hi

December 30, 2005

Subject: hi

hello, hope you don't mind that I am sending this to several of you together..as

all of you know it has really been bad around here for a couple months but

yesterday my results from my latest ct scan report came back and I saw my

radiation oncologist and we have news!!!!!!!

A MIRACLE!!!! there is NO cancer in my right lung now..my lung is not

re-inflated and I am doing good..energy is coming back and as you know that

means I am going to be up to my mean ways soon again...just wanted to

update..and thank you for your prayers and thoughts and ask you please keep

remembering larry and me as I know that is what is happening...love you , kaye

December 30, 2005

Kaye, I am so very-very happy for you. WONDERFUL!!!! Keep it up!!!!

You have not posted for some time and I often wondered how you were

doing. I am so Glad!!!! Praying hard this all continues for you!!!

Love, Ingrid

>

> Subject: hi

>

> hello, hope you don't mind that I am sending this to several of you

together..as all of you know it has really been bad around here for a

couple months but yesterday my results from my latest ct scan report

came back and I saw my radiation oncologist and we have news!!!!!!!

> A MIRACLE!!!! there is NO cancer in my right lung now..my lung is

not re-inflated and I am doing good..energy is coming back and as you

know that means I am going to be up to my mean ways soon again...just

wanted to update..and thank you for your prayers and thoughts and ask

you please keep remembering larry and me as I know that is what is

happening...love you , kaye

>

December 31, 2005

Kaye, so good to hear from you. I was really wondering how things were going

with you. I'm so impressed with your progress, you're my inspiration. Thanks

for letting us know how you're doing. Won't be long now till you're up and at

'em again, huh?

kayeskuts wrote:

Subject: hi

hello, hope you don't mind that I am sending this to several of you together..as

all of you know it has really been bad around here for a couple months but

yesterday my results from my latest ct scan report came back and I saw my

radiation oncologist and we have news!!!!!!!

A MIRACLE!!!! there is NO cancer in my right lung now..my lung is not

re-inflated and I am doing good..energy is coming back and as you know that

means I am going to be up to my mean ways soon again...just wanted to

update..and thank you for your prayers and thoughts and ask you please keep

remembering larry and me as I know that is what is happening...love you , kaye

June 26, 2009

Jane...sending prayers for a successful outcome!

I've had both cataracts removed. Nothin' to it....although I guess Peggy would disagree. She did have complications but I had none.

God Bless.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

HI

hi EveryoneI am going to the cornea specialist today (not the first time I havebeen going to this dude since last October.) to have my left corneascraped. I have scar tissue on my corneas or corneal dystrophy orsalzzmann nodular degenerative. I had this procedure dome om 2002 onthe right eye. This is no laser cutting, only a scapel or knife orsomething that is vastly uncomfortable numbed with numbing drops. is going with me to Chattanooga for this procedure this afternoon.After the left eye heals, I can have the cateract removed.Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

June 26, 2009

Jane

the majority of people i know who had cataract surgery were fine

you will be fine too

everything will go well

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: HITo: Breathe-Support Date: Friday, June 26, 2009, 12:45 PM

Jane...sending prayers for a successful outcome!

I've had both cataracts removed. Nothin' to it....although I guess Peggy would disagree. She did have complications but I had none.

God Bless.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

HI

hi EveryoneI am going to the cornea specialist today (not the first time I havebeen going to this dude since last October.) to have my left corneascraped. I have scar tissue on my corneas or corneal dystrophy orsalzzmann nodular degenerative. I had this procedure dome om 2002 onthe right eye. This is no laser cutting, only a scapel or knife orsomething that is vastly uncomfortable numbed with numbing drops. is going with me to Chattanooga for this procedure this afternoon.After the left eye heals, I can have the cateract removed.Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

June 26, 2009

Jane,

I've been thinking of you. Please let us know how it went!

Hugs,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, June 26, 2009 10:58:58 AMSubject: HI

hi EveryoneI am going to the cornea specialist today (not the first time I havebeen going to this dude since last October.) to have my left corneascraped. I have scar tissue on my corneas or corneal dystrophy orsalzzmann nodular degenerative. I had this procedure dome om 2002 onthe right eye. This is no laser cutting, only a scapel or knife orsomething that is vastly uncomfortable numbed with numbing drops. is going with me to Chattanooga for this procedure this afternoon.After the left eye heals, I can have the cateract removed.Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

August 20, 2009

----- Forwarded Message ----To: MBMurtha Sent: Thursday, August 20, 2009 1:23:51 AMSubject: Re: Hi

Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser

surgery. The real thing I am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for

January!! I did some research on the Net and lupus can affect nearly every organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in

Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing!! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too.

On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.

Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!

Hope you all have a wonderful night!

Caro

To: carowade44@...Sent: Wednesday, August 19, 2009 8:36:14 PMSubject: HiWelcome back girlfriend!

August 20, 2009

Welcome back, Caro!

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-support Sent: Thursday, August 20, 2009 7:00:33 PMSubject: Fw: Hi

----- Forwarded Message ----From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>To: MBMurtha <mbmurtha (AT) yahoo (DOT) .com>Sent: Thursday, August 20, 2009 1:23:51 AMSubject: Re: Hi

Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser

surgery. The real thing I am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for

January!! I did some research on the Net and lupus can affect nearly every organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in

Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing! ! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too.

On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.

Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!

Hope you all have a wonderful night!

Caro

From: MBMurtha <mbmurtha (AT) yahoo (DOT) com>To: carowade44 (AT) yahoo (DOT) comSent: Wednesday, August 19, 2009 8:36:14 PMSubject: HiWelcome back girlfriend!

August 20, 2009

Oh NO Caro...not you tooooooooooooooooo...I think we need to form a 'Gremlin Support Group' within this forum!

It's great to hear from you again. Wow you're dealing with so much...big hugs top you girl!

lotsa love,

GIO>> > > > > ----- Forwarded Message ----> To: MBMurtha mbmurtha@...> Sent: Thursday, August 20, 2009 1:23:51 AM> Subject: Re: Hi> > > Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser surgery. The real thing I> am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for January!! I did some research on the Net and lupus can affect nearly every> organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was> told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing!! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too..> > On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.> > Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!> > Hope you all have a wonderful night!> > Caro> Welcome back girlfriend!> > > > ________________________________> > To: carowade44@...> Sent: Wednesday, August 19, 2009 8:36:14 PM> Subject: Hi>

August 20, 2009

Carolyn/Carolyn I'm very glad to hear from you again and very sorry for everything you are going through. 's post gave me the same response. Please understand what I mean when I say all day I have been jumping up and down (figuratively) going LOOK LOOK People like me! I have spent my whole life trying to get doctors to pay attention, but when the main blood test show negative no one was ever interested in going any farther. To see both your posts on one day with all those horrible autoimmune/ctd issues was like some weird epifany. To see people like me actually get dx (as horrible as that is) it give me hope that maybe someone will tell me I'm really are not crazy, there really has been something wrong with you. The fact that there is so much more being done now re: auto immune is sooo encouraging. I know 20 years ago people laughed when you told them you had chronic fatigue or fibromyalgia. No one had heard of Sjogrens or Raynauds outside of specialists. I really hope you understand the intent with which I write this. I would never wish our problems on my worst enemy..well ok my ex husband could get a few...but it is sooo nice not to be alone any more. My love to both of you and here is hoping now that the docs know what to look for, they will be nuking the gremlins as fast as possible!!Dyane Phoenix ipf 02>> > > > > ----- Forwarded Message ----> To: MBMurtha mbmurtha@...> Sent: Thursday, August 20, 2009 1:23:51 AM> Subject: Re: Hi> > > Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser surgery. The real thing I> am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for January!! I did some research on the Net and lupus can affect nearly every> organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was> told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing!! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too..> > On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.> > Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!> > Hope you all have a wonderful night!> > Caro> Welcome back girlfriend!> > > > ________________________________> > To: carowade44@...> Sent: Wednesday, August 19, 2009 8:36:14 PM> Subject: Hi>

August 20, 2009

Hi again Caro!

Yeah for you! You go girl.

S

>

> ----- Forwarded Message ----

>

> To: MBMurtha

> Sent: Thursday, August 20, 2009 1:23:51 AM

> Subject: Re: Hi

>

> Thanks so much MB!!! After a big run around of being totally brain dead, I

guess I figured out how to get another email account!! So much has happened

since the big mixup!! I have found a lot of u guys on Facebook and that was a

real blessing! They have definitely determined now that I have pulmonary

fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3

weeks ago I have lupus (SLE), so basically since I have multiple autoimmune

diseases, they are calling it " mixed connective tissue syndrome " and I have an

appointment to see a rheumatologist at UAB (Birmingham) on September 2. They

sent me paperwork in the mail and I got it the day before yesterday. Says I

should be prepared to stay if I am new patient, cuz they will probably do lab

tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August

28 for another colposcopy/biopsy and then depending on results, probable laser

surgery. The real thing I

> am dealing with right now is the doc in Birmingham (my pulmo) said I need to

have liver function tests once a week as long as I am on the prednisone and

Imuran and that was cool, ok, I can deal with that. He said he was going to put

in an order to make sure it got done. He asked me have they been doing LFTs? I

said yes, and he said they haven't been sending me a copy. Ok, I go to my local

pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that

my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks

my lungs would make it. (YEAH!, that was around the first of July). Okay, when

I tell him what he said, he said, here's what I want you to do -- If you get a

cough, hear wheezing, get jaundiced, or have a fever, come by the office and we

will do blood work right away. Other than that, my next appointment is

scheduled for January!! I did some research on the Net and lupus can affect

nearly every

> organ in your body. I have noticed the last couple of months, I have

noticed I have had trouble with my handwriting. I googled " can lupus affect

motor skills? " and yes, it can affect the central nervous system, which will

affect your handwriting. I can make out a grocery list and then go back the

next week and can't even read what I wrote. I look at it, and I am like, what

the heck is that? That is one major question I have for the rheumatologist at

UAB when I go on 9-2-09. This is really frustrating. The other thing is the

" butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last

summer and it was all blamed on swimming in the pool. This summer, I have had

it for 3 months now. It is 10 times worse than it was last summer and it burns

and itches constantly. The doc in Birmingham told me to put lotion on it and

keep it moist and that would work. yeah, keeps it from burning, but doesn't

make it go away. I was

> told by my pulmo dude here to put sunblock on it and that would work (I am

definitely NOT going to stay inside all the time). Well, that didn't work,

either. I have a rash on my face for the last 3 months that goes all the way

around my nose, then around my mouth in a circle and now is a patch between my

eyebrows. I have tried covering it with Cover Girl when I go out in public and

it helps, but still does not cover it. So embarrassing!! Guess I am just going

to have to deal with it. I noticed the other night when I took a shower that I

am starting to get a rash on my leg too..

>

> On a good note, I have lost 21 pounds since February, so that is a good

thing. I am still 4' 10 " and weigh 137 pounds, but hey, 137 is WAY BETTER THAN

158 that I was in February from the prednisone. I am hoping to get out and

start walking again next month when it cools off a bit. Is still right at 100

degrees here everyday and I just can't get out and walk in the heat.

>

> Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally

found a way to get back to you again!! Please know how much I have loved and

missed you guys!!

>

> Hope you all have a wonderful night!

>

> Caro

> Welcome back girlfriend!

>

> ________________________________

>

> To: carowade44@...

> Sent: Wednesday, August 19, 2009 8:36:14 PM

> Subject: Hi

>

August 20, 2009

Carolyn, One of the new rules that Obama put in place was that people who were laid off or fired before 12-31-09 are eligible for a Cobra subsidy. Instead of having to pay the full amount for insurance if you elect cobra you would only have to pay 35% for nine months. Your employer gets the subsidy back on their 941 taxes. Since your employer works with you, have them "fire" you. I'm not sure about earning money on disability but I will see what I can find out for you tomorrow. I do know having a "terminal" disease helps getting disability on the first try. My wonderful husband who was on disability for 4.5 years after his lung cancer was found was not expected to make 1 year. So enjoy your 50th birthday!Dyane Phoenix> >> > > > > > > > > > ----- Forwarded Message ----> > From: Carolyn Wade carowade44@ ..> > To: MBMurtha mbmurtha@> > Sent: Thursday, August 20, 2009 1:23:51 AM> > Subject: Re: Hi> > > > > > Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser surgery. The real thing I> > am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for January!! I did some research on the Net and lupus can affect nearly every> > organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was> > told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing! ! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too..> > > > On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.> > > > Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!> > > > Hope you all have a wonderful night!> > > > Caro> > Welcome back girlfriend!> > > > > > > > ____________ _________ _________ __> > > > From: MBMurtha mbmurtha@> > To: carowade44@ ..> > Sent: Wednesday, August 19, 2009 8:36:14 PM> > Subject: Hi> >>

August 20, 2009

Thanks Barbara!! I missed you guys SOOOO bad!! Carolyn WadeMissippi, COPD 2005, UIP January 2007, Fatty liver disease June 2009, Lupus (SLE) August 2009, July 2009, mixed connective tissue disease August 2009

To: Breathe-Support Sent: Thursday, August 20, 2009 6:18:17 PMSubject: Re: Fw: Hi

Welcome back, Caro!

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>To: Breathe-support@ yahoogroups. comSent: Thursday, August 20, 2009 7:00:33 PMSubject: Fw: Hi

----- Forwarded Message ----From: Carolyn Wade <carowade44 (AT) yahoo (DOT) . com>To: MBMurtha <mbmurtha (AT) yahoo (DOT) .com>Sent: Thursday, August 20, 2009 1:23:51 AMSubject: Re: Hi

Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser

surgery. The real thing I am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for

January!! I did some research on the Net and lupus can affect nearly every organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in

Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing! ! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too.

On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.

Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!

Hope you all have a wonderful night!

Caro

From: MBMurtha <mbmurtha (AT) yahoo (DOT) com>To: carowade44 (AT) yahoo (DOT) comSent: Wednesday, August 19, 2009 8:36:14 PMSubject: HiWelcome back girlfriend!

August 21, 2009

Dyanne there's actually quite a few of us on this Forum it's just thhat we get scattered in amongst everything that goes down in various Pf forms.

Ze, Beth, Elisa (I think), Joy comes to mind & I think one of our s' too!

May be it Is time for a Spreadsheet Gremlin List in our Database.

Watcha think Mama Moderator MB??????

Cheers,

GIO> >> >> >> >> >> > ----- Forwarded Message ----> > From: Carolyn Wade carowade44@> > To: MBMurtha mbmurtha@> > Sent: Thursday, August 20, 2009 1:23:51 AM> > Subject: Re: Hi> >> >> > Thanks so much MB!!! After a big run around of being totally brain> dead, I guess I figured out how to get another email account!! So much> has happened since the big mixup!! I have found a lot of u guys on> Facebook and that was a real blessing! They have definitely determined> now that I have pulmonary fibrosis ( UIP), polymyositis,> dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus> (SLE), so basically since I have multiple autoimmune diseases, they are> calling it "mixed connective tissue syndrome" and I have an appointment> to see a rheumatologist at UAB (Birmingham) on September 2. They sent> me paperwork in the mail and I got it the day before yesterday. Says I> should be prepared to stay if I am new patient, cuz they will probably> do lab tests and xrays, etc..... Also, I have appointment with> OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then> depending on results, probable laser surgery. The real thing I> > am dealing with right now is the doc in Birmingham (my pulmo) said I> need to have liver function tests once a week as long as I am on the> prednisone and Imuran and that was cool, ok, I can deal with that. He> said he was going to put in an order to make sure it got done. He asked> me have they been doing LFTs? I said yes, and he said they haven't been> sending me a copy. Ok, I go to my local pulmodude and tell him what Dr.> deAndrade said in Birmingham and that was that my lungs are stable and> if I had to have open-heart surgery tomorrow, he thinks my lungs would> make it. (YEAH!, that was around the first of July). Okay, when I tell> him what he said, he said, here's what I want you to do -- If you get a> cough, hear wheezing, get jaundiced, or have a fever, come by the office> and we will do blood work right away. Other than that, my next> appointment is scheduled for January!! I did some research on the Net> and lupus can affect nearly every> > organ in your body. I have noticed the last couple of months, I> have noticed I have had trouble with my handwriting. I googled " can> lupus affect motor skills?" and yes, it can affect the central nervous> system, which will affect your handwriting. I can make out a grocery> list and then go back the next week and can't even read what I wrote. I> look at it, and I am like, what the heck is that? That is one major> question I have for the rheumatologist at UAB when I go on 9-2-09. This> is really frustrating. The other thing is the "butterfly rash " on your> face. This rash TOTALLY SUCKS!!! I got it last summer and it was all> blamed on swimming in the pool. This summer, I have had it for 3 months> now. It is 10 times worse than it was last summer and it burns and> itches constantly. The doc in Birmingham told me to put lotion on it> and keep it moist and that would work. yeah, keeps it from burning, but> doesn't make it go away. I was> > told by my pulmo dude here to put sunblock on it and that would work> (I am definitely NOT going to stay inside all the time). Well, that> didn't work, either. I have a rash on my face for the last 3 months> that goes all the way around my nose, then around my mouth in a circle> and now is a patch between my eyebrows. I have tried covering it with> Cover Girl when I go out in public and it helps, but still does not> cover it. So embarrassing!! Guess I am just going to have to deal with> it. I noticed the other night when I took a shower that I am starting> to get a rash on my leg too..> >> > On a good note, I have lost 21 pounds since February, so that is a> good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY> BETTER THAN 158 that I was in February from the prednisone. I am hoping> to get out and start walking again next month when it cools off a bit. > Is still right at 100 degrees here everyday and I just can't get out and> walk in the heat.> >> > Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I> finally found a way to get back to you again!! Please know how much I> have loved and missed you guys!!> >> > Hope you all have a wonderful night!> >> > Caro> > Welcome back girlfriend!> >> >> >> > ________________________________> >> > From: MBMurtha mbmurtha@> > To: carowade44@> > Sent: Wednesday, August 19, 2009 8:36:14 PM> > Subject: Hi> >>

August 21, 2009

WOW

Caro

you have certainly been thru a lot

glad you are back to share

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Fw: HiTo: Breathe-support Date: Thursday, August 20, 2009, 7:00 PM

----- Forwarded Message ----From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>To: MBMurtha <mbmurtha (AT) yahoo (DOT) .com>Sent: Thursday, August 20, 2009 1:23:51 AMSubject: Re: Hi

Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser

surgery. The real thing I am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for

January!! I did some research on the Net and lupus can affect nearly every organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in

Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing! ! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too.

On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.

Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!

Hope you all have a wonderful night!

Caro

From: MBMurtha <mbmurtha (AT) yahoo (DOT) com>To: carowade44 (AT) yahoo (DOT) comSent: Wednesday, August 19, 2009 8:36:14 PMSubject: HiWelcome back girlfriend!

August 21, 2009

Carolyn,

I laughed at your ex story...they are so the only ones I would wish this

on + hemorriods ha!

I don't have a lupus rash but I do have rosecia and psoriasis and yes

steroid creams are what help. May take a while but once you get in a

routine. The only thing is the always tell you not to put it in creases

like by your nose because they " thin " the skin. I always laugh and tell

them that scratching till it bleeds thins the skin too! Hope you can

get that fixed soon.

I am going to National Jewish in November and once I talk to someone

there am hoping they will do more in depth tests to diagnose me. Sounds

like you will have your plate full at UAB.

Oh yeah my fatty liver says hi to your fatty liver LOL

Hang in there!

Dyane Phoenix ipf and stuff 02

> >

> > ----- Forwarded Message ----

> > From: Carolyn Wade carowade44@ ..

> > To: MBMurtha mbmurtha@

> > Sent: Thursday, August 20, 2009 1:23:51 AM

> > Subject: Re: Hi

> >

> > Thanks so much MB!!! After a big run around of being totally brain

dead, I guess I figured out how to get another email account!! So much

has happened since the big mixup!! I have found a lot of u guys on

Facebook and that was a real blessing! They have definitely determined

now that I have pulmonary fibrosis ( UIP), polymyositis,

dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus

(SLE), so basically since I have multiple autoimmune diseases, they are

calling it " mixed connective tissue syndrome " and I have an appointment

to see a rheumatologist at UAB (Birmingham) on September 2. They sent

me paperwork in the mail and I got it the day before yesterday. Says I

should be prepared to stay if I am new patient, cuz they will probably

do lab tests and xrays, etc..... Also, I have appointment with

OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then

depending on results, probable laser surgery. The real thing I

> > am dealing with right now is the doc in Birmingham (my pulmo) said I

need to have liver function tests once a week as long as I am on the

prednisone and Imuran and that was cool, ok, I can deal with that. He

said he was going to put in an order to make sure it got done. He asked

me have they been doing LFTs? I said yes, and he said they haven't been

sending me a copy. Ok, I go to my local pulmodude and tell him what Dr.

deAndrade said in Birmingham and that was that my lungs are stable and

if I had to have open-heart surgery tomorrow, he thinks my lungs would

make it. (YEAH!, that was around the first of July). Okay, when I tell

him what he said, he said, here's what I want you to do -- If you get a

cough, hear wheezing, get jaundiced, or have a fever, come by the office

and we will do blood work right away. Other than that, my next

appointment is scheduled for January!! I did some research on the Net

and lupus can affect nearly every

> > organ in your body. I have noticed the last couple of months, I

have noticed I have had trouble with my handwriting. I googled " can

lupus affect motor skills? " and yes, it can affect the central nervous

system, which will affect your handwriting. I can make out a grocery

list and then go back the next week and can't even read what I wrote. I

look at it, and I am like, what the heck is that? That is one major

question I have for the rheumatologist at UAB when I go on 9-2-09. This

is really frustrating. The other thing is the " butterfly rash " on your

face.. This rash TOTALLY SUCKS!!! I got it last summer and it was all

blamed on swimming in the pool. This summer, I have had it for 3 months

now. It is 10 times worse than it was last summer and it burns and

itches constantly. The doc in Birmingham told me to put lotion on it

and keep it moist and that would work. yeah, keeps it from burning, but

doesn't make it go away. I was

> > told by my pulmo dude here to put sunblock on it and that would work

(I am definitely NOT going to stay inside all the time). Well, that

didn't work, either. I have a rash on my face for the last 3 months

that goes all the way around my nose, then around my mouth in a circle

and now is a patch between my eyebrows. I have tried covering it with

Cover Girl when I go out in public and it helps, but still does not

cover it. So embarrassing! ! Guess I am just going to have to deal with

it. I noticed the other night when I took a shower that I am starting

to get a rash on my leg too..

> >

> > On a good note, I have lost 21 pounds since February, so that is a

good thing. I am still 4' 10 " and weigh 137 pounds, but hey, 137 is WAY

BETTER THAN 158 that I was in February from the prednisone. I am hoping

to get out and start walking again next month when it cools off a bit.

Is still right at 100 degrees here everyday and I just can't get out and

walk in the heat.

> >

> > Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I

finally found a way to get back to you again!! Please know how much I

have loved and missed you guys!!

> >

> > Hope you all have a wonderful night!

> >

> > Caro

> > Welcome back girlfriend!

> >

> > ____________ _________ _________ __

> >

> > From: MBMurtha mbmurtha@

> > To: carowade44@ ..

> > Sent: Wednesday, August 19, 2009 8:36:14 PM

> > Subject: Hi

> >

>

August 21, 2009

I am SOOOO glad to be back!!! CaroMissippi, COPD 2005, UIP January 2007, Sjogren syndrome July 2008, polymyositis/dermatomyositis November 2008, Fatty liver disease June 2009, Lupus (SLE)July 2009, mixed connective tissue disease August 2009

To: Breathe-Support Sent: Friday, August 21, 2009 7:55:06 AMSubject: Re: Fw: Hi

WOW

Caro

you have certainly been thru a lot

glad you are back to share

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>Subject: Fw: HiTo: Breathe-support@ yahoogroups. comDate: Thursday, August 20, 2009, 7:00 PM

----- Forwarded Message ----From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>To: MBMurtha <mbmurtha (AT) yahoo (DOT) .com>Sent: Thursday, August 20, 2009 1:23:51 AMSubject: Re: Hi

Thanks so much MB!!! After a big run around of being totally brain dead, I guess I figured out how to get another email account!! So much has happened since the big mixup!! I have found a lot of u guys on Facebook and that was a real blessing! They have definitely determined now that I have pulmonary fibrosis ( UIP), polymyositis, dermatomyositis, Sjogren syndrome, and now 3 weeks ago I have lupus (SLE), so basically since I have multiple autoimmune diseases, they are calling it "mixed connective tissue syndrome" and I have an appointment to see a rheumatologist at UAB (Birmingham) on September 2. They sent me paperwork in the mail and I got it the day before yesterday. Says I should be prepared to stay if I am new patient, cuz they will probably do lab tests and xrays, etc..... Also, I have appointment with OB-GYN-ONCO on August 28 for another colposcopy/biopsy and then depending on results, probable laser

surgery. The real thing I am dealing with right now is the doc in Birmingham (my pulmo) said I need to have liver function tests once a week as long as I am on the prednisone and Imuran and that was cool, ok, I can deal with that. He said he was going to put in an order to make sure it got done. He asked me have they been doing LFTs? I said yes, and he said they haven't been sending me a copy. Ok, I go to my local pulmodude and tell him what Dr. deAndrade said in Birmingham and that was that my lungs are stable and if I had to have open-heart surgery tomorrow, he thinks my lungs would make it. (YEAH!, that was around the first of July). Okay, when I tell him what he said, he said, here's what I want you to do -- If you get a cough, hear wheezing, get jaundiced, or have a fever, come by the office and we will do blood work right away. Other than that, my next appointment is scheduled for

January!! I did some research on the Net and lupus can affect nearly every organ in your body. I have noticed the last couple of months, I have noticed I have had trouble with my handwriting. I googled " can lupus affect motor skills?" and yes, it can affect the central nervous system, which will affect your handwriting. I can make out a grocery list and then go back the next week and can't even read what I wrote. I look at it, and I am like, what the heck is that? That is one major question I have for the rheumatologist at UAB when I go on 9-2-09. This is really frustrating. The other thing is the "butterfly rash " on your face. This rash TOTALLY SUCKS!!! I got it last summer and it was all blamed on swimming in the pool. This summer, I have had it for 3 months now. It is 10 times worse than it was last summer and it burns and itches constantly. The doc in

Birmingham told me to put lotion on it and keep it moist and that would work. yeah, keeps it from burning, but doesn't make it go away. I was told by my pulmo dude here to put sunblock on it and that would work (I am definitely NOT going to stay inside all the time). Well, that didn't work, either. I have a rash on my face for the last 3 months that goes all the way around my nose, then around my mouth in a circle and now is a patch between my eyebrows. I have tried covering it with Cover Girl when I go out in public and it helps, but still does not cover it. So embarrassing! ! Guess I am just going to have to deal with it. I noticed the other night when I took a shower that I am starting to get a rash on my leg too.

On a good note, I have lost 21 pounds since February, so that is a good thing. I am still 4' 10" and weigh 137 pounds, but hey, 137 is WAY BETTER THAN 158 that I was in February from the prednisone. I am hoping to get out and start walking again next month when it cools off a bit. Is still right at 100 degrees here everyday and I just can't get out and walk in the heat.

Enough about me!! I miss you guys SOOOOOOO much!! I am so glad I finally found a way to get back to you again!! Please know how much I have loved and missed you guys!!

Hope you all have a wonderful night!

Caro

From: MBMurtha <mbmurtha (AT) yahoo (DOT) com>To: carowade44 (AT) yahoo (DOT) comSent: Wednesday, August 19, 2009 8:36:14 PMSubject: HiWelcome back girlfriend!

August 21, 2009

Carolyn, Where in Mississippi do you live. You don't write with an accent.)

Jerry/Mississippi/54/IPF/dx April 05

>

> >From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>

> >Subject: Fw: Hi

> >To: Breathe-support@ yahoogroups. com

> >Date: Thursday, August 20, 2009, 7:00 PM

> >

> >----- Forwarded Message ----

> >From: Carolyn Wade <carowade44 (AT) yahoo (DOT) com>

> >To: MBMurtha <mbmurtha (AT) yahoo (DOT) .com>

> >Sent: Thursday, August 20, 2009 1:23:51 AM

> >Subject: Re: Hi

> >

> >Thanks so much MB!!! After a big run around of being totally brain dead, I