Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 I had folfox 6 and went throught with minimal side effects. Even for me the liver enzymes were elevated and peaked about halfway through. With the surgery and chemo your liver has been through a lot. I was worried my liver enzymes were cancer related but luckily they were not. It is not unreasonable for liver images not to be clear at this time. CEA is a tumor marker for colon cancer. All tumors do not give off CEA but liver tumors are much more likely to give of CEA than not. Your CEA history should help. Nothing is that easy as folfox 6 can elevate CEA in some people. Some studies have shown large incteases in CEA during folfox 6 which later came back to normal with no cancer. Bottom line is with no CEA increase no reason to have bad thoughts. If CEA is up it may be from cancer, folfox or some other benign cause. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Hi : My CEA levels have never been elevated, even before surgery. This is my CT CONTRAST SCAN report (together with a PET scan). I am concerned that it is so unclear that they cannot tell if I still have cancer in the liver. Shouldn't my pictures from the scan be clearer now? In a message dated 10/12/2005 4:33:22 PM Pacific Standard Time, asorr55555@... writes: I had folfox 6 and went throught with minimal side effects. Even for me the liver enzymes were elevated and peaked about halfway through. With the surgery and chemo your liver has been through a lot. I was worried my liver enzymes were cancer related but luckily they were not. It is not unreasonable for liver images not to be clear at this time. CEA is a tumor marker for colon cancer. All tumors do not give off CEA but liver tumors are much more likely to give of CEA than not. Your CEA history should help. Nothing is that easy as folfox 6 can elevate CEA in some people. Some studies have shown large incteases in CEA during folfox 6 which later came back to normal with no cancer. Bottom line is with no CEA increase no reason to have bad thoughts. If CEA is up it may be from cancer, folfox or some other benign cause. [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Far from being a doc but do a lot of research and with a technical background read tons of abstracts. I would be unhappy the contrast CT along with the PET did not give an absolute answer but not all bad. Using the half full theory the best scans cannot tell you that you have a problem. Unfortunately with no elevated CEA and the fact that CTs and PETs are damaging to the body you may have to wait a while for definite answers. I hate to say that as I am not a good waiter and typically demand answers now. As a side note- My wife and I talked with some friends tonight. The man had colon cancer five years ago. Skipped colonoscopy last year and this year has a problem. Has 5 cm mass and after CT and PET does not know what the problem is. The reason he does not know is he did not ask. He does not know his CEA level. said doc said something about chemo but did not know what kind of chemo he was talking about. Local surgeon who is not board certified. People - get a good board certified surgeon and try to keep up with what is happening. I made a lot of imput to my treatment plan and insist on when and what blood tests and scans are done. As individuals we can track and graph our data when docs do not have time to monitor things that close. I love my onc but I watch everything he does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 In a message dated 10/12/2005 8:08:54 PM Eastern Standard Time, asorr55555@... writes: I love my onc but I watch everything he does. Very good advice.... Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 , I too had problems with my Pet and Cat scans. They are so vague and did not show the tumor I had in scar tissue. Which was found by accident because of an emergency surgery to undo scar tissue that had twisted my intestine and caused a blochage. Yet it caused the surgeon to operate on my right lung for a nodule that ended up being non cancerous. I find the scans to be way to vague. Is it not fustrating??? Ingrid > > > Hi : > > My CEA levels have never been elevated, even before surgery. This is my CT > CONTRAST SCAN report (together with a PET scan). I am concerned that it is > so unclear that they cannot tell if I still have cancer in the liver. > Shouldn't my pictures from the scan be clearer now? > > > In a message dated 10/12/2005 4:33:22 PM Pacific Standard Time, > asorr55555@a... writes: > > I had folfox 6 and went throught with minimal side effects. Even for me the > > liver enzymes were elevated and peaked about halfway through. With the > surgery > and chemo your liver has been through a lot. I was worried my liver enzymes > were cancer related but luckily they were not. It is not unreasonable for > liver images not to be clear at this time. CEA is a tumor marker for colon > cancer. All tumors do not give off CEA but liver tumors are much more > likely to > give of CEA than not. Your CEA history should help. Nothing is that easy as > folfox 6 can elevate CEA in some people. Some studies have shown large > incteases > in CEA during folfox 6 which later came back to normal with no cancer. > Bottom line is with no CEA increase no reason to have bad thoughts. If CEA > is up > it may be from cancer, folfox or some other benign cause. > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 As I said in my previous post (I read the answer to your note beofre I read the note), my PET showed a similar story. The surgeon was totally confident that it was the healing of the surgical site. FWIW Marty On 10/13/2005 12:51:53 AM, colon_cancer_support wrote: > Hi everyone: > > I need your opinion on how concerned I should be about my recent > scans. I am reading the report now of my CT scan wtih intravenous > contrast. Here is the language in the report that concerns me: > > " Poorly marginated and poorly defined soft tissue along the posterior > surface of the right lobe of the liver adjacent to the surgical site > is noted. This is not seen with certainty on either comparison study > and is histologically indeterminate. Differential considerations > include recurrent/residual tumor, postinflammatory change, or > postsuregical change. Further followup will be necessary. " > > My colon and liver resection were done May 18, 2005. They removed one > 3.9 cm. tumor from the liver and I was told they got everything. I > had an abscess on the liver that put me back into the hospital for Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Marty: The fact that you had a similar showing on your Pet scan is helpful. I am so worried about this. I can feel the stress in my body. It is the fight or flight adrenalin surge that is going through me. Last night, I took a sleeping pill at 1:30 to get to sleep. I am really frightened that this liver of mine hasn't healed and cannot be seen clearly in the Pet. Have you had a clear liver scan? In a message dated 10/13/2005 9:25:53 AM Pacific Standard Time, grogclan@... writes: As I said in my previous post (I read the answer to your note beofre I read the note), my PET showed a similar story. The surgeon was totally confident that it was the healing of the surgical site. FWIW Marty On 10/13/2005 12:51:53 AM, colon_cancer_support wrote: > Hi everyone: > > I need your opinion on how concerned I should be about my recent > scans. I am reading the report now of my CT scan wtih intravenous > contrast. Here is the language in the report that concerns me: > > " Poorly marginated and poorly defined soft tissue along the posterior > surface of the right lobe of the liver adjacent to the surgical site > is noted. This is not seen with certainty on either comparison study > and is histologically indeterminate. Differential considerations > include recurrent/residual tumor, postinflammatory change, or > postsuregical change. Further followup will be necessary. " > > My colon and liver resection were done May 18, 2005. They removed one > 3.9 cm. tumor from the liver and I was told they got everything. I > had an abscess on the liver that put me back into the hospital for Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 No clear scan, but the docs say " NED " The PET works by the uptake of glucose (sugar), which is increased in rapoidly growing cells. This is the situation in a healing wound, like where they cut out a chunk of our liver. The fact that your doc called it good news is what's important, no? Try and relax, without digging TOO deep. (easier said than done).... And come to Israel!!! (You are smarter than your son) Marty On 10/13/2005 10:30:32 PM, colon_cancer_support wrote: > Marty: > The fact that you had a similar showing on your Pet scan is helpful. I am > > so worried about this. I can feel the stress in my body. It is the fight > or > flight adrenalin surge that is going through me. Last night, I took a > sleeping pill at 1:30 to get to sleep. I am really frightened that this > liver of > mine hasn't healed and cannot be seen clearly in the Pet. Have you had a > clear liver scan? > > > In a message dated 10/13/2005 9:25:53 AM Pacific Standard Time, > grogclan@... writes: > > As I said in my previous post (I read the answer to your note beofre I > read Quote Link to comment Share on other sites More sharing options...
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