Guest guest Posted January 15, 2013 Report Share Posted January 15, 2013 Hi,Someone was asking about IVIG and I cannot find that email. I think it was Xexe?We just did IVIG for my 6 year old at the end of December with Dr. Kovacevic who treats PANDAS. He thinks it is very safe. The procedure was pretty easy (five hours with an IV over two days -- no anaestesia). In addition to the tests for PANDAS that someone else mentioned, we also did a 5 day steroid burst of pregnasalone. According to Dr. K if a child does well with this then he thinks they have 75-80% chance of PANDAS and doing well with the IVIG. My son did great with the steroid burst. Unfortunately we haven't seen alot of gains yet with the IVIG but it can take up to 2-3 months. He has also been sick with cold/flu. I think the other problem could be the antibs he is on for PANDAS/strep. My son has gut problems so i think the antibs are making them worse. Hope this helps! Quote Link to comment Share on other sites More sharing options...
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