Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Dear List Members, We just got an email from a parent who got failure with SCD because they used peanut butter. About a year ago, I realized that peanut butter was sabotaging the success of SCD. Sometimes the overuse of other " nut products " can also slow down progress or even prevent it. http://www.pecanbread.com/new/nutdiet.html I then decided to redo the website to make sure that no parent would make these mistakes. I spent several months working on that project. I am so sad that I have failed....some parents are still giving nuts before the gut has healed. What can we do in order to alert ALL parents to not give up if they make the mistake of introducing the nuts and peanuts before their child's gut is ready to digest them. Should I have a voice come up on the website as soon as the website is opened and tell parents to avoid peanuts? It would sound like this " Welcome to Pecanbread and stay away from peanuts " . Any other suggestions? Mimi Whose dream is to save all kids with bacterial toxins. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 I think a verbal message would be good. I have to say, as a three month SCDer, when you first start out, everything is so overwhelming. There's so much info to get caught up on, plus you're cooking like mad. It is very easy to overlook, or just forget something that important. Hearing it verbally won't be so quickly forgotten. Diane I then decided to redo the website to make sure that no parent would make these mistakes. I spent several months working on that project. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 How about a flashing sidebar? Or a pop-up? > > Dear List Members, > > We just got an email from a parent who got failure with SCD because > they used peanut butter. About a year ago, I realized that peanut > butter was sabotaging the success of SCD. Sometimes the overuse of > other " nut products " can also slow down progress or even prevent it. > http://www.pecanbread.com/new/nutdiet.html > I then decided to redo the website to make sure that no parent would > make these mistakes. I spent several months working on that project. > > I am so sad that I have failed....some parents are still giving nuts > before the gut has healed. > What can we do in order to alert ALL parents to not give up if they > make the mistake of introducing the nuts and peanuts before their > child's gut is ready to digest them. > > Should I have a voice come up on the website as soon as the website is > opened and tell parents to avoid peanuts? It would sound like this > " Welcome to Pecanbread > and stay away from peanuts " . Any other suggestions? > > Mimi > Whose dream is to save all kids with bacterial toxins. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Mimi, From reading the e-mail from that parent, I'm not sure he has been to the Pecanbread web site. I was trying to determine that in my response to him. He received info on the diet from his DAN and I really think from what he said is that he did not do the intro and maybe did not see it on the web site. He made no mention of it. He also said that the DAN ignored any mention of other food sensitivities from allergy tests. Elaine mentioned that people should stay away from foods to which they test allergic and I thought that was also on the web site. But I am not sure. At this point I am just giving him the benefit of the doubt. It is a hard diet to follow at the outset, I know. B. ASD son, RA self, SCD Nov. 2007 http://scdgirl.blogspot.com ************* --- pecan post wrote: > Dear List Members, > > We just got an email from a parent who got failure > with SCD because > they used peanut butter. About a year ago, I > realized that peanut > butter was sabotaging the success of SCD. Sometimes > the overuse of > other " nut products " can also slow down progress or > even prevent it. > http://www.pecanbread.com/new/nutdiet.html > I then decided to redo the website to make sure that > no parent would > make these mistakes. I spent several months working > on that project. > > I am so sad that I have failed....some parents are > still giving nuts > before the gut has healed. > What can we do in order to alert ALL parents to not > give up if they > make the mistake of introducing the nuts and peanuts > before their > child's gut is ready to digest them. > > Should I have a voice come up on the website as soon > as the website is > opened and tell parents to avoid peanuts? It would > sound like this > " Welcome to Pecanbread > and stay away from peanuts " . Any other suggestions? > > Mimi > Whose dream is to save all kids with bacterial > toxins. > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Hi Mimi- Thank you for all that you do in saving our children! You're wonderful! I think this father was just hashing out his pain in public. We've all been there, where the latest thing to " cure " your child doesn't show the results others experience, some days giving up seems easier on the heart. Yelling at the list perhaps wasn't a great way to ask for help, but that's what he's doing-looking for a lifeline. We can only hope and pray he's ready now to give SCD a chance-nothing we tried for my poor son worked until SCD-and GFCF was a disaster for him. He just got up from his nap, climbed in my lap and gave me a hug and a kiss. That makes all the early difficulty worthwhile! YAAAAY SCD! Teena Mom to Ben, SCD 10 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Hi all, I'm new and gearing up for the intro diet. How long do you have to stay off foods you test an intolerance too? Is this a traditional test or an sensitive blood test for intolerances? I " m a little worried since I tested intolerant to eggs. That would really limit us during the intro. Also did anyone have success introducing foods you had an intolerance to after a few months on the diet? We did resolve my son's constipation with probiotics, diet, minerals, and magnesium. For the first time in two years, he has gone to the bathroom every day for two weeks! He was severely constipated with bowel movements every 2 - 5 days prior to this. This happened after his MMR. We stopped vaccinating after this. We all have severe yeast issues. How long should we do the intro diet? I see it says 2 - 5 days but I'm pretty sure yeast won't be resolved by then. Should we not do fruit in then when we are introducing? Has anyone with yeast tolerated the yogurt right away? If not what did you do? How bad is the die off? There are going to be 5 of us doing this since my husband is doing it too! If anyone has any advice for us, I would greatly apperciate it! I'm a little worried about all this. Sorry for the newbie questions, but I just want to make sure we do it right. I would hate to start over! Mom - Autoimmune Issues Maya - Lyme's disease (6) - Autism Spectrum (3) Aidan - now offically speech delayed (20 months) > Mimi, > > From reading the e-mail from that parent, I'm not sure > he has been to the Pecanbread web site. I was trying > to determine that in my response to him. He received > info on the diet from his DAN and I really think from > what he said is that he did not do the intro and maybe > did not see it on the web site. He made no mention of > it. He also said that the DAN ignored any mention of > other food sensitivities from allergy tests. Elaine > mentioned that people should stay away from foods to > which they test allergic and I thought that was also > on the web site. > > But I am not sure. At this point I am just giving him > the benefit of the doubt. It is a hard diet to follow > at the outset, I know. > > B. > ASD son, RA self, SCD Nov. 2007 > http://scdgirl.blogspot.com > ************* > > --- pecan post wrote: > > > Dear List Members, > > > > We just got an email from a parent who got failure > > with SCD because > > they used peanut butter. About a year ago, I > > realized that peanut > > butter was sabotaging the success of SCD. Sometimes > > the overuse of > > other " nut products " can also slow down progress or > > even prevent it. > > http://www.pecanbread.com/new/nutdiet.html > > I then decided to redo the website to make sure that > > no parent would > > make these mistakes. I spent several months working > > on that project. > > > > I am so sad that I have failed....some parents are > > still giving nuts > > before the gut has healed. > > What can we do in order to alert ALL parents to not > > give up if they > > make the mistake of introducing the nuts and peanuts > > before their > > child's gut is ready to digest them. > > > > Should I have a voice come up on the website as soon > > as the website is > > opened and tell parents to avoid peanuts? It would > > sound like this > > " Welcome to Pecanbread > > and stay away from peanuts " . Any other suggestions? > > > > Mimi > > Whose dream is to save all kids with bacterial > > toxins. > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http:// > mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Hi Mimi, You are not failing! You are amazing! This board and the pecanbread sites are lifesavers. I have noticed some of the changes on the site and think they are great. To see my son's perfect poops and the fact that he is not leaning his tummy all over our furniture reinforces that this is the kindest diet. We had a rocky first week or so, but the slow and steady progress is wonderful. I have a feeling that many people who become disgruntled on SCD are either moving too quickly or have skipped the intro. My own DAN does not emphasize the intro, which kills me because it is the whole key to the healing. I did advanced SCD foods for a month or two to help myself prepare for the intro but the real changes began once we dove in and did the actual intro diet. Maybe we could help you come up with a quick and dirty " begin the diet " introduction for the Begin the Diet page. You have all of this amazing information on the site already on the bug story page (and others), but a quick 1-5 could possibly help folks who are glancing over the site too quickly. (I know because I have been reading the site for a long time and have been too chicken to jump in until recently... I needed to be ready to " fanatically adhere. " I continue to re-read the site constantly and learn new things each time.) The re-reading made me realize how much of a panic I was in the first several times I read the site...and how much I had frantically skipped over. Maybe you could start with something like: 1. Do the intro. Do the intro. Do the intro!!! It is not the real SCD if you don't. 2. Introduce the foods slowly. One new food every 2-4 days and look for reactions. 3. Keep away from peanuts. They are a really advanced food and should be one of the last nuts you try. Nut flour is also advanced...it will take time, but it could be added later. 4. The first weeks are tough on everybody and die-off is no fun. It will be worth it. 5. Variety is overrated. Think of Bubba in Forrest Gump - " fried shrimp, sauteed shrimp, boiled shrimp, shrimp fricasee, " everything shrimp. In SCD, it is a few days of intro and then the foods you can tolerate. Eggs, jello, eggs and jello, hamburger, eggs and jello, hamburger and jello, burger and scrambled eggs. Then after the intro, repeat as above, add super-cooked green beans (add tolerated food here), repeat. You will be glad you did. The only other thing I can think of is that the recipes section could possibly be misleading with all of the peanut butter recipes. Could they be switched to almond butter or have a warning on each one? Or maybe a " week by week " recipe guide? B has a great blog with stage 1 recipes she got from the site/message board and interpreted and it has helped me stay the course as we add new foods. It is sort of an SCD week by week, day by day and it keeps me inspired and determined. Whenever I feel like I'm in a funk because almond flour recipes are too advanced, I read her blog and feel better. This year, for the first time ever, I did not make Christmas cookies (in my old life, I was a semi-professional baker, so this was a big deal). What helped me was reading the site, boards and 's blog and thinking of the fun SCD legal cookies we will be able to make next year. I know that this is a huge message but you guys do amazing, life-changing work without any fanfare - you are helping so many of us and we truly appreciate it. All my best, R. mom to Carson, 4 years old, ASD, SCD since 12/9/07 fan of the Pecanbread site/message board and its moderators since 12/06 Quote Link to comment Share on other sites More sharing options...
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