Guest guest Posted August 14, 2012 Report Share Posted August 14, 2012 I thought I would share an update. I have been waiting until gains have lasted a while before I shared. My son has been doing so well and has conquered nearly all his remaining issues in the last couple months. Both my sons were completely intolerant of salicylates and can now eat them with no problems. My youngest (ASD) has come so far over the years, but still dealt with anxiety, OCD behaviors, aggression, controlling behavior, and general trouble with mood. Here's what we did to help with those remianing issues: Yasko testing which helped us fine-tune his protocol. I HIGHLY recommend this testing - it is worth every dime spent! Ammonia support through limiting protein, yucca, and activated charcoal once or twice per week. Glutamate reduction (we were doing this already, but got even better about it.) B6 - this ended up being magical for my son, but genetically he can have trouble with it, so other factors had to be under control before we could supplement it. Methylation. This one was the key for salicylate sensitivity. We had been giving mb12 shots with folinic acid supplements to both my sons (one ASD, one NT but has methylation issues) for years, but I felt that they had reached a point where they weren't tolerating them as well as they should be. I removed the shots and folinic, but then we had a slow decline. Instead of going back on shots, we added hydroxy B12 drops and 5mthf drops. That was the ticket. We saw great improvement without the negatives with this combo. That has allowed both my sons to eat salicylates again. They have had apples, grapes, strawberries, tomato-based products, strawberry jelly, etc. I started slowly with fear and trepidation, but have been able to give them a fairly regular amount and have not had a problem yet. What a blessing!! I know this is what helped because it is the only change I made for my NT son. Yesterday, my youngest went to the dentist!! Only those of you who have children with severe medical anxiety can appreciate how awesome that is! He is seven and has never been for a cleaning and check-up because I just couldn't stomach the anxiety and tantrum and scene that would result. He went in just fine, told the hygenist that he was scared, and cooperated with everything beautifully! So much so, that I think the staff thought I was crazy for having been so nervous. Haha. He is not all the way there yet. He still has some anxiety about bugs or whatever, but he is doing better about telling us something bothers him and working through it rather than having an irrational meltdown. He is less disagreeable and does things the first time we ask without arguing. He doesn't have to be first at everything all the time anymore (a huge OCD thing for him for years!) Five or six weeks ago, his ATEC was a 22. Today it is a 7. Years ago, I can only imagine what it was. He was basically non-functional socially and emotionally. We have done a lot of helpful biomed over the last 5 years, but I feel like we are finally making progress on those last issues. Today is my birthday and I feel like I have been given such an awesome birthday gift this year! If you are having one of those really dark days today, I understand. I have had more than I can count over the last 5 years. I hope this message will encourage you to keep moving forward! Blessings, Cathy Quote Link to comment Share on other sites More sharing options...
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