Re: cerebral folate deficiency

[Guest guest]

Yes- we did the test at the Quadro's lab. We also did YASKo testing for methylation. We have both MTHFR mutation and cerebral folate antibodies. WE had been dosing the 5-mthf for a few years due to the mthfr, but with the antibodies, we are dosing 20x higher. The leucovorin did not seem to help us, but we are dosing the 10mg of 5-mthf 2x/day and that has worked better for us. And yes, it does give a new motivation for staying dairy free, as a dairy free diet has been shown to improve results.Ruth

Tahira,

It is a good idea to get the antibody test done at the Quadro's lab but if it is not possible, you can just try 5-MTHF which is available without prescription and see if it helps your kid. If you son does have typical features of cerebral folate deficiency then I would say that he should be getting the supplement as the sooner you do, the better the results are. Continue with the casein free diet including all types of animal milks.

is

>

> hello,

> ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> �thanks� tahira

>

[Guest guest]

Has anyone had problems with l5mthf and leucovorin? We have the mthfr genes and cfd and neither of the above seem to work well. We saw some cognitive improvement at first with leucovorin but then that went backwards. Dr. Amy did her muscle testing on them and said we need to back down on leucorin bc it and the l5mthf may be pushing methylation the wrong way...i want to talk to her more about but would love to hear if others have had problems and figure out why....i am wondering if it bc my son has both a single mutation on the mthfr gene that affects the krebs cycle and allergies/histamine and then also a mutation on the one that slows down methylation (cant remember the specific mthfr genes)-- Sent from my Palm Pre

Yes- we did the test at the Quadro's lab. We also did YASKo testing for methylation. We have both MTHFR mutation and cerebral folate antibodies. WE had been dosing the 5-mthf for a few years due to the mthfr, but with the antibodies, we are dosing 20x higher. The leucovorin did not seem to help us, but we are dosing the 10mg of 5-mthf 2x/day and that has worked better for us. And yes, it does give a new motivation for staying dairy free, as a dairy free diet has been shown to improve results.Ruth

Tahira,

It is a good idea to get the antibody test done at the Quadro's lab but if it is not possible, you can just try 5-MTHF which is available without prescription and see if it helps your kid. If you son does have typical features of cerebral folate deficiency then I would say that he should be getting the supplement as the sooner you do, the better the results are. Continue with the casein free diet including all types of animal milks.

is

>

> hello,

> ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> �thanks� tahira

>

[Guest guest]

Hi ,My son (4yo, ASD) is heterozygous for the C677T mutation. He also had low levels of CFAs (blocking and binding) Two separate trials of oral folinic acid led to increased aggression (in a usually mellow kid), although this was when he was much younger. His frustration tolerance decreased and he was less related. A more recent trial of IV folinic (in conjunction with IV phosphatidylcholine and glutathione) also seemed to not agree with him (decreased frustration, less related). We were doing 3mg of oral MTHF (Prothera Brand) and he tolerated that ok for a while and then he started to get worse. We changed brands to metagenics (based on muscle testing) and are only dosing at 1.8mg/day. We do not have a diagnosis of CFD (no spinal tap) and his symptoms do not fit with CFD (no real physical delays, motor slightly delayed but pretty ok, growing well, no seizures etc...). He is tolerating this lower dose of the metagenics.I would ask Dr. Amy to muscle test for specific brands as well. Some brands have fillers or are just less reliable. We also do MB12 injections twice/week which he seems to tolerate fine. Good luck with your boy. Sylvia

Has anyone had problems with l5mthf and leucovorin? We have the mthfr genes and cfd and neither of the above seem to work well. We saw some cognitive improvement at first with leucovorin but then that went backwards. Dr. Amy did her muscle testing on them and said we need to back down on leucorin bc it and the l5mthf may be pushing methylation the wrong way...i want to talk to her more about but would love to hear if others have had problems and figure out why....i am wondering if it bc my son has both a single mutation on the mthfr gene that affects the krebs cycle and allergies/histamine and then also a mutation on the one that slows down methylation (cant remember the specific mthfr genes)-- Sent from my Palm Pre

Yes- we did the test at the Quadro's lab. We also did YASKo testing for methylation. We have both MTHFR mutation and cerebral folate antibodies. WE had been dosing the 5-mthf for a few years due to the mthfr, but with the antibodies, we are dosing 20x higher. The leucovorin did not seem to help us, but we are dosing the 10mg of 5-mthf 2x/day and that has worked better for us. And yes, it does give a new motivation for staying dairy free, as a dairy free diet has been shown to improve results.Ruth

Tahira,

It is a good idea to get the antibody test done at the Quadro's lab but if it is not possible, you can just try 5-MTHF which is available without prescription and see if it helps your kid. If you son does have typical features of cerebral folate deficiency then I would say that he should be getting the supplement as the sooner you do, the better the results are. Continue with the casein free diet including all types of animal milks.

is

>

> hello,

> ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> �thanks� tahira

>

[Guest guest]

Sylvia,

We had a similar experience with the prothera brand. My son became extremely

hyperactive and simply could not stop moving. So I lost gains that I had seen

with the thorne brand. Now I have restarted with the thorne brand and the

results are much better. I am still only on 1000 mcg daily. I met Dr Frye at the

dan conference and he said that if a child cannot tolerate leucovorin or

cerefolin prescription doses, 5-MTHF is an option but the child will require a

lower dose of that. I tried to go up to 2000 mcg but my son got hyperactive. How

did you go up on the dose?

Ruth,

How did you get to 10 mg dose of 5MTHF? Did you start at a higher dose to begin

with?

I personally think that most of the kids who are on the spectrum do not have an

overt cerebral folate deficiency. In our kids, 5MTHF is a great option because

it is a neopterin scavenger. At the autism one conference this year, a lot of

stress was placed on the use of 5MTHF for its antiinflammatory effect and to

some extent, it helps with the biopterin pathway as well.

is

> >> >

> >> > hello,

> >> > ������ My� son is now�� seven� and has� had�

epilepsy� for� six� yrs which has� not been�� well� controlled�

by� drugs. i read� about� checking� cerebral folate� deficiency on

this� group� .i feel� after looking at how� this� begins� and�

what� are the presentations� of� it� my� son�� fits� quite�

well into this. please� if there is� anyone� that has� tried��

leucovorin or� any other�� for� CFD then please let me know. i have�

had�� the� nutrigenomic testing� done� which� shows� deficits�

in the� folate uptake.� his� flglu� result w as also� high many yrs�

ago on the� metabolic� profile� i had� done.�� more recently i

have� had an OAT�� what� can i look� for� on that� and� on

the� amino� acids� in urine� to� see if� any� signs� further.?

his� homocysteine� has� been� low� and� also� cysteine�

value.�but is� there� anypoint in� doing the�� autoiantibody�

> >> > presence before� starting the� supplements? i w a s doing� DAN

protocol� for� a� year� but then� few�� months� ago� left it a

s i� didnt� see� very much� from it� also wa s doing the� gfcf and

then� scd.� also� again� didnt see great things� but� still i am on

the� gfcf� diet.

> >> > does� anyone know� if there� is� advise� available quickly

after the� methylation panel from� amy yasko�� or how� it� works.

he� has� had� many� snps which i� really need� guidnace� for

quickly.� he has�� low���� dopamine� and problem� with

serotonin� poathway�� too.

> >> > �thanks� tahira

> >> >

> >>

> >

> >

> >

> >

>

[Guest guest]

HI is,We had titrated the Prothera MTHF up by 1mg every 1-2 weeks or so and I stopped at 3mg for a 2 months or so before I thought things were worse. I have no idea if it really was the MTHF. When we switched to metagenics, I just used 2 tabs which is 1.6mg. I'm not inclined to increase further at this point--just my gut feeling. I am going to re-test our CFAs as we had done our original test while using camel milk in high doses. Sending lots of healing thoughts for your son.Sylvia

Sylvia,

We had a similar experience with the prothera brand. My son became extremely hyperactive and simply could not stop moving. So I lost gains that I had seen with the thorne brand. Now I have restarted with the thorne brand and the results are much better. I am still only on 1000 mcg daily. I met Dr Frye at the dan conference and he said that if a child cannot tolerate leucovorin or cerefolin prescription doses, 5-MTHF is an option but the child will require a lower dose of that. I tried to go up to 2000 mcg but my son got hyperactive. How did you go up on the dose?

Ruth,

How did you get to 10 mg dose of 5MTHF? Did you start at a higher dose to begin with?

I personally think that most of the kids who are on the spectrum do not have an overt cerebral folate deficiency. In our kids, 5MTHF is a great option because it is a neopterin scavenger. At the autism one conference this year, a lot of stress was placed on the use of 5MTHF for its antiinflammatory effect and to some extent, it helps with the biopterin pathway as well.

is

> >> >

> >> > hello,

> >> > ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> >> > presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> >> > does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> >> > �thanks� tahira

> >> >

> >>

> >

> >

> >

> >

>

[Guest guest]

Thanks Sylvia. I think 1.6 is a pretty good dose for a little boy. I will try to

go up on the dose again but I may have to use 1 1/2 caps of thorne to bring it

upto 1.5 mg. I have a feeling that the higher doses of MTHF requires to balance

it with more frequent Methyl B12 shots/sublingual tabs. My friend's son is on

12.5 mg of leucovorin but he is also taking the shots every day and has no side

effects. Just a thought but will have to test it on my son first. Whenever you

get a chance, please share your experience with the camel milk.

Blessings

is

> > > >> >

> > > >> > hello,

> > > >> > ������ My� son is now�� seven� and has� had�

epilepsy� for� six� yrs which has� not been�� well� controlled�

by� drugs. i read� about� checking� cerebral folate� deficiency on

this� group� .i feel� after looking at how� this� begins� and�

what� are the presentations� of� it� my� son�� fits� quite�

well into this. please� if there is� anyone� that has� tried��

leucovorin or� any other�� for� CFD then please let me know. i have�

had�� the� nutrigenomic testing� done� which� shows� deficits�

in the� folate uptake.� his� flglu� result w as also� high many yrs�

ago on the� metabolic� profile� i had� done.�� more recently i

have� had an OAT�� what� can i look� for� on that� and� on

the� amino� acids� in urine� to� see if� any� signs� further.?

his� homocysteine� has� been� low� and� also� cysteine�

value.�but is� there� anypoint in� doing the�� autoiantibody�

> > > >> > presence before� starting the� supplements? i w a s doing� DAN

protocol� for� a� year� but then� few�� months� ago� left it a

s i� didnt� see� very much� from it� also wa s doing the� gfcf and

then� scd.� also� again� didnt see great things� but� still i am on

the� gfcf� diet.

> > > >> > does� anyone know� if there� is� advise� available quickly

after the� methylation panel from� amy yasko�� or how� it� works.

he� has� had� many� snps which i� really need� guidnace� for

quickly.� he has�� low���� dopamine� and problem� with

serotonin� poathway�� too.

> > > >> > �thanks� tahira

> > > >> >

> > > >>

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Thanks Ruth. I really want to go up on the 5mthf dose but last week I went up to

2 mg and my son couldn't stop moving and had a hard time sleeping. Will try

again in a few days as these days he seems like having phenol issues.

is

> > > >> >

> > > >> > hello,

> > > >> > ������ My� son is now��

seven� and has� had� epilepsy� for� six� yrs which

has� not been�� well� controlled� by� drugs. i

read� about� checking� cerebral folate� deficiency on

this� group� .i feel� after looking at how� this�

begins� and� what� are the presentations� of� it�

my� son�� fits� quite� well into this. please� if

there is� anyone� that has� tried�� leucovorin or�

any other�� for� CFD then please let me know. i have�

had�� the� nutrigenomic testing� done� which�

shows� deficits� in the� folate uptake.� his�

flglu� result w as also� high many yrs� ago on the�

metabolic� profile� i had� done.�� more recently i

have� had an OAT�� what� can i look� for� on

that� and� on the� amino� acids� in urine�

to� see if� any� signs� further.? his�

homocysteine� has� been� low� and� also�

cysteine� value.�but is� there� anypoint in� doing

the�� autoiantibody�

> > > >> > presence before� starting the� supplements? i w a s

doing� DAN protocol� for� a� year� but then�

few�� months� ago� left it a s i� didnt� see�

very much� from it� also wa s doing the� gfcf and then�

scd.� also� again� didnt see great things� but� still i

am on the� gfcf� diet.

> > > >> > does� anyone know� if there� is� advise�

available quickly after the� methylation panel from� amy

yasko�� or how� it� works. he� has� had�

many� snps which i� really need� guidnace� for

quickly.� he has�� low���� dopamine� and

problem� with serotonin� poathway�� too.

> > > >> > �thanks� tahira

> > > >> >

> > > >>

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

is - We tried the leucovorin first and slowly ratcheted up. When we switched, we did 5 mg (THorne) first and did 5 1x, then increased to 2x/day. I now use the 10 mg from Metabolic Maintenance. We mixed the 5 and 10 at first, and then after a couple of weeks, had it up to the 20 mg. It definitely does seem to help.HTH - RuthSent from my iPad

Sylvia,

We had a similar experience with the prothera brand. My son became extremely hyperactive and simply could not stop moving. So I lost gains that I had seen with the thorne brand. Now I have restarted with the thorne brand and the results are much better. I am still only on 1000 mcg daily. I met Dr Frye at the dan conference and he said that if a child cannot tolerate leucovorin or cerefolin prescription doses, 5-MTHF is an option but the child will require a lower dose of that. I tried to go up to 2000 mcg but my son got hyperactive. How did you go up on the dose?

Ruth,

How did you get to 10 mg dose of 5MTHF? Did you start at a higher dose to begin with?

I personally think that most of the kids who are on the spectrum do not have an overt cerebral folate deficiency. In our kids, 5MTHF is a great option because it is a neopterin scavenger. At the autism one conference this year, a lot of stress was placed on the use of 5MTHF for its antiinflammatory effect and to some extent, it helps with the biopterin pathway as well.

is

> >> >

> >> > hello,

> >> > ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> >> > presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> >> > does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> >> > �thanks� tahira

> >> >

> >>

> >

> >

> >

> >

>

[Guest guest]

We take hydroxy b-12 along with the 5-mthf. I think it helps them process it better. RuthSent from my iPhone

Thanks Ruth. I really want to go up on the 5mthf dose but last week I went up to 2 mg and my son couldn't stop moving and had a hard time sleeping. Will try again in a few days as these days he seems like having phenol issues.

is

> > > >> >

> > > >> > hello,

> > > >> > ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> > > >> > presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> > > >> > does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> > > >> > �thanks� tahira

> > > >> >

> > > >>

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hi is,We saw some increased socialization with camel milk and an improvement of bowel function (nice formed stool after chronic diarrhea). But we also had more stimming and odd vocalizations. I stopped the CM after we got our FRA testing and Theo was slightly positive for both blocking and binding Abs. I wasn't torn about stopping the CM b/c it wasn't a huge WOW for us.GAPS diet (very low carb)has really helped the bowel situation, Ali g with supplemtal fatty acids. Best,SylviaSent from my iPhone

Thanks Sylvia. I think 1.6 is a pretty good dose for a little boy. I will try to go up on the dose again but I may have to use 1 1/2 caps of thorne to bring it upto 1.5 mg. I have a feeling that the higher doses of MTHF requires to balance it with more frequent Methyl B12 shots/sublingual tabs. My friend's son is on 12.5 mg of leucovorin but he is also taking the shots every day and has no side effects. Just a thought but will have to test it on my son first. Whenever you get a chance, please share your experience with the camel milk.

Blessings

is

> > > >> >

> > > >> > hello,

> > > >> > ������ My� son is now�� seven� and has� had� epilepsy� for� six� yrs which has� not been�� well� controlled� by� drugs. i read� about� checking� cerebral folate� deficiency on this� group� .i feel� after looking at how� this� begins� and� what� are the presentations� of� it� my� son�� fits� quite� well into this. please� if there is� anyone� that has� tried�� leucovorin or� any other�� for� CFD then please let me know. i have� had�� the� nutrigenomic testing� done� which� shows� deficits� in the� folate uptake.� his� flglu� result w as also� high many yrs� ago on the� metabolic� profile� i had� done.�� more recently i have� had an OAT�� what� can i look� for� on that� and� on the� amino� acids� in urine� to� see if� any� signs� further.? his� homocysteine� has� been� low� and� also� cysteine� value.�but is� there� anypoint in� doing the�� autoiantibody�

> > > >> > presence before� starting the� supplements? i w a s doing� DAN protocol� for� a� year� but then� few�� months� ago� left it a s i� didnt� see� very much� from it� also wa s doing the� gfcf and then� scd.� also� again� didnt see great things� but� still i am on the� gfcf� diet.

> > > >> > does� anyone know� if there� is� advise� available quickly after the� methylation panel from� amy yasko�� or how� it� works. he� has� had� many� snps which i� really need� guidnace� for quickly.� he has�� low���� dopamine� and problem� with serotonin� poathway�� too.

> > > >> > �thanks� tahira

> > > >> >

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[Guest guest]

Thanks Sylvia. I have been dreaming of giving gaps diet a try but the whole

family will have to agree on this otherwise it will be too much work for me and

a torture for my almost 9 year old boy who loves yummy carb foods. His gut is

much better though with the d-lactate free custom probiotics. I have to get him

tested for H pylori as I feel like that is a big culprit in his gut symptoms.

Blessings

is

> > > > > >> >

> > > > > >> > hello,

> > > > > >> > ������ My� son is

now�� seven� and has� had� epilepsy� for�

six� yrs which has� not been�� well� controlled�

by� drugs. i read� about� checking� cerebral folate�

deficiency on this� group� .i feel� after looking at how�

this� begins� and� what� are the presentations�

of� it� my� son�� fits� quite� well into

this. please� if there is� anyone� that has�

tried�� leucovorin or� any other�� for� CFD then

please let me know. i have� had�� the� nutrigenomic

testing� done� which� shows� deficits� in the�

folate uptake.� his� flglu� result w as also� high many

yrs� ago on the� metabolic� profile� i had�

done.�� more recently i have� had an OAT�� what�

can i look� for� on that� and� on the� amino�

acids� in urine� to� see if� any� signs� further.?

his� homocysteine� has� been� low� and� also�

cysteine� value.�but is� there� anypoint in� doing

the�� autoiantibody�

> > > > > >> > presence before� starting the� supplements? i w a s

doing� DAN protocol� for� a� year� but then�

few�� months� ago� left it a s i� didnt� see�

very much� from it� also wa s doing the� gfcf and then�

scd.� also� again� didnt see great things� but� still i

am on the� gfcf� diet.

> > > > > >> > does� anyone know� if there� is� advise�

available quickly after the� methylation panel from� amy

yasko�� or how� it� works. he� has� had�

many� snps which i� really need� guidnace� for

quickly.� he has�� low���� dopamine� and

problem� with serotonin� poathway�� too.

> > > > > >> > �thanks� tahira

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