Re: High cmv and hhv6 titers - testing

[Guest guest]

A regular ped COULD order them but often they are not very knowledgeable on this and so will choose not to. They can on the same script but need to be ordered individually. Most infections could be a trigger for PANS/PAnDAS. But not al kids show those symptoms. Infections can cause other issues those including shutting off the immune system, increasing cytokines, triggering autoimmune issues , etc. I'd imagine the behaviors are individual to the child. There are many that think that autism is an immune mediated illness. And, often these infections are a big part of the problem. RuthSent from my iPhone



So is this typical testing a regular pediatrician can order?

Are they ordered individually or is it in a "group" like amino acid testing?

What kind of behaviors are we referring to? PANDAS type symptoms or something else?

Cristine

Re: High cmv and hhv6 titers - ???treatment options

We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past.

Ruth

Sent from my iPhone

Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis

[Guest guest]



What reason does a parent get these tests done? Just because? To rule things out?

My Integrative Pediatrician has ordered other tests (IgG4 Food Antibodies 90 Antigens test, as well as MTHFR, Folate, Anti-Thyroglobulin Antibodies, Anti-TPO Antibodies, TSH, Free T4, Free T3) and so I suspect she would be open to these other ones, too.

So do I let her choose which ones to test for, or do I request all of them (Lyme, mycoplasmas, strep (including ASO and antidnaseb), hhv6, EBV, CMV)? I would guess that he doesn't need to be tested for Lyme because he has never had a tic on him.

I hope these questions do not seem silly. My husband and I are at a point of feeling overwhelmed and hopeless trying to figure things out and help him.

TIA to anyone who has input.

Cristine

Re: High cmv and hhv6 titers - ???treatment options

We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past.

Ruth

Sent from my iPhone

Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis

[Guest guest]

,

In my son's case he had roseola before his first regression. Then he had another

mysterious rash which was followed by another regression. I always felt like he

had some chronic viral infection as he had lymphadenopathy for a long time when

he was younger. He also has a lot of sensory issues, visual stimming and

allergies. Then we did a nagalase test, Anne Connelly antibody test and both

pointed towards a chronic viral infection. So since I was thinking to take the

valtrex route and also felt like my son is dealing with pans, I decided to check

the titers before starting the meds for a baseline. And now I have a very high

IGG for CMV which is making me nervous. So I would say that depending on your

son's symptoms and clinical history, you can determine if viruses could be an

issue and then whenever he gets the next blood work, get the titers added.

Good luck

is

>

>

>

> Hi everyone,

>

> I got high CMV titers on my son's bloodwork. His IgG is 10.1. He

also has elevated hhv6. What are the treatment options for CMV? Valtrex is used

by a lot of my friends here but it is mainly used for prevention of cmv in

immunocompromised patients. What are the treatment options for CMV in our kids?

I have heard of lysine but not sure if it will help. Will really appreciate any

help that I can get from all of you.

>

> Thanks

> is

>

[Guest guest]

,Lots and lots of people with Lyme don't ever recall a tic or tic bite.If you take a look at the SCIA panel, it covers a TON of labs. Your questions aren't silly, by the way. It's alot to take in.Tammy To:

mb12valtrex Sent: Friday, July 20, 2012 3:52 PM Subject: Re: High cmv and hhv6 titers - testing



What reason does a parent get these tests done? Just because? To rule things out?

My Integrative Pediatrician has ordered other tests (IgG4 Food Antibodies 90 Antigens test, as well as MTHFR, Folate, Anti-Thyroglobulin Antibodies, Anti-TPO Antibodies, TSH, Free T4, Free T3) and so I suspect she would be open to these other ones, too.

So do I let her choose which ones to test for, or do I request all of them (Lyme, mycoplasmas, strep (including ASO and antidnaseb), hhv6, EBV, CMV)? I would guess that he doesn't need to be tested for Lyme because he has never had a tic on him.

I hope these questions do not seem silly. My husband and I are at a point of feeling overwhelmed and hopeless trying to figure things out and help him.

TIA to anyone who has input.

Cristine

Re: High cmv and hhv6 titers - ???treatment options

We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past.

Ruth

Sent from my iPhone

Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis

[Guest guest]

Hello, I was wondering which doctors would run these tests, ( doctor's name?)

I'm having trouble testing my kids - even when we had micoplasma the docs would

not test for it! How long does it hang around and does it ever go away? It's

ridiculous how long we've had mucusy throats, dryness in mouth, increase in

symptoms every two weeks... Help!

Thank you, thank you!

Dorote

> >>>>

> >>>>

> >>>> 

> >>>>>Hi everyone,

> >>>>>

> >>>>>I got high CMV titers on my son's bloodwork.

> His IgG is 10.1. He also has elevated hhv6. What are the treatment

> options for CMV? Valtrex is used by a lot of my friends here but it

is

> mainly used for prevention of cmv in immunocompromised patients.

What

> are the treatment options for CMV in our kids? I have heard of

lysine

> but not sure if it will help. Will really appreciate any help that I

> can get from all of you.

> >>>>>

> >>>>>Thanks

> >>>>>is

> >>>>>

> >>>>>

>

[Guest guest]

Dorote- where do you live? Maybe myself or someone else can refer you to a doc

that will be helpful.

Ruth

Sent from my iPhone

>

> > Your questions aren't silly, by the way. Â It's alot to take in.

> >

[Guest guest]

Doroto,Where are you located?Tammy To: mb12valtrex Sent: Thursday, July 26, 2012 12:05 AM Subject: Re: High cmv and hhv6 titers - testing

Hello, I was wondering which doctors would run these tests, ( doctor's name?) I'm having trouble testing my kids - even when we had micoplasma the docs would not test for it! How long does it hang around and does it ever go away? It's ridiculous how long we've had mucusy throats, dryness in mouth, increase in symptoms every two weeks... Help!

Thank you, thank you!

Dorote

> >>>>

> >>>>

> >>>>Â

> >>>>>Hi everyone,

> >>>>>

> >>>>>I got high CMV titers on my son's bloodwork.

> His IgG is 10.1. He also has elevated hhv6. What are the treatment

> options for CMV? Valtrex is used by a lot of my friends here but it is

> mainly used for prevention of cmv in immunocompromised patients. What

> are the treatment options for CMV in our kids? I have heard of lysine

> but not sure if it will help. Will really appreciate any help that I

> can get from all of you.

> >>>>>

> >>>>>Thanks

> >>>>>is

> >>>>>

> >>>>>

>