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>>>my port sticks out because I am thin. I'm lucky it doesn't bother me.

Nonnie

>>>

Same here. And mine is on the right side. The doc said he preferred the right

side because it is more of a 'straight shot' to the area of the heart he has to

get to.

I've had mine since February of 2004. My next checkup (Nov 2), if it is all

clear, I will ask how much longer I have to keep it.

nancy

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Joe is NOT THIN , and his port sticks out , looks like an alien pod is stuck

under there :)

His is on the left , near his collarbone, he doesnt have to worry about bra

straps but he does have issues with the seatbelt , he had to buy a seatbelt pad

..

Deb

wrote:

>>>my port sticks out because I am thin. I'm lucky it doesn't bother me.

Nonnie

>>>

Same here. And mine is on the right side. The doc said he preferred the right

side because it is more of a 'straight shot' to the area of the heart he has to

get to.

I've had mine since February of 2004. My next checkup (Nov 2), if it is all

clear, I will ask how much longer I have to keep it.

nancy

----------

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My port has been in for 17 months and is on the left side. I plan on leaving

it in for 6 months after I feel secure as it does not bother me at all. In

regard to the PET not being approved have you seen the data your hospital sent

to the insurance company to justify the PET. If not ask for it. With my

insurance CTs are automatically approved but PETs must be pre-approved. I forgot

to get a PET pre-approved this summer and it was denied. ONC was able to send

additional data and got it approved. I believe a good ONC can write enough to

satisfy the insurance company if they will take the time. Fight it- do not

just accept the first decision

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My port is also on the left, under my collar bone. It does not bother me, other

than psychologically. I so want it removed. I, like hope we can take it

out after my next review.

I am really upset now, because my PET scan that was done in April was denied. I

kept fighting it, but here goes another $5,000 bucks blown! My doctor ordered

another PET scan for next week. There is no way though. I simply cannot afford

it. He will not do a CT scan as he feels the PET scan offers superior

information.

Life! I will be working long hours once again, and so you may see me

infrequently. Jay

Re: ports

Joe is NOT THIN , and his port sticks out , looks like an alien pod is stuck

under there :)

His is on the left , near his collarbone, he doesnt have to worry about bra

straps but he does have issues with the seatbelt , he had to buy a seatbelt pad

..

Deb

wrote:

>>>my port sticks out because I am thin. I'm lucky it doesn't bother me.

Nonnie

>>>

Same here. And mine is on the right side. The doc said he preferred the right

side because it is more of a 'straight shot' to the area of the heart he has to

get to.

I've had mine since February of 2004. My next checkup (Nov 2), if it is all

clear, I will ask how much longer I have to keep it.

nancy

----------

Internal Virus Database is out-of-date.

Checked by AVG Anti-Virus.

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Dear Jay,

How oh so unfair these stupid people/burecrats are!! I had my port removed

because of the move. Will be a transplanted southwesterner soon.

Take care,

Karima

Re: ports

Joe is NOT THIN , and his port sticks out , looks like an alien pod is stuck

under there :)

His is on the left , near his collarbone, he doesnt have to worry about bra

straps but he does have issues with the seatbelt , he had to buy a seatbelt pad

..

Deb

wrote:

>>>my port sticks out because I am thin. I'm lucky it doesn't bother me.

Nonnie

>>>

Same here. And mine is on the right side. The doc said he preferred the

right side because it is more of a 'straight shot' to the area of the heart he

has to get to.

I've had mine since February of 2004. My next checkup (Nov 2), if it is all

clear, I will ask how much longer I have to keep it.

nancy

----------

Internal Virus Database is out-of-date.

Checked by AVG Anti-Virus.

Version: 7.0.344 / Virus Database: 267.11.9/116 - Release Date: 9/30/2005

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>>>My port is also on the left, under my collar bone. It does not bother me,

other than psychologically. I so want it removed. I, like hope we can

take it out after my next review.

>>>

Jay,

How long have you had your port?

And what is the difference in a PET scan or a MRI? Are they the same?

nancy

----------

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Jay, You can contact Patient Advocate and they will intervene and try

to talk to your insurance. You can contact them online and they will

call you back. I am in the process of letting them intervene for me

right now with my insurance company. They work as a mediator for you.

Try them and see if you can get better results with your insurace

company. Ingrid

> >>>my port sticks out because I am thin. I'm lucky it doesn't

bother me.

>

> Nonnie

> >>>

>

> Same here. And mine is on the right side. The doc said he

preferred the right side because it is more of a 'straight shot' to

the area of the heart he has to get to.

>

> I've had mine since February of 2004. My next checkup (Nov 2), if

it is all clear, I will ask how much longer I have to keep it.

>

> nancy

> ----------

>

> Internal Virus Database is out-of-date.

> Checked by AVG Anti-Virus.

> Version: 7.0.344 / Virus Database: 267.11.9/116 - Release Date:

9/30/2005

>

>

>

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Thanks for this information!! I will do this today! Do you have their website

address? Jay

Re: ports

Jay, You can contact Patient Advocate and they will intervene and try

to talk to your insurance. You can contact them online and they will

call you back. I am in the process of letting them intervene for me

right now with my insurance company. They work as a mediator for you.

Try them and see if you can get better results with your insurace

company. Ingrid

> >>>my port sticks out because I am thin. I'm lucky it doesn't

bother me.

>

> Nonnie

> >>>

>

> Same here. And mine is on the right side. The doc said he

preferred the right side because it is more of a 'straight shot' to

the area of the heart he has to get to.

>

> I've had mine since February of 2004. My next checkup (Nov 2), if

it is all clear, I will ask how much longer I have to keep it.

>

> nancy

> ----------

>

> Internal Virus Database is out-of-date.

> Checked by AVG Anti-Virus.

> Version: 7.0.344 / Virus Database: 267.11.9/116 - Release Date:

9/30/2005

>

>

>

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My port was installed about 9 months ago for a round of FOLFOX6. And I think

the PET scan is a computer enhanced image using the radioactive tracer they

inject into us which is laced with sugar. The sugar goes right to the cancer

cells and the radioactivity makes the cancer glow, and project onto the image.

MRI, is just Magnetic imaging and from what my doc tells me is not as good as a

CT or PET scan. Jay

Re: ports

>>>My port is also on the left, under my collar bone. It does not bother me,

other than psychologically. I so want it removed. I, like hope we can

take it out after my next review.

>>>

Jay,

How long have you had your port?

And what is the difference in a PET scan or a MRI? Are they the same?

nancy

----------

Internal Virus Database is out-of-date.

Checked by AVG Anti-Virus.

Version: 7.0.344 / Virus Database: 267.11.9/116 - Release Date: 9/30/2005

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>>>MRI, is just Magnetic imaging and from what my doc tells me is not as good as

a CT or PET scan. Jay

>>>

So if I'm going to fuss and holler for something, I should holler for a PET

scan, right? :)

I love Colorado. When I was growing up we usually spent my birthday in Estes

Park:)

nancy j

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PET scan is what my doctor recommends. He is a well rated doctor, and so thats

what he uses. And yes, CO is especially pretty this year. Jay ~ holler for

that PET... make sure your insurance will cover it though first!

Re: ports

>>>MRI, is just Magnetic imaging and from what my doc tells me is not as good

as a CT or PET scan. Jay

>>>

So if I'm going to fuss and holler for something, I should holler for a PET

scan, right? :)

I love Colorado. When I was growing up we usually spent my birthday in Estes

Park:)

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.344 / Virus Database: 267.11.14/127 - Release Date: 10/10/2005

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The web site for Patient Advocate is-- www.patientadvocate.org

Hope that link comes through. Ingrid

> > >>>my port sticks out because I am thin. I'm lucky it

doesn't

> bother me.

> >

> > Nonnie

> > >>>

> >

> > Same here. And mine is on the right side. The doc said he

> preferred the right side because it is more of a 'straight shot'

to

> the area of the heart he has to get to.

> >

> > I've had mine since February of 2004. My next checkup (Nov

2), if

> it is all clear, I will ask how much longer I have to keep it.

> >

> > nancy

> > ----------

> >

> > Internal Virus Database is out-of-date.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.344 / Virus Database: 267.11.9/116 - Release

Date:

> 9/30/2005

> >

> >

> >

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