.

>

> Is SCD for everyone? We seriously doubt it. This

> DAN professional

> has not conducted any tests specific to our child.

> Ignored the

> sensitivity profile provided by his prior Dan

> doctor.

>

> There are a lot of Elain Gotshall (Sp?)

> followers/believers out there

> who maybe want to believe because they have nothing

> else to hope with.

> SCD may be the right octane for the right patient

> and those success

> stories you hear about.

>

> Well, I will keep this updated monthly, but so far,

> it looks like this

> is an SCD report of utter failure and uselessness.

>

> It would seem all the annoying lab tests of hair,

> blood, urine,

> stools, etc. have value so a professional can make

> an informed

> decision about diet for the individual case. Not

> only were no tests

> performed by this Elain Gotschall groupie, but the

> DAN nurse is thus

> far, ignoring what worked in the past, and ignoring

> the " banned foods "

> which tested out as not being digested well (e.g.,

> Peanuts and Bananas).

>

> Most stories I read about involved Autistic kids

> with diarrhea, not

> constipation. So anyone out there experiencing

> sticky and constipated

> issues finding any help with SCD or a modification

> of it? Love to

> hear from those people.

>

> Thanks

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

December 28, 2007

Thanks Mimi & CJ.

Don't worry I am not giving up yet. Wouldn't write in if I were.

In addition to the staples of Peanut butter and Bananas, other foods

include hotdogs, homemade ketchup, apples, grapes, melon,

strawberries, water, fruit juices (orange, apple, blackberry, (apple,

very berry and fruit punch for juice boxes), celery, carrots, Eggs

(every morning) and homemade cookies or brownies, banana pudding,

honey, and fruit smoothies.

That's pretty much it. So you can see how eliminating peanut butter

or bananas wouldn't leave much else for the poor kid.

Supplements: Saccramyces Bacalardii (probiotic), Enzymes, Vitamin A,

GI Pro Multivitamine (yucky--low success rate), and Vitamin C powder.

I believe all the above are SCD Legal.

I would agree and tend to believe the peanutbutter and/or bananas are

the problem. LOTS of bananas!

I was not following the website advice strictly, because we are paying

a professional and thus, following the DAN Nurse's advice strictly.

Both parents work full-time so the " Betty Crocker " approach is a

burden. I bake cookies, make ketchup, smoothies and banana pudding.

(BANANA PUDDING is the BEST and easiest recipe I've seen so far, and I

invented it!)

Its also useful for mixing non-yucky supplements into. (Happy to

share if anyone is interested in the recipe - just not sure this is

right place to post it).

The only thing that hides the GI Pro Multivitamine (strong soury

citrus flavor like Vitamin C times 1,000) is Orange juice. But for it

to be edible have to use more orange juice than my kid tends to drink

in a sitting.

Anyway, thanks for offering some possible solutions. They are

terrible solutions to live with, but probably accurate. I will run it

by our Nurse, I don't want to step on toes or ignore the professional.

I appreciate those who get to the nitty gritty and just try to help

without projecting feelings and motives that I do not have.

I chose the title because it is true, humorous and to help others like

me with a title they can relate to. The cruelty is when the poor

sweet child asks politely for a chip and you can't give it to them.

Frustrated? Maybe a little... who isn't? But the SCD diet is a mere

nuisance compared to other issues we've been facing (e.g., Battling

School Dept.)

P.S. Anyone discover a 'bread-that-doesn't-suck' recipe yet?

>

> Been struggling with SCD for autistic child for 2.5 months with no

> benefits.

> I've read it may take up to 6 months to see improvement in Autistic

> behavioral traits, etc. HOWEVER, digestive issues I expect to see

> improvement more immediately.

>

> We started with one DAN Doctor about 2 years ago. Casein Free and

> Gluten Free diet plus a bunch of other specific foods TESTED for

> revealing sensitivities (not digested well) " banned foods " .

> Alternatives? SOY for Dairy. PUDDINGS & CANDY for Cake. etc.

> (everything illegal on SCD diet).

>

> Well, that big DAN promise turned out to be a bust EXCEPT our child's

> constipation issues were solved. Overtime, we got off diet except for

> dairy.

>

> Now we are seeing a new DAN person, not a doctor but a nurse. They

> claim the Casein Free and Gluten Free diet was misinformed and turned

> us onto SCD diet.

>

> Well, get this. The only staple foods we are allowed to eat and work

> with are the foods we were BANNED from using with the previous doctor.

>

> (e.g., peanuts, peanut butter, bananas, etc.)

>

> Well, child is still constipated. Toilet training is stalled out

> because the poor kid cannot make a normal stool. Sticky and

constipated.

>

> Is SCD for everyone? We seriously doubt it. This DAN professional

> has not conducted any tests specific to our child. Ignored the

> sensitivity profile provided by his prior Dan doctor.

>

> There are a lot of Elain Gotshall (Sp?) followers/believers out there

> who maybe want to believe because they have nothing else to hope with.

> SCD may be the right octane for the right patient and those success

> stories you hear about.

>

> Well, I will keep this updated monthly, but so far, it looks like this

> is an SCD report of utter failure and uselessness.

>

> It would seem all the annoying lab tests of hair, blood, urine,

> stools, etc. have value so a professional can make an informed

> decision about diet for the individual case. Not only were no tests

> performed by this Elain Gotschall groupie, but the DAN nurse is thus

> far, ignoring what worked in the past, and ignoring the " banned foods "

> which tested out as not being digested well (e.g., Peanuts and

Bananas).

>

> Most stories I read about involved Autistic kids with diarrhea, not

> constipation. So anyone out there experiencing sticky and constipated

> issues finding any help with SCD or a modification of it? Love to

> hear from those people.

>

> Thanks

>

December 28, 2007

,

It's good to see you write in again. There are so many people that can help

here. You read the book right? There are so many things to consider on the

diet, but you have to stay positive.

It may be a bad choice of words to say cruelty is when you can't give a polite

asking child a chip. There are other choices that a child would love more than

that chip. " No, you can't eat that because it's not a healthy choice.....but

you can have.....a hug....your dad to play a game with you......a carrot chip! "

You sound like you have a lot on your plate. Take it day by day...there is only

so much one can handle at a time.

Good luck-Chin up!

Sandy

uc since 2004

scd newbie 1 month

....... " I chose the title because it is true, humorous and to help others like

me with a title they can relate to. The cruelty is when the poor

sweet child asks politely for a chip and you can't give it to them.

Frustrated? Maybe a little... who isn't? But the SCD diet is a mere

nuisance compared to other issues we've been facing (e.g., Battling

School Dept.) "

---------------------------------

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December 29, 2007

,