Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Hi, . Welcome to the group. Sorry I don't know about the radiation, because my husband has only had one treatment and no side effects yet. Just wanted to say good luck to and she is very lucky to have a sister like you to look out for her. God bless. ~Deb from KS maryhohman wrote: Hi - My name is and my sister, , was diagnosed with Stage III (two lymph nodes, no obvious mets) colorectal cancer in June of this year. She is 46 years old and is probably the healthiest people I know, so it was quite a shock for us to learn that she has this disease. She had surgery to remove the tumor and some colon/rectum in July and she just completed her 4th chemo session (5-FU, Leucovorin, and Oxaliplatin every two weeks.) She has a few weeks off of chemo before she starts her 5 week radiation and 5-FU treatment. I was wondering what experience people have had during the radiation treatment. I know everyone experiences these things little differently, but I was hoping to get a handle on what to expect for her. This group offers such great support, and I'm thankful that you're here! --------------------------------- Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Hi , Welcome to our group. I do not know anything about the radiation so cannot answer your quesions. There will be others here who will anser you on this. I just wanted to welcome you and ask you to post often and let us know how is doing. How is she tolerating the chemo? Is she feeling alright? Have added her to my Prayers. Ingrid > > Hi - > My name is and my sister, , was diagnosed with Stage III > (two lymph nodes, no obvious mets) colorectal cancer in June of this > year. She is 46 years old and is probably the healthiest people I > know, so it was quite a shock for us to learn that she has this > disease. She had surgery to remove the tumor and some colon/rectum in > July and she just completed her 4th chemo session (5-FU, Leucovorin, > and Oxaliplatin every two weeks.) She has a few weeks off of chemo > before she starts her 5 week radiation and 5-FU treatment. I was > wondering what experience people have had during the radiation > treatment. I know everyone experiences these things little > differently, but I was hoping to get a handle on what to expect for > her. This group offers such great support, and I'm thankful that > you're here! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 >>>>>every two weeks.) She has a few weeks off of chemo > before she starts her 5 week radiation and 5-FU treatment. I was > wondering what experience people have had during the radiation > treatment. >>>>> Hi , Welcome to the group. I am a relative newcomer, caretaker to husband with stage III rectal cancer. Bill just had the 15th of 28 radiation treatments today. He also takes Xeloda (oral chemo) twice daily. In his words the first two weeks were a piece of cake. He has had very minor nausea one time and mild fatigue until this week. He says now he just feels 'knocked out' by the treatment and today he came home and went to bed! This is a man who has never ever went to bed in the daytime so I know how exhausted he is. He has also began losing his appetite the past two days. His weight loss has been four pounds a week and he has been eating huge amounts until yesterday. I also make big shakes of protein power, half & half, fruit, and sometimes peanut butter. Today he tried to eat but just didn't manage much at all. He also drinks the commercial 'shakes' but they are now making him nauseated. He has some hair thinning but not much. His main discomfort is the feeling of burning inside the rectal area and now has cramping which he says is quite painful with each bowel movement which is many many times day and night. Last night he started sweating heavily. So as he completes the third week, the side effects of radiation are beginning to show up. This may be entirely different from what someone else will experience but so far he has followed right along the time-frame and symptoms we were told to expect. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Hi Sorry you’re here but Welcome. I live in Washington as well in Langley up on Whidbey Island I work full time in Oak Harbor on the Navy base I was diagnosed in 06, My last TLC was 39% about three months ago. I am one of the weird ones that doesn’t need o2 my sats stay up in the 90s I was on Prednisone up to 80 mg and decided it was not for me so am going off and am down to 4 mg. I was going to UW at first, now I am going to a pulmo doc in Mt Vernon. I am looking for a new Doc hard to find one that knows IPF. There are many people here that live with PF and live well. Take care Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Subject: IntroductionTo: Breathe-Support Date: Monday, July 20, 2009, 10:40 AM Hello IPF Ggroup!I'm so glad to find this support group for those living with pulmonary fibrosis. I was just diagnosed in May of this year and am still dealing with shock and fear. I am a 53 year old single mother of 3 adult children, 2 of them I am still supporting through college and they are just as terrified as I am. I live in the beautiful state of Washington and work full time, my job is administrative and sedentary, so hopefully I'll be able to continue to work for a long time. I live alone with my dog and cat, so I need the support and encouragement of others who understand what I am going through. I went to the doctors in May for coughing and breathlessness that I had been experiencing for almost a year. I thought I might have COPD and just needed to quit smoking. They did a chest x-ray, then a cat scan, then a high resolution cat scan and diagnosed IPF. I was referred to a pulmonary specialist doctor, had a breathing test and then a bronchoscopy confirming IPF. The doctor says I'm already at a moderate-severe stage of the disease with honeycombing present. My TLC is 49%. Three years ago, I went to the doctors for coughing and breathlessness. They did a chest x-ray and diagnosed me with pneumonia and sent me home with an antibiotic. My pulmonary doctor said that x-ray showed visible signs of IPF and I should have been followed up. So, I guess I've been living with this disease for about 3 years without treatment, lots of time for it to grow. The good news is that my inflammation is low, so the growth is slow. He started me on Prednisone, Azathioprine, and Acetylcsteine and feels positive the medicines will stop any further growth of scarring. The medicines are powerful drugs with many side effects and I was scared to take them the first week, but then I was more scared to not take them. I am starting to deal with this a little better each day. I have so many questions and thoughts racing through my mind, but just wanted to start by asking you all for any encouraging thoughts you might have for me. Thanks, worth Quote Link to comment Share on other sites More sharing options...
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