RE: Anyone develop trigeminal neuraligia after getting into chelation??

[Guest guest]

Hi Jada,

don't know if it's mercury related but I do know that this one has a good record

of pain relief in homoeopathy,

Gail

In frequent-dose-chelation , paxlforme@...

I can't say for sure if this is related to my chelation or not. All Ican say is

I never had it before chelation. It began last fall(sept-ish). At first I

thought it was a toothache. That had gottenreally bad. As in affected the whole

side of my face. I would getthese bouts of pain, unbearable that started about

jaw joint level andran down the side of my face, through my upper teeth, lower

teethright to the front of my mouth, chin. Only on the right side. I'd haveweeks

without this pain. Then out of the blue it starts back up again.I have read

horrible things about the treatment for this, mainlydrugs, and sometimes surgery

to ablate the nerve, so it's numb. Anyway, I do remember Andy mentioning

poisoning of the third cranialnerve in the face. I am also reading this happens

with demyelinationof the nerve covering. (as in MS or other nerve diseases). I

amwondering if maybe mercury could cause damage to this nerve, but whywould it

only become a problem now? In the past year, after chelatinga year already?This

is also called tic delaroux for those who may be familiar withthat name. My

mother had this same thing happen off an on for months,finally it went away. I

have had the help of a chiropractor, he saidthe nerve is being pinched off for

some reason and he fixes myneck/jaw etc. This helps calm things down, but it

comes back. Has anyone else had this? Did you find a way to get rid of it?

It'snot something you want to have forever, I can tell you that. Way morepainful

that childbirth to me. I already had the dentist x ray the teeth on the upper

side, becauseat first I thought a tooth might be the trigger. He said there

werenot abscesses. It's also ironic that I started a round today. I had the

twinges thepast few days that usually mean, I am going to have an attack of

this.Sure enough...Well anyway...thanks for any information anyone might have...

_________________________________________________________________

Search for local singles online @ Lavalife - Click here

http://a.ninemsn.com.au/b.aspx?URL=http%3A%2F%2Flavalife9%2Eninemsn%2Ecom%2Eau%2\

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[Guest guest]

> I would get

> these bouts of pain, unbearable that started about jaw joint level and

> ran down the side of my face, through my upper teeth, lower teeth

> right to the front of my mouth, chin. Only on the right side. I'd have

> weeks without this pain. Then out of the blue it starts back up again.

Hi,

It might be a simple trigger point in the jaw muscles (masseter, temporalis)

that a chiropractor, physio, craniosacral therapist that is adept with work

inside the mouth might help.

Dry needling of the trigger points can sometime provide dramatic relief.

Chelation induces adrenal stress which activates the jaw stress response

(called the Reticular Activating System).

So that may be the link with rounds.

It could of course be what you have mention, but I would tend towards

trigger points and bite alignment first.

DeanSA

[Guest guest]

Jada.

Don't know, but ...

You are sure that there is no amalgam left, right?

I am asking only because the only cases of semi/permanent nerve damage I've

seen around chelation has been related to improper protocol - wrong dosing

schedule, or chelating with mercury, sometimes unsuspected, still in the mouth.

It sounds painful -

Dave.

------------------

Posted by: " Jada " paxlforme@... paxlforme

Fri May 16, 2008 5:55 pm (PDT)

I can't say for sure if this is related to my chelation or not. All I

can say is I never had it before chelation. It began last fall

(sept-ish). At first I thought it was a toothache. That had gotten

really bad. As in affected the whole side of my face. I would get

these bouts of pain, unbearable that started about jaw joint level and

ran down the side of my face, through my upper teeth, lower teeth

right to the front of my mouth, chin. Only on the right side. I'd have

weeks without this pain. Then out of the blue it starts back up again.

I have read horrible things about the treatment for this, mainly

drugs, and sometimes surgery to ablate the nerve, so it's numb.

Anyway, I do remember Andy mentioning poisoning of the third cranial

nerve in the face. I am also reading this happens with demyelination

of the nerve covering. (as in MS or other nerve diseases). I am

wondering if maybe mercury could cause damage to this nerve, but why

would it only become a problem now? In the past year, after chelating

a year already?

This is also called tic delaroux for those who may be familiar with

that name. My mother had this same thing happen off an on for months,

finally it went away. I have had the help of a chiropractor, he said

the nerve is being pinched off for some reason and he fixes my

neck/jaw etc. This helps calm things down, but it comes back.

Has anyone else had this? Did you find a way to get rid of it? It's

not something you want to have forever, I can tell you that. Way more

painful that childbirth to me.

I already had the dentist x ray the teeth on the upper side, because

at first I thought a tooth might be the trigger. He said there were

not abscesses.

It's also ironic that I started a round today. I had the twinges the

past few days that usually mean, I am going to have an attack of this.

Sure enough...

Well anyway...thanks for any information anyone might have...

[Guest guest]

I had similar problems when my symptoms were at their worst. For me,

it was particularly the third branch of the cranial nerve. That whole

part of my face and head is the center of my mercury problems.

I had MRIs before I found out about mercury. Nothing showed up. One

Nuero doc wanted to give me drugs too. I didn't take them. Chelation

has been the only cure for me. Strong painkillers didn't help much. I

had chiro work too, which only helped things for a few days.

It was a terrible pain though, with electric jolts through my cheek

and upper jaw that make you want to kill yourself.

I am pretty sure it is caused by mercury induced demyelination. I had

a lot of medical mercury exposure to my eyes and sinuses and soon

after all those facial areas started having problems.

Try to cope through the pain and chelate. Its was one of the first

things that eased up for me. I still have some inflammation in that

part of my head still aggravating me, but I can live a pretty normal

day now.

>

> I can't say for sure if this is related to my chelation or not. All I

> can say is I never had it before chelation. It began last fall

> (sept-ish). At first I thought it was a toothache. That had gotten

> really bad. As in affected the whole side of my face. I would get

> these bouts of pain, unbearable that started about jaw joint level and

> ran down the side of my face, through my upper teeth, lower teeth

> right to the front of my mouth, chin. Only on the right side. I'd have

> weeks without this pain. Then out of the blue it starts back up again.

> I have read horrible things about the treatment for this, mainly

> drugs, and sometimes surgery to ablate the nerve, so it's numb.

> Anyway, I do remember Andy mentioning poisoning of the third cranial

> nerve in the face. I am also reading this happens with demyelination

> of the nerve covering. (as in MS or other nerve diseases). I am

> wondering if maybe mercury could cause damage to this nerve, but why

> would it only become a problem now? In the past year, after chelating

> a year already?

>

> This is also called tic delaroux for those who may be familiar with

> that name. My mother had this same thing happen off an on for months,

> finally it went away. I have had the help of a chiropractor, he said

> the nerve is being pinched off for some reason and he fixes my

> neck/jaw etc. This helps calm things down, but it comes back.

>

> Has anyone else had this? Did you find a way to get rid of it? It's

> not something you want to have forever, I can tell you that. Way more

> painful that childbirth to me.

> I already had the dentist x ray the teeth on the upper side, because

> at first I thought a tooth might be the trigger. He said there were

> not abscesses.

>

> It's also ironic that I started a round today. I had the twinges the

> past few days that usually mean, I am going to have an attack of this.

> Sure enough...

>

> Well anyway...thanks for any information anyone might have...

>

[Guest guest]

Jada

my husband has this - you have my sympathies. I have seen at first

hand how painful it is. During an attack, which can last for 2-3 weeks

before it recedes, he ceases to function - can't work, eat, talk,

drink. Anything triggers the pain. He takes a combination of

Neurontin and Keppra - a new drug which seems to control the pain

better. About 11 years ago he had an operation which would supposedly

cure the TN - microvascular decompression - which was fairly major

brain surgery a few weeks after my first daughter was born. This

separated the offending blood vessel from the nerve (the idea being

that the pulsing of the blood vessel irritated the nerve) with a teflon

bridge. Despite that, the pain came back a year later, negating that

theory, then. We have noticed that he gets an attack when he is

particularly stressed at work, and wonder whether this could be a

trigger for you?

We are not sure what the original cause of pain was in my husband's

case, and he can't quite remember the order of events. He had

toothache, or was it already TN pain? Anyway, he went to the dentist,

who crowned the tooth, but the pain continued, and it is possible that

the drilling or mercury vapour release triggered the TN pain, if it

wasn't TN pain before. He went back when the pain didn't go away, and

she ended up extracting the tooth. The pain remained throughout and he

was then referred to a neurologist, who ran tests for MS. He tested

negative then and 3 years ago, but his vision has recently

deteriorated, and I am wondering again. He has a mouthful of

amalgams....

You can control the pain with drugs, but these come with heavy side

effects. I would say continuing chelation is your best bet, but I

think there is a lot in what says, about being allergic to

mercury, and needing to dose without symptoms. Obviously excellent

nutrition and supplementation would be important, but I am sure you're

doing that already :-))

Best

Nicola

-- In frequent-dose-chelation , " Jada "

[Guest guest]

If I had a bad bite, bad tmj....would this be very likely factor?? I

know I have both.

Funny you mention " trigger point " in the jaw muscle. I found that

sometimes if I put my thumb in the back of my mouth by the jaw (the

place where dentist like to give shots) and press, and hold, it can

help stop it or reduce it.

>

>

> Hi,

> It might be a simple trigger point in the jaw muscles (masseter,

temporalis)

> that a chiropractor, physio, craniosacral therapist that is adept

with work

> inside the mouth might help.

> Dry needling of the trigger points can sometime provide dramatic relief.

> Chelation induces adrenal stress which activates the jaw stress

response

> (called the Reticular Activating System).

> So that may be the link with rounds.

> It could of course be what you have mention, but I would tend towards

> trigger points and bite alignment first.

> DeanSA

>

[Guest guest]

What rememdy?? I have some already for other things, and I am willing

to try anything...other than the emergency room.

>

> Hi Jada,

>

> don't know if it's mercury related but I do know that this one has a

good record of pain relief in homoeopathy,

>

> Gail

>

>

> In frequent-dose-chelation , paxlforme@...

>

> I can't say for sure if this is related to my chelation or not. All

Ican say is I never had it before chelation. It began last

fall(sept-ish). At first I thought it was a toothache. That had

gottenreally bad. As in affected the whole side of my face. I would

getthese bouts of pain, unbearable that started about jaw joint level

andran down the side of my face, through my upper teeth, lower

teethright to the front of my mouth, chin. Only on the right side. I'd

haveweeks without this pain. Then out of the blue it starts back up

again.I have read horrible things about the treatment for this,

mainlydrugs, and sometimes surgery to ablate the nerve, so it's numb.

Anyway, I do remember Andy mentioning poisoning of the third

cranialnerve in the face. I am also reading this happens with

demyelinationof the nerve covering. (as in MS or other nerve

diseases). I amwondering if maybe mercury could cause damage to this

nerve, but whywould it only become a problem now? In the past year,

after chelatinga year already?This is also called tic delaroux for

those who may be familiar withthat name. My mother had this same thing

happen off an on for months,finally it went away. I have had the help

of a chiropractor, he saidthe nerve is being pinched off for some

reason and he fixes myneck/jaw etc. This helps calm things down, but

it comes back. Has anyone else had this? Did you find a way to get rid

of it? It'snot something you want to have forever, I can tell you

that. Way morepainful that childbirth to me. I already had the dentist

x ray the teeth on the upper side, becauseat first I thought a tooth

might be the trigger. He said there werenot abscesses. It's also

ironic that I started a round today. I had the twinges thepast few

days that usually mean, I am going to have an attack of this.Sure

enough...Well anyway...thanks for any information anyone might have...

>

>

>

>

>

>

> _________________________________________________________________

> Search for local singles online @ Lavalife - Click here

>

http://a.ninemsn.com.au/b.aspx?URL=http%3A%2F%2Flavalife9%2Eninemsn%2Ecom%2Eau%2\

Fclickthru%2Fclickthru%2Eact%3Fid%3Dninemsn%26context%3Dan99%26locale%3Den%5FAU%\

26a%3D30290 & _t=764581033 & _r=email_taglines_Search_OCT07 & _m=EXT

>

>

[Guest guest]

> If I had a bad bite, bad tmj....would this be very likely factor?? I

> know I have both.

Yes, the most likely factor of all.

> Funny you mention " trigger point " in the jaw muscle. I found that

> sometimes if I put my thumb in the back of my mouth by the jaw (the

> place where dentist like to give shots) and press, and hold, it can

> help stop it or reduce it.

Then you have confirmed that your pain is referred and treating that trigger

point will removed it.

You can use castor oil packs to soften the mucles and work on the trigger

points yourself.

Where the dentist is usually giving the shot is the near the masseter

muscle.

Also, the lateral pterygoid muscle often referrs as you state (sor can

cavitations).

You need to locate someone that knows how to do craniosacral work in the

mouth, and preferable is also a physio or chiro.

You can searh for them here: http://www.iahp.com/pages/search/index.php

DeanSA

[Guest guest]

Gosh, Jan, sorry you're having such trouble. I believe Arnica is a homeopathic

medicine for pain relief.

You could also google " homeopathic pain relievers " and come up with others.

Sure hope you feel better.

Re: Anyone develop trigeminal neuraligia

after getting into chelation??

What rememdy?? I have some already for other things, and I am willing

to try anything...other than the emergency room.

>

> Hi Jada,

>

> don't know if it's mercury related but I do know that this one has a

good record of pain relief in homoeopathy,

>

> Gail

>

>

> In frequent-dose-chelation , paxlforme@...

>

> I can't say for sure if this is related to my chelation or not. All

Ican say is I never had it before chelation. It began last

fall(sept-ish). At first I thought it was a toothache. That had

gottenreally bad. As in affected the whole side of my face. I would

getthese bouts of pain, unbearable that started about jaw joint level

andran down the side of my face, through my upper teeth, lower

teethright to the front of my mouth, chin. Only on the right side. I'd

haveweeks without this pain. Then out of the blue it starts back up

again.I have read horrible things about the treatment for this,

mainlydrugs, and sometimes surgery to ablate the nerve, so it's numb.

Anyway, I do remember Andy mentioning poisoning of the third

cranialnerve in the face. I am also reading this happens with

demyelinationof the nerve covering. (as in MS or other nerve

diseases). I amwondering if maybe mercury could cause damage to this

nerve, but whywould it only become a problem now? In the past year,

after chelatinga year already?This is also called tic delaroux for

those who may be familiar withthat name. My mother had this same thing

happen off an on for months,finally it went away. I have had the help

of a chiropractor, he saidthe nerve is being pinched off for some

reason and he fixes myneck/jaw etc. This helps calm things down, but

it comes back. Has anyone else had this? Did you find a way to get rid

of it? It'snot something you want to have forever, I can tell you

that. Way morepainful that childbirth to me. I already had the dentist

x ray the teeth on the upper side, becauseat first I thought a tooth

might be the trigger. He said there werenot abscesses. It's also

ironic that I started a round today. I had the twinges thepast few

days that usually mean, I am going to have an attack of this.Sure

enough...Well anyway...thanks for any information anyone might have...

>

>

>

>

[Guest guest]

Dave, it's probably the worse pain I have ever felt.

I had all amalgam removed by a very good Huggins dentist. I have only

used Andy's protocol. Beginning at 12.5mg of dmsa for 16 months. Then

I added 5mg of ala (after round 14, it was all I could tolerate). Then

slowly I was able to tolerate the 5mg of ala for the entire round. In

the fall I increased only the dmsa to 25mg, kept the ala at 12.5mg. I

was not having any symptoms on rounds, but no progress either.

Currently on 25mg dmsa/15mg ala. (Although this problem began before

the increase). I only do a three day round once a month. Dosing every

3 in the day, and 4 at night. All I can say is I had way more fillings

than most to begin with. 14 teeth, some with multiple amalgams. No

root canals every, no other dental work. So no metal in mouth after

removal in 2006.

I also note that these attacks happen anytime. It can be weeks without

a round and it still happens. So it's not happening on a round.

-- In frequent-dose-chelation , Dave - AM & FDC Posts

wrote:

>

> Jada.

>

> Don't know, but ...

>

> You are sure that there is no amalgam left, right?

>

> I am asking only because the only cases of semi/permanent nerve

damage I've

> seen around chelation has been related to improper protocol - wrong

dosing

> schedule, or chelating with mercury, sometimes unsuspected, still in

the mouth.

>

> It sounds painful -

> Dave.

>

> ------------------

>

>

[Guest guest]

I have read what neuro's use to treat this. Scary indeed. I am

allergic to neurotin...sadly. Most antiepileptics actually.

I so know what he is going through. It's incapacitating. And yes, I

think the amalgams have a lot to with it. I know my mom had an attack

of this coincidentally after getting two amalgams replaced improperly.

I am sorry your hubby had to lose a tooth to find out it had nothing

to do with the tooth. I was led to think this too. I thought it was

this one tooth, but I contacted my Huggins dentist and she said, not

likely, have my bite adjusted first before consenting to removal. So I

ignored the dentist who wanted to root canal it, even though the x ray

was normal. But I read it's very common for people to go through

losing half the teeth on that side with no relief. Same with the surgery.

I have a great chiro helping me. He adjusted my occiput and tmj which

relieves symptoms. It takes a few days, because the nerve is all

swollen now. I can even feel that one side of my cheek is swollen a

bit, and the muscle feels roppey inside when I push on the pressure

points.

Yes, supplementing, eating well. Will be looking for more sustenance

for nerves!

>

> Jada

>

> my husband has this - you have my sympathies. I have seen at first

> hand how painful it is. During an attack, which can last for 2-3 weeks

> before it recedes, he ceases to function - can't work, eat, talk,

> drink. Anything triggers the pain. He takes a combination of

> Neurontin and Keppra - a new drug which seems to control the pain

> better. About 11 years ago he had an operation which would supposedly

> cure the TN - microvascular decompression - which was fairly major

> brain surgery a few weeks after my first daughter was born. This

> separated the offending blood vessel from the nerve (the idea being

> that the pulsing of the blood vessel irritated the nerve) with a teflon

> bridge. Despite that, the pain came back a year later, negating that

> theory, then. We have noticed that he gets an attack when he is

> particularly stressed at work, and wonder whether this could be a

> trigger for you?

>

> We are not sure what the original cause of pain was in my husband's

> case, and he can't quite remember the order of events. He had

> toothache, or was it already TN pain? Anyway, he went to the dentist,

> who crowned the tooth, but the pain continued, and it is possible that

> the drilling or mercury vapour release triggered the TN pain, if it

> wasn't TN pain before. He went back when the pain didn't go away, and

> she ended up extracting the tooth. The pain remained throughout and he

> was then referred to a neurologist, who ran tests for MS. He tested

> negative then and 3 years ago, but his vision has recently

> deteriorated, and I am wondering again. He has a mouthful of

> amalgams....

>

> You can control the pain with drugs, but these come with heavy side

> effects. I would say continuing chelation is your best bet, but I

> think there is a lot in what says, about being allergic to

> mercury, and needing to dose without symptoms. Obviously excellent

> nutrition and supplementation would be important, but I am sure you're

> doing that already :-))

>

> Best

>

> Nicola

>

>

>

>

>

> -- In frequent-dose-chelation , " Jada "

>

[Guest guest]

-I have been eating that one. Sadly it hasn't helped, but it can't

hurt either. It's good for pain and swelling.

-- In frequent-dose-chelation , wrote:

>

> Gosh, Jan, sorry you're having such trouble. I believe Arnica is a

homeopathic medicine for pain relief.

>

> You could also google " homeopathic pain relievers " and come up with

others.

>

> Sure hope you feel better.

>

>

>

>

[Guest guest]

I found this book on trigger points useful sometimes - it shows you

the trigger points for referred pain & explains how to access/feel

them.

http://www.amazon.com/Trigger-Point-Therapy-Workbook-Self-Treatment/dp/157224375\

9

I got it from the library but I think you might be able to get what

you're looking for by using Amazon's search-inside-the-book feature.

Jay

> If I had a bad bite, bad tmj....would this be very likely factor?? I

> know I have both.

> Funny you mention " trigger point " in the jaw muscle. I found that

> sometimes if I put my thumb in the back of my mouth by the jaw (the

> place where dentist like to give shots) and press, and hold, it can

> help stop it or reduce it.

[Guest guest]

>

> -I have been eating that one (arnica). Sadly it hasn't helped, but it

can't

> hurt either. It's good for pain and swelling.

Actually homoeopathic medicines are not always harmless. Like anything

else, if taken to excess you can get problems. A lot of the symptoms in

the homeopathic materia medicas come from people setting out to discover

all the symptoms that a remedy can cause and they did this by taking the

remedy until it caused symptoms. What something can cause it can cure

and visa versa. That seems to hold true even when taking large doses of

supplements - after a while on the megadoses the symptoms that the

supplement fixed can come back and will go away again when the

supplement dose is lowered.

So some of the things that might happen with repeated doses of arnica

taken when it's not the best remedy for the problem are: irritablity,

feeling bruised all over, flu-like symptoms, the bed will feel too hard

when you try to sleep, fear of being approached, and you may tell people

there is nothing wrong with you even though they can see there is. And

you need to exercise caution when you have surgery - taking it

beforehand is possibly associated with prolonged bleeding times during

the operation - but it is one of the best things to take afterwards to

speed healing because it does help with pain and swelling like you said.

It's a bit like understanding low-dose chelation - the right doses at

the right times are healing, but taken too high and in the wrong time

frame the same drugs can cause damage.

The other thing I wanted to mention was around trading symptoms - I have

a friend who suffered trigeminal neuralgia - she took a remedy for it

and it got better - but she got hayfever symptoms back - when we talked

about what to take for her hayfever she said 'it's funny, but the

neuralgia only started after I took a remedy that cured my hayfever a

couple of years ago " . You do see that symptom trading/return pattern

happen quite a lot. And that makes sense when you think about how the

immune system acts - if you suppress symptoms instead of curing them,

particularly discharges and skin reactions, you push the

illness/bacteria/virus/fungus deeper into the body and just come up with

a different set of symptoms that indicate a deeper level of disease.

When you're really suppressed you don't even get symptoms of colds and

stuff that other people around you seem to be getting. When you're

getting stronger you start catching colds or having hayfever or getting

skin rashes - it's your body fighting the pathogens instead of just

remaining in a passive invaded state.

And on a personal note, I really value this group. I stopped getting my

fillings relpaced a few years ago because I developed a chronic jaw pain

(I used homoeopathic Symphytum to manage it) and other problems, but

after reading this group for a couple of months I'm trying again using

more of the nutritional support and other recommendations. I've just got

back from the dentist this morning and now I'm down to one filling left

to replace - that comes out in a month - yay!

Gail

[Guest guest]

-Not to worry, I educated myself before using any remedies. So I know

not to eat the whole bottle. My holistic doctor told us to try a

remedy that we felt fit the situation, if nothing happens in 15

minutes you may try a second dose. If nothing, then probably not the

right remedy. Usually I refer to my homeopath book or remedy finder.

We are using 12x remedies. But this is information that everyone

should be aware of. I didn't meant to make light of it or make it

sound like it was absolutely benign. Sorry, if that impression came

out. I also don't have any symptoms related to using too much arnica.

I think I had 2 pillules twice, 12x twice.

Glad to hear your doing better with amalgam removal. This is all hard

for all of us.

-- In frequent-dose-chelation , " Gail "

wrote:

>Actually homoeopathic medicines are not always harmless. Like anything

>