Vitamin E normal?

[Guest guest]

Hi -

My 6.5 yr old daughter has global dyspraxia, hypotonia, and some learning

difficulties. At my request, they tested her for Celiac, Vitamin E deficiency,

and Lyme (we live in the Northeast and in the woods, so Lyme is very prevelant),

all came back normal. I was really surprised about the Vitamin E. She has poor

balance and movement issues and severly dry skin. She sounds exactly like the

symptoms of Vitamin E deficiency. Is it possible she has issues with vitamin E

even if she tests as normal? Have other parents who have had success with

Vitamin E supplements tested within normal levels without supplementation? Is

the test for Vitamin E levels a good test for whether supplementation is needed?

They also had suspected her for a fatty acid oxidation disorder, but so far all

of the tests have come back as normal. Can't seem to pin point anything wrong.

We are waiting on a more extensive chromosomal analysis. I'll keep you posted on

how that goes.

[Guest guest]

The blood test for many vitamins is not necessarily accurate because

it does not reflect levels in certain organs...like the brain. My

son also had normal levels that did not change at all even with high

dose vit E supplements. I'm not sure why that is...but HE certainly

changed with supplements. Maybe it is just being consumed very

rapidly, and these children need supraphysiological levels for

normal brain function? Consider giving it a try. Its a benign

intervention...and if you see benefit - great. If not, nothing lost.

But we have gotten a clinical cure with vit E + omega 3

supplements...and no obvious vit E deficiency identified by blood

test, although a severe carnitine deficiency was identified.

> Hi -

> My 6.5 yr old daughter has global dyspraxia, hypotonia, and some

learning difficulties. At my request, they tested her for Celiac,

Vitamin E deficiency, and Lyme (we live in the Northeast and in the

woods, so Lyme is very prevelant), all came back normal. I was

really surprised about the Vitamin E. She has poor balance and

movement issues and severly dry skin. She sounds exactly like the

symptoms of Vitamin E deficiency. Is it possible she has issues with

vitamin E even if she tests as normal? Have other parents who have

had success with Vitamin E supplements tested within normal levels

without supplementation? Is the test for Vitamin E levels a good

test for whether supplementation is needed?

>

> They also had suspected her for a fatty acid oxidation disorder,

but so far all of the tests have come back as normal. Can't seem to

pin point anything wrong. We are waiting on a more extensive

chromosomal analysis. I'll keep you posted on how that goes.

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