Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Hi, I am new here. I do not have colon cancer, but my husband had colorectal cancer, stage 3, I think. It was almost 7 years ago. Thank God he is still with me. He has a colostomy for the rest of his life and still gets rashes, aches, pains and fatigue like when he was on the radiation and chemotherapy. He does not work anymore, and I support him. I am just lucky to still have him. They did not expect a cure I think, they mentioned remission, but then later talked about cure and used the word amazing. I still get very, very scared whenever he does not feel good and am afraid the cancer will come back. I feel like a sort of survivor myself, even though I never had cancer. I remember the late night trips to the ER when he hemorrhaged, the DVTs in his lungs from the tumor, the abscesses in the surgery site, and all the other complications, some of them very life threatening. I hope I do not sound selfish talking about myself and my reactions or feelings, I know some of you are fighting this disease, but sometimes I just get so darned scared the dam thing will come back and can't discuss it with him because I don't want to scare him, he's been through enough. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Great to hear from you Margaret. As a caregiver and having a wife who has been battling this disease I understand how you feel. Thanks for sharing your story with us. You are with friends here who understand your fears and we give each other our support and a shoulder to cry on. It is good news to hear how long you and your husband have come along.....your courage inspires us all. Larry and Janet Http://groups.yahoo.com/group/janetrgreen --- redmountainfarm wrote: > Hi, I am new here. I do not have colon cancer, but > my husband had > colorectal cancer, stage 3, I think. It was almost > 7 years ago. > Thank God he is still with me. He has a colostomy > for the rest of > his life and still gets rashes, aches, pains and > fatigue like when > he was on the radiation and chemotherapy. He does > not work anymore, > and I support him. I am just lucky to still have > him. They did not > expect a cure I think, they mentioned remission, but > then later > talked about cure and used the word amazing. I > still get very, very > scared whenever he does not feel good and am afraid > the cancer will > come back. I feel like a sort of survivor myself, > even though I > never had cancer. I remember the late night trips > to the ER when he > hemorrhaged, the DVTs in his lungs from the tumor, > the abscesses in > the surgery site, and all the other complications, > some of them very > life threatening. I hope I do not sound selfish > talking about > myself and my reactions or feelings, I know some of > you are fighting > this disease, but sometimes I just get so darned > scared the dam > thing will come back and can't discuss it with him > because I don't > want to scare him, he's been through enough. > > Margaret > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2005 Report Share Posted October 10, 2005 Hi, Margaret. Welcome to the group. Your story brought tears to my eyes, reading about the suffering that your husband has gone through. But you have been able to put that behind you and think about this moment. You are glad that your husband is still with you. Thank God he has struggled and he has pulled through. I hope that your husband gets regular checkups so that this can reassure you that he is ok. Take care and come here anytime you feel you want to talk. Anyone can rant and rave or say whatever they like. We know how you feel, even if we have not experienced exactly what you have been through. This is some kind of journey we are all taking together. We can keep each other company. ~Deb from Kansas redmountainfarm wrote: Hi, I am new here. I do not have colon cancer, but my husband had colorectal cancer, stage 3, I think. It was almost 7 years ago. Thank God he is still with me. He has a colostomy for the rest of his life and still gets rashes, aches, pains and fatigue like when he was on the radiation and chemotherapy. He does not work anymore, and I support him. I am just lucky to still have him. They did not expect a cure I think, they mentioned remission, but then later talked about cure and used the word amazing. I still get very, very scared whenever he does not feel good and am afraid the cancer will come back. I feel like a sort of survivor myself, even though I never had cancer. I remember the late night trips to the ER when he hemorrhaged, the DVTs in his lungs from the tumor, the abscesses in the surgery site, and all the other complications, some of them very life threatening. I hope I do not sound selfish talking about myself and my reactions or feelings, I know some of you are fighting this disease, but sometimes I just get so darned scared the dam thing will come back and can't discuss it with him because I don't want to scare him, he's been through enough. Margaret --------------------------------- Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Hello Margaret, Welcome to our little group. Please feel at home here. I had colon cancer 8 years ago with resection and chemotherapy. I thought I was done with it and put up with the required doctor's visits, through an ever changing assignment to different oncologists. I had all the required colonoscopies, but no other tests to see if it was coming back. The aches and pains and hospital visits continued after the chemo was done but the thinking was that maybe post surgical adhesions. One pain that started a year ago kept getting worse and I eventually asked the doctor to try to fix it. It was a pain in the left leg resembling sciatica. It turned out to be caused by a large tumor in my pelvis area that was pressing on my sciatic nerve and shutting off the flow from my left kidney. I've had a stint installed to allow the kidney to flow but the chest exray;, prior to stintinstallation, showed damage to my lungs. A CAT scan showed that I have many small tumors all over both lungs. Now I am on chemo again with a very poor prognosis. My point to telling you all this is that if we had caught the tumor earlier it might not have spread to my lungs and some sort of more aggressive treatment for the tumor would have been possible. Now it's too late and I don't have many more years to live. I don't know how aggressive you have to be with the doctors but at least you should try to investigate the cause of all the little aches and pains enough to satisfy yourself that it is not caused by returning cancer. If it comes back, it will likely return at the site of the surgery first. Take care and good luck. Len --- redmountainfarm wrote: --------------------------------- Hi, I am new here. I do not have colon cancer, but my husband had colorectal cancer, stage 3, I think. It was almost 7 years ago. Thank God he is still with me. He has a colostomy for the rest of his life and still gets rashes, aches, pains and fatigue like when he was on the radiation and chemotherapy. He does not work anymore, and I support him. I am just lucky to still have him. They did not expect a cure I think, they mentioned remission, but then later talked about cure and used the word amazing. I still get very, very scared whenever he does not feel good and am afraid the cancer will come back. I feel like a sort of survivor myself, even though I never had cancer. I remember the late night trips to the ER when he hemorrhaged, the DVTs in his lungs from the tumor, the abscesses in the surgery site, and all the other complications, some of them very life threatening. I hope I do not sound selfish talking about myself and my reactions or feelings, I know some of you are fighting this disease, but sometimes I just get so darned scared the dam thing will come back and can't discuss it with him because I don't want to scare him, he's been through enough. Margaret For an an extensive collection of colon cancer related links go to http://groups.yahoo.com/group/colon_cancer_support/links or http://ourworld.compuserve.com/homepages/suthercon/ yahoo.com/group/colon_cancer_support/links or http://ourworld.compuserve.com/homepages/suthercon/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 Hi Margaret, Welcome!!! Glad you joined us. Not all here are fighting colon cancer. Some are care givers like you. You are not being selfish in being worried all the time. All care givers here can tell you they feel the same way. Here we talk of our fears and also of fun things. We talk of how we are feeling and what we are thinking. In the real world most people who have not gone through this do NOT understand what we are feeling. Like what you are feeling now. Only ones who have gone through this understand this. SO PLEASE!!!!! Please come here and post and talk with us. You have gone through this and would be very knowledgable about a lot of the treatments. Tell us how you are feeling and talk about and get it off your chest. That is what we all do here. So hope to hear from you soon. Ingrid > > Hi, I am new here. I do not have colon cancer, but my husband had > colorectal cancer, stage 3, I think. It was almost 7 years ago. > Thank God he is still with me. He has a colostomy for the rest of > his life and still gets rashes, aches, pains and fatigue like when > he was on the radiation and chemotherapy. He does not work anymore, > and I support him. I am just lucky to still have him. They did not > expect a cure I think, they mentioned remission, but then later > talked about cure and used the word amazing. I still get very, very > scared whenever he does not feel good and am afraid the cancer will > come back. I feel like a sort of survivor myself, even though I > never had cancer. I remember the late night trips to the ER when he > hemorrhaged, the DVTs in his lungs from the tumor, the abscesses in > the surgery site, and all the other complications, some of them very > life threatening. I hope I do not sound selfish talking about > myself and my reactions or feelings, I know some of you are fighting > this disease, but sometimes I just get so darned scared the dam > thing will come back and can't discuss it with him because I don't > want to scare him, he's been through enough. > > Margaret > Quote Link to comment Share on other sites More sharing options...
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