Re: Dr. Krigsman - Feedback Requested-thank you

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,

Thank you for sharing everything you have and are doing with . It really helps to see what other parents are doing and what's worked in each case.

Wishing the best for .

Liam's Mom

Please excuse the typos. Sent from my phone.

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Schneider ;

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<mb12valtrex >;

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Re: Dr. Krigsman - Feedback Requested

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Tue, Jan 15, 2013 1:14:55 PM

Well, he just turned 4 in October, and we started when he was 22 months old....so we've been at this for a good part of his young life.  I personally think that makes a huge difference, because he was still in his downward spiral, and we basically interrupted it when we started biomed.  The things that we have down over the past 2+ years (in order that we began them) are:

 GFCFSF - This diet made tons of difference, but he hadn't had the MMR yet, and when he did, digestion returned to terrible.  We are still on this diet today. MB12 Injections - Started noticing improvement in mood within 24 hours (no meltdowns!) and attempts at speech started within a few days (he was 100% nonverbal).  We still do these injections daily, and probably will either for life or until his gut is repaired to the point that he can take B12 supplements orally.

 Vitamin Supplements - Too many to list, including all the " typical " vitamins plus Omega 3s, higher doses of B Vitamins, antioxidant support, zinc, iron, cal/mag, etc.

Tomatis Method - This seemed to help orient his thinking.  He also started to combine words into phrases within days of starting this therapy.  We've done two 15-day sessions.

 Low-Dose Naltrexone - This definitely has been key in helping to stay healthy and avoid sickness from preschool (though he does still catch some things). 

LDA Immunotherapy - This is to desensitize him to various things that he has become allergic and/or sensitive to due to leaky gut. It is a long-term treatment that takes at least 3 years to complete, possibly longer.

 Low Oxalate & Rotation Diet - We noticed a big improvement in digestion when we started these. 

 HBOT - We purchased a chamber (which we affectionately refer to as " the rocket " ) and use it in our home regularly. We are two days away from finishing our 8th month-long session, after which we will be at 400 hours of treatment. We have seen amazing results from this treatment. For example, after struggling to get to answer questions instead of repeating them, he suddenly started answering yes/no, responding to questions about his day at preschool, etc......just a few weeks into our very first month. Every month, we have seen even more progress, and now less than 1 1/2 years after starting, he is a completely, totally different child.

Support of Methylation Cycle (Folate Metabolism) - Other than MB12, this would include transdermal glutathione cream, N-Acetyl-Cysteine cream and prescribed high-dose Folinic Acid.  This is critical for because he has the C677T MTHFR genetic polymorphism.

 Probiotics - We use Klaire Labs Factor 6.  The more probiotics, the better the digestion. Digestive Enzymes - We were using Enzymedica enzymes, but he became sensitive to them after using them regularly.  We now use Creon, which is by prescription only and is pork based.

 L-Carnitine - 's labs showed borderline mitochondrial distress, so this was added to support cellular energy metabolism. Secretin IV - We've done 4 treatments of Secretin IV to aid digestion.  I haven't seen much value in this, but Dr. Krigsman did say that it wouldn't hurt to continue it for a few more months until the inflammation in 's gut decreases.

 Treatment of Leaky Gut w/Dr. Krigsman - Less than 2 months ago, after procedures with Dr. Krigsman, started taking two steroid anti-inflammatories, Entocort and Prednisolone.  Prednisolone is a short-term prescription, but he will probably be on Entocort long term or at least for quite a while.  I should mention that this medication is quite expensive (about $900/month) if not covered by insurance!  

  Clearly, we've done a lot.  We are always questioning new things to try, but at this point he is so close to full recovery that I think he's going to get there even if we just continue with what we're doing now.  The biggest individual things for us have been GFCFSF, MB12 and HBOT, although I think everything has had its place and I do feel like there is a synergy between all of the treatments.

 Big things that we haven't done but have considered are chelation and stem cell therapy.  Also, thank goodness we have not had to deal with any sort of parasites or yeast/fungal infections.  Just last week, we sent off some tests as part of a chelation challenge to see if chelation is something we should consider.  If it is, then we will do it.  We are not really considering stem cell therapy at this point, although we did think about it briefly last fall.  In my opinion, having an open mind and being willing to investigate anything is critical.  Each child's path to recovery is unique because each person is unique, so a willingness to at least learn more about any given treatment really opens up doors. 

 Let me know if you have any specific questions about anything - happy to share what I've learned, and we've certainly been through a lot (but my little angel is worth it!!). 

-          

 

what did you do to recover your son? Thank you

To: " mb12valtrex " <mb12valtrex >

Sent: Tuesday, January 15, 2013 2:47 AM Subject: Re: Dr. Krigsman - Feedback Requested

 

We saw Dr. Krigsman this past Nov for my son's similar issues.  Before you even meet with him, there are a bunch of tests to do through your local lab (i.e. Labcorp) and some degree of paperwork to be completed.  Thereafter during your consult, he typically will order an upper endoscopy, a colonoscopy and pill cam procedures in order to complete a diagnosis.  Procedures are done either in Texas or in Long Island, NY, and it is a 4-day process including travel and bowel prep.

If an inflammatory bowel disease is present, he will prescribe anti-inflammatory drugs to help put the condition into remission and generally recommends to stay on the drugs long term in order to maintain remission, rather than come off the drugs and " wait and see. "  He told us that these drugs aren't the only thing we will do, but since it has been less than 2 months since my son's procedures, this is as far as we have gotten.

 So far, we have noticed some improvement in my son's digestion, though there is definitely room for more improvement.  We also have noticed minor cognitive gains, which the doctor said is common.  My son is already recovered to the point that he is basically off the spectrum, so we weren't expecting anything huge in terms of cognition, and our primary goal has really been to improve bowel function, which it seems to be accomplishing slowly but surely.

I hope this is helpful, and please feel free to ask any specific questions you may have.Best,Sent from my iPad

 

Listmates:

Our son is having recurring gut and bowel issues and we are considering seeing Dr. Arthur Krigsman for a gastro consultation. Does anyone have any experiences with Dr. Krigsman and his treatment protocols? Any feedback would be appreciated. Thanks!