Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 I don't see Sunny's pictures...I checked out the albums... Where are they Sunny? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Sunny I am glad you are feeling better. I loved the photo's,your yard is unique and the wall is a great idea.I promise no food talk until you can eat. I am leaving for my cabin for 5 wks but my daughter is giving me her old laptop so I can stay connected. Get well soon. IPF 2/07 IL Scleroderma Sjogren's Raynauds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 I don't know how to put them in the album but here they are. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Tuesday, June 16, 2009 12:43 PM To: Breathe-Support Subject: Re: Sunny I don't see Sunny's pictures...I checked out the albums... Where are they Sunny? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Sunny I am glad you are feeling better. I loved the photo's,your yard is unique and the wall is a great idea.I promise no food talk until you can eat. I am leaving for my cabin for 5 wks but my daughter is giving me her old laptop so I can stay connected. Get well soon. IPF 2/07 IL Scleroderma Sjogren's Raynauds 3 of 3 Photo(s) 100_0746.JPG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 Thank you Kiki, a lot of people thought I was nuts to take on the wall project considering my health but I feel more alive today than I did the day I found this site. I am on page 50 of my fantasy novel and I tell everyone that will hold still all my stale but hilarious jokes. Glad you like my yard. It's keeping Rich up nights wondering what I will want to do next. Hee Hee Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Tuesday, June 16, 2009 12:43 PM To: Breathe-Support Subject: Re: Sunny I don't see Sunny's pictures...I checked out the albums... Where are they Sunny? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Sunny I am glad you are feeling better. I loved the photo's,your yard is unique and the wall is a great idea.I promise no food talk until you can eat. I am leaving for my cabin for 5 wks but my daughter is giving me her old laptop so I can stay connected. Get well soon. IPF 2/07 IL Scleroderma Sjogren's Raynauds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 Joyce, that's okay I got them good last time they did the test. The kept making me inhale sharply then exhale and keep exhaling. I told them I couldn't go on and they said just a couple more. Well the next deep inhale caused a coughing spasm that went on and on and sprayed blood all over the wall of their nice plexiglass booth. That should teach them. When we say no more we really mean NO MORE. The blood scared me and the Tech but the doc said it wasn't coming from my lungs and he turned out to be right. I have Barretts Disease and the coughing caused some of the tissue in my throat to come loose and start the bleeding. Unfortunately that is my latest bad news. GI doc says the Barretts is has gotten much worse. I went in because my throat started pealing last weekend. It was very gross! Now I will have to have another tube down my throat and another biopsy to see if it has changed to cancer. There is a procedure where they burn (I don't know with what) the intestinal lining out of your throat and supposedly healthy throat tissue grows back in it's place and it's Barretts no more. Since I just had the fundoplication surgery I am not in any hurry to undergo anything else for at least a few months but I guess I will decide that when the biopsy comes back. I have never had such a difficult recovery from any surgery and I have had a major surgery every year for five years. I have always bounced back but it is really getting me down how slow this recovery is. The terrible pain has finally subsided most of the time if I am careful how I move but when I saw the surgeon on Tuesday he put me on two more weeks of bed rest and full liquids. I am so tired of yogurt, pudding, ice cream and soft scambled eggs. I can't have any meat, bread, veggies, fruit etc... to 8 more weeks. But on the bright side I started out at 220 size 24W and now I am at 160 size 12 and still shrinking. Surgeon and doctor don't seem concerned about that massive a weight loss in 3 months but it is kind of scary watching you chest disappear! Now if only my big booty would do the same. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Joyce T Rosenberg Sent: Thursday, July 02, 2009 5:38 AM To: Breathe-Support Subject: Re: Sunny Sunny even though it's called pulmonary function test, i call it pulmonary function torture lol Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- On Wed, 7/1/09, rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com> wrote: From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: SunnyTo: Breathe-Support Date: Wednesday, July 1, 2009, 5:37 PM Absolutely had those several times in the last two years always on the decline. I just didn't know it was called PFT. I am actually supposed to have a full pulmonary workup as soon as I heal from surgery. I think it's senseless because I don't think a few months will show different but who knows. I just hate that plexiglass box and even though I used to scuba I hate that snorkel thing in my mouth and the pincher thing on my nose. Oh well, what can you do? Thanks for clearing that up. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Beth Sent: Wednesday, July 01, 2009 4:07 AM To: Breathe-Support@ yahoogroups. com Subject: Sunny Sunny, A "PFT" is a pulmonary function test. It is the test where you do several types of breathing into a machine that measures things like your lung volume, how deeply you can inhale, how well you exhale and how well O2 is diffused from your lungs into your bloodstream. I don't know whether you've ever had a pft but I would be surprised if you hadn't. Most people who have an ILD have a pft (whether a full or partial) at least once a year. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 1, 2009 1:55:20 AMSubject: Re: Raghu PFTs wrong! Beth, I am concerned because I have never heard my pulmo doc say "PFT". What is that? I know they always have weighed me before all my tests and ask me how tall I am. Am I missing something or did Pulmo doc? Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Beth Sent: Monday, June 29, 2009 11:37 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Raghu PFTs wrong! Sher, Yes, PFT results are configured based on our height, weight and sometimes even our hemoglobin. There is much that goes into getting the most accurate PFT results. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Monday, June 29, 2009 1:53:27 PMSubject: Re: Raghu PFTs wrong! Joy... now here's a new one for me...I didn't know the pfts were configured on how tall a person is. Something else to be aware of. Anyone else aware of this??? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Raghu PFTs wrong! My new pulmonary doc had me do pfts for her, and was disturbed by thedrastic change. Then she noticed that all my pfts with Dr. R werefigured on someone 1/2 my tallness. I am 5' 8", and they were figuredthere on someone 1/2 that size! So, all those PFTs are not even useful! - hi, glad to have you back. You and I talked on the phone yearsago, and we emailed too.Joy in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 Sunny...keep your chin up girl... this too shall pass. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Raghu PFTs wrong! My new pulmonary doc had me do pfts for her, and was disturbed by thedrastic change. Then she noticed that all my pfts with Dr. R werefigured on someone 1/2 my tallness. I am 5' 8", and they were figuredthere on someone 1/2 that size! So, all those PFTs are not even useful! - hi, glad to have you back. You and I talked on the phone yearsago, and we emailed too.Joy in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2009 Report Share Posted July 3, 2009 Dear Sunny, I've only done the PFT once. The respiratory tech was the real performer. He went through all these exaggerated instructions so I would inhale and exhale just right. Advanced as medicine is it's amazing how barbaric it is.As simple as it seems, all we can do is plug along, one day at a day, hoping for the best.I'm thankful for this board. I tell my husband some stuff, other stuff I keep to myself or tell the people on this board. I'm learning how to handle this disease as I go along. I'm trying not to get depressed. One day is so different from the next. I feel good one day, lousy the next. I've got to look at the good in things. I have sugar pea pods in the garden ready to be picked. I'm thankful.PJ Raghu PFTs wrong! My new pulmonary doc had me do pfts for her, and was disturbed by thedrastic change. Then she noticed that all my pfts with Dr. R werefigured on someone 1/2 my tallness. I am 5' 8", and they were figuredthere on someone 1/2 that size! So, all those PFTs are not even useful! - hi, glad to have you back. You and I talked on the phone yearsago, and we emailed too.Joy in Seattle Quote Link to comment Share on other sites More sharing options...
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