Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 post of responses to husband has kidney pain Dave wrote: (((>And I want to know if its normal to feel like absolute crap the day after you stop chelating? Yes. It shouldn't go on for more than a day though. If it does you should decrease dose and/or decrease the time between doses. Are you saying the lower back pain comes on with the chelation? Have you done a hair test? Can we see it?))))))))))))))))))))) I wanted to say that I have ordered a lower dose of dmsa yesterday and Tim's next round should be 25mg q 4hrs. I understand now that we are going to have to tweek it whether its less or more of a dose, and q2hrs to 4hrs. As for the hair test. Sure you can see it. I went by what the " files " said to do on posting a hair test and emailed it to Dean. Jada wrote: (((( Did he have a lot of cadmium in his hair?? If he did try adding B1 (thiamine) taken with every dose of chelator. I had to do this to protect my kidneys in the beginning of chelation because they ached. We had discussed removing cadmium without damaging the kidneys and this is now.)))))) Thank you for this Jada, we will try this. He does take many supplements. I have them on a spread sheet on his computer and not available to me right now. Nanci wrote: ((((Heavy metals are hard on our kidneys and we can use extra support for our kidneys. Mine used to really ache at their worst and I would always be getting kidney/bladder infections. After some trial and error and research I found some things that supported my kidneys.))))))))))))))))))) Thank you for your advice as well. I will research on the same and see if I could learn more about herbs, teas, cleanses, etc..as well. Dave wrote: ((((It seems that there are a lot of people raving about how chelation causes lower back pain and that it _has_ to be kidney pain. Well, Andy's response (in his own inimitable fashion) is that this is idiotic. That toxin induced kidney failure (note, _failure_) is not painful and in any case, there is not enough mercury floating around in a non-acutely poisoned person's bloodstream to cause kidney failure.))))) (((( The cause of the back pain is the magnesium balance being screwed up.)))) After his hair test is able to be seen by members, I'd love to know how to interpret the magnesium. I would have to agree with you that kidney failure does not have to be painful. I am a nurse that works in hospice and I have quite a few residents there that have chronic renal failure as their chief dx and they do not complain of pain in the kidneys. Never the less in talking with my husband he said that he knows the difference between back pain and kidney pain. He has had chronic back pain for years and has never taken a narcotic for it. He has every back pain relieving gadget known to man it seems by which over the years include regular chiropractic appts., EMS machines and even magnets. Only when it was about 2 weeks or so after his cracked amalgam was removed without protocol did his chronic back pain become significant enough to start complaining about it. What he said to me was that it was like the same upper, sometimes middle, sometimes lower back pain he has always felt but now unable to tolerate it for some reason. I suppose that and other symptoms led him to have to use prescription pain pills to be able to function at work. About the kidney pain- he has only experienced this pain when " on " chelation and it does subside a day after his round is over. He might be considered chronically poisoned but I feel he is too close in being " acutely " poisoned as well. Maybe this is why his body is reacting like this or the other reason you all have convinced me as being, that he is taking too much chelator. That will all change on his next round and I'll see how he is doing on a much lower dose. and Dave wrote: ((((There are things that you husband can do for the various symptoms. NUMERO UNO is the sulfur exclusion diet. (Onibasu that on the AM and FDC lists.)))) I will look into this as well...Isn't there a blood test involved with this one??? I'll have to get back to you on this one if I have any further questions. I read all the different things in your post you said that he could try. I do know that he is taking Taurine and probably some of the other things too, I'll have to check.You just gave me a bunch of homework. lol Tim and I are looking forward to the delivery of a far infared sauna in the next week. I sure hope I made the right decision in purchasing it. I really want that particular therapy to help considering the investment. I know I've seen them very expensive on the internet. I think I got a good deal though. 2 person (he's 6'4 " so I thought it would give him alittle more room) Hemlock wood, far infared by ceramic heater (carbon was alittle more money than we wanted to spend) It was $969.00 no tax plus free shipping. got it from nationalpoolwholesalers.com in Florida. I didn't find it cheaper anywhere else. He did get his thyroid checked as well Dave, but the dr. only ordered a TSH, total T4 and a T3 uptake. I don't have the numbers on me right now (in his office-we lock it when he's out of town d/t the kids) but what I remember was that his TSH was like 0.83 which is on the lower side and his T4 and T3 was within normal limits. My nurses training tells me that it is suspect of being hyperthyroid. But at the same time what does low body temp, intolerance to cold and fatigue, etc.. physical symptoms of what we would consider hypothyroid doing expressing itself in the face of lab tests showing more hyperthyroid numbers. Can the two exist together???? Carie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 --- Hi - you asked about the Thyroid. The answer to your question below is an absolute YES! The lab testing for hypothyroidism is almost worthless.Even the free T3 and Free T4 tests may not necessarilly show anything and even when in normal or even high normal levels a person can still be overtly hypothyroid. The reasons for this are many as there are contrary to popular belief there are many reasons for someone being hypothyroid. One very common problem, and particularly common in heavy metal poisoned folk, is T3 resistance. This means that even when someone has high levels of free T3 in their blood their bodies are not able to use it correctly. There are many reasons for this itself and they range from the simple to the complicated but you only really need to understand that this can be a problem. Of course there are other possibilities such as the person not converting T4 to T3 very well. this may a problem with not enough selenium, too much cortisol and other reasons. It's complex subject and one which most endocrinologists and other medical practitioners have no idea about. If you want to learn more (and it's advisable because the thyroid is soooo important and sooo often compromised in chronic ill health) there are many places. Here are a few suggestions: 1) www.stopthethyroidmadness.com This site has a lot of basic info but is a little slanted to using Armour which is a natural (bioidentical) form of T4 and T3. Nevertheless, still s good place to start. 2) My favourite books on the subject that are easy reads are : Mark Starr's Hypothyroidism type 2 and Broda Hypothyroidism, the Unsuspected Illness. 3) www.drlowe.com Lots of info here particularly about T3 resistance. 4)There are also Yahoo groups such as " naturalthyroidhormones " and " T3/RT3 " . These are also very useful. Thyroid and adrenal disease often go hand in hand and are nearly always (IMHO) a factor involved in chronic illness, heavy metal poisoning etc. Andy talks about it a little in his book too. PS) I was a nurse too!!! ;-) In frequent-dose-chelation , " Carie " wrote: > > > > He did get his thyroid checked as well Dave, but the dr. only ordered > a TSH, total T4 and a T3 uptake. I don't have the numbers on me > right now (in his office-we lock it when he's out of town d/t the > kids) but what I remember was that his TSH was like 0.83 which is on > the lower side and his T4 and T3 was within normal limits. My nurses > training tells me that it is suspect of being hyperthyroid. But at > the same time what does low body temp, intolerance to cold and > fatigue, etc.. physical symptoms of what we would consider > hypothyroid doing expressing itself in the face of lab tests showing > more hyperthyroid numbers. Can the two exist together???? > > > Carie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 I had odd pains in the lower back at times, what I call flank pain because it's not my back and probably not my actual kidney. My first few rounds my lower back ached like crazy. It went away after a few rounds. I still don't know why or what it was. I figured I was on the supplements Andy said to take, so it might just be some HG or whatever moving. I took B1 with doses because I am toxic in cadmium and as I read it, this is a bit more tricky to chelate and B1 protects the kidney from the cadmium. and I had a long discussion on this 2 years back. It's probably on onibasu somewhere now. At other times I have had aching in my " flanks " which seems like the same place as the kidneys..but as Dave said, kidneys' aren't supposed to hurt. But adrenals do, and my flank pain came on with too much hydrocortisone. And I thought someone who told me that their adrenals were aching was crazy, until I had it happen. Kidney stones aren't a factor right? Also can't a urine test rule out the kidneys? Please search the posts on infared sauna's and be sure you can return it if he reacts badly to it. -- > Dave wrote: > ((((It seems > that there are a lot of people raving about how chelation causes > lower back > pain and that it _has_ to be kidney pain. Well, Andy's response (in > his own > inimitable fashion) is that this is idiotic. That toxin induced > kidney failure > (note, _failure_) is not painful and in any case, there is not enough > mercury > floating around in a non-acutely poisoned person's bloodstream to > cause kidney > failure.))))) > (((( The cause of the back pain is the magnesium balance being > screwed up.)))) > > After his hair test is able to be seen by members, I'd love to know > how to interpret the magnesium. > > I would have to agree with you that kidney failure does not have to > be painful. I am a nurse that works in hospice and I have quite a > few residents there that have chronic renal failure as their chief dx > and they do not complain of pain in the kidneys. > Never the less in talking with my husband he said that he knows the > difference between back pain and kidney pain. He has had chronic back > > ((((There are things that you husband can do for the various > symptoms. NUMERO UNO > is the sulfur exclusion diet. (Onibasu that on the AM and FDC > lists.)))) > > > Tim and I are looking forward to the delivery of a far infared sauna > in the next week. I sure hope I made the right decision in purchasing > it. I really want that particular therapy to help considering the > investment. I know I've seen them very expensive on the internet. I > think I got a good deal though. 2 person (he's 6'4 " so I thought it > would give him alittle more room) Hemlock wood, far infared by > ceramic heater (carbon was alittle more money than we wanted to spend) > It was $969.00 no tax plus free shipping. got it from > nationalpoolwholesalers.com in Florida. I didn't find it cheaper > anywhere else. > > > He did get his thyroid checked as well Dave, but the dr. only ordered > a TSH, total T4 and a T3 uptake. I don't have the numbers on me > right now (in his office-we lock it when he's out of town d/t the > kids) but what I remember was that his TSH was like 0.83 which is on > the lower side and his T4 and T3 was within normal limits. My nurses > training tells me that it is suspect of being hyperthyroid. But at > the same time what does low body temp, intolerance to cold and > fatigue, etc.. physical symptoms of what we would consider > hypothyroid doing expressing itself in the face of lab tests showing > more hyperthyroid numbers. Can the two exist together???? > > > Carie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Posted by: " Carie " carrosa51@... momw3gr8kids Thu Jun 12, 2008 9:13 pm (PDT) >post of responses to husband has kidney pain [...] >He did get his thyroid checked as well Dave, but the dr. only ordered a TSH, total T4 and a T3 uptake. I don't have the numbers on me right now (in his office-we lock it when he's out of town d/t the kids) but what I remember was that his TSH was like 0.83 which is on the lower side and his T4 and T3 was within normal limits. My nurses training tells me that it is suspect of being hyperthyroid. But at the same time what does low body temp, intolerance to cold and fatigue, etc.. physical symptoms of what we would consider hypothyroid doing expressing itself in the face of lab tests showing more hyperthyroid numbers. Can the two exist together???? Carie - I'm not an expert on thyroid tests, but there are some on this list. I'll just share what I've picked up - apparently the standard medical interpretaition of thyroid results will not pick up the sub-acute but very real thyroid problems that most of us have. To figure out if thyroid supplementation is in order, testing has to be for _free_ T3, _free_ T4, TSH and antibodies. Then, you can compare with ranges that Andy has in the appendix in AI. That should tell you something about what you might need in the thyroid realm. >Tim and I are looking forward to the delivery of a far infared sauna in the next week. I sure hope I made the right decision in purchasing it. I really want that particular therapy to help considering the investment. I know I've seen them very expensive on the internet. I think I got a good deal though. 2 person (he's 6'4 " so I thought it would give him alittle more room) Hemlock wood, far infared by ceramic heater (carbon was alittle more money than we wanted to spend) It was $969.00 no tax plus free shipping. got it from nationalpoolwholesalers.com in Florida. I didn't find it cheaper anywhere else. Oooh - I'm sorry to say, Carie, but Andy has warned about FIR sauna, not because sweating is not a good idea, quite the contrary, but because these saunas usually fail to heat the body uniformly. Apparently they have the particular problem of getting the spine too hot (though there may be other issues too). You can look on the Autism-Mercury list for long discussion on this. He has suggested instead, regular sauna. >Carie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 > > Posted by: " Carie " carrosa51@... momw3gr8kids > Thu Jun 12, 2008 9:13 pm (PDT) > > > > >He did get his thyroid checked as well Dave, but the dr. only ordered > a TSH, total T4 and a T3 uptake. I don't have the numbers on me > right now (in his office-we lock it when he's out of town d/t the > kids) but what I remember was that his TSH was like 0.83 which is on > the lower side and his T4 and T3 was within normal limits. My nurses > training tells me that it is suspect of being hyperthyroid. A low TSH can be from secondary hypothyroidism (the problem is in the brain). Keep track of his hypothyroid symptoms, early morning temperatures, etc. When testing, test for free T3, free T4 (these should be in the top 1/4 or 1/3 of the normal range), thyroid antibodies (there are 3). But at > the same time what does low body temp, intolerance to cold and > fatigue, etc.. physical symptoms of what we would consider > hypothyroid doing expressing itself in the face of lab tests showing > more hyperthyroid numbers. Can the two exist together???? > Many of us had low TSH and hypothyroid symptoms. Most doctors, including an endocrinologist, ignored my low TSH and hypothyroid symptoms. It took a special doctor to see what was going on and give me thyroid hormone based on symptoms. Does your husband have any symptoms of poor adrenal function (fatigue, aches and pains, stress intolerance, crashing with stress, frequent infections and difficulty shaking infections, dizziness when standing, low BP, hypoglycemia ). Were there adrenal signs on his hair test? If so, the adrenals must be treated before the thyroid. J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 --- I have a comment/question about the " kidney pain " thing. I always thought that I was suffering from kidney pains. Many years ago I used to suffer the occasional bout of an excruciating pain (I'll describe it in a minute...). These attacks were completely random and came on out of the blue. They would often come in clusters and then dissapear for many months. Then last year I noticed a correlation between these pains and having amalgam fillings replaced! So I know that mercury was definitely something to do with pains. I suspect that the past episodes related to dental work too. This is what the pains were like: It would start suddenly with an ache around the belly button or to the side of that area and progress quickly to the sides and back. It would quickly become nauseatingly painful, like a tight band all the way around level or just below the kidney area. It would take my breath away and all I could do was curl up in a ball and breath through it until it passed. It would last a minute or two. I would go very pale and the pain was on a par with labour pains where you also have to stop what you are doing completely.The pains then subside really quickly as if nothing has happened! I don't seem to get these full blown attacks anymore but I do get a dull ache in the same area (kidney region) when I am having a bad round of DMSA - lots of mercury on the move. Now as these correspond to having amalgam work done I doubt they were muscle spasms but the question is were they adrenal or kidney or something else? I do have Addisons (adrenal weakness)so that is a possibilty but I would love to have an explanation for these attacks. Are they similar to what other people here have experienced? In frequent-dose-chelation , " Jada " wrote: > > I had odd pains in the lower back at times, what I call flank pain > because it's not my back and probably not my actual kidney. My first > few rounds my lower back ached like crazy. It went away after a few > rounds. I still don't know why or what it was. I figured I was on the > supplements Andy said to take, so it might just be some HG or whatever > moving. > I took B1 with doses because I am toxic in cadmium and as I read it, > this is a bit more tricky to chelate and B1 protects the kidney from > the cadmium. and I had a long discussion on this 2 years > back. It's probably on onibasu somewhere now. > At other times I have had aching in my " flanks " which seems like the > same place as the kidneys..but as Dave said, kidneys' aren't supposed > to hurt. But adrenals do, and my flank pain came on with too much > hydrocortisone. And I thought someone who told me that their adrenals > were aching was crazy, until I had it happen. > > Kidney stones aren't a factor right? > Also can't a urine test rule out the kidneys? > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.