Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012 We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. RuthSent from my iPhone Hi everyone, I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012  Why would one have these titers checked? Is this infection common in ASD children? Do these infections affect our children's behavior? Should I request this to be done? Just trying to understand as I am having a hard time figuring out my son's behavior lately. TIA. Cristine Cristine RemboldWAHU mom to Sara, Grace, , , Margaretwww.all4my5kids.comwww.livetotalwellness.com/blessedmother (home office) (cell text) Healthy home. Healthy family. "TO ENHANCE THE LIVES OF THOSE WE TOUCH BY HELPING PEOPLE REACH THEIR GOALS" Re: High cmv and hhv6 titers - ???treatment options We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. Ruth Sent from my iPhone Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012 - yes it is important to check for these and yes they can absolutely affect behavior. There are many infections that can be old pathogenic and wreak havoc in the body. Some of those are Lyme, mycoplasmas (there are many types), strep (including ASO and antidnaseb), hhv6, EBV, CMV. I'm sure there are others but those are top of mind. RuthSent from my iPhone  Why would one have these titers checked? Is this infection common in ASD children? Do these infections affect our children's behavior? Should I request this to be done? Just trying to understand as I am having a hard time figuring out my son's behavior lately. TIA. Cristine Cristine RemboldWAHU mom to Sara, Grace, , , Margaretwww.all4my5kids.comwww.livetotalwellness.com/blessedmother (home office) (cell text) Healthy home. Healthy family. "TO ENHANCE THE LIVES OF THOSE WE TOUCH BY HELPING PEOPLE REACH THEIR GOALS" Re: High cmv and hhv6 titers - ???treatment options We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. Ruth Sent from my iPhone Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012 Ruth, Did you see high CMV titers in your kids also? I have read that valtrex has only limited efficacy against cmv but the other antivirals like gancyclovir are too toxic. I don't want to take the gcmaf route again and am willing to give valtrex a try. Oliverex is going to be difficult for my kid because of his phenol issue. Has anyone got any benefits purely from valtrex when used in a kid with high CMV titers? is > > > Hi everyone, > > > > I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you. > > > > Thanks > > is > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2012 Report Share Posted July 21, 2012 Thanks Ruth! I was wondering that if we are dealing with viruses here, why should I continue zithromax prophylaxis? He never tested positive for strep culture/titers but more importantly, I didn't see much improvement with zithromax. My son's mycoplasma IgM is negative but IgG is indeterminate so it means he is not immune to it. But I feel like we keep promoting more yeast with zithromax even if it is just the prophylactic dose and then yeast die off is horrible for my kid. It becomes a vicious cycle for him, antibiotic then yeast flare then antifungals and neuropathic pains and worsening of ocd and anxiety. I know some parents rotate naturals for prevention of bacterial infections. I am currently using diflucan and vancomycin - 2 weeks on 1 week off. Vancomycin keeps clostridia in check for my kid. Am I making a mistake by discontinuing the zithromax prophylaxis? Thanks is > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you. > > > > > > > > > > > > Thanks > > > > > > is > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2012 Report Share Posted July 22, 2012 Hi Ruth, I didn't think about the zithromax for lyme but it makes sense. I had a long appointment with my dan but didn't even get to all the test results since we had done so much blood work. I will talk to him soon for the valtrex prescription and will discuss lyme also. At the dan conference this year, sach boulardii was discussed a lot and was highly recommended for treatment and prevention of clostridia. But my dan mentioned something about it not being good for my kid and I always forget to ask him the reason. I will ask him this week and will let you know. We are getting the lactobacillus rhamnosus thru d-lactate custom probiotics. Thank you so much for your help Ruth! is > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you. > > > > > > > > > > > > > > > > Thanks > > > > > > > > is > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2012 Report Share Posted July 26, 2012 Hi Ruth, how old is your son and where do you get the generic valtrex? is, why would you not use GcMAF? Have you tried it? What results have you seen? I am thinking of trying GcMAF if I don't get an Rx for Valtrex soon. My son had high HHV6 and past CMV. He started writing, dancing and decreased spacing with Valtrex. I had it compounded with almond oil. Thanks, Sheila > > > > > > > > > > > > > > > > > Hi everyone, > > > > > > > > > > > > > > > > > > I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you. > > > > > > > > > > > > > > > > > > Thanks > > > > > > > > > is > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2012 Report Share Posted August 18, 2012 What is EBV and CMV??To: mb12valtrex From: dan-ruth-setlak@...Date: Fri, 20 Jul 2012 13:16:06 -0400Subject: Re: High cmv and hhv6 titers - ???treatment options - yes it is important to check for these and yes they can absolutely affect behavior. There are many infections that can be old pathogenic and wreak havoc in the body. Some of those are Lyme, mycoplasmas (there are many types), strep (including ASO and antidnaseb), hhv6, EBV, CMV. I'm sure there are others but those are top of mind. RuthSent from my iPhone Why would one have these titers checked? Is this infection common in ASD children? Do these infections affect our children's behavior? Should I request this to be done?Just trying to understand as I am having a hard time figuring out my son's behavior lately. TIA.Cristine Cristine RemboldWAHU mom to Sara, Grace, , , Margaretwww.all4my5kids.comwww.livetotalwellness.com/blessedmother (home office) (cell text) Healthy home. Healthy family. "TO ENHANCE THE LIVES OF THOSE WE TOUCH BY HELPING PEOPLE REACH THEIR GOALS" Re: High cmv and hhv6 titers - ???treatment options We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. RuthSent from my iPhone Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2012 Report Share Posted August 18, 2012 Epstein Barr virus and cytomegalovirus. Sent from my iPhone What is EBV and CMV??To: mb12valtrex From: dan-ruth-setlak@...Date: Fri, 20 Jul 2012 13:16:06 -0400Subject: Re: High cmv and hhv6 titers - ???treatment options - yes it is important to check for these and yes they can absolutely affect behavior. There are many infections that can be old pathogenic and wreak havoc in the body. Some of those are Lyme, mycoplasmas (there are many types), strep (including ASO and antidnaseb), hhv6, EBV, CMV. I'm sure there are others but those are top of mind. RuthSent from my iPhone  Why would one have these titers checked? Is this infection common in ASD children? Do these infections affect our children's behavior? Should I request this to be done? Just trying to understand as I am having a hard time figuring out my son's behavior lately. TIA. Cristine Cristine RemboldWAHU mom to Sara, Grace, , , Margaretwww.all4my5kids.comwww.livetotalwellness.com/blessedmother (home office) (cell text) Healthy home. Healthy family. "TO ENHANCE THE LIVES OF THOSE WE TOUCH BY HELPING PEOPLE REACH THEIR GOALS" Re: High cmv and hhv6 titers - ???treatment options We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. Ruth Sent from my iPhone Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2012 Report Share Posted August 20, 2012 Thanks Ruth,How do you test for that?IsabelTo: mb12valtrex From: dan-ruth-setlak@...Date: Sat, 18 Aug 2012 05:05:13 -0400Subject: Re: High cmv and hhv6 titers - ???treatment options Epstein Barr virus and cytomegalovirus. Sent from my iPhone What is EBV and CMV??To: mb12valtrex From: dan-ruth-setlak@...Date: Fri, 20 Jul 2012 13:16:06 -0400Subject: Re: High cmv and hhv6 titers - ???treatment options - yes it is important to check for these and yes they can absolutely affect behavior. There are many infections that can be old pathogenic and wreak havoc in the body. Some of those are Lyme, mycoplasmas (there are many types), strep (including ASO and antidnaseb), hhv6, EBV, CMV. I'm sure there are others but those are top of mind. RuthSent from my iPhone Why would one have these titers checked? Is this infection common in ASD children? Do these infections affect our children's behavior? Should I request this to be done?Just trying to understand as I am having a hard time figuring out my son's behavior lately. TIA.Cristine Cristine RemboldWAHU mom to Sara, Grace, , , Margaretwww.all4my5kids.comwww.livetotalwellness.com/blessedmother (home office) (cell text) Healthy home. Healthy family. "TO ENHANCE THE LIVES OF THOSE WE TOUCH BY HELPING PEOPLE REACH THEIR GOALS" Re: High cmv and hhv6 titers - ???treatment options We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. RuthSent from my iPhone Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2012 Report Share Posted August 20, 2012 It is a blood test. You will want to test both IgG and IgM. Sent from my iPhone Thanks Ruth,How do you test for that?IsabelTo: mb12valtrex From: dan-ruth-setlak@...Date: Sat, 18 Aug 2012 05:05:13 -0400Subject: Re: High cmv and hhv6 titers - ???treatment options Epstein Barr virus and cytomegalovirus. Sent from my iPhone What is EBV and CMV??To: mb12valtrex From: dan-ruth-setlak@...Date: Fri, 20 Jul 2012 13:16:06 -0400Subject: Re: High cmv and hhv6 titers - ???treatment options - yes it is important to check for these and yes they can absolutely affect behavior. There are many infections that can be old pathogenic and wreak havoc in the body. Some of those are Lyme, mycoplasmas (there are many types), strep (including ASO and antidnaseb), hhv6, EBV, CMV. I'm sure there are others but those are top of mind. RuthSent from my iPhone  Why would one have these titers checked? Is this infection common in ASD children? Do these infections affect our children's behavior? Should I request this to be done? Just trying to understand as I am having a hard time figuring out my son's behavior lately. TIA. Cristine Cristine RemboldWAHU mom to Sara, Grace, , , Margaretwww.all4my5kids.comwww.livetotalwellness.com/blessedmother (home office) (cell text) Healthy home. Healthy family. "TO ENHANCE THE LIVES OF THOSE WE TOUCH BY HELPING PEOPLE REACH THEIR GOALS" Re: High cmv and hhv6 titers - ???treatment options We do valtrex for all my kids. Only one is immune compromised. Oliverex is also a good thing. Homeopathy is another option. They have worked for us jn the past. Ruth Sent from my iPhone Hi everyone,I got high CMV titers on my son's bloodwork. His IgG is 10.1. He also has elevated hhv6. What are the treatment options for CMV? Valtrex is used by a lot of my friends here but it is mainly used for prevention of cmv in immunocompromised patients. What are the treatment options for CMV in our kids? I have heard of lysine but not sure if it will help. Will really appreciate any help that I can get from all of you.Thanksis Quote Link to comment Share on other sites More sharing options...
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