Some Answers to Questions...and some questions...

[Guest guest]

Hi -

This is Joan in California, responding to some of (I think) Barbara's questions.

I've been told to be cautious using oils/salves/etc. in your nostrils as it can

be inhaled and get into your lungs, causing you a lot of trouble. However, I've

also been told that to use a prescribed/recommended medication is O.K. I use an

herbal oil, just dip a Q-tip in a bit, press it agains the edge of the bottle to

remove as much as possible, then swirl the Q-tip in both of my nostrils. This

helps avoid the sores that I get from the cannula rubbing my 'tender' nostrils.

I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been able

to get my supplier to buy them yet, so I purchase them myself, and consider them

well worth the cost)...it is soft and doesn't leave marks on my face, irritate

my nostrils, and is less likely to twist. You can order them in various lengths

and also can get the longer tubes to be able to go to another room.

QUESTION: I've started coughing up some little specks of blood with my morning

gunk...have others had this? What does it mean? I'm going to do some research

to see what I can find. Also, Monday AM, I'm to have a couple of angiograms

(one of both sides of my heart; the other of both lungs) to try to see what is

causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm continuous since

April and am extremely tired...but what's new, nu?).

Warm wishes from sunny northern California...

Joan

71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07, cataracts

07, cont. O2 5-6lpm

" life is not about waiting for the storm to pass....it's about learning to

dance in the rain "

[Guest guest]

Joan I highly recommend you call and let your Dr. know about the blood. Ya never know. My Dr. asks about that but I have never had that.Do you know you can trim the ends of the nose piece on your cannula and it helps so much. I agree about the softhose. well worth the expense.Take Care of you. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Hi - This is Joan in California, responding to some of (I think) Barbara's questions. I've been told to be cautious using oils/salves/etc. in your nostrils as it can be inhaled and get into your lungs, causing you a lot of trouble. However, I've also been told that to use a prescribed/recommended medication is O.K. I use an herbal oil, just dip a Q-tip in a bit, press it agains the edge of the bottle to remove as much as possible, then swirl the Q-tip in both of my nostrils. This helps avoid the sores that I get from the cannula rubbing my 'tender' nostrils. I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been able to get my supplier to buy them yet, so I purchase them myself, and consider them well worth the cost)...it is soft and doesn't leave marks on my face, irritate my nostrils, and is less likely to twist. You can order them in various lengths and also can get the longer tubes to be able to go to another room. QUESTION: I've started coughing up some little specks of blood with my morning gunk...have others had this? What does it mean? I'm going to do some research to see what I can find. Also, Monday AM, I'm to have a couple of angiograms (one of both sides of my heart; the other of both lungs) to try to see what is causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm continuous since April and am extremely tired...but what's new, nu?). Warm wishes from sunny northern California... Joan 71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07, cataracts 07, cont. O2 5-6lpm "life is not about waiting for the storm to pass....it's about learning to dance in the rain"

[Guest guest]

Joan

Coughing up blood in our conditions (maybe anyone's) is to me a matter

of immediate and urgent concern. I'd get to a doctor or ER quickly. It

may be minor but if its not then waiting is too dangerous. Last person

who we had on this board with that symptom waited too long. Please get

medical attention now. There can be no finer outcome than to be told

it's nothing and you overreacted. We just can't take chances.

>

>

> Hi -

> This is Joan in California, responding to some of (I think) Barbara's

questions.

>

> I've been told to be cautious using oils/salves/etc. in your nostrils

as it can be inhaled and get into your lungs, causing you a lot of

trouble. However, I've also been told that to use a

prescribed/recommended medication is O.K. I use an herbal oil, just dip

a Q-tip in a bit, press it agains the edge of the bottle to remove as

much as possible, then swirl the Q-tip in both of my nostrils. This

helps avoid the sores that I get from the cannula rubbing my 'tender'

nostrils.

>

> I've also found 'SoftHose.com' who carry a marvelous cannula (haven't

been able to get my supplier to buy them yet, so I purchase them myself,

and consider them well worth the cost)...it is soft and doesn't leave

marks on my face, irritate my nostrils, and is less likely to twist.

You can order them in various lengths and also can get the longer tubes

to be able to go to another room.

>

> QUESTION: I've started coughing up some little specks of blood with

my morning gunk...have others had this? What does it mean? I'm going

to do some research to see what I can find. Also, Monday AM, I'm to

have a couple of angiograms (one of both sides of my heart; the other of

both lungs) to try to see what is causing my 'rapid decline' (went from

2lpm pulsed to 5-6lpm continuous since April and am extremely

tired...but what's new, nu?).

>

> Warm wishes from sunny northern California...

>

> Joan

> 71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07,

cataracts 07, cont. O2 5-6lpm

>

> " life is not about waiting for the storm to pass....it's about

learning to dance in the rain "

>

[Guest guest]

Joan,

From experience...Don't waist anytime researching. Get to the DR. ASAP!!!

Coughing is never a good sign and can easily be the sign of and lead to

dangerous infections!

Please don't put this off any longer

33 FL

IPF dx 1/06

>

>

> Hi -

> This is Joan in California, responding to some of (I think) Barbara's

questions.

>

> I've been told to be cautious using oils/salves/etc. in your nostrils as it

can be inhaled and get into your lungs, causing you a lot of trouble. However,

I've also been told that to use a prescribed/recommended medication is O.K. I

use an herbal oil, just dip a Q-tip in a bit, press it agains the edge of the

bottle to remove as much as possible, then swirl the Q-tip in both of my

nostrils. This helps avoid the sores that I get from the cannula rubbing my

'tender' nostrils.

>

> I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been

able to get my supplier to buy them yet, so I purchase them myself, and consider

them well worth the cost)...it is soft and doesn't leave marks on my face,

irritate my nostrils, and is less likely to twist. You can order them in

various lengths and also can get the longer tubes to be able to go to another

room.

>

> QUESTION: I've started coughing up some little specks of blood with my

morning gunk...have others had this? What does it mean? I'm going to do some

research to see what I can find. Also, Monday AM, I'm to have a couple of

angiograms (one of both sides of my heart; the other of both lungs) to try to

see what is causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm

continuous since April and am extremely tired...but what's new, nu?).

>

> Warm wishes from sunny northern California...

>

> Joan

> 71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07, cataracts

07, cont. O2 5-6lpm

>

> " life is not about waiting for the storm to pass....it's about learning to

dance in the rain "

>

[Guest guest]

Hi Joan,I'm new to the group--haven't even introduced myself yet. Thanks for the info for softhose.com. Concerning the blood you're coughing up, you should see a doctor immediately if you haven't already. Also, you might want to have some blood work done to make sure you aren't anemic. Last year my condition decreased dramatically and I attributed it to the progression of my IPF. Turns out I was very anemic and had a blood transfusion--it was like a miracle how good I felt immediately after. I had no idea that anemia can contribute to shortness of breath, weakness and fatigue. I'm hoping that you've gotten some answers since your post was dated in early July.Take care,Janie, 55, WI, diag IPF 10/04Subject: Some Answers to Questions...and some questions...To: Breathe-Support Date: Thursday, July 9, 2009, 9:34 PM

Hi -

This is Joan in California, responding to some of (I think) Barbara's questions.

I've been told to be cautious using oils/salves/ etc. in your nostrils as it can be inhaled and get into your lungs, causing you a lot of trouble. However, I've also been told that to use a prescribed/recommen ded medication is O.K. I use an herbal oil, just dip a Q-tip in a bit, press it agains the edge of the bottle to remove as much as possible, then swirl the Q-tip in both of my nostrils. This helps avoid the sores that I get from the cannula rubbing my 'tender' nostrils.

I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been able to get my supplier to buy them yet, so I purchase them myself, and consider them well worth the cost)...it is soft and doesn't leave marks on my face, irritate my nostrils, and is less likely to twist. You can order them in various lengths and also can get the longer tubes to be able to go to another room.

QUESTION: I've started coughing up some little specks of blood with my morning gunk...have others had this? What does it mean? I'm going to do some research to see what I can find. Also, Monday AM, I'm to have a couple of angiograms (one of both sides of my heart; the other of both lungs) to try to see what is causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm continuous since April and am extremely tired...but what's new, nu?).

Warm wishes from sunny northern California.. .

Joan

71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07, cataracts 07, cont. O2 5-6lpm

"life is not about waiting for the storm to pass....it's about learning to dance in the rain"

[Guest guest]

Hi Janie

Since I was born in WI I have to ask, where are you in WI. I lived in North

Prairie and Oconomowoc both towns are about 35 miles west of Milwaukee. Now I

live in Phoenix and since its been the 60's by you you know why I live here--no

mosquitos ha hahhaaahhhaaaaa! Welcome to the group, glad your here, sorry you

had to find us.

Dyane Phoenix, IPF 02

- In Breathe-Support , Jane Roush wrote:

>

> Hi Joan,

> I'm new to the group--haven't even introduced myself yet.  Thanks for the info

for softhose.com.  Concerning the blood you're coughing up, you should see a

doctor immediately if you haven't already.  Also, you might want to have some

blood work done to make sure you aren't anemic.  Last year my condition

decreased dramatically and I attributed it to the progression of my IPF.  Turns

out I was very anemic and had a blood transfusion--it was like a miracle how

good I felt immediately after.  I had no idea that anemia can contribute to

shortness of breath, weakness and fatigue.  I'm hoping that you've gotten some

answers since your post was dated in early July.

>

> Take care,

> Janie, 55, WI,  diag IPF 10/04

>

>

>

>

>

>

> Subject: Some Answers to Questions...and some questions....

> To: Breathe-Support

> Date: Thursday, July 9, 2009, 9:34 PM

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> Hi -

>

> This is Joan in California, responding to some of (I think) Barbara's

questions.

>

>

>

> I've been told to be cautious using oils/salves/ etc. in your nostrils as it

can be inhaled and get into your lungs, causing you a lot of trouble. However,

I've also been told that to use a prescribed/recommen ded medication is O.K. I

use an herbal oil, just dip a Q-tip in a bit, press it agains the edge of the

bottle to remove as much as possible, then swirl the Q-tip in both of my

nostrils. This helps avoid the sores that I get from the cannula rubbing my

'tender' nostrils.

>

>

>

> I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been

able to get my supplier to buy them yet, so I purchase them myself, and consider

them well worth the cost)...it is soft and doesn't leave marks on my face,

irritate my nostrils, and is less likely to twist. You can order them in

various lengths and also can get the longer tubes to be able to go to another

room.

>

>

>

> QUESTION: I've started coughing up some little specks of blood with my

morning gunk...have others had this? What does it mean? I'm going to do some

research to see what I can find. Also, Monday AM, I'm to have a couple of

angiograms (one of both sides of my heart; the other of both lungs) to try to

see what is causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm

continuous since April and am extremely tired...but what's new, nu?).

>

>

>

> Warm wishes from sunny northern California.. .

>

>

>

> Joan

>

> 71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07, cataracts

07, cont. O2 5-6lpm

>

>

>

> " life is not about waiting for the storm to pass....it's about learning to

dance in the rain "

>

[Guest guest]

Hi Dyane,We live in northwestern WI in the Hayward area. Stone Lake is the name of our town. It's been a crazy summer here--one week it's sunny and 80 and the next, cloudy and 60. We haven't had a lot of rain so luckily, very few mosquitoes this year. How long have you lived in AZ?How did your angiograms go?Janie (55; IPF 10/04; WI)Every day and in every way, I'm getting better and better.

>

> From: Joan Masters <racheljm@.. .>

> Subject: Some Answers to Questions... and some questions... .

> To: Breathe-Support@ yahoogroups. com

> Date: Thursday, July 9, 2009, 9:34 PM

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> Hi -

>

> This is Joan in California, responding to some of (I think) Barbara's questions.

>

>

>

> I've been told to be cautious using oils/salves/ etc. in your nostrils as it can be inhaled and get into your lungs, causing you a lot of trouble. However, I've also been told that to use a prescribed/recommen ded medication is O.K. I use an herbal oil, just dip a Q-tip in a bit, press it agains the edge of the bottle to remove as much as possible, then swirl the Q-tip in both of my nostrils. This helps avoid the sores that I get from the cannula rubbing my 'tender' nostrils.

>

>

>

> I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been able to get my supplier to buy them yet, so I purchase them myself, and consider them well worth the cost)...it is soft and doesn't leave marks on my face, irritate my nostrils, and is less likely to twist. You can order them in various lengths and also can get the longer tubes to be able to go to another room.

>

>

>

> QUESTION: I've started coughing up some little specks of blood with my morning gunk...have others had this? What does it mean? I'm going to do some research to see what I can find. Also, Monday AM, I'm to have a couple of angiograms (one of both sides of my heart; the other of both lungs) to try to see what is causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm continuous since April and am extremely tired...but what's new, nu?).

>

>

>

> Warm wishes from sunny northern California.. .

>

>

>

> Joan

>

> 71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07, cataracts 07, cont. O2 5-6lpm

>

>

>

> "life is not about waiting for the storm to pass....it's about learning to dance in the rain"

>

[Guest guest]

Hi Janie, If you have any Simonis's around they may be relatives of mine. Been

in Phoenix since 1980 with 5 years back in Oconomowoc from 1992-1997 then back

to Phoenix. My ex was in the Air Force and we came here and loved it. I still

love the heat, and the winters can not be beat. My angiogram went great, my

heart doctor said the problem that showed up was from my stomach pressing on my

lower heart because I was breathing so hard. No more treadmills for me! He

actually said the good news was I would live a long time with my heart and the

bad news was I would live a long time with my heart and those lungs HA HA It

was kind of funny. I have a sister who rides her Harley up by you so when you

see a blonde on a blue harley think of me LOL

Dyane Phoenix IPF 02

>

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> > From: Joan Masters <racheljm@ .>

>

> > Subject: Some Answers to Questions... and some

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> > To: Breathe-Support@ yahoogroups. com

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> > Date: Thursday, July 9, 2009, 9:34 PM

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> > This is Joan in California, responding to some of (I think) Barbara's

questions.

>

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>

> >

>

> >

>

> > I've been told to be cautious using oils/salves/ etc. in your nostrils as it

can be inhaled and get into your lungs, causing you a lot of trouble.. However,

I've also been told that to use a prescribed/recommen ded medication is O.K. I

use an herbal oil, just dip a Q-tip in a bit, press it agains the edge of the

bottle to remove as much as possible, then swirl the Q-tip in both of my

nostrils. This helps avoid the sores that I get from the cannula rubbing my

'tender' nostrils.

>

> >

>

> >

>

> >

>

> > I've also found 'SoftHose.com' who carry a marvelous cannula (haven't been

able to get my supplier to buy them yet, so I purchase them myself, and consider

them well worth the cost)...it is soft and doesn't leave marks on my face,

irritate my nostrils, and is less likely to twist. You can order them in

various lengths and also can get the longer tubes to be able to go to another

room.

>

> >

>

> >

>

> >

>

> > QUESTION: I've started coughing up some little specks of blood with my

morning gunk...have others had this? What does it mean? I'm going to do some

research to see what I can find. Also, Monday AM, I'm to have a couple of

angiograms (one of both sides of my heart; the other of both lungs) to try to

see what is causing my 'rapid decline' (went from 2lpm pulsed to 5-6lpm

continuous since April and am extremely tired...but what's new, nu?)..

>

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> > Warm wishes from sunny northern California.. .

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> > Joan

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> > 71, diag pf 4/08, diab2/97, CKD3/95, osteoporosis 6/08, glaucoma 07,

cataracts 07, cont. O2 5-6lpm

>

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> > " life is not about waiting for the storm to pass....it's about learning to

dance in the rain "

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