Re: Re: Fwd: Joyce, Sher, Patti and all

[Guest guest]

Bruce and Peggy

i take my trips listening to books on CD

and watching movies on tv

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Fwd: Joyce, Sher, Patti and allTo: Breathe-Support Date: Tuesday, June 9, 2009, 8:15 PM

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came

to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Bruce, Thanks for the pep talk. Now I remember why we all love you so much here in this Family.This was a very sweet post for me. I appreciate you.  I Love going to Google Earth and finding different places in this world.. fun. That is an amazing site.Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends. Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Thanks Bruce, just about what I thought you would say.

I'll see what doc says. I guess the main thing is how I'll feel when I'm off prednisone.

I started on 3 60s daily and then began tapering off. I'll take the last 1/2 tab today.

That's what I'm concerned about, going beyond the 2-3 weeks.

Thanks brother Bruce.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all> >> > You are all sweet to be concerned about me.. I am just havingtrouble> > again with progression. I was so upset> > about not being able to do anything but I have come to realize Iwas> > diagnosed 5 years ago this month and was told at that time I wasin> > advanced stages SOOO I guess I am blessed to have this day and am> > making plans to go to Kentucky the end of this month with> > , and Amber. Them to be in Chattanooga in October. SoI> > just have to realize I have to be waited on and just> > do the best I can without becoming a pain in the BOOTÃ. Istill> say> > this is just almost to much to ask of a woman that wants to do it> > ALL.. and has until this monster came to live here. But I amthankful> > for this and every other day I am privileged to have.> > I am so thankful for my Kindle I read. read, read.. It really does> > take me all over the world.. In so many situations that I am> > enjoying. So I do encourage you if you find yourself with time to> > spare... take a trip in a book.> > Mysteries are hard on ya if you forget to breathe or hold yourbreath> > until ya shoot the bad guy.. LOL> >> > I still pray for this Air Family daily and do wish I could do> > something, anything to make this easier on all of us.> > This has just been such a really rough month or so.> >> >> > Love and Prayers, Peggy> > IPF 2004, Florida> >> > Worry looks around,> > Sorry looks back,> > Faith looks up.> >> >> > > >>

[Guest guest]

Sher, I've been taking 10mg of Prednisone since January. My lung function went from 44% to 57% but I gained 30 pounds and I got diabetes. I wish that I could go off it but it is helping me. Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends. Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Sher,

Congratulations on finally getting the Section 8!!! I'm so happy for you. I know moving can be a nightmare but when your done you can settle in and say 'never again'. LOL

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, June 10, 2009 3:03:10 PMSubject: Re: Re: Fwd: Joyce, Sher, Patti and all

 Peggy, Bruce.....

This is such a comforting post to Peggy (all of us) Bruce.

I have a question about prednisone.. ..

I've been on a short term use for tendonitis. Didn't help it much but I feel sooo good. It must be the prednisone.

I know, it's the best of drugs and the worst of drugs and you and I feel about the same Peggy. However, I'm wondering if I stayed on a low dose of prednisone would it eventually accumulate in the body and then I'd flop over to the "worst of prednisone"?

I know, I will talk to the doc about it (Friday) but wanted to go straight to the ones 'who know'. lol

Also: Our name has finally come up for Sect 8. I am so excited I'm hyperventilating! Now we can move closer to Lysa and still have our rent subsidized.

You know by now that due to our tremendously high medical bills we no longer can pay market rent for an apt. We've been waiting about 3-4 years. Thank God.

I called the two places that we left apps. at and they both have vacancies.

Now to decide how to hold an apt we may want....that stuff you just went through Bruce.

Hugs to all.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of

a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]



Oh gee, BJ...I don't know if I want to trade this side of prednisone to the other side, with wt. gain and/or diabetes.

I'm borderline now.

DAMNIT! Even the drug that can help, can hurt more.

I'm glad it's helping you...

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Yes, what you say here is true enough. I'm considering pro/cons.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all> > >> > > You are all sweet to be concerned about me.. I am just having> trouble> > > again with progression. I was so upset> > > about not being able to do anything but I have come to realize I> was> > > diagnosed 5 years ago this month and was told at that time I was> in> > > advanced stages SOOO I guess I am blessed to have this day andam> > > making plans to go to Kentucky the end of this month with> > > , and Amber. Them to be in Chattanooga in October.So> I> > > just have to realize I have to be waited on and just> > > do the best I can without becoming a pain in the BOOTÃ. I> still> > say> > > this is just almost to much to ask of a woman that wants to doit> > > ALL.. and has until this monster came to live here. But I am> thankful> > > for this and every other day I am privileged to have.> > > I am so thankful for my Kindle I read. read, read.. It reallydoes> > > take me all over the world.. In so many situations that I am> > > enjoying. So I do encourage you if you find yourself with timeto> > > spare... take a trip in a book.> > > Mysteries are hard on ya if you forget to breathe or hold your> breath> > > until ya shoot the bad guy.. LOL> > >> > > I still pray for this Air Family daily and do wish I could do> > > something, anything to make this easier on all of us.> > > This has just been such a really rough month or so.> > >> > >> > > Love and Prayers, Peggy> > > IPF 2004, Florida> > >> > > Worry looks around,> > > Sorry looks back,> > > Faith looks up.> > >> > >> > > > > >> >>

[Guest guest]



MB... oh how we are looking forward to 'never again'...we're too damn old to still be moving around. But health stepped in and you know the rest.

I just start by making lists of things to do and before you know the movers will be here!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Beverely

she started me on metformim gradually

week 1 -- 1 tablet at dinner

week 2 -- 1 tablet at dinner and 1 at breakfast

week 3 -- 2 tablets at dinner and 1 at breakfast

week 4 -- 2 tablets at dinner and 2 at breakfast

she does it this way because one of the early side effects is an upset stomach, which is supposed to go away

by week 4 it was so bad, that i lomotil wasn't working, so she said i could go back down to 2 tablets daily

i made a chart on the computer that i print out monthly for glucose levels with notes:

you can find other charts in literature from the diabetic association

Metformin

500 mgs

June

2009

Prednisone

mgs

Before meal

time mgs ?hours

2 hours after meal

time mgs ?hours

notes

1

2

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Fwd: Joyce, Sher, Patti and allTo: Breathe-Support Date: Wednesday, June 10, 2009, 11:55 PM

Thank you. I have only been on the Metformin for less that a week but so far it doesn't seem to be doing a lot. I've heard 150 before but I'll check with my doctor. I don't have a lot of specialists. Medicare probably wouldn't pay for it if I did. I just have my primary care and my pulmo who is moving the first and my cardiologist. I guess that that is plenty.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Thank you. I don't know if she is planning on giving me more or what. I am supposed to see her before I go on my trip on the first. I have to see her tomorrow but I think it may be too soon to do anything more about the Metformin. I think that I will ask her though.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

maybe i should cut down my carbs now lol SORRY ONE HANDED FOR AWHILE patti CH,NJ

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >