Re: Do we have a chiropractor here?

[Guest guest]

Hi Tammy, My son has muscle weakness in arms (can't do the monkey bars either) but he has more problems with sports probably due to motor planning issues. One doctor told us lead can cause upper body weakness. Not sure about the trembling. Does anyone have peripheral neuropathy in the family? I just found out my father and all of his siblings have this (my father was very sporty too) so would like to know if this is an issue for my son. My son has also started squeezing/cupping his hands as if they hurt so I have been wondering if this could be peripheral neuropathy related or some other inflammation issue.....anyway just a thought for you. Let us know if you find out the

cause! all the best,megan To: mb12valtrex Sent: Saturday, August 11, 2012 9:29 PM Subject: Do we have a chiropractor here?

Interesting: my son (10 yr. old PDD) works out daily. Total jock. football, baseball. soccer - you name it, he'll try it. Anyhow, he's been working out regularly for a couple of years now yet he still can't manage a single full push-up and struggles still with things like the monkey bars. It's not really a big deal. He's very active and gets plenty of great exercise. But I wonder why this is? What's interesting also is when he wakes up and does the morning "yawn and stretch", his muscles tremble like crazy. It's the damdest thing. Same thing happens to his dad and grandpa. I figure a chiro might know, but does anyone have any ideas? Work-outs are also kicking his ars this season (we watch diet, hydration, electrolites...) I wonder if a growth spurt would have something to do with this? I know we have much bigger fish to fry here, but I wonder if could be mito related? His FiGLu was a little off - but nothing drastic. Thoughts anyone?

Tammy

[Guest guest]

Tammy,

I agree with regarding peripheral neuropathy. Was your son ever on flagyl

or oral vancomycin? Or do you think that he may have some gut dysbiosis still?

If he has gut dysbiosis like some anaerobic overgrowth, that could give him

peripheral neuropathy like symptoms that affects hands and feet more. In my

son's case, he is not in sports like your kid but whatever activities he is

involved in, I notice that whenever I see clostridia, I see that he starts

avoiding touching things properly with his hands but rather touches them with

his wrists. At the same time, his grip on objects ranging from pencil to cup or

other heavier objects gets really affected. I have seen this episodic several

times. He had these symptoms in june and once I had him on oral vancomycin, he

did very well. But then it could also be the flagyl or vancomycin as both have

been implicated in peripheral neuropathy. As long as I remember, your son was

never a gut kid and I don't remember reading anything about antimicrobials in

your posts. But if his B-complex supplementation is already good then may be

look into running an oat and see if it is a metabolic issue or it is some

bacterial overgrowth. Like your son , my son presses a lot on his fingers

and hands as if he is having paresthesias. But it is episodic and for him comes

with the antiyeast treatments. Another thing that has worked for my son is

reducing inflammation mainly by 5MTHF. Two months ago, my son was miserable with

some pain in his hands and now he is coloring really well as his grip on the

pencils has improved. Mito issue can definitely be a culprit too but I thought

that he is already on the cocktail?? Have you ever seen a mito specialist? We

are still waiting for an appointment for the last 6 months. Sometimes, even

though the child is already on carnitine, riboflavin, coQ10 and other stuff,

changing the type of carnitine helps. The tremors that he has, make it seem more

like a metabolic issue.

Sorry if I confused you even more. I thing I am dealing with brain yeast myself

as my son's yeast flare is wearing me out )

is

>

> Hi Tammy,

>  

> My son has muscle weakness in arms (can't do the monkey bars either) but he

has more problems with sports probably due to motor planning issues.  One

doctor told us lead can cause upper body weakness.  Not sure about the

trembling.  Does anyone have peripheral neuropathy in the family?  I just

found out my father and all of his siblings have this (my father was very sporty

too) so would like to know if this is an issue for my son.  My son has also

started squeezing/cupping his hands as if they hurt so I have been wondering if

this could be peripheral neuropathy related or some other inflammation

issue.....anyway just a thought for you.

>  

> Let us know if you find out the cause!

>  

> all the best,

> megan

>

>

> ________________________________

>

> To: mb12valtrex

> Sent: Saturday, August 11, 2012 9:29 PM

> Subject: Do we have a chiropractor here?

>

>

>

>  

>

>

>

> Interesting: my son (10 yr. old PDD) works out daily. Total jock. football,

baseball. soccer - you name it, he'll try it. Anyhow, he's been working out

regularly for a couple of years now yet he still can't manage a single full

push-up and struggles still with things like the monkey bars. It's not really a

big deal. He's very active and gets plenty of great exercise. But I wonder why

this is? What's interesting also is when he wakes up and does the morning " yawn

and stretch " , his muscles tremble like crazy. It's the damdest thing. Same

thing happens to his dad and grandpa. I figure a chiro might know, but does

anyone have any ideas? Work-outs are also kicking his ars this season (we watch

diet, hydration, electrolites...) I wonder if a growth spurt would have

something to do with this? I know we have much bigger fish to fry here, but I

wonder if could be mito related? His FiGLu was a little off - but nothing

drastic. Thoughts anyone?

>

> Tammy

>

[Guest guest]

Thanks is for the ideas! For us, I wouldn't be surprised if it is bacterial/parasite related since I think my son got stronger last fall in his arms/hands while on the flagyl. But, like you i am worried/wondering about the flagyl itself causing this stuff. I remember my daughter telling me that her feet hurt to walk up the stairs last fall when taking it so that made me think it may be best to avoid flagyl for us now (of course, that could have been a 2year old phase too). On the mito, we just received our buccal swab results and they look ok. We also just got some results that Dr. Fran Kendall had requested we do and i don't see anything striking but maybe she will. And, yes Oliver is on Carnitine (probably needs more but it used to hurt his tummy), coq10 etc...but I haven't seen awhole

lot of progress from the mito cocktail (and i think it could cause more sensitivity issues for him too) so this may be another clue that it is gut related.....more investigating.... To: mb12valtrex Sent: Saturday, August 11, 2012 11:45 PM Subject: Re: Do we have a

chiropractor here?

Tammy,

I agree with regarding peripheral neuropathy. Was your son ever on flagyl or oral vancomycin? Or do you think that he may have some gut dysbiosis still? If he has gut dysbiosis like some anaerobic overgrowth, that could give him peripheral neuropathy like symptoms that affects hands and feet more. In my son's case, he is not in sports like your kid but whatever activities he is involved in, I notice that whenever I see clostridia, I see that he starts avoiding touching things properly with his hands but rather touches them with his wrists. At the same time, his grip on objects ranging from pencil to cup or other heavier objects gets really affected. I have seen this episodic several times. He had these symptoms in june and once I had him on oral vancomycin, he did very well. But then it could also be the flagyl or vancomycin as both have been implicated in peripheral neuropathy. As long as I remember, your son was never a gut kid and I don't

remember reading anything about antimicrobials in your posts. But if his B-complex supplementation is already good then may be look into running an oat and see if it is a metabolic issue or it is some bacterial overgrowth. Like your son , my son presses a lot on his fingers and hands as if he is having paresthesias. But it is episodic and for him comes with the antiyeast treatments. Another thing that has worked for my son is reducing inflammation mainly by 5MTHF. Two months ago, my son was miserable with some pain in his hands and now he is coloring really well as his grip on the pencils has improved. Mito issue can definitely be a culprit too but I thought that he is already on the cocktail?? Have you ever seen a mito specialist? We are still waiting for an appointment for the last 6 months. Sometimes, even though the child is already on carnitine, riboflavin, coQ10 and other stuff, changing the type of carnitine helps. The tremors that he has,

make it seem more like a metabolic issue.

Sorry if I confused you even more. I thing I am dealing with brain yeast myself as my son's yeast flare is wearing me out )

is

>

> Hi Tammy,

> Â

> My son has muscle weakness in arms (can't do the monkey bars either) but he has more problems with sports probably due to motor planning issues. One doctor told us lead can cause upper body weakness. Not sure about the trembling. Does anyone have peripheral neuropathy in the family? I just found out my father and all of his siblings have this (my father was very sporty too) so would like to know if this is an issue for my son. My son has also started squeezing/cupping his hands as if they hurt so I have been wondering if this could be peripheral neuropathy related or some other inflammation issue.....anyway just a thought for you.

> Â

> Let us know if you find out the cause!

> Â

> all the best,

> megan

>

>

> ________________________________

>

> To: mailto:mb12valtrex%40yahoogroups.com

> Sent: Saturday, August 11, 2012 9:29 PM

> Subject: Do we have a chiropractor here?

>

>

>

> Â

>

>

>

> Interesting: my son (10 yr. old PDD) works out daily. Total jock. football, baseball. soccer - you name it, he'll try it. Anyhow, he's been working out regularly for a couple of years now yet he still can't manage a single full push-up and struggles still with things like the monkey bars. It's not really a big deal. He's very active and gets plenty of great exercise. But I wonder why this is? What's interesting also is when he wakes up and does the morning "yawn and stretch", his muscles tremble like crazy. It's the damdest thing. Same thing happens to his dad and grandpa. I figure a chiro might know, but does anyone have any ideas? Work-outs are also kicking his ars this season (we watch diet, hydration, electrolites...) I wonder if a growth spurt would have something to do with this? I know we have much bigger fish to fry here, but I wonder if could be mito related? His FiGLu was a little off - but nothing drastic. Thoughts anyone?

>

> Tammy

>

[Guest guest]

and is,You guys are awesome.He hasn't really expressed much neuropathy. That actually sounds more like me : )He's never been a gut kid, has never been on vanco or flagyl and really doesn't present with yeast issues.His last OAT showed no growth of EColi and Lactobacillis. Otherwise things looked clean.He was on a mito cocktail for a good while but there's no difference either way with him off it.(is, I gave acetyl-l-carnitine another go. Belly aches again. So we know he just can't do that.)We've never seen a mito specialist as his FiGLu was only slightly off.He does have a

tendency to bite his nails so bad that it affects his fine motor skills - but that's a different story and it's getting much better.It's one of those things that make you go "hmmmm"It's probably due to being a toxic kid. But I know my father-in-law is strong as a bull yet never developedmuscles despite working in bridge construction for decades.Anyway, I'm so sorry to hear you are dealing with the yeast beast. ugh!Is oxalate an issue with your little guy?Tammy To: "mb12valtrex " <mb12valtrex > Sent: Saturday, August 11, 2012 11:58 PM Subject: Re: Re: Do we have a chiropractor here?

Thanks is for the ideas! For us, I wouldn't be surprised if it is bacterial/parasite related since I think my son got stronger last fall in his arms/hands while on the flagyl. But, like you i am worried/wondering about the flagyl itself causing this stuff. I remember my daughter telling me that her feet hurt to walk up the stairs last fall when taking it so that made me think it may be best to avoid flagyl for us now (of course, that could have been a 2year old phase too). On the mito, we just received our buccal swab results and they look ok. We also just got some results that Dr. Fran Kendall had requested we do and i don't see anything striking but maybe she will. And, yes Oliver is on Carnitine (probably needs more but it used to hurt his tummy), coq10

etc...but I haven't seen awhole

lot of progress from the mito cocktail (and i think it could cause more sensitivity issues for him too) so this may be another clue that it is gut related.....more investigating.... To: mb12valtrex Sent: Saturday, August 11, 2012 11:45 PM Subject: Re: Do we have a

chiropractor here?

Tammy,

I agree with regarding peripheral neuropathy. Was your son ever on flagyl or oral vancomycin? Or do you think that he may have some gut dysbiosis still? If he has gut dysbiosis like some anaerobic overgrowth, that could give him peripheral neuropathy like symptoms that affects hands and feet more. In my son's case, he is not in sports like your kid but whatever activities he is involved in, I notice that whenever I see clostridia, I see that he starts avoiding touching things properly with his hands but rather touches them with his wrists. At the same time, his grip on objects ranging from pencil to cup or other heavier objects gets really affected. I have seen this episodic several times. He had these symptoms in june and once I had him on oral vancomycin, he did very well. But then it could also be the flagyl or vancomycin as both have been implicated in peripheral neuropathy. As long as I remember, your son was never a gut kid and I don't

remember reading anything about antimicrobials in your posts. But if his B-complex supplementation is already good then may be look into running an oat and see if it is a metabolic issue or it is some bacterial overgrowth. Like your son , my son presses a lot on his fingers and hands as if he is having paresthesias. But it is episodic and for him comes with the antiyeast treatments. Another thing that has worked for my son is reducing inflammation mainly by 5MTHF. Two months ago, my son was miserable with some pain in his hands and now he is coloring really well as his grip on the pencils has improved. Mito issue can definitely be a culprit too but I thought that he is already on the cocktail?? Have you ever seen a mito specialist? We are still waiting for an appointment for the last 6 months. Sometimes, even though the child is already on carnitine, riboflavin, coQ10 and other stuff, changing the type of carnitine helps. The tremors that he has,

make it seem more like a metabolic issue.

Sorry if I confused you even more. I thing I am dealing with brain yeast myself as my son's yeast flare is wearing me out )

is

>

> Hi Tammy,

> Â

> My son has muscle weakness in arms (can't do the monkey bars either) but he has more problems with sports probably due to motor planning issues. One doctor told us lead can cause upper body weakness. Not sure about the trembling. Does anyone have peripheral neuropathy in the family? I just found out my father and all of his siblings have this (my father was very sporty too) so would like to know if this is an issue for my son. My son has also started squeezing/cupping his hands as if they hurt so I have been wondering if this could be peripheral neuropathy related or some other inflammation issue.....anyway just a thought for you.

> Â

> Let us know if you find out the cause!

> Â

> all the best,

> megan

>

>

> ________________________________

>

> To: mailto:mb12valtrex%40yahoogroups.com

> Sent: Saturday, August 11, 2012 9:29 PM

> Subject: Do we have a chiropractor here?

>

>

>

> Â

>

>

>

> Interesting: my son (10 yr. old PDD) works out daily. Total jock. football, baseball. soccer - you name it, he'll try it. Anyhow, he's been working out regularly for a couple of years now yet he still can't manage a single full push-up and struggles still with things like the monkey bars. It's not really a big deal. He's very active and gets plenty of great exercise. But I wonder why this is? What's interesting also is when he wakes up and does the morning "yawn and stretch", his muscles tremble like crazy. It's the damdest thing. Same thing happens to his dad and grandpa. I figure a chiro might know, but does anyone have any ideas? Work-outs are also kicking his ars this season (we watch diet, hydration, electrolites...) I wonder if a growth spurt would have something to do with this? I know we have much bigger fish to fry here, but I wonder if could be mito related? His FiGLu was a little off - but nothing drastic. Thoughts anyone?

>

> Tammy

>

[Guest guest]

Hi Tammy,

By changing the type of l-carnitine I didn't mean acetyl-l carnitine. There is

prescription carnitine liquid available and some kids do better on that than the

regular carnitine. Since he has a positive family history, may be a genetic eval

will help. Your son is overall doing well so it does not make me think of any

muscular dystrophies or glycogen storage diseases. But since his grandfather

also has a similar history, and if it is affecting his life, I would suggest

getting a neurological/musculoskeletal/sports medicine eval for him to rule out

any muscular pathologies. Trust your instincts. Some may say " why you are

concerned about push ups " but I completely understand your worry and you are

doing the right thing by digging more into it.

I am not sure about the oxalate issue but he is already on a low oxalate diet.

Sometimes the symptoms of oxalate and yeast can overlap but right now it is

definitely yeast flare with valtrex use and he is a bit better today.

Good luck

is

> >

> > Hi Tammy,

> >  

> > My son has muscle weakness in arms (can't do the monkey bars either) but he

has more problems with sports probably due to motor planning issues.  One

doctor told us lead can cause upper body weakness.  Not sure about the

trembling.  Does anyone have peripheral neuropathy in the family?  I just

found out my father and all of his siblings have this (my father was very sporty

too) so would like to know if this is an issue for my son.  My son has also

started squeezing/cupping his hands as if they hurt so I have been wondering if

this could be peripheral neuropathy related or some other inflammation

issue.....anyway just a thought for you.

> >  

> > Let us know if you find out the cause!

> >  

> > all the best,

> > megan

> >

> >

> > ________________________________

> > From: " t.lynn28@ " <t.lynn28@>

> > To: mailto:mb12valtrex%40yahoogroups.com

> > Sent: Saturday, August 11, 2012 9:29 PM

> > Subject: Do we have a chiropractor here?

> >

> >

> >

> >  

> >

> >

> >

> > Interesting: my son (10 yr. old PDD) works out daily. Total jock. football,

baseball. soccer - you name it, he'll try it. Anyhow, he's been working out

regularly for a couple of years now yet he still can't manage a single full

push-up and struggles still with things like the monkey bars. It's not really a

big deal. He's very active and gets plenty of great exercise. But I wonder why

this is? What's interesting also is when he wakes up and does the morning " yawn

and stretch " , his muscles tremble like crazy. It's the damdest thing. Same

thing happens to his dad and grandpa. I figure a chiro might know, but does

anyone have any ideas? Work-outs are also kicking his ars this season (we watch

diet, hydration, electrolites...) I wonder if a growth spurt would have

something to do with this? I know we have much bigger fish to fry here, but I

wonder if could be mito related? His FiGLu was a little off - but nothing

drastic. Thoughts anyone?

> >

> > Tammy

> >

>

[Guest guest]

,

Because of the neuropathy associated with the use of flagyl and other meds, GI

specialists are recommending fecal transplant to get rid of gut dysbiosis once

and for all. The idea is that with probiotics, we are only providing aerobic

bacteria and a healthy gut contains some anaerobes which are good bugs in our

system. Dr Borody from Australia gave a presentation on the subject at the

Autism One conference this year. Dr Bradstreet has related info on his blog

also. I personally am not ready to even think about it as it is still too gross

for me. I do know that it has been used for critically ill patients with sever C

diff colitis in US also. If you want to read up on this, visit drbradstreet.org

is

> >

> > Hi Tammy,

> >  

> > My son has muscle weakness in arms (can't do the monkey bars either) but he

has more problems with sports probably due to motor planning issues.  One

doctor told us lead can cause upper body weakness.  Not sure about the

trembling.  Does anyone have peripheral neuropathy in the family?  I just

found out my father and all of his siblings have this (my father was very sporty

too) so would like to know if this is an issue for my son.  My son has also

started squeezing/cupping his hands as if they hurt so I have been wondering if

this could be peripheral neuropathy related or some other inflammation

issue.....anyway just a thought for you.

> >  

> > Let us know if you find out the cause!

> >  

> > all the best,

> > megan

> >

> >

> > ________________________________

> > From: " t.lynn28@ " <t.lynn28@>

> > To: mailto:mb12valtrex%40yahoogroups.com

> > Sent: Saturday, August 11, 2012 9:29 PM

> > Subject: Do we have a chiropractor here?

> >

> >

> >

> >  

> >

> >

> >

> > Interesting: my son (10 yr. old PDD) works out daily. Total jock. football,

baseball. soccer - you name it, he'll try it. Anyhow, he's been working out

regularly for a couple of years now yet he still can't manage a single full

push-up and struggles still with things like the monkey bars. It's not really a

big deal. He's very active and gets plenty of great exercise. But I wonder why

this is? What's interesting also is when he wakes up and does the morning " yawn

and stretch " , his muscles tremble like crazy. It's the damdest thing. Same

thing happens to his dad and grandpa. I figure a chiro might know, but does

anyone have any ideas? Work-outs are also kicking his ars this season (we watch

diet, hydration, electrolites...) I wonder if a growth spurt would have

something to do with this? I know we have much bigger fish to fry here, but I

wonder if could be mito related? His FiGLu was a little off - but nothing

drastic. Thoughts anyone?

> >

> > Tammy

> >

>

[Guest guest]

....fecal transplant... I'm not grossed out, just got me thinking, whatever

works. Isn't it interesting how our sensitivities change as we delve further

into research? I always try to go back in time and visualize how people lived in

the past, and how we are " too clean " now and too riddled with chemicals. Have

you ever seen a calf being born? When I did I was wondering how can she survive

this fecal onslaught, won't she get sick with e. coli or something? Now I guess

that this is the point of transferring all the gut flora and building,

strengthening of the immune system.

Micro biome is constantly shaped by our close contacts with people.

My next thought is " So we should seek out really healthy, virile men and be

dirty with them " but that would be probably bordering on inappropriate. Funny

though. Am I on the road to explaining infidelity? Ok I should stop before I get

kicked out.

Dorote

> > >

> > > Hi Tammy,

> > >  

> > > My son has muscle weakness in arms (can't do the monkey bars either) but

he has more problems with sports probably due to motor planning issues.  One

doctor told us lead can cause upper body weakness.  Not sure about the

trembling.  Does anyone have peripheral neuropathy in the family?  I just

found out my father and all of his siblings have this (my father was very sporty

too) so would like to know if this is an issue for my son.  My son has also

started squeezing/cupping his hands as if they hurt so I have been wondering if

this could be peripheral neuropathy related or some other inflammation

issue.....anyway just a thought for you.

> > >  

> > > Let us know if you find out the cause!

> > >  

> > > all the best,

> > > megan

> > >

> > >

> > > ________________________________

> > > From: " t.lynn28@ " <t.lynn28@>

> > > To: mailto:mb12valtrex%40yahoogroups.com

> > > Sent: Saturday, August 11, 2012 9:29 PM

> > > Subject: Do we have a chiropractor here?

> > >

> > >

> > >

> > >  

> > >

> > >

> > >

> > > Interesting: my son (10 yr. old PDD) works out daily. Total jock.

football, baseball. soccer - you name it, he'll try it. Anyhow, he's been

working out regularly for a couple of years now yet he still can't manage a

single full push-up and struggles still with things like the monkey bars. It's

not really a big deal. He's very active and gets plenty of great exercise. But

I wonder why this is? What's interesting also is when he wakes up and does the

morning " yawn and stretch " , his muscles tremble like crazy. It's the damdest

thing. Same thing happens to his dad and grandpa. I figure a chiro might know,

but does anyone have any ideas? Work-outs are also kicking his ars this season

(we watch diet, hydration, electrolites...) I wonder if a growth spurt would

have something to do with this? I know we have much bigger fish to fry here,

but I wonder if could be mito related? His FiGLu was a little off - but nothing

drastic. Thoughts anyone?

> > >

> > > Tammy

> > >

> >

>