Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Hi can anyone give advice on how to treat sore places on the head due to Erbitux. Mikes face and head are horrendous, chest arms and back are terrible spots but facial skin has changed out of all recognition, like lizard skin with spots and pustules. Although hair is short skin is far worse with open inflamed bumps and spots. Hes in a sorry state as cant lay down as pressure on head is very painful. This is only after 2 infusions next one due Monday but cant see him accepting it, in Spain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Oh Chriss, I am so sorry to hear that Mike is having such terrible reactions. The drug is working from what they say. I don't have any answers for you since I have no experence with this. Please call his doctor and se if they can prescribe something at once. Mike should not be suffering like this. My heart is with both of you. Ingrid > > Hi can anyone give advice on how to treat sore places on the head due to Erbitux. > > Mikes face and head are horrendous, chest arms and back are terrible spots but facial skin > has changed out of all recognition, like lizard skin with spots and pustules. > > Although hair is short skin is far worse with open inflamed bumps and spots. > > Hes in a sorry state as cant lay down as pressure on head is very painful. > > This is only after 2 infusions next one due Monday but cant see him accepting it, > > in Spain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Hi Chris. I empathize with Mike. I had terrible outbreaks on my scalp also. I did cut my hair very short. The spots ended up infected and I had to take antibiotics several times. The dr. held treatment one week and it helped. It seems that the first outbreak is the worst. The next one was not as bad. I know that is not comforting but it does get better. My scalp was so infected that I would wake up with blood all over my pillowcase. The spots opened as I moved my head while I slept. I also would have spots of blood on my shirt from the ones on my chest and back. The first outbreak my sister covered my head in calamine. It helped a bit. My face looked awful at the same time. The spots were very fragile and opened and bled easily. The nurses kept telling me to wear my spots with pride as it meant the treatment was working. I felt like a leper. Tell Mike to hang in there and maybe a week off would give them a chance to heal some. I know the beginning weeks of my erbitux treatment were awful. I honestly did not think I would make it through. It slowly got easier. You are both in my prayers. Jane > > > Hi can anyone give advice on how to treat sore places on the head due to Erbitux. > > Mikes face and head are horrendous, chest arms and back are terrible spots but facial skin > has changed out of all recognition, like lizard skin with spots and pustules. > > Although hair is short skin is far worse with open inflamed bumps and spots. > > Hes in a sorry state as cant lay down as pressure on head is very painful. > > This is only after 2 infusions next one due Monday but cant see him accepting it, > > in Spain > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Hi, Chris. I looked back a few messages and Jane wrote about the Erbitux rash. She says she had it and her scalp was infected, but it got better. Please talk with the doctor as soon as you can. I'm sure you will find something that helps him. ~Deb from KS >>>Jane wrote: I tried many things for the rash as I had it quite heavily. I found that caladryl or calamine helped a bit. I also tried Aveeno, gold bond cream, lamosil, powder and a few others. Nothing really helped. The rash on my back and chest did not usually itch though. I ended up shaving my hair to about an inch because my scalp kept getting infected. The nurse who headed the research dept. at the cancer center said she had heard of people dabbing the spots with head and shoulders. I did not try that one. It has been 6 weeks since I stopped erbitux and you can still see the spots although they have faded some. Erbitux did clear up the mets in my liver while I was on it. Now that I am off it I have the beginnings of one spot in my liver again. Good Luck. Both Mike and Phil are in my prayers. Jane chrischristoph wrote: Hi can anyone give advice on how to treat sore places on the head due to Erbitux. Mikes face and head are horrendous, chest arms and back are terrible spots but facial skin has changed out of all recognition, like lizard skin with spots and pustules. Although hair is short skin is far worse with open inflamed bumps and spots. Hes in a sorry state as cant lay down as pressure on head is very painful. This is only after 2 infusions next one due Monday but cant see him accepting it, in Spain --------------------------------- Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Walter, thank you for the links to help for the Erbitux rash. I hope the links stay up there so people in the future may read them. Good luck to you. Praying for everyone~ ~Deb from KS Walter Lawrence wrote: Sorry I made a mistake. The Links should be: http://www.fougera.com/products/index.asp http://www.cancercompass.com/message-board/message/all,1279,0.htm Walter Lawrence wrote: The rash is a form of acne. I used Triamcinolone Acetonide Cream USP,0.1%. You will need a script. Mine came in a 1lb jar. It also comes such as gels tubes etc. Walter Lawrence chrischristoph wrote: Hi can anyone give advice on how to treat sore places on the head due to Erbitux. Mikes face and head are horrendous, chest arms and back are terrible spots but facial skin has changed out of all recognition, like lizard skin with spots and pustules. Although hair is short skin is far worse with open inflamed bumps and spots. Hes in a sorry state as cant lay down as pressure on head is very painful. This is only after 2 infusions next one due Monday but cant see him accepting it, in Spain __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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