Guest guest Posted September 28, 2012 Report Share Posted September 28, 2012 Dr Bouboulis is in Ct and he takes insurance. Sent from my iPhone I live in land but we're willing to travel just about anywhere. Bump Begin forwarded message:From: cmateos2@...Date: September 28, 2012, 2:30:26 PM EDTTo: mb12valtrex Subject: Re: Pandas expertReply-To: mb12valtrex I would also like to know if anyone has successfully treated their child for Pandas and how. Also, what changes did they see. What antibiotic was used and for how long. Thanks to anyone who responds. I think my son has Pandas and just wondering how to proceed.CassieSent on the Sprint® Now Network from my BlackBerry® Sender: mb12valtrex Date: Fri, 28 Sep 2012 14:27:24 -0400To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Pandas expert Can someone recommend a good pandas expert? What we're doing with our DAN isn't working. Thanks! Soraya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2012 Report Share Posted September 28, 2012 I second Dr Bouboulis in CT. My son just had his 3rd IVIG with Dr B and he is doing much better. He does a lot of testing and really gets the immune system and how various bacterias like lyme, strep and myco plasma pneumonia cause neuro psychiatric behaviors. We travel from MA to CT to see him and he is worth the drive. You can get in sooner with his PA and he still oversees everything. To: "mb12valtrex " <mb12valtrex > Sent: Friday, September 28, 2012 9:03 PM Subject: Re: Re: Pandas expert Dr Bouboulis is in Ct and he takes insurance. Sent from my iPhone I live in land but we're willing to travel just about anywhere. Bump Begin forwarded message:From: cmateos2@...Date: September 28, 2012, 2:30:26 PM EDTTo: mb12valtrex Subject: Re: Pandas expertReply-To: mb12valtrex I would also like to know if anyone has successfully treated their child for Pandas and how. Also, what changes did they see. What antibiotic was used and for how long. Thanks to anyone who responds. I think my son has Pandas and just wondering how to proceed.CassieSent on the Sprint® Now Network from my BlackBerry® Sender: mb12valtrex Date: Fri, 28 Sep 2012 14:27:24 -0400To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Pandas expert Can someone recommend a good pandas expert? What we're doing with our DAN isn't working. Thanks! Soraya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2012 Report Share Posted September 28, 2012 Thank you, Ruth! What kind of doctor is he? I will definitely check him out. Has he worked successfully with your child? Dr Bouboulis is in Ct and he takes insurance. Sent from my iPhone I live in land but we're willing to travel just about anywhere. Bump Begin forwarded message:From: cmateos2@...Date: September 28, 2012, 2:30:26 PM EDTTo: mb12valtrex Subject: Re: Pandas expertReply-To: mb12valtrex I would also like to know if anyone has successfully treated their child for Pandas and how. Also, what changes did they see. What antibiotic was used and for how long. Thanks to anyone who responds. I think my son has Pandas and just wondering how to proceed.CassieSent on the Sprint® Now Network from my BlackBerry® Sender: mb12valtrex Date: Fri, 28 Sep 2012 14:27:24 -0400To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Pandas expert Can someone recommend a good pandas expert? What we're doing with our DAN isn't working. Thanks! Soraya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2012 Report Share Posted September 28, 2012 He is a immunologist. Yes we use him in conjunction with our DAN. It works out well. :)Sent from my iPhone Thank you, Ruth! What kind of doctor is he? I will definitely check him out. Has he worked successfully with your child? Dr Bouboulis is in Ct and he takes insurance. Sent from my iPhone I live in land but we're willing to travel just about anywhere. Bump Begin forwarded message:From: cmateos2@...Date: September 28, 2012, 2:30:26 PM EDTTo: mb12valtrex Subject: Re: Pandas expertReply-To: mb12valtrex I would also like to know if anyone has successfully treated their child for Pandas and how. Also, what changes did they see. What antibiotic was used and for how long. Thanks to anyone who responds. I think my son has Pandas and just wondering how to proceed.CassieSent on the Sprint® Now Network from my BlackBerry® Sender: mb12valtrex Date: Fri, 28 Sep 2012 14:27:24 -0400To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Pandas expert Can someone recommend a good pandas expert? What we're doing with our DAN isn't working. Thanks! Soraya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2012 Report Share Posted September 29, 2012 Awesome, Marcia, I'll check it out, thanks!! Just went to the PANDAS conference in Irvine California. There was a fantastic mom, Dianna Pohlman, who runs the PANDAS Network.org who I’m sure could recommend a doctor. Dr. rio Trifiletti and Dr. spoke and were on a panel discussion. They were amazing. There were many others in the audience with expertise. Very sharp group.Best,Marcia Hinds Quote Link to comment Share on other sites More sharing options...
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