Re: Anyone develop trigeminal neuraligia after getting into chelatio

May 18, 2008

I have the same issue. My doc is treating it with a combination of

cranial sacral work, adjustments inside my mouth (not fun) and

homeopathic arnica. I just break the ampoule into my mouth, swish it

around for a few minutes, and swallow. It's not gone yet but is

improving. I hope you get some relief soon.

in Switzerland

May 19, 2008

Jada. It sounds like you are doing everything right with chelation, at least

as far as I can tell, and that exposures have been removed. Any way you can

chelate more at a lower dose? Remember, if you half the dose, you half the

symptoms, but only divide the amount of mercury you remove by (1/sqrt(2)). So,

if you half the dose and chelate twice as much, then the amount of mercury you

remove will go up by 2*(1/sqrt(2)) ~= 1.4, an increase of 40%. It looks to me

that if you half the dose, it might decrease symptoms enough so that you might

be able to chelate even 3 times as much.

It also sounds like you get some relief from things that involve bodywork of

one sort or another.

So, perhaps I might suggest yoga. I've been doing it for 20 years. I've had

FM, but I wasn't even aware of it until close the the moment it went away,

because the yoga kept it under control. I also have TMJ which is much improved

through various techniques, yoga being one of the more important.

In the acute phases, perhaps you might also consider acupuncture. I've found

it to be very good for the immediate pain, when I've had both jaw and back

problems. (I've done various kinds of chiropractic also, which helped but was

not very effective for acute pain.)

Dave.

-----------

Posted by: " Jada " paxlforme@... paxlforme

Sat May 17, 2008 7:20 pm (PDT)

I have read what neuro's use to treat this. Scary indeed. I am

allergic to neurotin...sadly. Most antiepileptics actually.

I so know what he is going through. It's incapacitating. And yes, I

think the amalgams have a lot to with it. I know my mom had an attack

of this coincidentally after getting two amalgams replaced improperly.

I am sorry your hubby had to lose a tooth to find out it had nothing

to do with the tooth. I was led to think this too. I thought it was

this one tooth, but I contacted my Huggins dentist and she said, not

likely, have my bite adjusted first before consenting to removal. So I

ignored the dentist who wanted to root canal it, even though the x ray

was normal. But I read it's very common for people to go through

losing half the teeth on that side with no relief. Same with the surgery.

I have a great chiro helping me. He adjusted my occiput and tmj which

relieves symptoms. It takes a few days, because the nerve is all

swollen now. I can even feel that one side of my cheek is swollen a

bit, and the muscle feels roppey inside when I push on the pressure

points.

Yes, supplementing, eating well. Will be looking for more sustenance

for nerves!

--------------

Re: Anyone develop trigeminal neuraligia after getting into chelatio

Posted by: " Jada " paxlforme@... paxlforme

Sat May 17, 2008 7:20 pm (PDT)

Dave, it's probably the worse pain I have ever felt.

I had all amalgam removed by a very good Huggins dentist. I have only

used Andy's protocol. Beginning at 12.5mg of dmsa for 16 months. Then

I added 5mg of ala (after round 14, it was all I could tolerate). Then

slowly I was able to tolerate the 5mg of ala for the entire round. In

the fall I increased only the dmsa to 25mg, kept the ala at 12.5mg. I

was not having any symptoms on rounds, but no progress either.

Currently on 25mg dmsa/15mg ala. (Although this problem began before

the increase). I only do a three day round once a month. Dosing every

3 in the day, and 4 at night. All I can say is I had way more fillings

than most to begin with. 14 teeth, some with multiple amalgams. No

root canals every, no other dental work. So no metal in mouth after

removal in 2006.

I also note that these attacks happen anytime. It can be weeks without

a round and it still happens. So it's not happening on a round.

May 19, 2008

Dave,

I am definitely going to cut back the dose next time, just in case

this is all related to it. I was going through my chelation journal

and it seems I added the ala last fall. Ironically, when I began

having all these other problems. While maybe not totally related, it's

worth consideration.

I also decided to examine my teeth a bit more closely again. I do this

from time to time making sure nothing is cracked, red, swollen etc. I

do have grey staining on some of my teeth. One molar has a dark grey

line on it. This is left over from the amalgams. I have to say the

stain looks darker than it did some months ago. I had some very large

fillings for many years and despite having all the actual amalgam

removed. I do have some staining. It's not much. The tooth with the

line is probably the worst one. It's not shiny like amalgam mind you.

Others have reported having this grey staining too. Since the stain is

on the same side as the nerve problem...I wonder?? IF this tiny stain

is enough to be a problem. I am tempted to take a picture and upload

it. See what others think. Sadly, ala makes my brain work better, but

maybe I can't use it. Would grey staining be enough to be a problem??

Either way I am still full of Lead, Cadmium and mercury....

>

> Jada. It sounds like you are doing everything right with chelation,

at least

> as far as I can tell, and that exposures have been removed. Any way

you can

> chelate more at a lower dose? Remember, if you half the dose, you

half the

> symptoms, but only divide the amount of mercury you remove by

(1/sqrt(2)). So,

> if you half the dose and chelate twice as much, then the amount of

mercury you

> remove will go up by 2*(1/sqrt(2)) ~= 1.4, an increase of 40%. It

looks to me

> that if you half the dose, it might decrease symptoms enough so that

you might

> be able to chelate even 3 times as much.

>

> It also sounds like you get some relief from things that involve

bodywork of

> one sort or another.

>

> So, perhaps I might suggest yoga. I've been doing it for 20 years.

I've had

> FM, but I wasn't even aware of it until close the the moment it went

away,

> because the yoga kept it under control. I also have TMJ which is

much improved

> through various techniques, yoga being one of the more important.

>

> In the acute phases, perhaps you might also consider acupuncture.

I've found

> it to be very good for the immediate pain, when I've had both jaw

and back

> problems. (I've done various kinds of chiropractic also, which

helped but was

> not very effective for acute pain.)

>

> Dave.

>

> -----------

>

> Posted by: " Jada " paxlforme@... paxlforme

>

> Sat May 17, 2008 7:20 pm (PDT)

>

> I have read what neuro's use to treat this. Scary indeed. I am

> allergic to neurotin...sadly. Most antiepileptics actually.

> I so know what he is going through. It's incapacitating. And yes, I

> think the amalgams have a lot to with it. I know my mom had an attack

> of this coincidentally after getting two amalgams replaced improperly.

>

> I am sorry your hubby had to lose a tooth to find out it had nothing

> to do with the tooth. I was led to think this too. I thought it was

> this one tooth, but I contacted my Huggins dentist and she said, not

> likely, have my bite adjusted first before consenting to removal. So I

> ignored the dentist who wanted to root canal it, even though the x ray

> was normal. But I read it's very common for people to go through

> losing half the teeth on that side with no relief. Same with the

surgery.

> I have a great chiro helping me. He adjusted my occiput and tmj which

> relieves symptoms. It takes a few days, because the nerve is all

> swollen now. I can even feel that one side of my cheek is swollen a

> bit, and the muscle feels roppey inside when I push on the pressure

> points.

>

> Yes, supplementing, eating well. Will be looking for more sustenance

> for nerves!

>

> --------------

>

> Re: Anyone develop trigeminal neuraligia after getting into chelatio

> Posted by: " Jada " paxlforme@... paxlforme

> Sat May 17, 2008 7:20 pm (PDT)

>

> Dave, it's probably the worse pain I have ever felt.

>

> I had all amalgam removed by a very good Huggins dentist. I have only

> used Andy's protocol. Beginning at 12.5mg of dmsa for 16 months. Then

> I added 5mg of ala (after round 14, it was all I could tolerate). Then

> slowly I was able to tolerate the 5mg of ala for the entire round. In

> the fall I increased only the dmsa to 25mg, kept the ala at 12.5mg. I

> was not having any symptoms on rounds, but no progress either.

> Currently on 25mg dmsa/15mg ala. (Although this problem began before

> the increase). I only do a three day round once a month. Dosing every

> 3 in the day, and 4 at night. All I can say is I had way more fillings

> than most to begin with. 14 teeth, some with multiple amalgams. No

> root canals every, no other dental work. So no metal in mouth after

> removal in 2006.

>

> I also note that these attacks happen anytime. It can be weeks without

> a round and it still happens. So it's not happening on a round.

>

May 20, 2008

Jada - don't know about the dental issue - just have a good dentist look at it.

I'm glad you are keeping a chelation journal. That's the only way I can keep

track of what is happening. Otherwise, it all blends into an exhausted mercury

induced fog of a past ... If the problems began with ALA, then you may have to

go down to a lower level or you may need to decrease the amount of DMSA you use

with it (which I think I'm remembering you do).

As for the cadmium, which I'm assuming you are saying is elevated in your hair,

that is most likely just an artifact of the mercury poisoning. That's not the

case with lead though, so chelate that one for a long time.

You're in India, right? Where?

Dave.

------------

Posted by: " Jada " paxlforme@... paxlforme

Mon May 19, 2008 6:04 am (PDT)