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Re: Barely Any Improvement despite many supplements and now sleepiness

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Maybe the valtrex caused some detox reactions.Also maybe he need less melatonin.I give my daughter 1 mg.Sometimes for us when negatives happen it can be a good thing because his little body is getting rid of bacteria.It can be hard to tell the difference though.Does he have any yeast issues? As you probably know when one or the other dies it ramps up the other left.Meaning yeast and bacteria.An endless cycle for us.Its hard to tell with his supplements.What are his labs you have done like ?Why did he start the valtrex ?I'm only 2 years into biomed so maybe one of the other members may have some other suggestions.Good luck To: "mb12valtrex " <mb12valtrex > Sent: Thursday, October 4, 2012 7:18 PM Subject: Barely Any Improvement despite many supplements and now sleepiness

my son is nonverbal low functioning autistic 5 and half years old takes the following supplements for almost 3 with very slow progress if any and now sleeping for very long hours including long naps we put him on valtrex for almost a month and stopped it thinking that it's causing his sleepiness and now because of his throat infection he's on antibiotic for the second day and this infection was accompanied with a rash all over his body. i requested the doctor to do some lab work because of his sleepiness. please look on the supplements he takes and please let me know if anything is missing or helpful to improve his cognition to become higher functioning and improve his speech.

CURRENT TREATMENT: " MB12 25mg/ml 22500mcg q3d every three days " Super Nu Thera liquid 7.5 ml twice daily " Children's DHA 10ml daily " Coenzyme B complex 2 caps daily " CoQ10 200mg daily (I can make it 200mg twice a day if Hadi can benefit more) " Zinc 25 mg at am and 50 mg at pm " DMG 500mg once daily " Vitamin D3 7 drop daily (1000IU) " Rubbing his body with Epsom salt water 2-3 times a day. " Lactobacillus Duo 1 caps daily " Pro bio inulin free 1 caps daily " Juice Plus fruit 1 cap twice daily " JP+ veggies 1 cap twice daily " Iron 2 capsules twice daily " Alpha ketoglutaric Acid 300 mg 2 cap twice daily " Acetyl L-Carnitine 1250mg twice daily " Folinic Acid 800mcg : half cap twice daily " Lamisil. him ¾ of a 250mg tablet once a day " K2 100mcg once daily Pfeiffer MT Promoter II half capsule every other night Sonic Cholesterol 3 capsules twice daily " Melatonin 3mg at bedtime. L-Glutamine 250 mg once daily at am only for the chelation days LDN 3mg at night Trans-Glutathion 500 mg once daily "Cinnamon 1000 mg, half cap twice daily " Chromium 100 mcg, one cap twice daily Melatonin nutrispray, one spray WP minirals one capsule daily

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it's a safe brand and it's a blend of veggis and fruits (Juice Plus+) and approved by his Dan doctor. he's eating junk like french fries, chips pretzels and some rice with vegetables and of course very very picky and very strong 74 lb and can't force him with anything but now because of his sleepiness he's not eating as much as before.

What are the improvements you saw with your son and what did you do?

Thanks a lot.

To: "mb12valtrex " <mb12valtrex > Sent: Thursday, October 4, 2012 7:49 PMSubject: Re: Barely Any Improvement despite many supplements and now sleepiness

What are the ingredients in the juice plus? Do you have a link?

Are these supplements clean brands?

What is he eating?

My son is also 5 1/2, non verbal, and considered low functioning/high needs. Going thru everything with a fine tooth comb has helped him tremendously in the past two months. I'd be happy to help in any way possible.

Liam's momSeattle, Wa

; To: mb12valtrex <mb12valtrex >; Subject: Barely Any Improvement despite many supplements and now sleepiness Sent: Thu, Oct 4, 2012 11:18:41 PM

my son is nonverbal low functioning autistic 5 and half years old takes the following supplements for almost 3 with very slow progress if any and now sleeping for very long hours including long naps we put him on valtrex for almost a month and stopped it thinking that it's causing his sleepiness and now because of his throat infection he's on antibiotic for the second day and this infection was accompanied with a rash all over his body. i requested the doctor to do some lab work because of his sleepiness. please look on the supplements he takes and please let me know if anything is missing or helpful to improve his cognition to become higher functioning and improve his speech.

CURRENT TREATMENT:

" MB12 25mg/ml 22500mcg q3d every three days

" Super Nu Thera liquid 7.5 ml twice daily

" Children's DHA 10ml daily

" Coenzyme B complex 2 caps daily

" CoQ10 200mg daily (I can make it 200mg twice a day if Hadi can benefit more)

" Zinc 25 mg at am and 50 mg at pm

" DMG 500mg once daily

" Vitamin D3 7 drop daily (1000IU)

" Rubbing his body with Epsom salt water 2-3 times a day.

" Lactobacillus Duo 1 caps daily

" Pro bio inulin free 1 caps daily

" Juice Plus fruit 1 cap twice daily

" JP+ veggies 1 cap twice daily

" Iron 2 capsules twice daily

" Alpha ketoglutaric Acid 300 mg 2 cap twice daily

" Acetyl L-Carnitine 1250mg twice daily

" Folinic Acid 800mcg : half cap twice daily

" Lamisil. him ¾ of a 250mg tablet once a day

" K2 100mcg once daily

Pfeiffer MT Promoter II half capsule every other night

Sonic Cholesterol 3 capsules twice daily

" Melatonin 3mg at bedtime.

L-Glutamine 250 mg once daily at am only for the chelation days

LDN 3mg at night Trans-Glutathion 500 mg once daily

"Cinnamon 1000 mg, half cap twice daily

" Chromium 100 mcg, one cap twice daily

Melatonin nutrispray, one spray

WP minirals one capsule daily

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I tell you this i think there more to the pandas stuff than they even know.Funny our family history I have strep issues, my mom has schizophrenia and has had rheumatic fever and measles.She also had severe thrush as a baby as did i and Sophia.My mom also had shingles 3 times.I also had group b strep during delivery which i needed antibiotics during labor for.When Sophia had her strep test she had 2 strep bacterias in her gut 4+ with no lacto and 4+ bifidus.Not knowing better than i was giving probiotics with inulin and fos, and strep strains in her probiotics.She aslo has 4+klebsiella which i guess fos and inulin can feed.I have since than got customs 4 strain lacto.Major improvement already.I also give her olive leaf extract and lysine.I am a little concerned about the OLE eating the good bacteria also.Maybe thats whats

happening with your son.I dont know whole lot about valtrex just know ole is natural and its results are similar to valtrex.Definitely test for pandas although i heard it doesnt even always show if its positive.I am getting Sophia tested also.Did your son regress? Sophia has major OCD which is sometimes a strep issue.Have you tried some homeopathy.We are starting that Saturday.Im willing to try anything(safe of course) at this point.Good luck and your such a good Mom for doing all you can.God bless! To: "mb12valtrex "

<mb12valtrex > Sent: Thursday, October 4, 2012 8:10 PM Subject: Re: Barely Any Improvement despite many supplements and now sleepiness

yes i reduced the melatonine, yes he has yeast issues and he's lamisil 250 mg once daily. i didn't do the lab work yet waiting for the doctors requisition to come but Cheryl from the group suggested some testings and I requested for them, also I am going to consider testing for Pandas. Me too just three years with biomed.

Thanks a lot.

To: "mb12valtrex " <mb12valtrex > Sent: Thursday, October 4, 2012 7:30 PMSubject: Re: Barely Any Improvement despite many supplements and now sleepiness

Maybe the valtrex caused some detox reactions.Also maybe he need less melatonin.I give my daughter 1 mg.Sometimes for us when negatives happen it can be a good thing because his little body is getting rid of bacteria.It can be hard to tell the difference though.Does he have any yeast issues? As you probably know when one or the other dies it ramps up the other left.Meaning yeast and bacteria.An endless cycle for us.Its hard to tell with his supplements.What are his labs you have done like ?Why did he start the valtrex ?I'm only 2 years into biomed so maybe one of the other members may have some other suggestions.Good luck

To: "mb12valtrex " <mb12valtrex > Sent: Thursday, October 4, 2012 7:18 PMSubject: Barely Any Improvement despite many supplements and now sleepiness

my son is nonverbal low functioning autistic 5 and half years old takes the following supplements for almost 3 with very slow progress if any and now sleeping for very long hours including long naps we put him on valtrex for almost a month and stopped it thinking that it's causing his sleepiness and now because of his throat infection he's on antibiotic for the second day and this infection was accompanied with a rash all over his body. i requested the doctor to do some lab work because of his sleepiness. please look on the supplements he takes and please let me know if anything is missing or helpful to improve his cognition to become higher functioning and improve his speech.

CURRENT TREATMENT:

" MB12 25mg/ml 22500mcg q3d every three days

" Super Nu Thera liquid 7.5 ml twice daily

" Children's DHA 10ml daily

" Coenzyme B complex 2 caps daily

" CoQ10 200mg daily (I can make it 200mg twice a day if Hadi can benefit more)

" Zinc 25 mg at am and 50 mg at pm

" DMG 500mg once daily

" Vitamin D3 7 drop daily (1000IU)

" Rubbing his body with Epsom salt water 2-3 times a day.

" Lactobacillus Duo 1 caps daily

" Pro bio inulin free 1 caps daily

" Juice Plus fruit 1 cap twice daily

" JP+ veggies 1 cap twice daily

" Iron 2 capsules twice daily

" Alpha ketoglutaric Acid 300 mg 2 cap twice daily

" Acetyl L-Carnitine 1250mg twice daily

" Folinic Acid 800mcg : half cap twice daily

" Lamisil. him ¾ of a 250mg tablet once a day

" K2 100mcg once daily

Pfeiffer MT Promoter II half capsule every other night

Sonic Cholesterol 3 capsules twice daily

" Melatonin 3mg at bedtime.

L-Glutamine 250 mg once daily at am only for the chelation days

LDN 3mg at night Trans-Glutathion 500 mg once daily

"Cinnamon 1000 mg, half cap twice daily

" Chromium 100 mcg, one cap twice daily

Melatonin nutrispray, one spray

WP minirals one capsule daily

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  • 3 weeks later...

For having been doing biomed for as long as you have, there's nothing on there that's really a heavy hitter. None of what you're doing would produce much behaviorally in my son. And yes, my son has done just about everything on your list. He's recovered now although he still has raging ADD. He is fully included with zero supports and is in the 2nd grade. His teacher told me that she never would've known had his RSP not told her in advance which one he was.In my house, it was all viral, bacterial, hormonal and immune. I'm not saying that's what it is for you though. I'm just saying that what you've got is basic biomed that you should've been moved on from years ago by your DAN. Forward progression, people. If you aren't making even a little forward progress within 6 months, move on. Dig deeper. Look into some Yasko testing - that can tell you a lot. For us, we found out that my son's ammonia problems had nothing to do with protein and everything to do with his genes. And his proteins problems were also a genetic issue. This kind of frees you up to realize your focusing on the wrong things. Instead of trying to "fix" the problem, find out what the problem is. Some of them aren't fixable and wasting your time trying to fix them when you could be looking at other things that you can do something about is much more valuable. Because of that testing, I know that I shouldn't go nuts giving my son omegas and DHA and proteins and such because he doesn't process it, no matter how much I shove into his body. I need to let his body process what it will so I only give him omegas every other day. I give him yucca daily and now I no longer battle the up and down drama of trying to control his ammonia.You need to find out what the specific issues are that are troubling your son. All of our kids have issues with methylation. All of our kids have trouble with detoxing. All of our kids have issues with yeast. All of our kid have immune issues. What you need to focus on is what are the major things that are causing the biggest problems. Focus on those first. Once you get those under control you can figure out the little details because you'll see big changes and you can start to focus the smaller things in on the tiny details you never would've found just floundering on the minutiae. Find out what your son's Big Bad is. It's hard, not everyone has been able to find it in their kid, but if you can, you'll see big improvement.Look at metals. Look at viruses. Look at bacteria. Look at parasites. Look at pathogens. Look at everything. Vitamins and minerals will only do so much and there are very few that have recovered on those alone. I don't actually know of anyone that has, although I'm sure there are some out there. On that whole list, only 3 things would've produced any kind of significant results in my child. MB12, LDN and Lamisil. And that's assuming Lamisil would work on my son - we've never actually used that one. The rest might change lab numbers but they never really did much behaviorally. Well, except melatonin. I heart melatonin. My son can't sleep without it. He just doesn't produce enough.

* * * Cheryl * * * ~ Antiviral Therapy 101~~ Make a biomed book ~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~~ Join the MB12Valtrex Yahoo! Group ~

my son is nonverbal low functioning autistic 5 and half years old takes the following supplements for almost 3 with very slow progress if any and now sleeping for very long hours including long naps we put him on valtrex for almost a month and stopped it thinking that it's causing his sleepiness and now because of his throat infection he's on antibiotic for the second day and this infection was accompanied with a rash all over his body. i requested the doctor to do some lab work because of his sleepiness. please look on the supplements he takes and please let me know if anything is missing or helpful to improve his cognition to become higher functioning and improve his speech.

CURRENT TREATMENT:

" MB12 25mg/ml 22500mcg q3d every three days

" Super Nu Thera liquid 7.5 ml twice daily

" Children's DHA 10ml daily

" Coenzyme B complex 2 caps daily

" CoQ10 200mg daily (I can make it 200mg twice a day if Hadi can benefit more)

" Zinc 25 mg at am and 50 mg at pm

" DMG 500mg once daily

" Vitamin D3 7 drop daily (1000IU)

" Rubbing his body with Epsom salt water 2-3 times a day.

" Lactobacillus Duo 1 caps daily

" Pro bio inulin free 1 caps daily

" Juice Plus fruit 1 cap twice daily

" JP+ veggies 1 cap twice daily

" Iron 2 capsules twice daily

" Alpha ketoglutaric Acid 300 mg 2 cap twice daily

" Acetyl L-Carnitine 1250mg twice daily

" Folinic Acid 800mcg : half cap twice daily

" Lamisil. him ¾ of a 250mg tablet once a day

" K2 100mcg once daily

Pfeiffer MT Promoter II half capsule every other night

Sonic Cholesterol 3 capsules twice daily

" Melatonin 3mg at bedtime.

L-Glutamine 250 mg once daily at am only for the chelation days

LDN 3mg at night Trans-Glutathion 500 mg once daily

"Cinnamon 1000 mg, half cap twice daily

" Chromium 100 mcg, one cap twice daily

Melatonin nutrispray, one spray

WP minirals one capsule daily

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Maybe you should try some homeopathy.Very helpful for some kids.Theres a great blog Drews recovery. A Mom who has recovered her son and said her missing piece was homeopathy.Thats alot of supplements .To me anyway.I cant imagine what thats costing you, and to not see improvement must be difficult. Please look into this if possible.Best wishes To: mb12valtrex

Sent: Tuesday, October 23, 2012 3:08 PM Subject: Re: Barely Any Improvement despite many supplements and now sleepiness

For having been doing biomed for as long as you have, there's nothing on there that's really a heavy hitter. None of what you're doing would produce much behaviorally in my son. And yes, my son has done just about everything on your list. He's recovered now although he still has raging ADD. He is fully included with zero supports and is in the 2nd grade. His teacher told me that she never would've known had his RSP not told her in advance which one he was.In my house, it was all viral, bacterial, hormonal and immune. I'm not saying that's what it is for you though. I'm just saying that what you've got is basic biomed that you should've been moved on from years ago by your DAN. Forward progression, people. If you aren't making even a little forward progress within 6 months, move on. Dig deeper. Look into some Yasko testing - that can tell you a

lot. For us, we found out that my son's ammonia problems had nothing to do with protein and everything to do with his genes. And his proteins problems were also a genetic issue. This kind of frees you up to realize your focusing on the wrong things. Instead of trying to "fix" the problem, find out what the problem is. Some of them aren't fixable and wasting your time trying to fix them when you could be looking at other things that you can do something about is much more valuable. Because of that testing, I know that I shouldn't go nuts giving my son omegas and DHA and proteins and such because he doesn't process it, no matter how much I shove into his body. I need to let his body process what it will so I only give him omegas every other day. I give him yucca daily and now I no longer battle the up and down drama of trying to control his ammonia.You need to find out what the specific issues are that are troubling your son. All

of our kids have issues with methylation. All of our kids have trouble with detoxing. All of our kids have issues with yeast. All of our kid have immune issues. What you need to focus on is what are the major things that are causing the biggest problems. Focus on those first. Once you get those under control you can figure out the little details because you'll see big changes and you can start to focus the smaller things in on the tiny details you never would've found just floundering on the minutiae. Find out what your son's Big Bad is. It's hard, not everyone has been able to find it in their kid, but if you can, you'll see big improvement.Look at metals. Look at viruses. Look at bacteria. Look at parasites. Look at pathogens. Look at everything. Vitamins and minerals will only do so much and there are very few that have recovered on those alone. I don't actually know of anyone that has, although I'm sure there are some out

there. On that whole list, only 3 things would've produced any kind of significant results in my child. MB12, LDN and Lamisil. And that's assuming Lamisil would work on my son - we've never actually used that one. The rest might change lab numbers but they never really did much behaviorally. Well, except melatonin. I heart melatonin. My son can't sleep without it. He just doesn't produce enough.

* * * Cheryl * * * ~ Antiviral Therapy 101~~ Make a biomed book ~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~~ Join the MB12Valtrex Yahoo! Group ~

my son is nonverbal low functioning autistic 5 and half years old takes the following supplements for almost 3 with very slow progress if any and now sleeping for very long hours including long naps we put him on valtrex for almost a month and stopped it thinking that it's causing his sleepiness and now because of his throat infection he's on antibiotic for the second day and this infection was accompanied with a rash all over his body. i requested the doctor to do some lab work because of his sleepiness. please look on the supplements he takes and please let me know if anything is missing or helpful to improve his cognition to become higher functioning and improve his speech.

CURRENT TREATMENT: " MB12 25mg/ml 22500mcg q3d every three days " Super Nu Thera liquid 7.5 ml twice daily " Children's DHA 10ml daily " Coenzyme B complex 2 caps daily " CoQ10 200mg daily (I can make it 200mg twice a day if Hadi can benefit more) " Zinc 25 mg at am and 50 mg at pm " DMG 500mg once daily " Vitamin D3 7 drop daily (1000IU) " Rubbing his body with Epsom salt water 2-3 times a day. " Lactobacillus Duo 1 caps daily " Pro bio inulin free 1 caps daily " Juice Plus fruit 1 cap twice daily " JP+ veggies 1 cap twice daily " Iron 2 capsules twice daily " Alpha ketoglutaric Acid 300 mg 2 cap twice daily " Acetyl L-Carnitine 1250mg twice daily " Folinic Acid 800mcg : half cap twice daily " Lamisil. him ¾ of a 250mg tablet once a day " K2 100mcg once daily Pfeiffer MT Promoter II half capsule every other night Sonic Cholesterol 3 capsules twice daily " Melatonin 3mg at bedtime. L-Glutamine 250 mg once daily at am only for the chelation days LDN 3mg at night Trans-Glutathion 500 mg once daily "Cinnamon 1000 mg, half cap twice daily " Chromium 100 mcg, one cap twice daily Melatonin nutrispray, one spray WP minirals one capsule daily

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