Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 HI Jada, > Dave, it's probably the worse pain I have ever felt. I have heard about how painful this is - trigeminal neuralgia has been called the " suicide disease " . So try to hang in there and have confidence that you can get through this. This is about as bad as it can get - try and hang in there. > I had all amalgam removed by a very good Huggins > dentist. I have only > used Andy's protocol. Beginning at 12.5mg of dmsa > for 16 months. Then > I added 5mg of ala (after round 14, it was all I > could tolerate). Then > slowly I was able to tolerate the 5mg of ala for the > entire round. In > the fall I increased only the dmsa to 25mg, kept the > ala at 12.5mg. I > was not having any symptoms on rounds, but no > progress either. Those dosages seem kind of high, at least from my point of view. If the trigeminal neuraligia increased during this time, I would suspect that this might be chelation related. From what I have heard about ALA I think that might be particularly suspect. > Currently on 25mg dmsa/15mg ala. (Although this > problem began before > the increase). I only do a three day round once a > month. Dosing every > 3 in the day, and 4 at night. This seems like a relatively limited schedule of chelation. I wonder whether more frequent chelation at much smaller doses might be better. All I can say is I had > way more fillings > than most to begin with. 14 teeth, some with > multiple amalgams. No > root canals every, no other dental work. So no metal > in mouth after > removal in 2006. I have heard that cavitations contain highly neurotoxic material and are often found in association with neuralgia. There are some detailed studies on this one the Melisa site. People with cavitations can have trouble with chelation. Once the cavitations get into the nerve areas you can have this kind of trouble. If it was me I would look into this. I have had one cavitation treated and am putting of the others for now. This would be my best guess about your problem. > I also note that these attacks happen anytime. It > can be weeks without > a round and it still happens. So it's not happening > on a round. It is also possible that you are toxic or allergic enough that this neuralgia has been set off and that you will have to chelate most of the mercury in your system before it subsides. I do think it might make sense to try a lower-dose (and perhaps more frequent schedule). I think it might also be wise to cut out the ALA. Definitely trying different things for long periods to see if you can calm your nerves down might be a good idea. I usually feel better on rounds and when I get sick it is because of too much chelation, but often the sickness comes long after the rounds. > > -- In frequent-dose-chelation , Dave > - AM & FDC Posts > wrote: > > > > Jada. > > > > Don't know, but ... > > > > You are sure that there is no amalgam left, right? > > > > I am asking only because the only cases of > semi/permanent nerve > damage I've > > seen around chelation has been related to improper > protocol - wrong > dosing > > schedule, or chelating with mercury, sometimes > unsuspected, still in > the mouth. > > > > It sounds painful - > > Dave. > > > > ------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 -Thank you for the insight. All very good point. I do have two cavitations but they are on the opposite side. Hmm?? I know i need to fix them, but money is not allowing it right now. I also have two toxic kids, with their own set of health problems. It's on my list though... I am hanging in there. Was tempted to go to ER last night, but I just kept my thumb on that pressure point half the night and braved through it. Today, it's less intense. But still tingly, achy, touchy. Being very careful...eating soft foods. I emailed Andy about this, he said he will reply in a few days on the group because he has talked with many people who have come down with this. So hoping he knows something too. I spend a long time on 12.5mg of dmsa. I went almost two years and had plateaued for months before increasing. While I see no other effects...like you said. There's no harm in taking it down just in case. I don't do rounds as often as I should because it causes some big female problems. Sorry, guys don't want to hear about that stuff. So I have found doing more rounds than that...its' working. Not to mention with the lung problems (bronchitis, asthma etc) it seems often I am sick...so I don't chelate then either. All I know is something was set off, between the bronchitis and this....grrr.... -- In frequent-dose-chelation , Sherratt wrote: > > HI Jada, > > > Dave, it's probably the worse pain I have ever felt. > > I have heard about how painful this is - trigeminal > neuralgia has been called the " suicide disease " . So > try to hang in there and have confidence that you can > get through this. This is about as bad as it can get > - try and hang in there. > > > I had all amalgam removed by a very good Huggins > > dentist. I have only > > used Andy's protocol. Beginning at 12.5mg of dmsa > > for 16 months. Then > > I added 5mg of ala (after round 14, it was all I > > could tolerate). Then > > slowly I was able to tolerate the 5mg of ala for the > > entire round. In > > the fall I increased only the dmsa to 25mg, kept the > > ala at 12.5mg. I > > was not having any symptoms on rounds, but no > > progress either. > > Those dosages seem kind of high, at least from my > point of view. If the trigeminal neuraligia increased > during this time, I would suspect that this might be > chelation related. From what I have heard about ALA I > think that might be particularly suspect. > > > Currently on 25mg dmsa/15mg ala. (Although this > > problem began before > > the increase). I only do a three day round once a > > month. Dosing every > > 3 in the day, and 4 at night. > > This seems like a relatively limited schedule of > chelation. I wonder whether more frequent chelation > at much smaller doses might be better. > > All I can say is I had > > way more fillings > > than most to begin with. 14 teeth, some with > > multiple amalgams. No > > root canals every, no other dental work. So no metal > > in mouth after > > removal in 2006. > > I have heard that cavitations contain highly > neurotoxic material and are often found in association > with neuralgia. There are some detailed studies on > this one the Melisa site. People with cavitations can > have trouble with chelation. Once the cavitations get > into the nerve areas you can have this kind of > trouble. If it was me I would look into this. I have > had one cavitation treated and am putting of the > others for now. This would be my best guess about > your problem. > > > I also note that these attacks happen anytime. It > > can be weeks without > > a round and it still happens. So it's not happening > > on a round. > > It is also possible that you are toxic or allergic > enough that this neuralgia has been set off and that > you will have to chelate most of the mercury in your > system before it subsides. I do think it might make > sense to try a lower-dose (and perhaps more frequent > schedule). I think it might also be wise to cut out > the ALA. Definitely trying different things for long > periods to see if you can calm your nerves down might > be a good idea. > > I usually feel better on rounds and when I get sick it > is because of too much chelation, but often the > sickness comes long after the rounds. > > > > > Quote Link to comment Share on other sites More sharing options...
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