Re: update to my level III w/fetal specialist, not great

[Guest guest]

http://choroidplexuscyst.org/

http://pregnancy.about.com/od/choroidplexuscys/

http://www.uhrad.com/ctarc/ct019.htm

[Guest guest]

http://members.aol.com/aleegold/

this is another mother's story and website about her son and the day she found

out her son had those cysts...i think you will find it comforting to read...good

luck, keep us posted, jenn

[Guest guest]

Kim, a girlfriend of mine just had a baby boy 10 weeks ago and he had

this type of cyst. It was not absorbed as can happen, so at 2 days

old, they removed the cyst via surgery. He's fine and happy and home

now.

Hope that gives you some relief, although I know that until you

actually hold your little one in your arms, you'll not be completely

free of worry.

rny 4/21/01

edd w/#1 2/4/05

>

>

> well ladies, i left the fetal specialist very melancholy. first

off,

> the afp screens came through all with flying colors. after meeting

> with the genetic counselor, i was so pleased with the results, i

> thought there were no worries.

>

> the ladies in the ultrasound room who prepped me all recognized me

> from when i went in a year and a half ago when i was pregnant with

> my son who is now 14 mos old. they recognized my face but said i

> look different! i told them about my surgery and how i didnt even

> know i was pregnant untill last friday! everyone was pretty amazed

> at my story as are all of us still!

>

> the ultrasound was going well. no nueral tube defects, heart and

> body parts all where they are supposed to be. but then the fetal

> specialist said my baby has something in his brain called a "

> CHOROID PLEXUS CYST. " so this is where it was all down hill -- at

> least for me. I did amnio right there and then on the table. I know

> nothing at all about this. does any one on this board know what it

> is?

>

> the doctor then dished out some news to try to keep me from

freaking

> out knowing my history with nueral tube defects and our painful

> experience with our 2nd pregnancy.

>

> he said that this condition provides for a 1 in 100 chances of

> having a baby with a chromosomal condition. the amnio is to find

out

> what that condition might be -- if any. the other 99 in 100 usually

> are born completely normal. so that is why he was trying to calm

me.

> I slightly lossed it in the car on the way home because it brings

> back so much painful memories. i do not want to have to be in a

> situation again where i am told my baby's dx is grim.

>

> with my 2nd pregnancy, my baby had a large 38mm opening in his

> spinal collumn -- a condition called spina bifida in the

> thoracolumbaric area (thats pretty high up, right between the

> shoulder blades.) had the opening been much lower, his dx might

have

> been more promising. he also had enlarged ventricles in the brain,

a

> lemon shaped head, and hydrocephalus. I had to consider so much

> before I came to the painful decision to terminate. and at 20

weeks,

> it was truly a disgusting, painful, resenting, awful, time in my

> life. i hated having to give up a baby i wanted so desperately. i

> cried so much and saturated my pillows -- they started to smell of

> my fathers sent and that made me feel like he was with me during it

> all even though he had passed away three years before.

>

> my husband was so afraid of making any decisions and forcing me to

> make a decision against my will that even though we talked and held

> each other a lot, i had to make it ultimately on my own.

>

> so even though this dx of a cyst in the brain looks to be in our

> favor, the whole thing just leaves a nasty sour reminding taste of

> what i had to go through before.

>

> BTW, he also had a hard time trying to see the sex of the baby. he

> was indecisive because of the position and said if he had to guess

> it was a girl. ultimately, the amnio will determine all. the health

> of the baby and the sex.

>

> So now I have to wait a 10 to 14 days for the amnio results. its

> like torture. please pray for the health of my baby.

>

> thank you so much,

> kimberly

[Guest guest]

I know how you feel as far as this particular situation goes, my son

who is now 5.5 months old was also diagnosed with the cpc at 17.5

weeks gestation...everything else was normal.. but my heart still

dropped and it was a blow but i figured since i had already made it

through a rough beginning which i posted in my last response post

regarding no heart beat, i could make it through this...i was

immediatly offered a amnio which i declined. i was closely monitored

because of my delicate pregnancy so a month later i had another u/s

and he had 2 cyst well i continued to stay optimistic and possitive i

knew inside my baby was just fine and i did my research and found so

many people that have gone through this, there is a site called

http://www.choroidplexuscyst.org/ this is an awesome site with soo

many wonderfull people..please check it out!! well i continued my us

every month and finally around 24 weeks i beleive the cyst

disappeared and through out my pregnancy i continued the us and all

was good, at 37 1/2 weeks i had a healthy baby boy, today he is soo

dang smart and healthy you would have never known he ever had those

cysts..good luck to you and your baby...as long as everything else is

normal and good you have nothing to worry about.. im am also so sorry

to hear of your last baby my thoughts and prayers are with u

>

>

> well ladies, i left the fetal specialist very melancholy. first

off,

> the afp screens came through all with flying colors. after meeting

> with the genetic counselor, i was so pleased with the results, i

> thought there were no worries.

>

> the ladies in the ultrasound room who prepped me all recognized me

> from when i went in a year and a half ago when i was pregnant with

> my son who is now 14 mos old. they recognized my face but said i

> look different! i told them about my surgery and how i didnt even

> know i was pregnant untill last friday! everyone was pretty amazed

> at my story as are all of us still!

>

> the ultrasound was going well. no nueral tube defects, heart and

> body parts all where they are supposed to be. but then the fetal

> specialist said my baby has something in his brain called a "

> CHOROID PLEXUS CYST. " so this is where it was all down hill -- at

> least for me. I did amnio right there and then on the table. I know

> nothing at all about this. does any one on this board know what it

> is?

>

> the doctor then dished out some news to try to keep me from

freaking

> out knowing my history with nueral tube defects and our painful

> experience with our 2nd pregnancy.

>

> he said that this condition provides for a 1 in 100 chances of

> having a baby with a chromosomal condition. the amnio is to find

out

> what that condition might be -- if any. the other 99 in 100 usually

> are born completely normal. so that is why he was trying to calm

me.

> I slightly lossed it in the car on the way home because it brings

> back so much painful memories. i do not want to have to be in a

> situation again where i am told my baby's dx is grim.

>

> with my 2nd pregnancy, my baby had a large 38mm opening in his

> spinal collumn -- a condition called spina bifida in the

> thoracolumbaric area (thats pretty high up, right between the

> shoulder blades.) had the opening been much lower, his dx might

have

> been more promising. he also had enlarged ventricles in the brain,

a

> lemon shaped head, and hydrocephalus. I had to consider so much

> before I came to the painful decision to terminate. and at 20

weeks,

> it was truly a disgusting, painful, resenting, awful, time in my

> life. i hated having to give up a baby i wanted so desperately. i

> cried so much and saturated my pillows -- they started to smell of

> my fathers sent and that made me feel like he was with me during it

> all even though he had passed away three years before.

>

> my husband was so afraid of making any decisions and forcing me to

> make a decision against my will that even though we talked and held

> each other a lot, i had to make it ultimately on my own.

>

> so even though this dx of a cyst in the brain looks to be in our

> favor, the whole thing just leaves a nasty sour reminding taste of

> what i had to go through before.

>

> BTW, he also had a hard time trying to see the sex of the baby. he

> was indecisive because of the position and said if he had to guess

> it was a girl. ultimately, the amnio will determine all. the health

> of the baby and the sex.

>

> So now I have to wait a 10 to 14 days for the amnio results. its

> like torture. please pray for the health of my baby.

>

> thank you so much,

> kimberly

[Guest guest]

im sorry to hear youre having to go through this, i faced the same

problem , except it was about 12 years ago , and its so painfull theres nothing

one can truely say to alleviate that pain ,the worry and indecision while youre

waiting will be tough ,

, ill keep you and your baby and your whole family in my thoughts and prayers .

Beth

Happiness doesnt depend on who you are or what you have ; it depends solely on

what you think

__________________________________________________

[Guest guest]

thank you for providing me with all that info jennifer. you are

very informative and helpful. presently im moving in and out of

waves of emotions lying somewhere between comfort and panic. i

really appreciate your contributions to the board!

kimberly

edd 4/3/05

[Guest guest]

lisa, thank you for sharing your friends experience. at this point,

from the info ive learned in the last couple of days, the cpc is a

concern, but more so, is the fact that it is a " so called " marker

for trisomy 18. it doesnt help that i spoke with my dr. yesterday

and he said because of my history with my 2nd pregnancy w/nueral

tube defects and hydrocephalus, the risk is greater -- even though

my afp's came out normal. so im so worried about the amnio results

showing a chromosomal problem. if something happens to this baby,

im sure my husband would somehow prevent us from ever having

another. 2 sick babies in 4 pregnancies is just too much emotional

overload for one woman.

thank you so much,

kimberly, edd 4/3/05

[Guest guest]

dear deanna, you dont know how many moms ive heard from my postings

in the last two days who share the same experience as you. i want

to thank you for posting and for offering me hope during this awful

two week wait after amnio. hopefully i can get results before the

full two weeks pass by.

i dont feel so good after talking to my ob yesterday. my fetal

specialist was more reassuring than him. my fetal specialist who dx

the cpc specifically told me not to freak out. but my doctor was

like already telling me about my choices if there is a trisomy 18.

which i already know my options considering i already had to go

through that fiasco with my baby w/neural tube defects.

i appreciate your uplifting story and hope that my baby has a happy

ending such as yours.

kimberly

edd 4/3/05

[Guest guest]

HEY EVERYONE MY NAME IS TRACY AND I AM NINE MONTHS OUT. NO I AM NOT PREGNANT

BUT INTERESTED IN LEARNING ABOUT WHAT WOUL DHAPPEN IF ONE DAY A LITTLE

BLESSING MIGHT POP UP.

I HAD TO REMARK ON YOUR EMAIL. I HAD MY FIRST DAUGHTER IN 1998. WHILE I WAS

PREGNANT THEY NOTICED A CYST ON THE BACK OF HER BRAIN SIMILAR TO THE ONE YOU

HAVE MENTIONED. I WENT THROUGH HELL. ULTASOUND, NONSTRESS TESTS LABS THEY COULD

NOT TELL ME ANYTHING AND I WAS TO FAR ALONG FOR AN AMNIO. WELL SHE WAS BORN

AND THEY SUDDENLY COULD NOT FIND THE CYST. SHE IS ALMOST 6 AND I AM SO IN LOVE

WITH HER. I HOPE THIS HELPS. KEEP PRAYING GET MORE TESTS THEY SENT ME TO A

SPECIALIST THAT SPECIALIZES IN THE HEALTH OF UNBORN FETUS. SORRY AT THIS TIME MY

MIND GOES BLANK. IF I CAN BE OF ANY HELP PLEASE LET ME KNOW. I TRULEY BELIEVE

THIS WAS NOT FROM WLS.

TAKE CARE AND GOOD LUCK

TRACY ROSARIO

AZBEANIE1 (AT) AOL (DOT) ,COM

[Guest guest]

Will pray with you . I have never heard of

this before.

Keep us updated as you can.

Herlean

--- wrote:

>

>

>

>

> but

> then the fetal

> specialist said my baby has something in his brain

> called a "

> CHOROID PLEXUS CYST. " so this is where it was all

> down hill -- at

> least for me.

>

>

=====

" Wherever I AM, GOD Is...and All is Well. " ;

2004 - Master of Science;

2000 - B.Sc.;

1999 - Married to DH, Bill

[Guest guest]

hi there and thanks for replying to my post. ive had

so many positive and uplifting posts after i wrote

what i was going through. many of the stories mirror

yours as well. i promise to update you once i receive

the results of my amnio. waiting is like torture but

i should know friday, monday or tuesday at the latest.

it cant come soon enough -- or maybe it can.

hugs,

kimberly

me 33, dh 35 (male factor low morphology)

pcos dx 6/96 guaranteed lifetime fertility

problems....

alex born 4/12/00 success! 7 cycles on

clomid/glucophage

heartbreaking loss @ 20weeks 10/26/01 severe

neuraltube defcts

Cole born 8/4/03 success! 1st cycle repronex/iui after

8 mo clomid

Gastric Bypass surgery 3/9/04 lost 99lbs as of

11/05/04

10/29/04 Shockingly expectant @ 18 weeks & conceived

naturally

Amnio 11/2/04 Markers for Trisomy 18 found (Choriod

Plexus Cyst)

Still awaiting results from Amnio

EDD 4/3/05

__________________________________________________