Reply to all of you who asked Lorna what she did after seeing the video ... It's Not Really Autism...

[Guest guest]

I'm posting the following for Lorna:

Dear Parents,

My name is Lorna Ortiz, mom of Herie (7 ) and Emilio (11mo), President of

Curando el Autismo (CEA) and PhD in Chemical Engineering. As some of you

know, I had the opportunity last August to speak to the general community

about Autism on a TEDx conference. Well, I considered it was the best

opportunity to tell (yell, scream, cry out!) the world that This is NOT

Autism, that our kids are sick and that they need help.

Please understand that my intention in the video was not to tell everyone

what treatment to use or which not to use. I tried to protect myself as much

as I could from falling into the pit of telling people about treatments,

given that the talk was directed to such a general audience. (I slipped when

I mentioned chelation in one of the pictures I showed and as I respect this

group very much and value your opinion, I felt I owed an explanation of why

I mentioned the word chelation) The simple way to put it: I was freaking

nervous and forgot I was not going to mention any treatment!

The background: Before we went to Dr.G. in 2010 we tried almost everything

under the sun to help Herie and this included 18 months of IV chelation

every two weeks. The picture was taken coming home from one of those trips

we did to perform chelation for Herie. My son was very ill. Chelation did

not bring him back. But we tried. Like many parents out there, we tried.

Today, I thank God I understand the monster we are fighting against and I

share that with parents in CEA and everywhere. Chelation or any other

treatment attacking the symptoms won't do it if we don't attack the root

cause.

There. Hope that explains it. I am not a speaker, nor do this for a living;

I am a mom that lived through hell with a sick kid and that happens to have

a science degree that allows me to go places where thousands of others that

have been trying to do this for years have not been given the opportunity to

get there (even though they deserve it much more than I do for sure). I am

just a tool. Believe it or not, emotions DO catch with you when you see the

picture of your kid in a screen and share your story. Feelings of

frustration and pain and lots of memories come up when you are speaking. It

does not get better with time...

Please know that my intention was not for any reason underestimate any

treatment nor endorse one way of doing things. My purpose was to move the

crowd to fight the right fight, to create the right type of awareness.

Now, about the book, I published a small book in Spanish over a year ago.

Some of you have seen it in Amazon etc. When you are writing to so many

people, which is my case working with CEA, there are times that the

information in the emails repeat. Because I am a full time employee and only

have extra hours to dedicate to answering emails from CEA, I decided to

write a little booklet that explained everything I did (kind of a little

novel with more details on the treatments, doctors we visited etc.) I talk

about the diagnosis, personal challenges, diet, supplementation etc. The

book ends with my first visit to Dr. G. In fact, I believe that after that

Dr. G has increased his Hispanic patients (wasn't the intention either) but

just to give you an idea of the audience. I am in no means a writer either

so the book is very simple and before someone in this group or any group

feel that I am doing the wrong thing, please consider that it took years to

learn everything I know now that is enabling me to help Herie. The book was

intended to share everything I had done until that moment.

I also write magazines in Spanish that we distribute for free and people

from CEA learned about NIDS through articles published there and also from

talks in CEA conferences where I introduced this subject.

With that said, you will also find that I am in many other circles or

networks like Pandas, nutritional, parasites, microglia, oil and gas,

energy, innovation and science,(these last four as part as my full time

job). Just in case you were wondering as many are already searching google

I hope you understand that the real purpose of the talk, the video and

CEA is to revolutionize the minds of the people out there so they can start

to see our kids differently. To see our kids as patients with a need for

medical treatment, to start to intrigue those in the power to do something

about it rather than ask for more money to pay for band-aids and to empower

parents that are already on the other side to share their stories with so

many others that are feeling lost and forgotten.

As I said in the video and I will repeat now. Herie is not fully recovered

(yet); we still have lots of catching up to do with him. I do have him back

though, he is sharp and alert and he is with us and he tells me things and

communicates more but more importantly, he looks and feels healthy.

CEA was the witness of dozens of kids recovered in Latinamerica in the last

year by treating fungal, viral, bacterial and parasite infections and I am

here to speak for them. My son has leaded me to understand all this the hard

way so I can share the findings with others that have been able to help

their kids.

I hope I had cleared your doubts about my purpose and who I am. If you find

it appropriate, please share the video with the general community on your

networks, only then, we will be able to change the minds of those that keep

thinking the wrong way about the A word.

Lorna

From Marcia Hinds

Hindssite@...

Dear Friends,

The following video is extremely powerful and brings to the forefront our

message that Autism, PANDAS/PANS and many other diagnoses given to our

children need to be ripped from the psychiatric journals and placed in the

medical books where they belong. We need treatment and answers. If we can

get all the different groups to get behind this message, we will change how

things are done for kids. I want every doctor on every corner to know this

is medical and know how to treat it. Please send this out to everyone you

know and together we will change our children's future.

Thanks,

Marcia Hinds