Re: 24 Hour Manometric Examination of the Esophagus - Test itself - not results

June 12, 2009

YUKKSTER...

now for being SUCH a brave woman I think you deserve one of THESE

........

SGIO>> Hi Everyone. I thought I'd do this in 2 stages. First tell about the test (my experience and of course we all know everyone is different) and later I'll post the results. So yesterday around 11am they inserted a tube about the size of a normal spaghetti noodle up my nose, down my throat and into my esophagus down to where the stomach starts. They had to do this to measure the length of my esophagus to know what length wire to put in. I don't know if anything else was learned from this but my experience was gaging, coughing, eyes watering but not nausea. After he removed this and I recovered from it (say 3-5 minutes) he inserted a thinner tube with wires in it to the same location (just above the stomach sphincter muscle). This wasn't as bad as the first thing but the worst part was that it stayed in for 24 hours. It was taped to my face, ran around my ear and under my blouse and hooked to a small computer type device. I had to push buttons on this computer device for when I had various symptoms (i.e. heart burn, reflux, coughing or when eating or when lying down). Of course I couldn't turn my head to the left without triggering gage and coughing reflexes so driving home was interesting to say the least. I coughed a lot but couldn't manage to push the buttons without driving off the 520 bridge so I just made a note on the sheet once I got home. I would encourage anyone that needs this test to get someone to drive you. I would also suggest you have some very smooth, easy to swallow items to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I had ice cream (no sticky stuff in there either as it tugs on the tube as it goes down which feels very strange indeed), Ensure, chocolate milk. Needless to say I mostly stayed quiet watching tv to avoid turning my head and causing me undo problems. I did learn one thing that might help someone - if swallowing saliva is hurting more than normal - blow your nose - it probably has mucus in it which tugs. I couldn't believe how wiped out the test made me as I napped and slept most of the night. I woke up around 4am with a decent (not nice) level of pain in my throat and even though I was supposed to not drink anything after midnight for the barium test (which was scheduled for today) I drank anyway as it soothed the throat to keep it moist. I wouldn't suggest you do another 'no food or drink after midnight' test the day after getting this tube inserted. I was very happy indeed to get it pulled out. It isn't really that painful but it isn't a lot of fun either. If you do get this test I would suggest having a good book or a good movie and some soft food and kick back and let people wait on you! They say they want you to have as normal a day as possible and I just told them it was about as far from a 'normal' day for me as you can get but I got through it. I'll post the results of the test as I learn them. > > Peggy Ellis (24 hour test survivor LOL, very tired lady)>

June 12, 2009

I do enjoy 1 glass of red wine with my dinner 3 - 5 times per week. Maybe should give that up cuz of the GERD but the health benefits are not bad from the red wine either and it is a little 'hobby' of my husband's and mine. thanks for the tini!PeggySubject: Re: 24 Hour Manometric Examination of the Esophagus - Test itself - not resultsTo: Breathe-Support Date: Friday, June 12, 2009, 5:14 PM

YUKKSTER...

now for being SUCH a brave woman I think you deserve one of THESE

........

SGIO>> Hi Everyone. I thought I'd do this in 2 stages. First tell about the test (my experience and of course we all know everyone is different) and later I'll post the results. So yesterday around 11am they inserted a tube about the size of a normal spaghetti noodle up my nose, down my throat and into my esophagus down to where the stomach starts. They had to do this to measure the length of my esophagus to know what length wire to put in. I don't know if anything else was learned from this but my experience was gaging, coughing, eyes watering but not nausea. After he removed this and I recovered from it (say 3-5 minutes) he inserted a thinner tube with wires in it to the same location (just above the stomach sphincter muscle). This wasn't as bad as the first thing but the worst part was that

it stayed in for 24 hours. It was taped to my face, ran around my ear and under my blouse and hooked to a small computer type device. I had to push buttons on this computer device for when I had various symptoms (i.e. heart burn, reflux, coughing or when eating or when lying down). Of course I couldn't turn my head to the left without triggering gage and coughing reflexes so driving home was interesting to say the least. I coughed a lot but couldn't manage to push the buttons without driving off the 520 bridge so I just made a note on the sheet once I got home. I would encourage anyone that needs this test to get someone to drive you. I would also suggest you have some very smooth, easy to swallow items to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I had ice cream (no sticky stuff in there either as it tugs on the tube as it goes down which feels very strange indeed), Ensure, chocolate milk. Needless to say I mostly stayed

quiet watching tv to avoid turning my head and causing me undo problems. I did learn one thing that might help someone - if swallowing saliva is hurting more than normal - blow your nose - it probably has mucus in it which tugs. I couldn't believe how wiped out the test made me as I napped and slept most of the night. I woke up around 4am with a decent (not nice) level of pain in my throat and even though I was supposed to not drink anything after midnight for the barium test (which was scheduled for today) I drank anyway as it soothed the throat to keep it moist. I wouldn't suggest you do another 'no food or drink after midnight' test the day after getting this tube inserted. I was very happy indeed to get it pulled out. It isn't really that painful but it isn't a lot of fun either. If you do get this test I would suggest having a good book or a good movie and some soft food and kick back and let people wait on you! They say they want you to have as

normal a day as possible and I just told them it was about as far from a 'normal' day for me as you can get but I got through it. I'll post the results of the test as I learn them. > > Peggy Ellis (24 hour test survivor LOL, very tired lady)>

June 13, 2009

Hi Beth,It isn't fun but what medical test is? It does give you material though for your humor routine with friends! I'll put a post when I get the results of that and my Chest CT. I am thinking the 24 hour test won't show much as I didn't really feel many GERD symptoms during that time (just couldn't eat enough to cause them but we'll see).Thanks for all you do and all the clarifications - you're really a God Send.Peggy E. (painter of roof peaks - today, hauler of yard waste (in a good mask) tomorrow)Subject: Re: 24 Hour Manometric Examination of the Esophagus -

Test itself - not resultsTo: Breathe-Support Date: Friday, June 12, 2009, 5:47 PM

Thanks Peggy. That was extremely helpful. I haven't had this test...it may at some point be in my future and I will be better prepared after reading this description. I'm glad you got through it. Doesn't really sound like alot of fun.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: artquilterpeg <artquilterpeg@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, June 12, 2009 7:37:03 PMSubject: 24 Hour Manometric Examination of the Esophagus - Test itself - not results

Hi Everyone. I thought I'd do this in 2 stages. First tell about the test (my experience and of course we all know everyone is different) and later I'll post the results. So yesterday around 11am they inserted a tube about the size of a normal spaghetti noodle up my nose, down my throat and into my esophagus down to where the stomach starts. They had to do this to measure the length of my esophagus to know what length wire to put in. I don't know if anything else was learned from this but my experience was gaging, coughing, eyes watering but not nausea. After he removed this and I recovered from it (say 3-5 minutes) he inserted a thinner tube with wires in it to the same location (just above the stomach sphincter muscle). This wasn't as bad as the first thing but the worst part was that it stayed in for 24 hours. It was taped to my face, ran around my ear and under my blouse and hooked to a small computer type device. I had to push buttons on this

computer device for when I had various symptoms (i.e. heart burn, reflux, coughing or when eating or when lying down). Of course I couldn't turn my head to the left without triggering gage and coughing reflexes so driving home was interesting to say the least. I coughed a lot but couldn't manage to push the buttons without driving off the 520 bridge so I just made a note on the sheet once I got home. I would encourage anyone that needs this test to get someone to drive you. I would also suggest you have some very smooth, easy to swallow items to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I had ice cream (no sticky stuff in there either as it tugs on the tube as it goes down which feels very strange indeed), Ensure, chocolate milk. Needless to say I mostly stayed quiet watching tv to avoid turning my head and causing me undo problems. I did learn one thing that might help someone - if swallowing saliva is hurting more than

normal - blow your nose - it probably has mucus in it which tugs. I couldn't believe how wiped out the test made me as I napped and slept most of the night. I woke up around 4am with a decent (not nice) level of pain in my throat and even though I was supposed to not drink anything after midnight for the barium test (which was scheduled for today) I drank anyway as it soothed the throat to keep it moist. I wouldn't suggest you do another 'no food or drink after midnight' test the day after getting this tube inserted. I was very happy indeed to get it pulled out. It isn't really that painful but it isn't a lot of fun either. If you do get this test I would suggest having a good book or a good movie and some soft food and kick back and let people wait on you! They say they want you to have as normal a day as possible and I just told them it was about as far from a 'normal' day for me as you can get but I got through it. I'll post the results of the test

as I learn them. Peggy Ellis (24 hour test survivor LOL, very tired lady)

June 14, 2009

MB

Worst test I've ever had. Especially if your esophagus is in bad shape.

The techs tried 8 times to get it all the way down.....the bulb and

tubing through the nose and throat to the stomach. Then the doctor came

in and took it all the way out again and finally he was able to get it

all the way down. Gwynne also commented as worst she'd had. Not

dangerous or anything but sure isn't fun.

>

> From: Beth mbmurtha@...

> Subject: Re: 24 Hour Manometric Examination of the

Esophagus - Test itself - not results

> To: Breathe-Support

> Date: Friday, June 12, 2009, 5:47 PM

>

> Thanks Peggy. That was extremely helpful. I haven't had this test...it

may at some point be in my future and I will be better prepared after

reading this description. I'm glad you got through it. Doesn't really

sound like alot of fun.

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

> From: artquilterpeg <artquilterpeg@ yahoo.com>

> To: Breathe-Support@ yahoogroups. com

> Sent: Friday, June 12, 2009 7:37:03 PM

> Subject: 24 Hour Manometric Examination of the

Esophagus - Test itself - not results

>

> Hi Everyone. I thought I'd do this in 2 stages. First tell about the

test (my experience and of course we all know everyone is different) and

later I'll post the results. So yesterday around 11am they inserted a

tube about the size of a normal spaghetti noodle up my nose, down my

throat and into my esophagus down to where the stomach starts. They had

to do this to measure the length of my esophagus to know what length

wire to put in. I don't know if anything else was learned from this but

my experience was gaging, coughing, eyes watering but not nausea. After

he removed this and I recovered from it (say 3-5 minutes) he inserted a

thinner tube with wires in it to the same location (just above the

stomach sphincter muscle). This wasn't as bad as the first thing but the

worst part was that it stayed in for 24 hours. It was taped to my face,

ran around my ear and under my blouse and hooked to a small computer

type device. I had to push buttons on this

> computer device for when I had various symptoms (i.e. heart burn,

reflux, coughing or when eating or when lying down). Of course I

couldn't turn my head to the left without triggering gage and coughing

reflexes so driving home was interesting to say the least. I coughed a

lot but couldn't manage to push the buttons without driving off the 520

bridge so I just made a note on the sheet once I got home. I would

encourage anyone that needs this test to get someone to drive you. I

would also suggest you have some very smooth, easy to swallow items to

eat at home. I couldn't manage even chicken soup. So for lunch and

dinner I had ice cream (no sticky stuff in there either as it tugs on

the tube as it goes down which feels very strange indeed), Ensure,

chocolate milk. Needless to say I mostly stayed quiet watching tv to

avoid turning my head and causing me undo problems. I did learn one

thing that might help someone - if swallowing saliva is hurting more

than

> normal - blow your nose - it probably has mucus in it which tugs. I

couldn't believe how wiped out the test made me as I napped and slept

most of the night. I woke up around 4am with a decent (not nice) level

of pain in my throat and even though I was supposed to not drink

anything after midnight for the barium test (which was scheduled for

today) I drank anyway as it soothed the throat to keep it moist. I

wouldn't suggest you do another 'no food or drink after midnight' test

the day after getting this tube inserted. I was very happy indeed to get

it pulled out. It isn't really that painful but it isn't a lot of fun

either. If you do get this test I would suggest having a good book or a

good movie and some soft food and kick back and let people wait on you!

They say they want you to have as normal a day as possible and I just

told them it was about as far from a 'normal' day for me as you can get

but I got through it. I'll post the results of the test

> as I learn them.

>

> Peggy Ellis (24 hour test survivor LOL, very tired lady)

>

June 14, 2009

The thing doesn't have a 'bulb' at least not the one I did. I know that NG

tubes are MUCH bigger than even the first tube they inserted. Still isn't fun -

I'll agree with that!

Peggy Ellis

> >

> > From: Beth mbmurtha@

> > Subject: Re: 24 Hour Manometric Examination of the

> Esophagus - Test itself - not results

> > To: Breathe-Support

> > Date: Friday, June 12, 2009, 5:47 PM

> >

> > Thanks Peggy. That was extremely helpful. I haven't had this test...it

> may at some point be in my future and I will be better prepared after

> reading this description. I'm glad you got through it. Doesn't really

> sound like alot of fun.

> >

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

> > From: artquilterpeg <artquilterpeg@ yahoo.com>

> > To: Breathe-Support@ yahoogroups. com

> > Sent: Friday, June 12, 2009 7:37:03 PM

> > Subject: 24 Hour Manometric Examination of the

> Esophagus - Test itself - not results

> >

> > Hi Everyone. I thought I'd do this in 2 stages. First tell about the

> test (my experience and of course we all know everyone is different) and

> later I'll post the results. So yesterday around 11am they inserted a

> tube about the size of a normal spaghetti noodle up my nose, down my

> throat and into my esophagus down to where the stomach starts. They had

> to do this to measure the length of my esophagus to know what length

> wire to put in. I don't know if anything else was learned from this but

> my experience was gaging, coughing, eyes watering but not nausea. After

> he removed this and I recovered from it (say 3-5 minutes) he inserted a

> thinner tube with wires in it to the same location (just above the

> stomach sphincter muscle). This wasn't as bad as the first thing but the

> worst part was that it stayed in for 24 hours. It was taped to my face,

> ran around my ear and under my blouse and hooked to a small computer

> type device. I had to push buttons on this

> > computer device for when I had various symptoms (i.e. heart burn,

> reflux, coughing or when eating or when lying down). Of course I

> couldn't turn my head to the left without triggering gage and coughing

> reflexes so driving home was interesting to say the least. I coughed a

> lot but couldn't manage to push the buttons without driving off the 520

> bridge so I just made a note on the sheet once I got home. I would

> encourage anyone that needs this test to get someone to drive you. I

> would also suggest you have some very smooth, easy to swallow items to

> eat at home. I couldn't manage even chicken soup. So for lunch and

> dinner I had ice cream (no sticky stuff in there either as it tugs on

> the tube as it goes down which feels very strange indeed), Ensure,

> chocolate milk. Needless to say I mostly stayed quiet watching tv to

> avoid turning my head and causing me undo problems. I did learn one

> thing that might help someone - if swallowing saliva is hurting more

> than

> > normal - blow your nose - it probably has mucus in it which tugs. I

> couldn't believe how wiped out the test made me as I napped and slept

> most of the night. I woke up around 4am with a decent (not nice) level

> of pain in my throat and even though I was supposed to not drink

> anything after midnight for the barium test (which was scheduled for

> today) I drank anyway as it soothed the throat to keep it moist. I

> wouldn't suggest you do another 'no food or drink after midnight' test

> the day after getting this tube inserted. I was very happy indeed to get

> it pulled out. It isn't really that painful but it isn't a lot of fun

> either. If you do get this test I would suggest having a good book or a

> good movie and some soft food and kick back and let people wait on you!

> They say they want you to have as normal a day as possible and I just

> told them it was about as far from a 'normal' day for me as you can get

> but I got through it. I'll post the results of the test

> > as I learn them.

> >

> > Peggy Ellis (24 hour test survivor LOL, very tired lady)

> >

>

June 25, 2009

Ok...I know I am way behind on this, just getting caught up on things now,

but... I was supposed to have the same test done, but after an hour of trying

to get the tube all the way down my esophagaus with absolutely no success, it

was decided that they would do the 48 hour version, which involves doing an

endoscopy and attaching a wireless transmitter capsule to the esaophagaus. The

transmitter monitors acid levels and sends them to a receiver which was either

clipped to my belt, or placed within 4 feet of me when sitting, sleeping, or

showering. After the 48 hours, the receiver is turned in at the hospital. The

capsule is eventually shed and...expelled with other " waste " . This usually

happens within a week to 10 days. I was also told that I couldn't have any

MRI's for 30 days after it was put in place. After the terrible experience when

they tried to get the tube down, this was a breeze.

Steve aka Knip IPF 9/07 VATS 12/07

57 New Hampshire

>

> Subject: Re: 24 Hour Manometric Examination of the Esophagus

- Test itself - not results

> To: Breathe-Support

> Date: Friday, June 12, 2009, 5:47 PM

>

> Thanks Peggy. That was extremely helpful. I haven't had this test...it may at

some point be in my future and I will be better prepared after reading this

description. I'm glad you got through it. Doesn't really sound like alot of

fun.

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

> From: artquilterpeg <artquilterpeg@ yahoo.com>

> To: Breathe-Support@ yahoogroups. com

> Sent: Friday, June 12, 2009 7:37:03 PM

> Subject: 24 Hour Manometric Examination of the Esophagus -

Test itself - not results

>

> Hi Everyone. I thought I'd do this in 2 stages. First tell about the test (my

experience and of course we all know everyone is different) and later I'll post

the results. So yesterday around 11am they inserted a tube about the size of a

normal spaghetti noodle up my nose, down my throat and into my esophagus down to

where the stomach starts. They had to do this to measure the length of my

esophagus to know what length wire to put in. I don't know if anything else was

learned from this but my experience was gaging, coughing, eyes watering but not

nausea. After he removed this and I recovered from it (say 3-5 minutes) he

inserted a thinner tube with wires in it to the same location (just above the

stomach sphincter muscle). This wasn't as bad as the first thing but the worst

part was that it stayed in for 24 hours. It was taped to my face, ran around my

ear and under my blouse and hooked to a small computer type device. I had to

push buttons on this

> computer device for when I had various symptoms (i.e. heart burn, reflux,

coughing or when eating or when lying down). Of course I couldn't turn my head

to the left without triggering gage and coughing reflexes so driving home was

interesting to say the least. I coughed a lot but couldn't manage to push the

buttons without driving off the 520 bridge so I just made a note on the sheet

once I got home. I would encourage anyone that needs this test to get someone to

drive you. I would also suggest you have some very smooth, easy to swallow items

to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I

had ice cream (no sticky stuff in there either as it tugs on the tube as it goes

down which feels very strange indeed), Ensure, chocolate milk. Needless to say I

mostly stayed quiet watching tv to avoid turning my head and causing me undo

problems. I did learn one thing that might help someone - if swallowing saliva

is hurting more than

> normal - blow your nose - it probably has mucus in it which tugs. I couldn't

believe how wiped out the test made me as I napped and slept most of the night.

I woke up around 4am with a decent (not nice) level of pain in my throat and

even though I was supposed to not drink anything after midnight for the barium

test (which was scheduled for today) I drank anyway as it soothed the throat to

keep it moist. I wouldn't suggest you do another 'no food or drink after

midnight' test the day after getting this tube inserted. I was very happy indeed

to get it pulled out. It isn't really that painful but it isn't a lot of fun

either. If you do get this test I would suggest having a good book or a good

movie and some soft food and kick back and let people wait on you! They say they

want you to have as normal a day as possible and I just told them it was about

as far from a 'normal' day for me as you can get but I got through it. I'll post

the results of the test

> as I learn them.

>

> Peggy Ellis (24 hour test survivor LOL, very tired lady)

>

June 25, 2009

Steve

I didn't have the 24 hour but I guess more the outpatient version of

Manometry. It involved a bulb and tube and getting it all the way to the

stomach. Took them nine total tries getting it half way, pulling it out,

starting over. Worst test I've had. But this wasn't for acid levels.

They were checking my esophagus function. The test for acid levels or

any form of manometry or endoscopy is now something my

gastroenterologist does not want to perform on me. My esophagus has been

through so much and in such bad shape, he doesn't want to stick anything

in it. Plus I'm already on 80 MG of Nexium so thats pretty much all they

can do short of surgery, which they do not want to consider.

> >

> > From: Beth mbmurtha@

> > Subject: Re: 24 Hour Manometric Examination of the

Esophagus - Test itself - not results

> > To: Breathe-Support

> > Date: Friday, June 12, 2009, 5:47 PM

> >

> > Thanks Peggy. That was extremely helpful. I haven't had this

test...it may at some point be in my future and I will be better

prepared after reading this description. I'm glad you got through it.

Doesn't really sound like alot of fun.