Re: Food, please

June 16, 2009

I just got up. It is 5 am. I hope you had a good night.

Pik

Subject: Food, pleaseTo: Breathe-Support Date: Monday, June 15, 2009, 10:21 PM

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 17, 2009

HI Sunny,Now you wouldn't want to go through all that surgery and not take care of the complications now would you? Please get in. It sounds like you have 'pitting edema' and it needs to be evaluated. Did they say you might have this and not to worry about it if you did? I doubt it. O.K. I'll stop scolding you. You're too funny and bring a lot of delight to this group and I imagine your family must be in stitches all the time. Please do what you can. If this regurgitation was causing the disease and you can arrest it maybe you can stabilize at 40% and function relatively well on that. My father was down to 10% at the end and that isn't enough. I hope your next post is one with some information about what they think/do about your fluid retention. :)Concerned, Peggy

E.Subject: Re: Food, pleaseTo: Breathe-Support Date: Wednesday, June 17, 2009, 7:54 AM

I had a hiatal hernia repair and a Nissen fundoplication. Luckily they were able to do a lapro so I only have a few little new holes in my tummy. And yes until last night my pain was very well contolled. I toast you with my liquid pain med. Yummy. But of course being the moron that I am and feeling no pain I did too much and now I feel it. I have/had terrible aspiration that was eating away my lungs. This procedure will hopefully stop the reflux and I'll level out at 40% lung capacity. Talk about gross - they found bowel material in my lungs! Gross, gross, gross! My bowels were backing up in to my stomach then that was backing up in to my lungs. While in the hospital coming out of antithesis I started having Grand Mal seizures and didn't completely stop for hours. Actually I never completely stopped seizing and am still having little episodes. The surgeon thinks it's cause by pain but I am calling my GP today because I want it looked in to. Then I got something called C-Dif in the hospital and that makes your (delicately now Sunny) poo very watery and stinky. Then I got a UTI that moved in to my kidney. That didn't surprise them since I was just getting over one. Today I am still very fluffy and my throat is really sore. I think the sore throat is probably from the tube but then I'm not a doctor but I could play one on TV. I wish someone could explain why when I'm extremely puffy I also perspire (southern women do not sweat) like someone dumped a bucket of water over me. Whoa, maybe I have rabies? Have a wonderful day. Wave if you see me float past. I am going to tie a string to my ankle just so I don't get to puffy and float away. Then I'd be in a real pickle. Get it? Pickel? I crack me up!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Embarq Customer

Sent: Wednesday, June 17, 2009 7:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

Sunny I hope your pain is under control. I missed out on what is causing the pain.If your up to it could you let me know.Thanks !Take carePJ Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 17, 2009

Sunny

you crack me up too

actually a neighbor of mine had a similar operation, and her caughing stopped, she is doing very well

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Food, pleaseTo: Breathe-Support Date: Wednesday, June 17, 2009, 10:54 AM

I had a hiatal hernia repair and a Nissen fundoplication. Luckily they were able to do a lapro so I only have a few little new holes in my tummy. And yes until last night my pain was very well contolled. I toast you with my liquid pain med. Yummy. But of course being the moron that I am and feeling no pain I did too much and now I feel it. I have/had terrible aspiration that was eating away my lungs. This procedure will hopefully stop the reflux and I'll level out at 40% lung capacity. Talk about gross - they found bowel material in my lungs! Gross, gross, gross! My bowels were backing up in to my stomach then that was backing up in to my lungs. While in the hospital coming out of antithesis I started having Grand Mal seizures and didn't completely stop for hours. Actually I never completely stopped seizing and am still having little episodes. The surgeon

thinks it's cause by pain but I am calling my GP today because I want it looked in to. Then I got something called C-Dif in the hospital and that makes your (delicately now Sunny) poo very watery and stinky. Then I got a UTI that moved in to my kidney. That didn't surprise them since I was just getting over one. Today I am still very fluffy and my throat is really sore. I think the sore throat is probably from the tube but then I'm not a doctor but I could play one on TV. I wish someone could explain why when I'm extremely puffy I also perspire (southern women do not sweat) like someone dumped a bucket of water over me. Whoa, maybe I have rabies? Have a wonderful day. Wave if you see me float past. I am going to tie a string to my ankle just so I don't get to puffy and float away. Then I'd be in a real pickle. Get it? Pickel? I crack me up!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Embarq Customer

Sent: Wednesday, June 17, 2009 7:29 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

Sunny I hope your pain is under control. I missed out on what is causing the pain.If your up to it could you let me know.Thanks !Take carePJ Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 17, 2009

Sunny is finding ways to joke about it

didn't you see her floating by

i wonder how many days it will take for her to float over PA

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Food, pleaseTo: Breathe-Support Date: Wednesday, June 17, 2009, 2:25 PM

ï»¿ Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 17, 2009

Thanks for posting Sunny. You are an absolute hoot (to me that means youare very funny!) My goodness you are going through a lot. This whole lung-stomach thing is very interesting to me.You know what's not funny is my insurance is dropping coverage on PPI"s, isn'tthat an interesting drug to drop coverage on in this day and age.Anyway if you float on by my house in Ohio I will be sure to wave!Take care.I will say a prayer for you.PJ Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support

Subject: Re: Food, please

ï»¿ Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Sunny,

You amaze and baffle me. I've never seen such a collection of problems in one person before. Are they doing anything at all to control the seizures? It seems very strange to me that they are ok with you being at home on your own with a heart rate of 186. That's extremely rapid.

Do they feel the swelling is related to your kidney infection?....obviously as you know your kidneys move excess fluid out of your body. If one or both isn't working well that could be part of the problem possibly.

And now add your liver problems to the list. Wow I'm sorry you are going through all this. It just makes me shake my head. How did you ever find the strength to create that hilarious garden of yours?

Hope you feel better soon.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, June 18, 2009 6:31:39 AMSubject: Re: Food, please

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's

instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by

incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am

getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up

e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home

is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿ Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Hi Peggy,My Rich is named Lyle but he is the same in description as Sunny says about her wonderful husband! I am still there - I think the album is titled Peggy Italy or something like that - it is pretty far towards the back in all the albums. thanks for the compliment - I feel like I've aged so much this last year. I suppose it might be due to the O2 but maybe I just am more aware now for some reason.I think everyone is beautiful - I love the diversity of the human race and am especially blessed now as I am living in a very diverse area. Many of my neighbors don't even speak English and are from all over the globe. I wish I knew all their languages as I would love to hear their stories but we just struggle with little things like "what are you planting in your yard etc." but it is a start

and we do what we can.O.K. Seriously now I have to get some things done around here.Peggy E. (not lost in Italy - damn) ï»¿ Sunny....how about a picture of you and ? I'm glad you have the security of a dependable husband. I have one too. We are very lucky. You just keep on keepin' on girl! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04,

GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

ï»¿

I'll keep watching. Thanks PeggyC

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Peggy,

Please let me know your mother-in-law's name so I can pray in agreement with you. I am already doing that but it helps my memory to have a name so that I can be continually praying. Us Midwest girls are hardy stock that's for sure. You are strong and brave. It takes great courage to share your joys and pains with all of us Air Family folks. I don't know what kind of tree I am but I know my roots are buried deep in the Rock. Last night at the ER I was blessed to be able to testify to a nurse and show that even great pain can't make one of God's children mean. What a great blessing being in the ER turned out to be. It's all in how you look at it. The other day somebody called me a Jesus Freak and I said "Yes and I have the t-shirt to prove it." That set them back a bit. We are having a beautiful day. It's not too hot, not too cold with those fluffy clouds fluttering across an azure sky. So beautiful it takes my breath away - oh no wait, that was the IPF. Hee Hee! My edema is so much better today that I won't be up there floating around but that's okay we are near an AFB and dodging jets was making me dizzy. Peace on your house and the love of our Father to surround you is my wish this day for you.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Peggy Ellis

Sent: Thursday, June 18, 2009 1:28 PM

To: Breathe-Support

Subject: Re: Food, please

Hi Sunny,After reading that e-mail I think you are a cross between an oak tree and a willow tree - strong and flexible. You're an inspiration and so brave. Glad you went in and talked to them about the edema. I'll keep you in my prayers as well. Can never have too many prayers.I'm very happy today because my Mother-in-Law (whom I love so much) made it through her aortic valve replacement surgery and is now in ICU. Her next hurtle is getting off the ventilator so I've got her in my prayers as well but she is a healthy farm girl from Nebraska and in spite of severe scoliosis and osteoporosis she just can't be kept down. I imagine she'll pass all the younger patients on her road to recovery. There are so many strong and brave people in my life - maybe I can be stronger and braver myself as I live my life.I hope you are having a beautiful day in Idaho - it's pretty here - high clouds and sun filtering through - just the kind of day I love (of course I love all weather - there is no such thing as bad weather except hail when you are outside - LOL)Peggy E

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support Date: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Can I send one from 25 years ago? No? Okay, I will have the neighbor take one of Rich and I. Then someone else will have to upload it for me cause me still not know how.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Thursday, June 18, 2009 1:57 PM

To: Breathe-Support

Subject: Re: Food, please

ï»¿ Sunny....how about a picture of you and ?

I'm glad you have the security of a dependable husband. I have one too. We are very lucky.

You just keep on keepin' on girl!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Sunny, I can't say that northwest roads are bad. It's more like north Idaho roads.People don't want to believe that we are really terminal so they say foolish things.I was thinking about going to see you tomorrow if I was feeling up to it but you said a bad word, contagious. I can't take a chance on that one. I'm happy that you have someone who is willing to help you.I think that Rich has enough on his plate without coming to help me. If he has my weedeater running though I might be able to find someone to use it. Maybe Bob and i could come get it.I'm sending a big smile your way. Your friend, BevBeverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 18, 2009

Nexium is a proton pump inhibitor.PJ Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 19, 2009

Bev,

Probably the smartest thing to do as I woke up this morning with a hacking cough. It hurts my incisions so bad to cough. I can't believe my luck. Anyway back to bed for me just wanted to check and see if you were coming this weekend. I was going to call you today but it hurts to breath or talk so perhaps tomorrow. Love you precious,

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Beverley Joy

Sent: Thursday, June 18, 2009 10:32 PM

To: Breathe-Support

Subject: Re: Food, please

Sunny, I think that I can wait until you are well. With both of our lungs the way that we are we had better not take chances. I didn't hear about my house again today so it looks like they found another one. Maybe next time. I'm sending smiles your way. I hope that they help you get well, BevBeverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Ah Beverley,

Another ER run for me today. I have developed Bronchitis on top of everything else. You can't imagine how bad it hurts to cough with all these tummy stitches. The ran more fluids an Antibiotics in to me and did a contract CT just to make sure I haven't ripped anything loose. I didn't and all looked well. The last couple of days I just can't seem to get a break. Oh well, I know I will feel better soon. Walt's jokes make me laugh and it hurts but it's a good hurt. Don't stop Walt. You are a ray of sunshine in my cloudy week.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Beverley Joy

Sent: Friday, June 19, 2009 2:57 PM

To: Breathe-Support

Subject: Re: Food, please

Sunny, I'm sorry that you are feeling so bad today. I've felt better myself but mostly just a stomach ache. It'll go away after while.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Dear Sunny,I'm sure the nurses told you to hold a pillow over those incisions when you have to cough for support. Plus, post op you do need to cough, especiallywith the lung issue and all. Have you been up and walking about the house throughout the day-this will help with your circulation and lungs and all.I pray you have an especially restful day and begin healing from the inside out.Your friend, PJ Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Sunny, You make me feel like I don't have it so bad after all. Bronchitis is bad. I hope that you start improving soon. Like now. Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Hi Sunny,I'm glad to hear they gave you some IV antibiotics - can't believe they aren't just having you go in every 12 hours or so for an IV antibiotic drip for your infections. I hope that kicks it and you can rest and recover. My heart aches for your suffering. I will keep you in my prayers for a restful night and a brighter tomorrow.Love,Peggy E.

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

PJ,

No, not one person said anything about holding a pillow over my tummy when I cough but you are right it helps. Yes, I have made myself get up and walk at least once every couple of hours not to mention rushing (gently) to the toilet because of the c-dif. I researched that stuff on-line and it is nasty. The hospital did not explain about it at all but I am on big time infection meds for that and kidneys. I also have two different devises that I use every hour for my breathing. One I blow in to and it sounds like a kazoo and the other I inhale and exhale through and it has a slide thing so hopefully that is going to help my lungs. It's all worth it if it stops the degeneration of my lungs and the doctors really believe it will. Thanks for the tip about the pillow. Blessings

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Embarq Customer

Sent: Saturday, June 20, 2009 6:29 AM

To: Breathe-Support

Subject: Re: Food, please

Dear Sunny,I'm sure the nurses told you to hold a pillow over those incisions when you have to cough for support. Plus, post op you do need to cough, especiallywith the lung issue and all. Have you been up and walking about the house throughout the day-this will help with your circulation and lungs and all.I pray you have an especially restful day and begin healing from the inside out.Your friend, PJ Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Glad to be of help Sunny.I hope you have a good night.PJ Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

I look at my e-mails and what I wrote and am embarrassed at the spelling. I guess the pain meds are doing something. I am doing much better today probably because I slept from 8pm last night until 5pm tonight with just a brief awaking for email check and food. The c-dif has calmed down and the coughing is a little better. My body needs a break from infection I think. Just a little time to get some strength back. I miss you and Bob. Rich had to work all day today and all day tomorrow so we won't see you until next week at the earliest. Riding in a car is painful right now but should be better in a few days. Love you sweetness,

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Beverley Joy

Sent: Saturday, June 20, 2009 9:20 AM

To: Breathe-Support

Subject: Re: Food, please

Sunny, You make me feel like I don't have it so bad after all. Bronchitis is bad. I hope that you start improving soon. Like now. Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Peggy,

I swear the sweetest people on earth belong to this board. Thank you for your prayers. I slept all day today and actually feel better tonight. And someone (sorry OD cause I forgot who) told me to use a pillow on my tummy for the coughing and boy does it help. The c-dif is lightened up too. I am sure I will be better each day. God's most precious blessings on you.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Peggy Ellis

Sent: Saturday, June 20, 2009 5:41 PM

To: Breathe-Support

Subject: Re: Food, please

Hi Sunny,I'm glad to hear they gave you some IV antibiotics - can't believe they aren't just having you go in every 12 hours or so for an IV antibiotic drip for your infections. I hope that kicks it and you can rest and recover. My heart aches for your suffering. I will keep you in my prayers for a restful night and a brighter tomorrow.Love,Peggy E.

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

June 20, 2009

Sunny, I'm glad that you are finally feeling better. Your body definitely needs a break. I'm sorry that Rich has to work all weekend. At least you have him in the evenings. I'll be leaving on my trip on the first. Maybe we can get together before that. Love you too.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM

Mama Sher,

I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning!

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Sher Bauman

Sent: Wednesday, June 17, 2009 11:25 AM

To: Breathe-Support@ yahoogroups. com

Subject: Re: Food, please

ï»¿

Sunny... when I read your posts I am left shaking my head to clear the overload.

I'm sorry you cope with so much.

You write about so many problems but what are the solutions for you?

What will be done to stop fecal matter from backing up?

Swelling to the degree you describe is dangerous, what are you doing about it?

Wish I had some answers but I don't....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Food, please

Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain.

Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

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