Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Sher, The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables....lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become "dependent" or "addicted". If you need it, you need it. As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, June 13, 2009 12:44:59 PMSubject: MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 MB...thanks for your input and yes, I WILL use the o2 once the 'work' begins. I know that even sitting/bending can be exertion. appreciate you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 excellent question sher, i am eager to see the response Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: MB? PeggyE?To: Breathe-Support Date: Saturday, June 13, 2009, 12:44 PM Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 recently my doc told me that i just need o2 for exertion and sleeping sometimes i take it off when i'm home, but then i am constantly checking the oximeter and frequently surprised that the o2 stays in the 90's today, i took a nap without o2, woke up and checked, my SAT was only 92, now i am beginning to understand what is meant by needing it for sleep -- still don't understand the mechanics of "shallow breathing" in recent weeks noticed that when i bend down, or even stoop, then stand up, i get a little light headed -- so i close my eyes until it passes -- a few seconds i think it happens both with and without the o2 -- i'll have to pay attention at any rate, i don't leave home without it -- the o2 Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: MB? PeggyE?To: Breathe-Support Date: Saturday, June 13, 2009, 2:17 PM Sher, The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become "dependent" or "addicted". If you need it, you need it. As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, June 13, 2009 12:44:59 PMSubject: MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Joyce....my doc told me to use my cpap when I take a nap...can't remember why...but I haven't done it. That damned thing all night is about all I can take. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Sher. I'm assuming that you are using a CPap because you have sleep apnea. You stop breathing when you are asleep. My husband took a nap and didn't wake up. He wouldn't have had his machine anyhow. He was in the car with my son driving. It was very rough on my son.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: MB? PeggyE?To: Breathe-Support@ yahoogroups. comDate: Saturday, June 13, 2009, 2:17 PM Sher, The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become "dependent" or "addicted". If you need it, you need it. As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, June 13, 2009 12:44:59 PMSubject: MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 BJ... what a horrible experience for your son, to be with his dad in the car when he died. Yes, I know I stop breathing at night without cpap but a 'nap' means curled up on the sectional, sitting up. I never go to bed to have a nap. It sneaks up on it's own. lol. What was the cause of your husbands death? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Sher, He stopped breathing and his heart stopped. It was just from the sleep apnea. I don't think that he used his machine though. For several years before I divorced him we had our own rooms. At first I went in his room to check and see if he had the mask on. A lot of the time he didn't. If I told him to put it on I'm sure he took it off when I left the room.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: MB? PeggyE?To: Breathe-Support@ yahoogroups. comDate: Saturday, June 13, 2009, 2:17 PM Sher, The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become "dependent" or "addicted". If you need it, you need it. As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, June 13, 2009 12:44:59 PMSubject: MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 WOW WHAT A SAD STROY I HOPE THAT I DONT DIED INFORT ON MY BOY I AM SORRY FOR YOUR LOST To: Breathe-Support Sent: Saturday, June 13, 2009 10:45:55 PMSubject: Re: MB? PeggyE? Sher, He stopped breathing and his heart stopped. It was just from the sleep apnea. I don't think that he used his machine though. For several years before I divorced him we had our own rooms. At first I went in his room to check and see if he had the mask on. A lot of the time he didn't. If I told him to put it on I'm sure he took it off when I left the room.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: MB? PeggyE?To: Breathe-Support@ yahoogroups. comDate: Saturday, June 13, 2009, 2:17 PM Sher, The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become "dependent" or "addicted". If you need it, you need it. As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, June 13, 2009 12:44:59 PMSubject: MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Hello Elba. Are you new to the group? If you are you will be welcomed by a lot of people besides me. How old is your son? Don't worry about dying in front of him. I don't know how old you are or how old your son is but I don't think that will happen. It probably won't happen for a long time and if your son is a small child someone will protect him from that. My husband was 73 years old and my son in his 40's. It was a terrible thing for my son but it might have been almost as bad if he had found him dead in his bed and he is the one that would have found. I had divorced him but we were married for 45 years and I was all torn up when he died. I still miss him.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: MB? PeggyE?To: Breathe-Support@ yahoogroups. comDate: Saturday, June 13, 2009, 2:17 PM Sher, The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become "dependent" or "addicted". If you need it, you need it. As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Saturday, June 13, 2009 12:44:59 PMSubject: MB? PeggyE? Hope you won't mind my question below Joy... I'm going to use Joy as the reason for my question. I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. Could not being on the o2 contribute to the PH? I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. I do always use the 02 at night. Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 To whom it may concern, While in Denver the importance of using oxygen and the CPAP was lectured to me. I recently got the CPAP and tried to keep an open mind as my husband has one and I just wasn't really looking forward to it,... until I had some really good nights sleep. My O2 was dropping as low as 79 at some periods during the night. Now, it stays around 90-92 all night (yes, I have checked it, since I got my oximeter). And, yes, I now use my CPAP for naps during the day. My O2 is fine, if I am just working at the computer, watching television or reading a book. If I so much as walk down the hall in my home, my O2 sat can drop from 92 to 84 in a heartbeat. It also rebounds quickly, but not as quickly as it drops. The people in Denver said I should plant my concentrator in the center of my house and when I am doing chores around the house or exercising, have it plugged in. I need to find what level will be needed for sure, but they said it is probably going to be between 2L and 4L. I am going to the local oxygen supplier to look at tank options and learn more about the portable concentrator for trips. My progressive exercise program is a must and I have to watch both the muscle exertion and oxygen expenditure... going to take some programming/learning on my part. Just know that they said that the CUMULATIVE effect can damage your organs, it is different with each person and not always something that you can readily perceive. The UPSIDE is that some of the damage may be recoverable with proper use of oxygen and CPAP. So, like it or not, it is very wise to use your oxygen and CPAP as directed. Stefani NSIP 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009 > > > > Subject: Re: MB? PeggyE? > To: Breathe-Support > Date: Saturday, June 13, 2009, 2:17 PM > > > Sher, > The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. > I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become " dependent " or " addicted " . If you need it, you need it. > As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > ---------------------------------------------------------------------- > From: Sher Bauman <bofus (AT) wbcable (DOT) net> > To: Breathe-Support@ yahoogroups. com > Sent: Saturday, June 13, 2009 12:44:59 PM > Subject: MB? PeggyE? > > > Hope you won't mind my question below Joy... > > I'm going to use Joy as the reason for my question. > I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. > Could not being on the o2 contribute to the PH? > I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. > If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. > I do always use the 02 at night. > Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. > > MamaSher; 70, IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 Pink I rarely need it sitting. But don't nap without it if you need it for sleep.....sleep is sleep regardless of when. > > > From: Beth mbmurtha@... > Subject: Re: MB? PeggyE? > To: Breathe-Support > Date: Saturday, June 13, 2009, 2:17 PM > > > > > > > > > > > > Sher, > The only thing I would say is that you should be using the O2 when you need it. If your sats drop for more than a minute or two damage occurs. It's tiny and subtle but builds up over time. Without knowing how your sats react to your walking around your apartment without it, it's hard to say whether you are harming yourself. > I will say this much....I know you've got a move coming up. Using your oxygen is going to seem like a nuisance and a big pain in the booty. Use it anyway. Moving is stressful and you exert more than you think you will just sitting and packing a box of unmentionables. ...lol You have pulmonary fibrosis, you have a prescription for oxygen, you can't harm yourself by using your O2 the way it's been prescribed. You body uses more O2 under exertion, when you're under stress and when you're in pain. All three of these things apply to you and your life circumstances right now. You can't harm yourself by using the oxygen, you can't become " dependent " or " addicted " . If you need it, you need it. > As to Joy's situation, I remember what you mention....I just can't remember whether her doctor took her off the oxygen or whether it was a decision that she made. I sincerely hope that not using the oxygen did not lead to the pulmonary hypertension but it is possible under certain circumstances. Maybe she'll feel comfortable sharing that with us. I don't really want to speculate. I'm just glad she came back! > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net> > To: Breathe-Support@ yahoogroups. com > Sent: Saturday, June 13, 2009 12:44:59 PM > Subject: MB? PeggyE? > > > > > Hope you won't mind my question below Joy... > > I'm going to use Joy as the reason for my question. > I know sometime after we all met in a gathering at Olympia, WA. Joy went off O2. > Could not being on the o2 contribute to the PH? > I wonder if I use my o2 enough. Although I watch sats and use o2 accordingly. But around the house I seldom use it. Occasionally. > If I'm going from front door to docs office and back again I frequently don't take the o2. I'm not exerting myself. > I do always use the 02 at night. > Anyway, I wonder if I don't use it daily can it bring about something down the road, like PH? ~~ thanks. > > MamaSher; 70, IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
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