RE: Glenn update...such as it is

[Guest guest]

(((((((((Donelle)))))))) your in my thoughts and prayers hun

Deb

Grandmommyandme@... wrote:

{{{{{{ To ALL }}}}}}

I know I'm not posting much...but I'm reading and trying to keep up with

everyone. Haven't seen anything from for a couple days, tho. Or

Dianna for a while. Am I just missing some messages?? I IM'd with Narice

early

this morning and she was going to the hospital about 8 a.m....haven't heard

from her since and praying things are going as well as she hoped they would

for Phil today...

Welll.....I raged finally today!!! As most of you know, but as an update

for the newest family members.... Glenn had the pump surgery on Aug. 29th and

was given a strong anti-biotic from which he developed an " anti-biotic related

Colitis also called C-Diff (short for some real long name) and has had this

brutally severe diarrhea for the last 8 wks. TODAY, with some relief after

numerous meds and losing another 15 lbs. Instead of 30-40 times a day and

night, it's down to 5-10 times a day...he has had some diarrhea-free

nights...wahooo!!! Seriously, I'm grateful. Last Wed., I was able to get him

to the

hosp. for a full Liver Panel Profile and another stool sample testing.

Glenn talked with the Dr. before I got home from work yesterday and the Dr.

told him the stool sample was " clean " ...meaning the C-Diff infection is

cleared up (but remember he still has the diarrhea, albeit not as bad) and

never

mentioned the liver profile results...and, of course, Glenn didn't ask. Glenn

did ask, " What do I do now? " to which the GI Specialist said... " I'm calling

in another prescription for the diarrhea (not an anti- and WE RIDE IT

OUT " ....well, I was livid....and it didn't go away overnight...smiling

sheepishly!!

When I got to work, I called both the GI Spec. and the Onc. The GI GUY was

out of the office and couldn't be reached for the day...so I laid it on his

poor nurse. I didn't scream or yell...just told her that someone has to do

something for this poor man, who is literally lying here totally non

functional, unable to eat or retain anything if he does eat. If he is dying, I

need to

know and he needs to know!!! He needs to be made comfortable and I need to

call in Hospice. The conversation was more in depth, but I'll spare you...

Well, miraculously the nurse " found " the dr. b/c he called here, once again,

before I got home (and he knows what time I get home and has my cell phone and

work phone...he doesn't want to deal with me) He basically told Glenn to

call his Onc. b/c his liver profile counts or whatever they are were

high....now why didn't he tell him that yesterday??? Well, I had already

called the

Onc. this morning...so does that make me a better dr. than the

Specialist....LOL

When you call s Hopkins Hosp. you can NEVER talk immediately to your dr.

But the Triage Nurse listened to " My story " and said she would talk with

the Dr. and call me back....and she did. I told her all of the above what's

been going on....and that the C-Diff is cleared up... told her his skin tone

was yellow as are his bowel movements, he itches all over, and the " bruising "

marks that were only on one arm are now all over most of his body, he's

sleeping 20 hrs a day and having a lot of pain in the upper and lower

abdomen...if

the liver is failing further, I need to know and he needs to know!!!! Well,

I want you to know I got an appt. for Glenn for Thursday....yes, day after

tomorrow!!! Not 4 wks. from now.... which impressed me until I realized there

may be some serious crap going on and that's why they are getting us in so

quickly. They have already scheduled a CT Scan and bloodwork previous to

seeing the Onc. at 12 noon. Normally, as you all know, it takes weeks to get

them done also.... I had already told the GI Spec. nurse to fax over the

results of the testing from last week, so he now has that.

So that brings you up to date.... obviously we need prayers....and will

continue prayer for each of you...

Just IM'd with Narice... and Phil has a blood infection....she is very sad

and, of course tired from the grueling day at the hospital... please keep her

and Phil in your prayers also....

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Oh golly you and Narice need ton of prayers and some good hugs from us all

to get you both through yet another ordeal. And the Phil and Glenn need them

more than ever asl well. Hoping Phil feels better soon and can come home

and hope you and Glenn find out what you need to know on Thursday. God

Bless you all.. Hugs and Prayers Jolene

pport [mailto:colon_cancer_support ] On

Behalf Of Grandmommyandme@...

Sent: Tuesday, November 01, 2005 10:09 PM

To: colon_cancer_support

Subject: Glenn update...such as it is

{{{{{{ To ALL }}}}}}

I know I'm not posting much...but I'm reading and trying to keep up with

everyone. Haven't seen anything from for a couple days, tho. Or

Dianna for a while. Am I just missing some messages?? I IM'd with Narice

early

this morning and she was going to the hospital about 8 a.m....haven't heard

from her since and praying things are going as well as she hoped they would

for Phil today...

Welll.....I raged finally today!!! As most of you know, but as an update

for the newest family members.... Glenn had the pump surgery on Aug. 29th

and

was given a strong anti-biotic from which he developed an " anti-biotic

related

Colitis also called C-Diff (short for some real long name) and has had this

brutally severe diarrhea for the last 8 wks. TODAY, with some relief after

numerous meds and losing another 15 lbs. Instead of 30-40 times a day and

night, it's down to 5-10 times a day...he has had some diarrhea-free

nights...wahooo!!! Seriously, I'm grateful. Last Wed., I was able to get

him to the

hosp. for a full Liver Panel Profile and another stool sample testing.

Glenn talked with the Dr. before I got home from work yesterday and the Dr.

told him the stool sample was " clean " ...meaning the C-Diff infection is

cleared up (but remember he still has the diarrhea, albeit not as bad) and

never

mentioned the liver profile results...and, of course, Glenn didn't ask.

Glenn

did ask, " What do I do now? " to which the GI Specialist said... " I'm calling

in another prescription for the diarrhea (not an anti- and WE RIDE IT

OUT " ....well, I was livid....and it didn't go away overnight...smiling

sheepishly!!

When I got to work, I called both the GI Spec. and the Onc. The GI GUY was

out of the office and couldn't be reached for the day...so I laid it on his

poor nurse. I didn't scream or yell...just told her that someone has to do

something for this poor man, who is literally lying here totally non

functional, unable to eat or retain anything if he does eat. If he is

dying, I need to

know and he needs to know!!! He needs to be made comfortable and I need to

call in Hospice. The conversation was more in depth, but I'll spare you...

Well, miraculously the nurse " found " the dr. b/c he called here, once

again,

before I got home (and he knows what time I get home and has my cell phone

and

work phone...he doesn't want to deal with me) He basically told Glenn to

call his Onc. b/c his liver profile counts or whatever they are were

high....now why didn't he tell him that yesterday??? Well, I had already

called the

Onc. this morning...so does that make me a better dr. than the

Specialist....LOL

When you call s Hopkins Hosp. you can NEVER talk immediately to your

dr.

But the Triage Nurse listened to " My story " and said she would talk with

the Dr. and call me back....and she did. I told her all of the above

what's

been going on....and that the C-Diff is cleared up... told her his skin

tone

was yellow as are his bowel movements, he itches all over, and the

" bruising "

marks that were only on one arm are now all over most of his body, he's

sleeping 20 hrs a day and having a lot of pain in the upper and lower

abdomen...if

the liver is failing further, I need to know and he needs to know!!!!

Well,

I want you to know I got an appt. for Glenn for Thursday....yes, day after

tomorrow!!! Not 4 wks. from now.... which impressed me until I realized

there

may be some serious crap going on and that's why they are getting us in so

quickly. They have already scheduled a CT Scan and bloodwork previous to

seeing the Onc. at 12 noon. Normally, as you all know, it takes weeks to

get

them done also.... I had already told the GI Spec. nurse to fax over the

results of the testing from last week, so he now has that.

So that brings you up to date.... obviously we need prayers....and will

continue prayer for each of you...

Just IM'd with Narice... and Phil has a blood infection....she is very sad

and, of course tired from the grueling day at the hospital... please keep

her

and Phil in your prayers also....

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 11/2/2005 1:17:17 AM Eastern Standard Time,

flytodeb@... writes:

Donelle, you have had a grueling day, too. You deserve better treatment from

your docs. Hugs and prayers for you and Glenn. Also Narice and Phil. You are

all on our minds. Praying for miracles tonight. Take care. God bless.

~Deb from KS

Thanks bunches, Deb!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 11/2/2005 12:29:43 AM Eastern Standard Time,

jehret@... writes:

Oh golly you and Narice need ton of prayers and some good hugs from us all

to get you both through yet another ordeal. And the Phil and Glenn need them

more than ever asl well. Hoping Phil feels better soon and can come home

and hope you and Glenn find out what you need to know on Thursday. God

Bless you all.. Hugs and Prayers Jolene

Oh, trust me, Jolene, I " WILL " find out what's going on...where we stand...

and how we can make Glenn more comfortable...or we aren't leaving the

hospital!!!

Thanks for prayers and good thoughts!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Donelle, you have had a grueling day, too. You deserve better treatment from

your docs. Hugs and prayers for you and Glenn. Also Narice and Phil. You are all

on our minds. Praying for miracles tonight. Take care. God bless.

~Deb from KS

Grandmommyandme@... wrote:

{{{{{{ To ALL }}}}}}

I know I'm not posting much...but I'm reading and trying to keep up with

everyone. Haven't seen anything from for a couple days, tho. Or

Dianna for a while. Am I just missing some messages?? I IM'd with Narice

early

this morning and she was going to the hospital about 8 a.m....haven't heard

from her since and praying things are going as well as she hoped they would

for Phil today...

Welll.....I raged finally today!!! As most of you know, but as an update

for the newest family members.... Glenn had the pump surgery on Aug. 29th and

was given a strong anti-biotic from which he developed an " anti-biotic related

Colitis also called C-Diff (short for some real long name) and has had this

brutally severe diarrhea for the last 8 wks. TODAY, with some relief after

numerous meds and losing another 15 lbs. Instead of 30-40 times a day and

night, it's down to 5-10 times a day...he has had some diarrhea-free

nights...wahooo!!! Seriously, I'm grateful. Last Wed., I was able to get him

to the

hosp. for a full Liver Panel Profile and another stool sample testing.

Glenn talked with the Dr. before I got home from work yesterday and the Dr.

told him the stool sample was " clean " ...meaning the C-Diff infection is

cleared up (but remember he still has the diarrhea, albeit not as bad) and

never

mentioned the liver profile results...and, of course, Glenn didn't ask. Glenn

did ask, " What do I do now? " to which the GI Specialist said... " I'm calling

in another prescription for the diarrhea (not an anti- and WE RIDE IT

OUT " ....well, I was livid....and it didn't go away overnight...smiling

sheepishly!!

When I got to work, I called both the GI Spec. and the Onc. The GI GUY was

out of the office and couldn't be reached for the day...so I laid it on his

poor nurse. I didn't scream or yell...just told her that someone has to do

something for this poor man, who is literally lying here totally non

functional, unable to eat or retain anything if he does eat. If he is dying, I

need to

know and he needs to know!!! He needs to be made comfortable and I need to

call in Hospice. The conversation was more in depth, but I'll spare you...

Well, miraculously the nurse " found " the dr. b/c he called here, once again,

before I got home (and he knows what time I get home and has my cell phone and

work phone...he doesn't want to deal with me) He basically told Glenn to

call his Onc. b/c his liver profile counts or whatever they are were

high....now why didn't he tell him that yesterday??? Well, I had already

called the

Onc. this morning...so does that make me a better dr. than the

Specialist....LOL

When you call s Hopkins Hosp. you can NEVER talk immediately to your dr.

But the Triage Nurse listened to " My story " and said she would talk with

the Dr. and call me back....and she did. I told her all of the above what's

been going on....and that the C-Diff is cleared up... told her his skin tone

was yellow as are his bowel movements, he itches all over, and the " bruising "

marks that were only on one arm are now all over most of his body, he's

sleeping 20 hrs a day and having a lot of pain in the upper and lower

abdomen...if

the liver is failing further, I need to know and he needs to know!!!! Well,

I want you to know I got an appt. for Glenn for Thursday....yes, day after

tomorrow!!! Not 4 wks. from now.... which impressed me until I realized there

may be some serious crap going on and that's why they are getting us in so

quickly. They have already scheduled a CT Scan and bloodwork previous to

seeing the Onc. at 12 noon. Normally, as you all know, it takes weeks to get

them done also.... I had already told the GI Spec. nurse to fax over the

results of the testing from last week, so he now has that.

So that brings you up to date.... obviously we need prayers....and will

continue prayer for each of you...

Just IM'd with Narice... and Phil has a blood infection....she is very sad

and, of course tired from the grueling day at the hospital... please keep her

and Phil in your prayers also....

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

In a message dated 11/2/2005 7:22:28 AM Eastern Standard Time,

flytodeb@... writes:

Oh, my! Donelle, I didn't realize that Glenn was in the hospital. Or

are you talking about the Thursday appointments? My thoughts and

prayers are with you and Glenn. Hang in there. Stay strong.

Hugs & prayers,

~Deb from KS

No, he's not in hosp...talking about when we go to hosp. on Thurs. to see

Onc. His Onc is on Dr. Choti's team at s Hopkins...one of the top

Liver Specialists in the country...so hoping they can tell us what's going on

and what to do next...

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Oh, my! Donelle, I didn't realize that Glenn was in the hospital. Or

are you talking about the Thursday appointments? My thoughts and

prayers are with you and Glenn. Hang in there. Stay strong.

Hugs & prayers,

~Deb from KS

> I " WILL " find out what's going on...where we stand...

> and how we can make Glenn more comfortable...or we aren't leaving

the hospital!!!

> Thanks for prayers and good thoughts!!!

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

[Guest guest]

You tell them gal!... I am woman hear me ROOOAAAAARRRR.!!! Jolene

Re: Glenn update...such as it is

In a message dated 11/2/2005 12:29:43 AM Eastern Standard Time,

jehret@... writes:

Oh golly you and Narice need ton of prayers and some good hugs from us all

to get you both through yet another ordeal. And the Phil and Glenn need

them

more than ever asl well. Hoping Phil feels better soon and can come home

and hope you and Glenn find out what you need to know on Thursday. God

Bless you all.. Hugs and Prayers Jolene

Oh, trust me, Jolene, I " WILL " find out what's going on...where we stand...

and how we can make Glenn more comfortable...or we aren't leaving the

hospital!!!

Thanks for prayers and good thoughts!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Donelle, I am Praying constantly for Glenn and Phil. My heart and

thoughts are with you. Love, Ingrid

>

> {{{{{{ To ALL }}}}}}

>

> I know I'm not posting much...but I'm reading and trying to keep

up with

> everyone. Haven't seen anything from for a couple days,

tho. Or

> Dianna for a while. Am I just missing some messages?? I IM'd

with Narice early

> this morning and she was going to the hospital about 8

a.m....haven't heard

> from her since and praying things are going as well as she hoped

they would

> for Phil today...

>

> Welll.....I raged finally today!!! As most of you know, but as an

update

> for the newest family members.... Glenn had the pump surgery on

Aug. 29th and

> was given a strong anti-biotic from which he developed an " anti-

biotic related

> Colitis also called C-Diff (short for some real long name) and has

had this

> brutally severe diarrhea for the last 8 wks. TODAY, with some

relief after

> numerous meds and losing another 15 lbs. Instead of 30-40 times a

day and

> night, it's down to 5-10 times a day...he has had some diarrhea-

free

> nights...wahooo!!! Seriously, I'm grateful. Last Wed., I was

able to get him to the

> hosp. for a full Liver Panel Profile and another stool sample

testing.

>

> Glenn talked with the Dr. before I got home from work yesterday

and the Dr.

> told him the stool sample was " clean " ...meaning the C-Diff

infection is

> cleared up (but remember he still has the diarrhea, albeit not as

bad) and never

> mentioned the liver profile results...and, of course, Glenn didn't

ask. Glenn

> did ask, " What do I do now? " to which the GI Specialist

said... " I'm calling

> in another prescription for the diarrhea (not an anti- and WE

RIDE IT

> OUT " ....well, I was livid....and it didn't go away

overnight...smiling sheepishly!!

>

> When I got to work, I called both the GI Spec. and the Onc. The

GI GUY was

> out of the office and couldn't be reached for the day...so I laid

it on his

> poor nurse. I didn't scream or yell...just told her that someone

has to do

> something for this poor man, who is literally lying here totally

non

> functional, unable to eat or retain anything if he does eat. If he

is dying, I need to

> know and he needs to know!!! He needs to be made comfortable and

I need to

> call in Hospice. The conversation was more in depth, but I'll

spare you...

> Well, miraculously the nurse " found " the dr. b/c he called here,

once again,

> before I got home (and he knows what time I get home and has my

cell phone and

> work phone...he doesn't want to deal with me) He basically told

Glenn to

> call his Onc. b/c his liver profile counts or whatever they are

were

> high....now why didn't he tell him that yesterday??? Well, I had

already called the

> Onc. this morning...so does that make me a better dr. than the

Specialist....LOL

>

> When you call s Hopkins Hosp. you can NEVER talk immediately

to your dr.

> But the Triage Nurse listened to " My story " and said she would

talk with

> the Dr. and call me back....and she did. I told her all of the

above what's

> been going on....and that the C-Diff is cleared up... told her

his skin tone

> was yellow as are his bowel movements, he itches all over, and

the " bruising "

> marks that were only on one arm are now all over most of his body,

he's

> sleeping 20 hrs a day and having a lot of pain in the upper and

lower abdomen...if

> the liver is failing further, I need to know and he needs to

know!!!! Well,

> I want you to know I got an appt. for Glenn for Thursday....yes,

day after

> tomorrow!!! Not 4 wks. from now.... which impressed me until I

realized there

> may be some serious crap going on and that's why they are getting

us in so

> quickly. They have already scheduled a CT Scan and bloodwork

previous to

> seeing the Onc. at 12 noon. Normally, as you all know, it takes

weeks to get

> them done also.... I had already told the GI Spec. nurse to fax

over the

> results of the testing from last week, so he now has that.

>

> So that brings you up to date.... obviously we need prayers....and

will

> continue prayer for each of you...

>

> Just IM'd with Narice... and Phil has a blood infection....she is

very sad

> and, of course tired from the grueling day at the hospital...

please keep her

> and Phil in your prayers also....

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>