Re: bed wetting

[Guest guest]

--- Liz wrote:

> Trisha, good to hear of your school nurse's success. I was a

school nurse for a while ( after DD1 was born & B4 DS1) but found it

very disheartening as the parents in 'my' schools did not seem

concerned about health issues regarding their children (v.poor

attendance for appointments,refferals etc. I did find working in

enuresis clinic very rewarding though, as many problems are quite

simple to sort out if you know how! Many people just don't realise

how common this problem is!>>>>>>>>>>.

I wonder if it varies from area to area on how " good " the parents

are. We have quite a small school and I always assumed that parents

attended things like this.

The old school nurse got shirty with me when I asked if it would be

OK if mum took my DS1 for his appointment when he " started " school

(this was in the June after he started. She was not impressed with

me even though my reason was 9 months pregnant and possibly not able

to get there as there was a strong posibility I would have been in

hospital (again). However I did make it but then she went off sick

for a year.

I will have to ask the new nurse if she has problems, she is so keen -

probably because she is new to the job!

Trisha

SAHM to 3 boys

[Guest guest]

Re: Bed wetting

--- Liz wrote:

> Trisha, good to hear of your school nurse's success. I was a

school nurse for a while ( after DD1 was born & B4 DS1) but found it

very disheartening as the parents in 'my' schools did not seem

concerned about health issues regarding their children (v.poor

attendance for appointments,refferals etc.

I wonder if it varies from area to area on how " good " the parents

are. We have quite a small school and I always assumed that parents

attended things like this.

The old school nurse got shirty with me when I asked if it would be

OK if mum took my DS1 for his appointment when he " started " school

However I did make it but then she went off sick for a year.

Trisha, Yes the area I worked in was a poor area of the city, with high

unemployment, and a larger than average proportion of ill health due to poor

diet, living conditions ets. There are a lot of initiatives in the area to

increase the uptake of health care but it can often feel like a losing battle

when people aren't as concerned about the issues effecting themselves and their

children as the health professionals looking from the outside are. My main

worries as a school nurse was the effect on the education of a child if they had

a hearing loss or visual impairment. Unfortunately,, in the area I worked in

employment rates were high therefore there was a general feeling of what is the

point of education if you can't get a job anyway! Therefore school was just a

place for kids to go for the day.

It also sounds as if your old school nurse was having some problems. Or maybe

she'd had a bad day!

Liz Nicholls

SAHM 4, 2, new babe Nov

Sheff Chair, PNSGL, Editor

[Guest guest]

Frequent urination and bed wetting is a symptom of PANDAS now called PANS. Could be caused by strep, lyme or myco plasma pneumonia. http://www.pandasnetwork.org/ and http://www.pandasresourcenetwork.org/ To: mb12valtrex ; Trying_Low_Oxalates ; enzymes Cc: enzymes Sent: Monday, October 8, 2012 9:49 PM Subject: bed wetting

Hi all,I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

[Guest guest]

Round worms are associated with bed wetting,my feeling is he is having peetox, my own son went through this when on certain antiparasite meds,what is you son on. When the worms die they release toxins ,yeast bacteria etc,have you binders on board,I found burber brillant hereLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 9 Oct 2012 04:22:48 -0700 (PDT)To: mb12valtrex <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: bed wetting My 7 year old does this.I fond it to be yeast To: mb12valtrex ; Trying_Low_Oxalates ; enzymes Cc: enzymes Sent: Monday, October 8, 2012 9:49 PM Subject: bed wetting Hi all,I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

[Guest guest]

My 7 year old does this.I fond it to be yeast To: mb12valtrex ; Trying_Low_Oxalates ; enzymes Cc: enzymes Sent: Monday, October 8, 2012 9:49 PM Subject: bed wetting

Hi all,I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

[Guest guest]

For my son, wetting his pants and frequent urination was PANDAS.

>

> Hi all,

> I really need some insight as to what is going on with my 6 year old son.  He

has been potty trained for years but right after starting kindergarten, he has

been wetting his pants throughout the day and wetting the bed at night.  He

still goes to the toilet in between wetting himself.  He has been checked for a

UTI and it is not that.  I can't help but wonder if it is anxiety over starting

kindergarten. I have tried talking to him to see if he is upset about anything

at school but he said everything is fine.  Has anyone experienced this with

their children and found a solution?

>

>

[Guest guest]

A few of you said that for you, wetting pants and bed wetting were signs of PANDAS or PANS. What are some other symptoms or signs of this condition? This wetting of his pants is very new. He is 6 and has never done this before. It has been about 3 or 4 weeks now that he has been doing this. He must go through about 5 or 6 pairs of pants a day! Does this symptom come on suddenly with PANDAS? Could it just be anxiety about school, although he does it even when at home. Subject: Re: bed wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS.

>

> Hi all,

> I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

>

>

[Guest guest]

To learn more about PANS go to http://www.pandasnetwork.org/ or http://www.pandasresourcenetwork.org/ The general symptoms are OCD, anxiety, separation anxiety, loss of handwriting, math and drawing skills, panic attacks, aggression, repetitive things like handwashing or lining things up, tics, trouble sleeping...... Do you know if he has recently been exposed to strep or pneumonia? Has he been sickk recently? The 3 bacterias known to cause PANS are lyme, strep and myco plasma pneumonia. To: mb12valtrex ; Trying_Low_Oxalates Sent: Tuesday, October 9, 2012 7:54 AM Subject: Re: Re: bed wetting

A few of you said that for you, wetting pants and bed wetting were signs of PANDAS or PANS. What are some other symptoms or signs of this condition? This wetting of his pants is very new. He is 6 and has never done this before. It has been about 3 or 4 weeks now that he has been doing this. He must go through about 5 or 6 pairs of pants a day! Does this symptom come on suddenly with PANDAS? Could it just be anxiety about school, although he does it even when at home. Subject: Re: bed

wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS.

>

> Hi all,

> I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

>

>

[Guest guest]

,Thank you for the websites and symptom information. I will definitely look onto this as being the problem for my son. Is your child better? What worked? A strange thing my son periodically gets is a small scab next to the inner part of his eye. Have you or anyone experienced this? This has been a mystery for a very long time. Subject: Re: bed

wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS.

>

> Hi all,

> I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

>

>

[Guest guest]

Caryn,What were some other symptoms of PANDAS for your son? Have you found anything that has helped him? Subject: Re: bed wettingTo: mb12valtrex Date: Tuesday, October 9, 2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS.

>

> Hi all,

> I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

>

>

[Guest guest]

, You need to find a good PANDAS doc near you. Most of the DAN docs are at least familar with PANS now so you could start there. What state are you in? The first line of treatment is a high dose long course of antibiotics ( azithromycin or augmentin). The antibiotics need to be given for several weeks and even months. If all symptoms do not resolve a steroid burst is tried (generally 5 days but a lnger trial may even be necessary) If these do not help then IVIG is

tried. Some kids can recover with one round of IVIG but for sever cases, like my son, IVIG may need to be used for a good year. To: mb12valtrex Sent: Tuesday, October 9, 2012 10:26 AM Subject: Re: Re: bed

wetting

,Thank you for the websites and symptom information. I will definitely look onto this as being the problem for my son. Is your child better? What worked? A strange thing my son periodically gets is a small scab next to the inner part of his eye. Have you or anyone experienced this? This has been a mystery for a very long time. Subject: Re: bed

wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS.

>

> Hi all,

> I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution?

>

>

[Guest guest]

Thanks, . I am in North Carolina. What tests are good tests to do first to see if PANDAS is the problem?Subject: Re: bed

wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS. > > Hi all, > I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution? > >

[Guest guest]

There are no tests for PANDAS at this time. You can run ASO/DNASE titers thru any lab but only 30% of the kids with PANDAS will have high titers. Dr Madeline Cunningham is coming out with a camkinase test that is supposed to be available in Jan 2013. You should find a good PANDAS doc though cause you need to find out what the trigger is........strep. myco p or lyme. My son has both strep and myco p ........some kids have one, others 2 and some all 3. The antibiotics will be different depending on what you have. You may want to consider traveling to see Dr Bouboulis in Darien CT. It will take several months to get an appt with him so you should book now and you could always cancel. If you do go to se him ask about the discount hotel rate at the Doubletree near him To:

mb12valtrex Sent: Tuesday, October 9, 2012 10:46 AM Subject: Re: Re: bed wetting

Thanks, . I am in North Carolina. What tests are good tests to do first to see if PANDAS is the problem?Subject: Re: bed

wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS. > > Hi all, > I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution? > >

[Guest guest]

Do you know of any good books I can get at the library about PANDAS? Is there anything I can read about peoples' experiences with PANDAS?Subject: Re: bed

wettingTo: mb12valtrex Date: Tuesday, October 9,

2012, 11:39 AM

For my son, wetting his pants and frequent urination was PANDAS. > > Hi all, > I really need some insight as to what is going on with my 6 year old son. He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. He still goes to the toilet in between wetting himself. He has been checked for a UTI and it is not that. I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Has anyone experienced this with their children and found a solution? > >

[Guest guest]

OCD, excessive urination, not wanting to leave the house, deterioration of hand

writing, math/number refusal, squinting/blinking/walking around with eyes closed

and hands out in front of him, moon walking, fear of bathing.

>

> >

>

> > Hi all,

>

> > I really need some insight as to what is going on with my 6 year old son.

 He has been potty trained for years but right after starting kindergarten, he

has been wetting his pants throughout the day and wetting the bed at night.  He

still goes to the toilet in between wetting himself.  He has been checked for a

UTI and it is not that.  I can't help but wonder if it is anxiety over starting

kindergarten. I have tried talking to him to see if he is upset about anything

at school but he said everything is fine.  Has anyone experienced this with

their children and found a solution?

>

> >

>

> >

>

[Guest guest]

And fear of animals and refusing to go to school.

>

> >

>

> > Hi all,

>

> > I really need some insight as to what is going on with my 6 year old son.

 He has been potty trained for years but right after starting kindergarten, he

has been wetting his pants throughout the day and wetting the bed at night.  He

still goes to the toilet in between wetting himself.  He has been checked for a

UTI and it is not that.  I can't help but wonder if it is anxiety over starting

kindergarten. I have tried talking to him to see if he is upset about anything

at school but he said everything is fine.  Has anyone experienced this with

their children and found a solution?

>

> >

>

> >

>

[Guest guest]

Caryn,Did your son ever have little scabs appear next to his inner eye from time to time?Subject: Re: bed wettingTo: mb12valtrex Date: Tuesday, October 9, 2012, 3:59 PM

And fear of animals and refusing to go to school.

>

> >

>

> > Hi all,

>

> > I really need some insight as to what is going on with my 6 year old son. Â He has been potty trained for years but right after starting kindergarten, he has been wetting his pants throughout the day and wetting the bed at night. Â He still goes to the toilet in between wetting himself. Â He has been checked for a UTI and it is not that. Â I can't help but wonder if it is anxiety over starting kindergarten. I have tried talking to him to see if he is upset about anything at school but he said everything is fine. Â Has anyone experienced this with their children and found a solution?

>

> >

>

> >

>